Guest guest Posted September 24, 2001 Report Share Posted September 24, 2001 Dale - Floating poop can also mean mucus is there. Has she had a recent URI? It could be that her chest or sinuses are draining into her stomach and the mucus is coming out in her stools. Floating poop that stinks can mean malabsorption. Did she complain that there is an odor? Is the poop loose or formed (but just floating)? If loose and floating then there is also a cdiff or bacterial overgrowth problem to consider. Don't you just love the contents of our messages these days!!! Course after 10 oz of Mag Citrate on Sunday we've been floating in poop ever since. Ursula Holleman Macey's mom (6 yr. old with CVID, asthma, sinus disease, GERD, kidney reflux, Sensory Integration Disorder, Diabetes Insipidus) http://maceyh.home.att.net Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2001 Report Share Posted September 25, 2001 Hi Everyone! It's been a long time since I have written...sorry about that. I've been skimming through the postings though. Hope everyone is doing well. I have a question, and I could very easily have missed this topic if it has already been brought up, but has anyone been having trouble getting the IVIG's? My son now lives in Hawaii and is late for his IVIG. Part of it has been flown in, but not all of it. The nurses in charge of his IVIG's evidently want to wait to see if the rest will arrive in a few more days, but he is already late for his treatment. I'm starting to panic, needless to say. His muscles are beginning to hurt and of course he is very tired. I told him to contact his doctor there, but he said that it doesn't work that way...that the nurses contact the doctor if they feel there is a need. I'm totally confused. Any ideas? Thanks. Lee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2001 Report Share Posted September 25, 2001 Hi Everyone! It's been a long time since I have written...sorry about that. I've been skimming through the postings though. Hope everyone is doing well. I have a question, and I could very easily have missed this topic if it has already been brought up, but has anyone been having trouble getting the IVIG's? My son now lives in Hawaii and is late for his IVIG. Part of it has been flown in, but not all of it. The nurses in charge of his IVIG's evidently want to wait to see if the rest will arrive in a few more days, but he is already late for his treatment. I'm starting to panic, needless to say. His muscles are beginning to hurt and of course he is very tired. I told him to contact his doctor there, but he said that it doesn't work that way...that the nurses contact the doctor if they feel there is a need. I'm totally confused. Any ideas? Thanks. Lee Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2001 Report Share Posted September 28, 2001 from Beth, Mom to Wade,14, CVID,Asthma,Chronic Sinus Disease,GERD,etc.. Dale- Glad to " see " you back & posting more! Hope your back is mending & you are not loosing your sanity in the process Autumn - Sorry I " goofed up " the 2 lists the other day...I guess the steroids went to my brain via osmosis! Sorry to hear is battling another sinus infection. Please tell him we hope he feels better soon! How's Mark holding up? Please tell him we think of him often & pray for him every night(the rest of you guys,too!).Hugs to the boys from us! Diane - That's great news that you will be able to see Dr. Cunningham-Rundles so quickly! ope you have a safe & uneventful trip & please keep us posted. How is Kody feeling this week? I trust you got home the day I spoke with you as I didn't hear back from you. Hope he's " bouncing back " now. Please give " Batman " hugs from me! Ursula - How is Macey holding up after her injections? That sounded way too painful for me...Please tell Macey she's my hero(ine)! Hugs to her from us! It seems as though Fall/Winter has come early " germ wise " , judging from all the emails relaying viruses, sinus ifnections, croup,asthma flares & the like. Unfortunately, it didn't escape Wade either. He has been battling an asthma flare for over 10 days when it finally reared it's ugly head as a sinus infection (positive xray) & bronchitis. After a week on 40 mg. of prednisone a day, plus breathing treatments every 3 hours, plus Omnicef, Wade developed pneumonia (his 3rd case in the last year). On Wednesday when the chest xray showed pneumonia & bloodwork reconfirmed an infection (sinus & chest), Wade got 2 Rocephin shots. We went back this morning for a re-check & he was slightly improved but not the marked improvement the ped wanted to see by today, so he got 2 more Rocephin shots. He is so fatigued & miserable that I wish I had a " magic wand " to wave & make it all better! and make those " prednisone " moods go away too:) Here's