Guest guest Posted April 11, 2001 Report Share Posted April 11, 2001 Hi rebecca, sorry to hear about richard. I have no idea what the spots could be. This is all very new to me. The only thing I could guess is a virual infection. My oldest daughter, hayli, has gotten quite a few infections like that on her tonsils. Good luck! Traci Hayli & Sydni's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2001 Report Share Posted April 11, 2001 Hi rebecca, sorry to hear about richard. I have no idea what the spots could be. This is all very new to me. The only thing I could guess is a virual infection. My oldest daughter, hayli, has gotten quite a few infections like that on her tonsils. Good luck! Traci Hayli & Sydni's mom Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2001 Report Share Posted April 11, 2001 - I'm sorry to hear that is headed back to surgery but overjoyed at the news that his ultrasounds were negative. Hope you receive equally good news regarding the lab results. Ursula Holleman Macey's mom (5 yr. old with CVID, asthma, sinus disease, GERD, kidney reflux, Sensory Integration Disorder, Diabetes Insipidus) http://home.att.net/~maceyh/ http://www.pedpid.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 11, 2001 Report Share Posted April 11, 2001 - I'm sorry to hear that is headed back to surgery but overjoyed at the news that his ultrasounds were negative. Hope you receive equally good news regarding the lab results. Ursula Holleman Macey's mom (5 yr. old with CVID, asthma, sinus disease, GERD, kidney reflux, Sensory Integration Disorder, Diabetes Insipidus) http://home.att.net/~maceyh/ http://www.pedpid.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2001 Report Share Posted April 12, 2001 Barbie, Thankyou thankyou thankyou!!!!!! I'm off to do some research. Re: s u/sound results > , You may have found part of your problem. my 10 year old > had chronic abdominal pain with Fever of unknown origin for 18 months her > temp would be up 2-3 weeks of the month with temps as high as 106.4.. She was > also having chronic severe sinus infections and had two sinus surgeries and > losing weight. We could not figure out what was going on until she got > pyelonephritis and found that she had hydronephrosis and a duplicate renal > system ( three kidneys and 3 ureters) We had her on antx continuously but > because she was doing so poorly they decided to go ahead and repair her > ureters to clear up atleast part of her problems. > She did wonderfully. As a matter of fact she gained 10 lbs and grew 4 inches > in the next 6 months. Her fevers went away. She was getting fevers even > without an infection in her urine. They believe she was getting infections > in her kidney without showing up in her urine. Maybe....... a glimmer of > hope to help relieve some of his discomfort. She use to crawl on the floor > with a tummy ache but we could not figure out what it was. I felt so > helpless. The ped felt that she may have compromised her who system by > having the kidney problems. BARBIE Lucas 5,PID, ??? PID > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2001 Report Share Posted April 12, 2001 My experience it to keep and eye on her kidneys. s ureters (2 of the 3)were attached underneath the bottom of the bladder. They came down from the kidney and were twice as long as usual. has also had the chronic bowel problems that can increase the risk of repeat kidney reflux. As far as we know everthing has been repaired. We are very thankful that we had the surgery. BARBIE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 12, 2001 Report Share Posted April 12, 2001 My experience it to keep and eye on her kidneys. s ureters (2 of the 3)were attached underneath the bottom of the bladder. They came down from the kidney and were twice as long as usual. has also had the chronic bowel problems that can increase the risk of repeat kidney reflux. As far as we know everthing has been repaired. We are very thankful that we had the surgery. BARBIE Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2001 Report Share Posted April 13, 2001 Barbie - Macey is facing a possible bilateral reimplantation surgery of her ureters this December. She was diagnosed with kidney reflux 3 yrs ago and the urologist said if it didn't clear by this VCUG in December then he would possibly operate. My sister had the same condition and had to have a revision done when she was 16. Macey also has an enlarged bladder and bladder spasms. Was 's surgery a reimplantation? Ursula Holleman Macey's mom (5 yr. old with CVID, asthma, sinus disease, GERD, kidney reflux, Sensory Integration Disorder, Diabetes Insipidus) http://home.att.net/~maceyh/ Quote Link to comment Share on other sites More sharing options...
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