Guest guest Posted July 30, 2001 Report Share Posted July 30, 2001 Hi, My name is Gail, mother to Kinsey (9 year old CVID), IDF Volunteer. Kinsey was diagnosed in 1995 and receives IVIG every 4 weeks. I live in central Florida. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2001 Report Share Posted July 30, 2001 Hi, My name is Gail, mother to Kinsey (9 year old CVID), IDF Volunteer. Kinsey was diagnosed in 1995 and receives IVIG every 4 weeks. I live in central Florida. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2001 Report Share Posted July 30, 2001 In a message dated 7/30/01 6:48:50 PM Pacific Daylight Time, uahollem@... writes: > My name is BARBIE, wife to and mom to (11) and > Lucas (5). Lucas has Selective Antibody Deficiency, Hypogammaglobulinemia, > Dygammaglobulinemia, IgA deficient, Low IgM, High IgE, chronic sinusitis, > chronic ear infections, Asthma, Urticaria, Sensory Integration disfunction > and possibly CVID and was diagnosed in 97'. We live in Washington State. > WELCOME !! > I look forward to getting to know each of you. This support group is the > most wonderful group of people that I have had in my life. I look forward > to hearing from you everyday and could not stand it when we were down for 3 > days. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2001 Report Share Posted July 30, 2001 In a message dated 7/30/01 6:48:50 PM Pacific Daylight Time, uahollem@... writes: > My name is BARBIE, wife to and mom to (11) and > Lucas (5). Lucas has Selective Antibody Deficiency, Hypogammaglobulinemia, > Dygammaglobulinemia, IgA deficient, Low IgM, High IgE, chronic sinusitis, > chronic ear infections, Asthma, Urticaria, Sensory Integration disfunction > and possibly CVID and was diagnosed in 97'. We live in Washington State. > WELCOME !! > I look forward to getting to know each of you. This support group is the > most wonderful group of people that I have had in my life. I look forward > to hearing from you everyday and could not stand it when we were down for 3 > days. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2001 Report Share Posted July 30, 2001 Welcome to all the new members My son is 11 we are from Nothern Ca Hubby Dale married 16 years 13 and 8 all healthy 11, Selective Antibody Def., IVIG for 4 years, Syringomyelia 6 surgeries in two years before being diagnosed: 4 sinus, tonsil and adenoids removed, septic hip since IVIG 0 surgery needed! Trailing off IVIG 6/28/01 le Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2001 Report Share Posted July 30, 2001 Welcome to all the new members My son is 11 we are from Nothern Ca Hubby Dale married 16 years 13 and 8 all healthy 11, Selective Antibody Def., IVIG for 4 years, Syringomyelia 6 surgeries in two years before being diagnosed: 4 sinus, tonsil and adenoids removed, septic hip since IVIG 0 surgery needed! Trailing off IVIG 6/28/01 le Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2001 Report Share Posted July 30, 2001 Welcome to all the new members My son is 11 we are from Nothern Ca Hubby Dale married 16 years 13 and 8 all healthy 11, Selective Antibody Def., IVIG for 4 years, Syringomyelia 6 surgeries in two years before being diagnosed: 4 sinus, tonsil and adenoids removed, septic hip since IVIG 0 surgery needed! Trailing off IVIG 6/28/01 le Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2001 Report Share Posted July 30, 2001 My name is Wenoka. and I live in central Arkansas (anyone else from around here?) and have 3 children - AMY (almost 7), (4 1/2 - X-linked Hyper IgM Syndrome), and (8 months). was diagnosed at 17 months, May 1998 during a bout of meningel encephalitus and has been on IVIG treatments every four weeks since then. Since the IVIG treatments really kicked in we've mainly had to deal with chronic coughs (towards the end of the four weeks) and sinusitus (which sometimes feels like the plague). By the grace of God he has stayed relatively healthy and I'm thrilled to report that the last blood check they did - BEFORE the IVIG - came back with his IGG level over 500. Welcome to all the new members (I only found the group myself 1 1/2 months ago). There is a wealth of information and support to be found here. God bless, Wenoka Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2001 Report Share Posted July 30, 2001 My name is Wenoka. and I live in central Arkansas (anyone else from around here?) and have 3 children - AMY (almost 7), (4 1/2 - X-linked Hyper IgM Syndrome), and (8 months). was diagnosed at 17 months, May 1998 during a bout of meningel encephalitus and has been on IVIG treatments every four weeks since then. Since the IVIG treatments really kicked in we've mainly had to deal with chronic coughs (towards the end of the four weeks) and sinusitus (which sometimes feels like the plague). By the grace of God he has stayed relatively healthy and I'm thrilled to report that the last blood check they did - BEFORE the IVIG - came back with his IGG level over 500. Welcome to all the new members (I only found the group myself 