hoping tommorrow brings much needed sunshine, patience & all the pumpkins feeling MUCH better!! Love to all, Beth hi from Dale from Dale, MOm to Katy, CVID, ag17 watch about crushing and removing from capsules -- a lot of medicine is timed release so that it dissolves at certain times int he digestive cycle. If you disturb thaat it could dissolve int he esophagus and cause damage. Be SURE and check with doctor or pharmacist bfore crushing or opening capsules! in His service, dale This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 28, 2001 Report Share Posted September 28, 2001 from Beth, Mom to Wade,14, CVID,Asthma,Chronic Sinus Disease,GERD,etc.. Dale- Glad to " see " you back & posting more! Hope your back is mending & you are not loosing your sanity in the process Autumn - Sorry I " goofed up " the 2 lists the other day...I guess the steroids went to my brain via osmosis! Sorry to hear is battling another sinus infection. Please tell him we hope he feels better soon! How's Mark holding up? Please tell him we think of him often & pray for him every night(the rest of you guys,too!).Hugs to the boys from us! Diane - That's great news that you will be able to see Dr. Cunningham-Rundles so quickly! ope you have a safe & uneventful trip & please keep us posted. How is Kody feeling this week? I trust you got home the day I spoke with you as I didn't hear back from you. Hope he's " bouncing back " now. Please give " Batman " hugs from me! Ursula - How is Macey holding up after her injections? That sounded way too painful for me...Please tell Macey she's my hero(ine)! Hugs to her from us! It seems as though Fall/Winter has come early " germ wise " , judging from all the emails relaying viruses, sinus ifnections, croup,asthma flares & the like. Unfortunately, it didn't escape Wade either. He has been battling an asthma flare for over 10 days when it finally reared it's ugly head as a sinus infection (positive xray) & bronchitis. After a week on 40 mg. of prednisone a day, plus breathing treatments every 3 hours, plus Omnicef, Wade developed pneumonia (his 3rd case in the last year). On Wednesday when the chest xray showed pneumonia & bloodwork reconfirmed an infection (sinus & chest), Wade got 2 Rocephin shots. We went back this morning for a re-check & he was slightly improved but not the marked improvement the ped wanted to see by today, so he got 2 more Rocephin shots. He is so fatigued & miserable that I wish I had a " magic wand " to wave & make it all better! and make those " prednisone " moods go away too:) Here's hoping tommorrow brings much needed sunshine, patience & all the pumpkins feeling MUCH better!! Love to all, Beth hi from Dale from Dale, MOm to Katy, CVID, ag17 watch about crushing and removing from capsules -- a lot of medicine is timed release so that it dissolves at certain times int he digestive cycle. If you disturb thaat it could dissolve int he esophagus and cause damage. Be SURE and check with doctor or pharmacist bfore crushing or opening capsules! in His service, dale This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2001 Report Share Posted October 1, 2001 Thank you Dale and Autumn for the advice about swallowing the capsules. The enzymes have a special coating (that are inside the capsule) so it is ok to open the capsule. That is how he has been taking them. However, it would help a lot if he could swallow the capsules now. They are pretty large. It might help to try putting the whole capsule in a spoon of pudding to see if it helped him to swallow. We will try practicing swallowing the candy. That is a super idea. He has to take these capsules with meals and snacks because he has malabsorption. With his gag reflex being strong he has had difficulty trying to swallow the capsules. Thanks again. Jan, mom to Ben age 13 and age 10 Dale Weatherford wrote: > from Dale, MOm to Katy, CVID, ag17 > > watch about crushing and removing from capsules -- a lot of medicine is > timed release so that it dissolves at certain times int he digestive > cycle. If you disturb thaat it could dissolve int he esophagus and > cause damage. Be SURE and check with doctor or pharmacist bfore > crushing or opening capsules! > in His service, > > dale > > > This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 1, 2001 Report Share Posted October 1, 2001 Thank you Dale and Autumn for the advice about swallowing the capsules. The enzymes have a special coating (that are inside the capsule) so it is ok to open the capsule. That is how he has been taking them. However, it would help a lot if he could swallow the capsules now. They are pretty large. It might help to try putting the whole capsule in a spoon of pudding to see if it helped him to swallow. We will try practicing swallowing the candy. That is a super