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Kim --

Our immuno is Dr. Prudence Krieger, the head of ped infectious diseases and

immunology at Lutheran General Hospital. She seems smart but she is extremely

practical and blunt.

I don't think I realized there was anyone on the list from this area -- where

do you live again?

Who do you see? Because if Dr. Krieger ticks me off again we might be looking

for a change!!!!!

Can I ask what 's history was like? You can post privately if you

think it will be too long for the group. I'm just eager for knowledge of

anyone who's been down a similar road. Did Jess start off with more deficits

and settle into her current (because they thought was " worse " off when

she was younger but she has seen nice improvement in her IgG)? Has she had

any life-threatening illnesses from polysaccharide antigens (and which ones)?

Has she ever had reactions to IVIG? Have I asked enough questions? :)

Thanks-

(mom to , age 2, polysaccharide antibody def, IgA def)

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  • 3 months later...

,

This meningitis thing has definitely got me in a panic. My neighbors

Neuro was concerned for us and Children's hospital was also. But I have to

say, I am worried about all of us. I took care of her daughter (not in my

house, in hers), I let her dog out and I did her dishes when she was in the

hospital. (I don't know what I was thinking, I guess I wasn't). As I said

previously, they are going to up his IVIG dose a bit for added protection.

He said I will be out of the woods three weeks from the last direct exposure

with Chris...that was last Friday. So for the next two weeks, the panic

state stays.

I guess over time, as I see how he responds to his IVIG and being back in

school, my panic level will change (hopefully). But as with any chronic

illness or problem with your child, it's your baby and we will all worry,

always.

Thanks to everyone for the support. I needed it.

Kim - Mom to Nick, (XLA?/CVID?) and

Re: Kim

> In a message dated 9/8/01 12:18:41 PM Central Daylight Time,

> knmb2@... writes:

> <<

> Maybe it gets easier after a few years of dealing with this, but I walk

> around thinking if he gets sick, he will die...

> ...I feel like he is a live experiment. I guess in a way he is.

> >>

>

> Oh, Kim, I caught my breath when I read that because that's EXACTLY how I

> feel! We almost lost to bacterial meningitis and since she has

antibody

> problems with that kind of bacteria (strep-pneumo) we live in fear she'll

get

> it again and not be so lucky next time (even though -knockwoodknockwood-

we

> hopefully will only draw that card once in this lifetime).

>

> And we've swung back and forth so much on protecting and not... she was

> preemie so we had to keep her isolated, then they said she could do

anything

> and we put her in daycare and she got meningitis. Then we found out she

had a

> PID and we had to isolate her until they could figure out how serious is

was

> or not. Then we had to protect but not totally isolate. Then when some #s

> looked bad, isolate again. Then just this May the immuno said to let her

do

> anything at all except daycare/preschool. And she's been sick ever since.

YES

> I'M VENTING!

>

> Sometimes I feel like " panic " is our normal state. And we'll have a week

> where she's completely healthy and all of a sudden I'll have this FEELING

> like something's different. And I'll realize it's that I'm more relaxed.

I'm

> not pumping adrenaline and fear watching a big fever thinking, " Is this

one

> the one that catches us offguard? "

>

> And our immuno has flip flopped on us multiple times. Last November she

gave

> us the option of IVIG and we said we wanted to wait until we looked at her

> 2yr numbers, and she acted like we were making a big mistake. Then in May

> after 827 more illnesses (:o)) we ASSUMED she'd still give us that option,

> and instead she said it was not an option, is not a candidate

because

> her IgG came up. Yes, it did come up and we're happy about that, but she

is

> getting sick more than ever!

>

> Anyway, I think you're doing the right thing in going by instinct. I'd

rather

> err on the side of caution and never have regrets. My husband didn't think

> needed to go to the doctor the morning she had meningitis (well, how

on

> earth could he know?) but my instinct overruled. In some ways he still

> doesn't forgive himself to this day, even though it turned out just

fine!!!

> (sheesh. MEN!) Heehee. So go with your gut.

>

> Sorry so long...your words just struck a chord with me.

>

> (mom to , age 2, polysaccharide antibody def, IgA def)

>

>

> This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the

sole responsibility of the poster and should not be taken as professional

advice.

>

>

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,

This meningitis thing has definitely got me in a panic. My neighbors

Neuro was concerned for us and Children's hospital was also. But I have to

say, I am worried about all of us. I took care of her daughter (not in my

house, in hers), I let her dog out and I did her dishes when she was in the

hospital. (I don't know what I was thinking, I guess I wasn't). As I said

previously, they are going to up his IVIG dose a bit for added protection.

He said I will be out of the woods three weeks from the last direct exposure

with Chris...that was last Friday. So for the next two weeks, the panic

state stays.

