Re: Interesting Kidney Info

[Guest guest]

, Hold your ground about trying another brand. Your immuno will support

you if you are insistent. No one ones a law suit. BARBIE

[Guest guest]

, Hold your ground about trying another brand. Your immuno will support

you if you are insistent. No one ones a law suit. BARBIE

[Guest guest]

Thank you Barbie! I'm going to do all I can to try to get Gammagard since

it's one of the more pure ones. Maybe with this article I found, I'll get

somewhere.

, mother of Chad, age 9, " Hypo " , GERD, Asthma/Bronchitis, " Allergy

King " , Scoliosis, ??IGA Nephropathy and Anemia

Re: Interesting Kidney Info

> , Hold your ground about trying another brand. Your immuno will

support

> you if you are insistent. No one ones a law suit. BARBIE

>

>

>

[Guest guest]

Thank you Barbie! I'm going to do all I can to try to get Gammagard since

it's one of the more pure ones. Maybe with this article I found, I'll get

somewhere.

, mother of Chad, age 9, " Hypo " , GERD, Asthma/Bronchitis, " Allergy

King " , Scoliosis, ??IGA Nephropathy and Anemia

Re: Interesting Kidney Info

> , Hold your ground about trying another brand. Your immuno will

support

> you if you are insistent. No one ones a law suit. BARBIE

>

>

>

[Guest guest]

Yes I am a Pediatric/ NICU nurse. I also have a degree in Biochemistry and

had planned to be a Pediatrician. But due to my own health problems and

desire to have children chose not to. I own a Home Health Agency. But I am

mostly a mom who is learning something new every day and has the same worries

as each of you. I love to share what little knowledge I have but it seems

that many of you are even better read than I am. BARBIE Lucas, PID,

???? PID

[Guest guest]

Thank you Barbie. Chad never had any problems with Gammagard either. It

was the first product he ever had. We got it for years, but when the

shortage started, everything was thrown our way and the hospital pharmacist

says that he can't control what he can get in. I'm going to see if he can

get Chad in on the program that I've seen on the IDF website where they can

help you get specific products. I don't know if this applies only to

patients who are infused at home, but it's sure worth a shot. I've been

guessing that you are a nurse or that you work in the medical field in some

capactity. Which is it, lol?

Re: Interesting Kidney Info

> In a message dated 3/24/2001 1:19:09 PM Eastern Standard Time,

> crookfamily@... writes:

>

>

> > Thank you Barbie! I'm going to do all I can to try to get Gammagard

since

> > it's one of the more pure ones. Maybe with this article I found, I'll

get

> > somewhere.

> >

> >

>

> Kody receives Gammagard and he has never had any trouble with it. So far,

it

> is the only brand he has gotten. Good luck to you!

>

> Diane, Mom to Kody age 5, IgG sub. class def., epilepsy,asthma,GERD, sinus

> disease and , age 15, age 14, Arika age 13, Kaila age 9, and

> age 7...all healthy!

>

>

>

[Guest guest]

Thank you Barbie. Chad never had any problems with Gammagard either. It

was the first product he ever had. We got it for years, but when the

shortage started, everything was thrown our way and the hospital pharmacist

says that he can't control what he can get in. I'm going to see if he can

get Chad in on the program that I've seen on the IDF website where they can

help you get specific products. I don't know if this applies only to

patients who are infused at home, but it's sure worth a shot. I've been

guessing that you are a nurse or that you work in the medical field in some

capactity. Which is it, lol?

Re: Interesting Kidney Info

> In a message dated 3/24/2001 1:19:09 PM Eastern Standard Time,

> crookfamily@... writes:

>

>

> > Thank you Barbie! I'm going to do all I can to try to get Gammagard

since

> > it's one of the more pure ones. Maybe with this article I found, I'll

get

> > somewhere.

> >

> >

>

> Kody receives Gammagard and he has never had any trouble with it. So far,

it

> is the only brand he has gotten. Good luck to you!

>

> Diane, Mom to Kody age 5, IgG sub. class def., epilepsy,asthma,GERD, sinus

> disease and , age 15, age 14, Arika age 13, Kaila age 9, and

> age 7...all healthy!

>

>

>

[Guest guest]

Kudos to you for accomplishing all you have, Barbie!! I KNEW you had

medical training because all of your posts are so consistent with everything

I've learned from medical staff all these years. It's an added plus for all

of us PID mothers to have your knowledge from both ends of the spectrum.

I've been soaking up all the good info I've seen you share. That's one of

the greatest things about this group to me....we can all see all of the

posts and even though something may not apply to our individual cases right

then, we can learn about it and have it in store for future reference if

needed. It's so great to me to see all these mothers who care so much for

their children. I worked for DFCS and have seen the opposite end of that

too many times. With you being a nurse, I know you've seen it too, so I

guess in some ways, our children are lucky after all.

, mother of Chad, age 9, " Hypo " , GERD, Asthma/Bronchitis, " Allergy

King " , Scoliosis, ??IGA Nephropathy and Anemia

Re: Interesting Kidney Info

> Yes I am a Pediatric/ NICU nurse. I also have a degree in Biochemistry and

> had planned to be a Pediatrician. But due to my own health problems and

> desire to have children chose not to. I own a Home Health Agency. But I

am

> mostly a mom who is learning something new every day and has the same

worries

> as each of you. I love to share what little knowledge I have but it

seems

> that many of you are even better read than I am. BARBIE Lucas, PID,

> ???? PID

>

>

> This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the

sole responsibility of the poster and should not be taken as professional

advice.

>

>