idea. He has to take these capsules with meals and snacks because he has malabsorption. With his gag reflex being strong he has had difficulty trying to swallow the capsules. Thanks again. Jan, mom to Ben age 13 and age 10 Dale Weatherford wrote: > from Dale, MOm to Katy, CVID, ag17 > > watch about crushing and removing from capsules -- a lot of medicine is > timed release so that it dissolves at certain times int he digestive > cycle. If you disturb thaat it could dissolve int he esophagus and > cause damage. Be SURE and check with doctor or pharmacist bfore > crushing or opening capsules! > in His service, > > dale > > > This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2001 Report Share Posted October 26, 2001 Dale thanks for responding so quick. It was just a shock because she has been pretty well up until this past week but the numbers were drawn on the 10th. We were drawing them to see how well she would heal from her incision. I never expected them to be low like this. We had expected them to stay the same or even go up. Ursula Holleman Macey's mom (6 yr. old with CVID, asthma, sinus disease, GERD, kidney reflux, Sensory Integration Disorder, Diabetes Insipidus,colonic inertia) http://maceyh.home.att.net Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2001 Report Share Posted November 1, 2001 Hello Dale, My name is Sandi, I'm the mother of , age 8, recently diagnosed with PedPID, not specific yet. I believe that he inherited this disorder from me, as I had chronic ear nose and throat infections as a child. I have since grown out of them. My point is, and I do have one, that as an adult I have suffered from problems with my eyes. Sometimes they almost swell shut, they are almost always red with or without discharge. Two things to try (although I hope Katy's eye problems are over-with): Acular (a non-Prednisone eye drop) works wonders. Also: Many people without contacts actually develop the same bacteria as contact wearers. I believe this could be especially difficult for a child with PedPID. Also helpful is never touching the eyes. It seems to inflame them even more. My eye doctor has taught me to use different tissues for each eye, so as not to pass the virus or bacteria back and forth. Perfume (especially at events such as the Symphony) seems especially irritating, so I always carry my eyedrops. If you have any suggestions for me, I would welcome the advise. Have a great day! Sandi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 1, 2001 Report Share Posted November 1, 2001 Hello Dale, My name is Sandi, I'm the mother of , age 8, recently diagnosed with PedPID, not specific yet. I believe that he inherited this disorder from me, as I had chronic ear nose and throat infections as a child. I have since grown out of them. My point is, and I do have one, that as an adult I have suffered from problems with my eyes. Sometimes they almost swell shut, they are almost always red with or without discharge. Two things to try (although I hope Katy's eye problems are over-with): Acular (a non-Prednisone eye drop) works wonders. Also: Many people without contacts actually develop the same bacteria as contact wearers. I believe this could be especially difficult for a child with PedPID. Also helpful is never touching the eyes. It seems to inflame them even more. My eye doctor has taught me to use different tissues for each eye, so as not to pass the virus or bacteria back and forth. Perfume (especially at events such as the Symphony) seems especially irritating, so I always carry my eyedrops. If you have any suggestions for me, I would welcome the advise. Have a great day! Sandi Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2001 Report Share Posted November 9, 2001 Dale, Oh my dear friend...I have been in your shoes! I can tell you all the words to say & probably what NOT to say! But the BEST thing you can do....you're already doing...pray. I would also express both your & Katy's STRONG opposition to trialing off RIGHT NOW. This is probably a most important time school wise as Katy is basically in her senior year & this would not be a " good " time (if there ever is one) to get sick & be extra fatigued & behind in school work when things alreadt have to be completed on an earlier schedule in order to apply to colleges. I think that I would stand strong on the TIMING of her wanting the trial & perhaps suggest trialing off in the early summmer, allowing enough time to re-start before she leaves for college if necessary. I would also ask her to consult with some of the major CLINICAL IMMUNOLOGISTS not just allergist/immunologists, as they often have a quite different viewpoint. Doesn't it just burn you up that just when " all is well " clinically for awhile, that's when somebody invariably gets a " bug up