1 1/2 months ago). There is a wealth of information and support to be found here. God bless, Wenoka Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 30, 2001 Report Share Posted July 30, 2001 My name is Wenoka. and I live in central Arkansas (anyone else from around here?) and have 3 children - AMY (almost 7), (4 1/2 - X-linked Hyper IgM Syndrome), and (8 months). was diagnosed at 17 months, May 1998 during a bout of meningel encephalitus and has been on IVIG treatments every four weeks since then. Since the IVIG treatments really kicked in we've mainly had to deal with chronic coughs (towards the end of the four weeks) and sinusitus (which sometimes feels like the plague). By the grace of God he has stayed relatively healthy and I'm thrilled to report that the last blood check they did - BEFORE the IVIG - came back with his IGG level over 500. Welcome to all the new members (I only found the group myself 1 1/2 months ago). There is a wealth of information and support to be found here. God bless, Wenoka Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 Hi. I'm Ginger, nurse at HMMC in Fort Worth, Texas, mom to Adam Mathers, age 6, diagnosed at age 1 with CVID, IgA def, IgG def, Chronic Sinusitis, Chronic RAD, amebic dysentery (last May), antibiotic resistant strep (last August), a rash that he's had for years that won't go away, depression and behavioral problems (in play therapy). He'll be starting 1st grade in 3 weeks (yeah!!!!!). Ursula and I met through another site and I've been on here with her since it was started. I do more lurking these days than anything. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 Hi. I'm Ginger, nurse at HMMC in Fort Worth, Texas, mom to Adam Mathers, age 6, diagnosed at age 1 with CVID, IgA def, IgG def, Chronic Sinusitis, Chronic RAD, amebic dysentery (last May), antibiotic resistant strep (last August), a rash that he's had for years that won't go away, depression and behavioral problems (in play therapy). He'll be starting 1st grade in 3 weeks (yeah!!!!!). Ursula and I met through another site and I've been on here with her since it was started. I do more lurking these days than anything. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 Hi. I'm Ginger, nurse at HMMC in Fort Worth, Texas, mom to Adam Mathers, age 6, diagnosed at age 1 with CVID, IgA def, IgG def, Chronic Sinusitis, Chronic RAD, amebic dysentery (last May), antibiotic resistant strep (last August), a rash that he's had for years that won't go away, depression and behavioral problems (in play therapy). He'll be starting 1st grade in 3 weeks (yeah!!!!!). Ursula and I met through another site and I've been on here with her since it was started. I do more lurking these days than anything. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 My name is . I have 3 kids. is my PEDPID kid. His diagnosis is hypogammaglobulinemia, dysgammaglobulinemia, and selective antibody deficiency. He is also a leukemia survivor. My other children are ,10, who has asthma and allergies and currently taking allergy shots and , 2, who also had allergies. We live with my husband of 11 years in ville, Florida. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 My name is . I have 3 kids. is my PEDPID kid. His diagnosis is hypogammaglobulinemia, dysgammaglobulinemia, and selective antibody deficiency. He is also a leukemia survivor. My other children are ,10, who has asthma and allergies and currently taking allergy shots and , 2, who also had allergies. We live with my husband of 11 years in ville, Florida. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 My name is . I have 3 kids. is my PEDPID kid. His diagnosis is hypogammaglobulinemia, dysgammaglobulinemia, and selective antibody deficiency. He is also a leukemia survivor. My other children are ,10, who has asthma and allergies and currently taking allergy shots and , 2, who also had allergies. We live with my husband of 11 years in ville, Florida. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 Hello All, My name is Belinda Rose. I have 2 children Allyssa who is a very healthy 9 year old. I also have a 6 year old, Cassandra (Cassie), who was diagnosed at 2 years with IGG Immunodeficiency. She also has chronic sinusitis and asthma. She has been receiving IVIG since then with 2 trials off to see if her immune system would kick in but, we were put back on and have been doing IVIG since. We live in Corpus Christi, TX where it is hot all the time. I welcome all the new members and am glad to see some members who we have not heard from in a while. This group has been such a wealth of knowledge and information. Thanks Ursula for such a wonderful job. Belinda Rose, Mom to Allyssa (9) and Cassie (6), igg immunodefficient, asthma, chronic sinusitis, IVIG Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 Hello All, My name is Belinda Rose. I have 2 children Allyssa who is a very healthy 9 year old. I also have a 6 year old, Cassandra (Cassie), who was diagnosed at 2 years with IGG Immunodeficiency. She