Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 Hi, I am , my family and I live in Fort Worth, Texas. My son has IgG and T-cell deficiency and is on bactrim daily as a prophylactic. He also takes nasonex and zyrtec for his sinusitis. My husband is a wonderfully supportive father who goes to every doctor appointment and does everything he can to help at home. My prayers and good thoughts go out to all of you that are single moms or have fathers that don't help. has two half brothers (from his father) that are 13 and 15. I only have access to a computer at work and lately I have been reading, not writing. This group and the people in it are my sanity and sounding board. It has been a blessing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 Hi, I am , my family and I live in Fort Worth, Texas. My son has IgG and T-cell deficiency and is on bactrim daily as a prophylactic. He also takes nasonex and zyrtec for his sinusitis. My husband is a wonderfully supportive father who goes to every doctor appointment and does everything he can to help at home. My prayers and good thoughts go out to all of you that are single moms or have fathers that don't help. has two half brothers (from his father) that are 13 and 15. I only have access to a computer at work and lately I have been reading, not writing. This group and the people in it are my sanity and sounding board. It has been a blessing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 Hi, I am , my family and I live in Fort Worth, Texas. My son has IgG and T-cell deficiency and is on bactrim daily as a prophylactic. He also takes nasonex and zyrtec for his sinusitis. My husband is a wonderfully supportive father who goes to every doctor appointment and does everything he can to help at home. My prayers and good thoughts go out to all of you that are single moms or have fathers that don't help. has two half brothers (from his father) that are 13 and 15. I only have access to a computer at work and lately I have been reading, not writing. This group and the people in it are my sanity and sounding board. It has been a blessing. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 Grace(sahm) wife to Chris(pilot), mom to (13),(12), iel(8), Logan(4) & my PID child Zachary(2). ~MG & Zachary(5-7-99)Central and Obstructive Apnea,GERD,Sandifers Syndrome,Esophagitis,Asthma,Chronic Sinusitis,Angioedema,Urticaria,LaryngoMalicia,Epispadias,Deficiency in Total IgG, Deficiency in IgG subclass 1,2,3,4 High IgE, Latex Allergic, Multiple Antibiotic & Food Allergies, Chronic Diaherra and reoccurring C-diff & Thrush, Adenoidectomy(at 6wks),Epiglottoplasty(at3 1/2 mo), Tonsillectomy(at 17mo)Nasonex,Zyrtec, Reglan and Prilosec, Albuterol, Intal, (Prednisolone as needed) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 Grace(sahm) wife to Chris(pilot), mom to (13),(12), iel(8), Logan(4) & my PID child Zachary(2). ~MG & Zachary(5-7-99)Central and Obstructive Apnea,GERD,Sandifers Syndrome,Esophagitis,Asthma,Chronic Sinusitis,Angioedema,Urticaria,LaryngoMalicia,Epispadias,Deficiency in Total IgG, Deficiency in IgG subclass 1,2,3,4 High IgE, Latex Allergic, Multiple Antibiotic & Food Allergies, Chronic Diaherra and reoccurring C-diff & Thrush, Adenoidectomy(at 6wks),Epiglottoplasty(at3 1/2 mo), Tonsillectomy(at 17mo)Nasonex,Zyrtec, Reglan and Prilosec, Albuterol, Intal, (Prednisolone as needed) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 Grace(sahm) wife to Chris(pilot), mom to (13),(12), iel(8), Logan(4) & my PID child Zachary(2). ~MG & Zachary(5-7-99)Central and Obstructive Apnea,GERD,Sandifers Syndrome,Esophagitis,Asthma,Chronic Sinusitis,Angioedema,Urticaria,LaryngoMalicia,Epispadias,Deficiency in Total IgG, Deficiency in IgG subclass 1,2,3,4 High IgE, Latex Allergic, Multiple Antibiotic & Food Allergies, Chronic Diaherra and reoccurring C-diff & Thrush, Adenoidectomy(at 6wks),Epiglottoplasty(at3 1/2 mo), Tonsillectomy(at 17mo)Nasonex,Zyrtec, Reglan and Prilosec, Albuterol, Intal, (Prednisolone as needed) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 Wenoka - my sister and her husband live in Crossett. Ursula Holleman Macey's mom (6 yr. old with CVID, asthma, sinus disease, GERD, kidney reflux, Sensory Integration Disorder, Diabetes Insipidus) http://home.att.net/~maceyh/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 