thier butt " & wants to " trial off & see what happens " ? DUH...the reason " all is well " is BECAUSE she's getting IVIG!!! OK...now I'm done venting my frustrations FOR you! Take care my dear friend! Keep your chin up & keep praying! How's your back? Please give my love to your family & hugs to Katy! Love, Beth, Mom to Wade(CVID,Asthma,GERD,Chronic Sinus Disease,IVIG...) Hi from Dale from Dale, Mom to Katy, CVID, age 17 Okay. I will not panic. I will not panic. Katy's doctor just sent me the note that we all dread... " I think we should trial off IVIG -- I've been talking to some Allergist/Immunologists and they say .... " . So, I've sent her all my notes from the IDF convention and asked her to contact Dr. Lederman at s Hopkins and now I'll get on with my day and turn this all over to the Lord. Katy's doing so well. I think she deserves to just do her IVIG and not have to do blood sticks constantly and monitor everything. I think about poor and Wade and all they have been through. I thought with our diagnosis being so clear that this wouldn't come up. Okay. I'll get a grip. She's always listened to me and respected my opinion. It's not time to panic -- it's time to pray like crazy. Thanks for being there -- I know you know the feeling. Why do they have to experiement on MY kid!!!!! She's so happy and settled right now. YUCK!!! Okay. I'm done. Isn't it silly. I really had this picture in my mind that we were done with medical issues -- we would just do the IVIG every 28 days -- Katy would stay well -- and we would put " chronic illness " on to the back burner. She's been well for so long -- it's so nice. I rather like my world that way. Is this denial or what!!!! My prayers for all the moms and pumpkins out there. Thanks for listening. In His service, Dale This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2001 Report Share Posted November 9, 2001 Dale, Oh my dear friend...I have been in your shoes! I can tell you all the words to say & probably what NOT to say! But the BEST thing you can do....you're already doing...pray. I would also express both your & Katy's STRONG opposition to trialing off RIGHT NOW. This is probably a most important time school wise as Katy is basically in her senior year & this would not be a " good " time (if there ever is one) to get sick & be extra fatigued & behind in school work when things alreadt have to be completed on an earlier schedule in order to apply to colleges. I think that I would stand strong on the TIMING of her wanting the trial & perhaps suggest trialing off in the early summmer, allowing enough time to re-start before she leaves for college if necessary. I would also ask her to consult with some of the major CLINICAL IMMUNOLOGISTS not just allergist/immunologists, as they often have a quite different viewpoint. Doesn't it just burn you up that just when " all is well " clinically for awhile, that's when somebody invariably gets a " bug up thier butt " & wants to " trial off & see what happens " ? DUH...the reason " all is well " is BECAUSE she's getting IVIG!!! OK...now I'm done venting my frustrations FOR you! Take care my dear friend! Keep your chin up & keep praying! How's your back? Please give my love to your family & hugs to Katy! Love, Beth, Mom to Wade(CVID,Asthma,GERD,Chronic Sinus Disease,IVIG...) Hi from Dale from Dale, Mom to Katy, CVID, age 17 Okay. I will not panic. I will not panic. Katy's doctor just sent me the note that we all dread... " I think we should trial off IVIG -- I've been talking to some Allergist/Immunologists and they say .... " . So, I've sent her all my notes from the IDF convention and asked her to contact Dr. Lederman at s Hopkins and now I'll get on with my day and turn this all over to the Lord. Katy's doing so well. I think she deserves to just do her IVIG and not have to do blood sticks constantly and monitor everything. I think about poor and Wade and all they have been through. I thought with our diagnosis being so clear that this wouldn't come up. Okay. I'll get a grip. She's always listened to me and respected my opinion. It's not time to panic -- it's time to pray like crazy. Thanks for being there -- I know you know the feeling. Why do they have to experiement on MY kid!!!!! She's so happy and settled right now. YUCK!!! Okay. I'm done. Isn't it silly. I really had this picture in my mind that we were done with medical issues -- we would just do the IVIG every 28 days -- Katy would stay well -- and we would put " chronic illness " on to the back burner. She's been well for so long -- it's so nice. I rather like my world that way. Is this denial or what!!!! My prayers for all the moms and pumpkins out there. Thanks for listening. In His service, Dale This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2001 Report