also has chronic sinusitis and asthma. She has been receiving IVIG since then with 2 trials off to see if her immune system would kick in but, we were put back on and have been doing IVIG since. We live in Corpus Christi, TX where it is hot all the time. I welcome all the new members and am glad to see some members who we have not heard from in a while. This group has been such a wealth of knowledge and information. Thanks Ursula for such a wonderful job. Belinda Rose, Mom to Allyssa (9) and Cassie (6), igg immunodefficient, asthma, chronic sinusitis, IVIG Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 Hello All, My name is Belinda Rose. I have 2 children Allyssa who is a very healthy 9 year old. I also have a 6 year old, Cassandra (Cassie), who was diagnosed at 2 years with IGG Immunodeficiency. She also has chronic sinusitis and asthma. She has been receiving IVIG since then with 2 trials off to see if her immune system would kick in but, we were put back on and have been doing IVIG since. We live in Corpus Christi, TX where it is hot all the time. I welcome all the new members and am glad to see some members who we have not heard from in a while. This group has been such a wealth of knowledge and information. Thanks Ursula for such a wonderful job. Belinda Rose, Mom to Allyssa (9) and Cassie (6), igg immunodefficient, asthma, chronic sinusitis, IVIG Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 Hi my name is Lorri, wife to Larry andmom to (11) and Rebekah (13). has Hypogammaaglobulinemia. We live in Washington State. Welcome, I hope I can get to know you better Lorri Re: Re-introductions > > > This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 Hi my name is Lorri, wife to Larry andmom to (11) and Rebekah (13). has Hypogammaaglobulinemia. We live in Washington State. Welcome, I hope I can get to know you better Lorri Re: Re-introductions > > > This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 Hi my name is Lorri, wife to Larry andmom to (11) and Rebekah (13). has Hypogammaaglobulinemia. We live in Washington State. Welcome, I hope I can get to know you better Lorri Re: Re-introductions > > > This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 Hi I'm Kim (and since there seems to be more Kim's participating, you can call me Kim Ann). I joined the group about a month ago and can't say enough good things about everyone here. I have an 11yo daughter Lindsey who is happy, healthy and pretty much a typical pre-teen. My pumpkin Graham is 6mos and has Bruton's Agammaglobulinemia (I know it's a mouth full). Graham has been on IVIG since May and is doing very well. We are currently in " house arrest " , as we try to get his levels up to where they need to be. My hope is one day soon we will be able to go out in public as a family. My husband is Andy, he is very supportive and works very hard to ensure that I have as much time with the kids as needed for Dr visits, sick days, etc. We live in Indiana near the Ohio border and travel 1 1/2 hours each way for Graham's IVIG every 4 weeks. Welcome everyone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 Hi I'm Kim (and since there seems to be more Kim's participating, you can call me Kim Ann). I joined the group about a month ago and can't say enough good things about everyone here. I have an 11yo daughter Lindsey who is happy, healthy and pretty much a typical pre-teen. My pumpkin Graham is 6mos and has Bruton's Agammaglobulinemia (I know it's a mouth full). Graham has been on IVIG since May and is doing very well. We are currently in " house arrest " , as we try to get his levels up to where they need to be. My hope is one day soon we will be able to go out in public as a family. My husband is Andy, he is very supportive and works very hard to ensure that I have as much time with the kids as needed for Dr visits, sick days, etc. We live in Indiana near the Ohio border and travel 1 1/2 hours each way for Graham's IVIG every 4 weeks. Welcome everyone Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 Hi I'm Kim (and since there seems to be more Kim's participating, you can call me Kim Ann). I joined the group about a month ago and can't say enough good things about everyone here. I have an 11yo daughter Lindsey who is happy, healthy and pretty much a typical pre-teen. My pumpkin Graham is 6mos and has Bruton's Agammaglobulinemia (I know it's a mouth full). Graham has been on IVIG since May and is doing very well. We are currently in " house arrest " , as we try to get his levels up to where they need to be. My hope is one day soon we will be able to go out in public as a family. My husband is Andy, he is very supportive and works very hard to ensure that I have as much time with the kids as needed for Dr visits, sick days, etc. We live in Indiana near the Ohio border and travel 1 1/2 hours each way for Graham's IVIG every 4 weeks. Welcome everyone Quote Link to comment Share on other sites More sharing options...
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