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Ursula

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Hi Ursula,

Thanks for the note. While there are many choices of treatment for

Leukocytoclastic Vasculitis, our PED rheumatologist has seen the greatest

success with Methotrexate. I have heard of Remicade, but have not heard that

they use it for vasculitis. To answer your question, Mark's dose is

considered high for a rheumatic disease. Most adults with RA get about 15

mg, Mark is on 30mg, as vasculitis can be very serious and can be fatal.

Therefore, Mark has to get a CBC, liver tests and other blood tests every 21

days while he is on the Meth.

They see him in clinic every 3 months and we stay in touch with a nurse

during the in between times...they follow him closely in other words.

Thanks for you thoughts,

Autumn (Mom to Mark Cd5-Cd19 PID and )

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