Share Posted November 9, 2001 Dale, Oh my dear friend...I have been in your shoes! I can tell you all the words to say & probably what NOT to say! But the BEST thing you can do....you're already doing...pray. I would also express both your & Katy's STRONG opposition to trialing off RIGHT NOW. This is probably a most important time school wise as Katy is basically in her senior year & this would not be a " good " time (if there ever is one) to get sick & be extra fatigued & behind in school work when things alreadt have to be completed on an earlier schedule in order to apply to colleges. I think that I would stand strong on the TIMING of her wanting the trial & perhaps suggest trialing off in the early summmer, allowing enough time to re-start before she leaves for college if necessary. I would also ask her to consult with some of the major CLINICAL IMMUNOLOGISTS not just allergist/immunologists, as they often have a quite different viewpoint. Doesn't it just burn you up that just when " all is well " clinically for awhile, that's when somebody invariably gets a " bug up thier butt " & wants to " trial off & see what happens " ? DUH...the reason " all is well " is BECAUSE she's getting IVIG!!! OK...now I'm done venting my frustrations FOR you! Take care my dear friend! Keep your chin up & keep praying! How's your back? Please give my love to your family & hugs to Katy! Love, Beth, Mom to Wade(CVID,Asthma,GERD,Chronic Sinus Disease,IVIG...) Hi from Dale from Dale, Mom to Katy, CVID, age 17 Okay. I will not panic. I will not panic. Katy's doctor just sent me the note that we all dread... " I think we should trial off IVIG -- I've been talking to some Allergist/Immunologists and they say .... " . So, I've sent her all my notes from the IDF convention and asked her to contact Dr. Lederman at s Hopkins and now I'll get on with my day and turn this all over to the Lord. Katy's doing so well. I think she deserves to just do her IVIG and not have to do blood sticks constantly and monitor everything. I think about poor and Wade and all they have been through. I thought with our diagnosis being so clear that this wouldn't come up. Okay. I'll get a grip. She's always listened to me and respected my opinion. It's not time to panic -- it's time to pray like crazy. Thanks for being there -- I know you know the feeling. Why do they have to experiement on MY kid!!!!! She's so happy and settled right now. YUCK!!! Okay. I'm done. Isn't it silly. I really had this picture in my mind that we were done with medical issues -- we would just do the IVIG every 28 days -- Katy would stay well -- and we would put " chronic illness " on to the back burner. She's been well for so long -- it's so nice. I rather like my world that way. Is this denial or what!!!! My prayers for all the moms and pumpkins out there. Thanks for listening. In His service, Dale This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2001 Report Share Posted November 11, 2001 Dale, Oh, no! Man.... the timing of this is really horrible, isn't it? IMO, this is the last thing she needs as she stands on the edge of independence -- leaving home soon, meeting so many new people, dealing with academics sometimes taught in styles she might not be very familiar with ((? just a guess, because of your individualized attention through long-term homeschooling), and starting to edge into adulthood. Hmmm... I am surprised they are thinking of trialing her off... much like , her response to IVIG has been so clear. I know that much of Katy's improvement was due to the dietary changes that helped her GI situation to settle down over the last few years, but her response to IVIG was also one of the most dramatic I've seen in any of the kids or adults in any of the groups I'm in. I have an elaborate theory of why trialing older people is often an exercise in futility -- infrequent reward for not infrequent potential loss.... but that will have to wait until I can spit it all out clearly (I started last night, and it's not going to make it into this particular message, if I wanted to get this message to you before Christmas! *grin*), but the basic distillation is that I think for someone of Katy's age (who showed her first PID symptoms after years of very good health), I don't think they're going to unexpectedly find out that all she needed was IVIG for a short while. I'm not saying you should never trial off... but as Beth said quite succinctly and quickly (while I was still revving up the old fingers to start spewing my silly theories!), I think the issue here is one of timing (and of the risk: reward ratio). If I remember your various posts correctly, you've said that Katy is a very different student than -- very bright, but not as much of a self-starter. I also know she's a fabulous person