Wenoka - my sister and her husband live in Crossett. Ursula Holleman Macey's mom (6 yr. old with CVID, asthma, sinus disease, GERD, kidney reflux, Sensory Integration Disorder, Diabetes Insipidus) http://home.att.net/~maceyh/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 Hi. I'm Jan, mom to Ben and . We live in the TX Panhandle with my hard working husband. Ben, age 13, has a diagnosis of CVID and Shwachman's Syndrome. He takes IVIG every 4 weeks and does great with it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 Hi. I'm Jan, mom to Ben and . We live in the TX Panhandle with my hard working husband. Ben, age 13, has a diagnosis of CVID and Shwachman's Syndrome. He takes IVIG every 4 weeks and does great with it. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 31, 2001 Report Share Posted July 31, 2001 HELLO MY NAME IS CHARLOTTE MY SON COLTON HAS CVID AND WAS DIAG. AT A YEAR OLD. HES HAD A SEPTIC HIP, HIP SURGERY, OSTEOMYOLITIS, ASTHMA, CHRONIC EAR INFECIONS, SINUS INFECTIONS AND EXCEMA. WE LIVE IN BURLESON, TX. CHARLOTTE MOTHER OF BRANDON 15, JORDAN 11 AND COLTON {CVID} 2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2001 Report Share Posted August 1, 2001 My name is (sahm), my husband is Jeff. We live in Highland Park, a suburb of Chicago. Our daughter is 2-1/2, she was first diagnosed at 7 mo of age, though her diagnosis changes every time they do more tests. Right now we're looking at a complete IgA deficiency as well as trouble making antibodies to polysaccharides (encapsulated bacteria). But her IgG and IgM came up at the age of two (prev. were very low) so we're hopeful she will continue to improve. Previously she showed some minor T-cell defects but they forgot to re-test those this round, so who knows. She is not undergoing any course of treatment and picks up new illnesses every couple of weeks or so, so we're not feeling like she's doing that great clinically. She's very " high spirited " (read: high maintenance!) and I swear she's going to be a stunt woman when she grows up! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 1, 2001 Report Share Posted August 1, 2001 My name is (sahm), my husband is Jeff. We live in Highland Park, a suburb of Chicago. Our daughter is 2-1/2, she was first diagnosed at 7 mo of age, though her diagnosis changes every time they do more tests. Right now we're looking at a complete IgA deficiency as well as trouble making antibodies to polysaccharides (encapsulated bacteria). But her IgG and IgM came up at the age of two (prev. were very low) so we're hopeful she will continue to improve. Previously she showed some minor T-cell defects but they forgot to re-test those this round, so who knows. She is not undergoing any course of treatment and picks up new illnesses every couple of weeks or so, so we're not feeling like she's doing that great clinically. She's very " high spirited " (read: high maintenance!) and I swear she's going to be a stunt woman when she grows up! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 3, 2001 Report Share Posted August 3, 2001 Hi! My name is Kathy. My husband and I have three children ages 17, 15, and 9. Our 9 year old son was diagnosed with CVID at the age of 5. He receives IVIG every 21 days. We live in Minnesota, and I am the IDF program leader in our state. Welcome to PEDPID!! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2001 Report Share Posted August 5, 2001 My name is Hanrahan.My husband Mike and I live in Batavia, Illinois. We have three children, Kayla 8, 5 1/2, and 3 1/2. has CVID with hypogammaglobulinemia and antibody deficiency, chronic candida esophagistis, chronic ear infections,recurrent intestinal parasitesl and too many others to list! Started IVIG at 4 months, gets IVIG every three weeks at Lutheran General Hospital. Hello all! I only been a lurker since joining several months ago. My husband I did attend the IDF conference. I need some help from anyone who might have any input. has been very sick this past year- hospitalized 15 days in March w/ rotovirtus, illeus, atonic bladder, had ear infection draining thick pus and cultured out Pseudomonas June 19fth- IV antibiotics for 5 days, oral Ciprofloxacin 10 days. Finished atbx July 4th, another ear infection August 1st, cultured out Psudamonas aeruginosa again, on Ciprofloxacin again but not getting any better- still running 103 fever at night.and still draining thick pus. Tomorrow see immuno at Lutheran and possibly admitting him for IV Cefapime 3 times daily- anyone gone thru this before? Thanks for your help! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 5, 2001 Report Share Posted August 5, 2001 My name is Hanrahan.My husband Mike and I live in Batavia, Illinois. We have three children, Kayla 8, 5 1/2, and 3 1/2. has CVID with hypogammaglobulinemia and antibody deficiency, chronic candida esophagistis, chronic ear infections,recurrent intestinal parasitesl and too many others to list! Started IVIG at 4 months, gets IVIG every three weeks at Lutheran General Hospital. Hello all! I only been a lurker since joining several months ago. My husband I did attend the IDF conference. I need some help from anyone who might have any input. has been very sick this past year- hospitalized 15 days in March w/ rotovirtus, illeus, atonic bladder, had ear infection draining thick pus and cultured out Pseudomonas June 19fth- IV antibiotics for 5 days, oral Ciprofloxacin 10 days. Finished atbx July 4th, another ear infection August 1st, cultured out Psudamonas aeruginosa again, on Ciprofloxacin again but not getting any better- still running 103 fever at night.and still draining thick pus. Tomorrow see immuno at Lutheran and possibly admitting him for IV Cefapime 3 times daily- anyone gone thru this before? Thanks for your help! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2001 Report Share Posted August 9, 2001 My name is Destiny, wife to Lance, mom to Kyp (8.5), and Tucker (4.5), Tucker was diagnosed in early 2000. We were very fortunate in that his doctors caught on & tested his immune system quickly (compared to most). Other than almost constant sinus infections & bronchitis here & there he does very well. IVIG has made him a whole new little boy! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2001 Report Share Posted August 9, 2001 Welcome to all the new members! My name is Beth, wife to Art and mom to Wade, who is 14 years old, knows everything and can do no wrong. Wade has CVID and was diagnosed in 1996/97. We live in Michigan. At 01:43 AM 7/31/01 +0000, you wrote: >Recently there has been a surge in new members. For >that reason I thought it would be nice to reintroduce >ourselves and hopefully the idea will catch on. Just >hit " Reply " , delete my info and type in your own and >Send. > >My name is Ursula, wife to Les and mom to (8) and >Macey (6). Macey has CVID and was diagnosed in 97'. We >live in Georgia. more info at home.att.net/~maceyh > > > >This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2001 Report Share Posted August 9, 2001 Hello to all the new members. My name is Lorri, I have two daughters and a husband (Larry) Rebekah is 13 and is 11. has CVID and was diagnosed in 95. Subject: Re: Re-introductions > > At 01:43 AM 7/31/01 +0000, you wrote: > >Recently there has been a surge in new members. For > >that reason I thought it would be nice to reintroduce > >ourselves and hopefully the idea will catch on. Just > >hit " Reply " , delete my info and type in your own and > >Send. > > > >> >This forum is open to parents and caregivers of children diagnosed with a > Primary Immune Deficiency. Opinions or medical advice stated here are the > sole responsibility of the poster and should not be taken as professional > advice. > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 9, 2001 Report Share Posted August 9, 2001 Hello to all the new members. My name is Lorri, I have two daughters and a husband (Larry) Rebekah is 13 and is 11. has CVID and was diagnosed in 95. Subject: Re: Re-introductions > > At 01:43 AM 7/31/01 +0000, you wrote: > >Recently there has been a surge in new members. For > >that reason I thought it would be nice to reintroduce > >ourselves and hopefully the idea will catch on. Just > >hit " Reply " , delete my info and type in your own and > >Send. > > > >> >This forum is open to parents and caregivers of children diagnosed with a > Primary Immune Deficiency. Opinions or medical advice stated here are the > sole responsibility of the poster and should not be taken as professional > advice. > > > > Quote Link to comment Share on other sites More sharing options...
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