Hello from Kristie

[Guest guest]

Hi Everyone. My name is Kristie and I have a son that will be 7 in August

and a 19 month old son. Jake, the 6 yr old has an IGG deficiency. It started

out a chronic ear infections, constant colds, or so I thougth and severe

sinus infections. He's on his second set of tubes(permanent) and has

pediatric sinus diease and had surgery to help with that 2 yrs ago. After

switching pediatricians and the help of an ENT and allergy doctor, we seem

to be on the right track,I hope. Just to give you guys some history, Jake

stayed sick all the time it seemed. He wasn't allergic to anything, but kept

a runny nose(clear, yellow, green), coughed, and chronic ear infections.

X-ray's showed no asthma, skin test revealed nothing, so we did CT scans and

blood work. Ct showed pediatric sinus disease and mastoid infection, blood

work showed low Igg (450 @2.5 yrs). We gave him a pneumovax shot and he

responded and that actually seemed to help for a while. 2 Yrs later we have

sinus surgery because antibotics didn't help. He's had ear infections for as

much as 3 months at a time. The allergy doc ordered a CF test, another chest

x-ray, and an AIDS test. All negative, thank God. Over the years is IGG

level has dropped. Its at 293 now. About 2 yrs ago he and my younger son

developed RSV. Jake was suppossed to be too old to catch it. Now both of

them suffer from Asthma. I believe that Jake may have had it longer because

the radiologist that read his x-ray said that he had a lot of scar tissue; I

ask why this would occur and she said that chronic asmatic's have this. So I

wonder now. Anyway..his asthma, allergy and immunology doc has done all he

knows to do. His Igg continues to drop and he didn't respond to a second

pneumovax shot. We have an appointment at NC Baptist Hospital August 8th to

see if he needs IVIG therpay. Jake's IGM is also some what low. I'm not sure

what this does. We have also been to Duke back when they noticed the low

levels but Dr. Buckley told me that JAke would grow out of this. I haven't

taken him back because it wasa horrible experience. They screened him for

any possible cancers because his WBC's are deformed. They also tested him

for immotile cilia syndrome and many other things that I can't pronouce. I

know Duke is suppossed to be the best but his doctor has recommended this

and my husband and I have talked about taking him back to Duke if we're

uncomfortable with what we're told.

This is all very knew to me and I'm trying to learn as much as possible.

I've read the posts from the last 2 days and you're all so very kind to each

other...much like a family. Do you guys have any pointers for me on this

visit? What do I ask?? You all see very knowledgeable and I'd very much

appreciate your comments!!!

Thanks and I look forward to hearing from you!!

Kristie

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