and SO social -- my guess is that no one has any concerns about her ability to blend into the social scene of college within mere moments of arriving. But college is enough to throw anyone for a loop, and that includes perfectly healthy people, who don't have to worry about what they eat, how much sleep they get, when and how they get their IVIG, and where the nearest toilet is (for when the cafeteria hid something in the food they didn't know they might annoy their GI system --- and believe me, cafeteria food in a college dorm is made up of a lot of " mystery " ingredients!). And I know she's been doing some college classes now, but adjusting to full time college work-loads (especially when she's had some degree of flexibility in her school schedule over the years -- because her teacher knows all about how she's feeling and knows when sleep and rest are more important!) can be an eye-opener. So, to have to pull all of that off, after a trial of IVIG caused a downward spiral (and before she's had a chance to establish herself with friends, support people, and administrators who can help work with and around her health issues, should they crop up), seems really dangerous. I had started a long and elaborate message on those kinds of safety nets (but that can wait, too!)... I will send all of these things later on, because I think knowing some of this is really beneficial (or at least, would have benefitted me, as I was getting ready for college!), and I know Katy's not the only older " pumpkin " from this list.... but again, just wanted to get all of this stuff out first, and deal with the rest of the details later. Anyway, given all of that, I was thinking.... if the doctors are absolutely adamant that they want Katy to trial off of IVIG, what about telling them you'll do it AFTER her first year of college, if she's still doing well. That would give her a chance to establish herself academically and socially, and give her a chance to scope out the resources available to her. She'd have a chance to find out whether the student health clinics can manage her care, and if not, get herself established with a local immunologist or other specialist (and get the doctors letters and such on file, should she need to avail herself of academic accomodations for her illness)..... and then, if things get bad off of IVIG, at least she will have already created a safety net, and she won't have to drastically reduce her course load, or worse, drop all of her courses and require a medical leave of absence. I hope that all of this will be for naught, and that they will come to their senses.... I'm not saying it's a bad idea to try to test her off of IVIG, but I think I'd fight to at the very least postpone it, based on where she is with her life, and how particularly right now, a large backslide could really be damaging to a lot of things she has going for her, and waiting for her, in the very near future! Let us know if we can help... though it sounds like you've already done all that you can by giving them the info from the IDF and raising your initial concerns to the docs. I hope that you're doing well, and that your back is healing.... it sounds like there's a lot of problems going on in there, too -- any relief from your PT/chiro/doctors' interventions? I really hope so!! Take care, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2001 Report Share Posted November 11, 2001 from Dale, Mom to Katy, CVID, age 17 Still waiting to hear back from Katy's pediatrician about her decision. I've told her we'll do whatever she thinks is best -- as long as she hears my and Katy's input. So -- I've sent her my input and just have to wait. Yes, my back is still just as bad as it was 17 weeks ago. I'm get cranky at times and frustrated -- but God has been good to give me caring friends who have cleaned my house, done my yard work and brought in occasionally good meals so and Katy don't go beserk on my quick meals. I've finally hired a teenage friend of Katy's to do some additional housework and hired another friend to do yardwork. And I'm learning to ignore dust and piles of clutter!!! Actually I always have -- now I just have a good excuse! My status is: I'm still pinching major nerves down my right leg, occasionally my left, I've still got a lot of pain in the tail bone area, and then higher at the waist level that go into complete spasms if I overdo -- so I don't -- or try not to. We're doing an epideural under x-ray on Thursday to put cortisone directly into the L4-L5 area. I'm just determined that this will be " it. " So, those of you who don't mind saying a prayer for Thursday -- I'd appreciate it! In His service, Dale Quote Link to comment Share on other sites More sharing options...
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