I guess over time, as I see how he responds to his IVIG and being back in

school, my panic level will change (hopefully). But as with any chronic

illness or problem with your child, it's your baby and we will all worry,

always.

Thanks to everyone for the support. I needed it.

Kim - Mom to Nick, (XLA?/CVID?) and

Re: Kim

> In a message dated 9/8/01 12:18:41 PM Central Daylight Time,

> knmb2@... writes:

> <<

> Maybe it gets easier after a few years of dealing with this, but I walk

> around thinking if he gets sick, he will die...

> ...I feel like he is a live experiment. I guess in a way he is.

> >>

>

> Oh, Kim, I caught my breath when I read that because that's EXACTLY how I

> feel! We almost lost to bacterial meningitis and since she has

antibody

> problems with that kind of bacteria (strep-pneumo) we live in fear she'll

get

> it again and not be so lucky next time (even though -knockwoodknockwood-

we

> hopefully will only draw that card once in this lifetime).

>

> And we've swung back and forth so much on protecting and not... she was

> preemie so we had to keep her isolated, then they said she could do

anything

> and we put her in daycare and she got meningitis. Then we found out she

had a

> PID and we had to isolate her until they could figure out how serious is

was

> or not. Then we had to protect but not totally isolate. Then when some #s

> looked bad, isolate again. Then just this May the immuno said to let her

do

> anything at all except daycare/preschool. And she's been sick ever since.

YES

> I'M VENTING!

>

> Sometimes I feel like " panic " is our normal state. And we'll have a week

> where she's completely healthy and all of a sudden I'll have this FEELING

> like something's different. And I'll realize it's that I'm more relaxed.

I'm

> not pumping adrenaline and fear watching a big fever thinking, " Is this

one

> the one that catches us offguard? "

>

> And our immuno has flip flopped on us multiple times. Last November she

gave

> us the option of IVIG and we said we wanted to wait until we looked at her

> 2yr numbers, and she acted like we were making a big mistake. Then in May

> after 827 more illnesses (:o)) we ASSUMED she'd still give us that option,

> and instead she said it was not an option, is not a candidate

because

> her IgG came up. Yes, it did come up and we're happy about that, but she

is

> getting sick more than ever!

>

> Anyway, I think you're doing the right thing in going by instinct. I'd

rather

> err on the side of caution and never have regrets. My husband didn't think

> needed to go to the doctor the morning she had meningitis (well, how

on

> earth could he know?) but my instinct overruled. In some ways he still

> doesn't forgive himself to this day, even though it turned out just

fine!!!

> (sheesh. MEN!) Heehee. So go with your gut.

>

> Sorry so long...your words just struck a chord with me.

>

> (mom to , age 2, polysaccharide antibody def, IgA def)

>

>

> This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the

sole responsibility of the poster and should not be taken as professional

advice.

>

>

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Kim - from what we've been told as a PID family and from what I've been told

as a health care worker, viral meningitis is not contagious. And with

bacterial meningitis the only one that is contagious is the meningococcal.

We treated many children in the PICU with bad cases of viral and I had no

worries of taking it home to Macey. I was exempt from the rooms with the

meningococcal confirmed cases though. I hope your neighbors child feels

better soon. If he is suffering nearly as much as the PID pumpkins who get

it with their IVIG infusions then he must be in a great deal of pain.

Ursula Holleman uahollem@...

and Macey's mom (6 yr. old with CVID, asthma, sinus disease, GERD,

kidney reflux, Sensory Integration Disorder, Diabetes Insipidus)

http://www.pedpid.com

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Kim - from what we've been told as a PID family and from what I've been told

as a health care worker, viral meningitis is not contagious. And with

bacterial meningitis the only one that is contagious is the meningococcal.

We treated many children in the PICU with bad cases of viral and I had no

worries of taking it home to Macey. I was exempt from the rooms with the

meningococcal confirmed cases though. I hope your neighbors child feels

better soon. If he is suffering nearly as much as the PID pumpkins who get

it with their IVIG infusions then he must be in a great deal of pain.

Ursula Holleman uahollem@...

and Macey's mom (6 yr. old with CVID, asthma, sinus disease, GERD,

kidney reflux, Sensory Integration Disorder, Diabetes Insipidus)

http://www.pedpid.com

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  • 2 weeks later...

Kim,

There is a child at my church who has taken neupogen for neutropenia. She

did great with it. She was given a shot every so often (once a month I

think)for about 6 months and she was able to stop after that. She has been

healthy as a horse ever since. I'd be glad to ask her mom questions, if

you'd like, just let me know.

Kristie

From: bunneegirl@...

Reply-To: PedPID

To: PedPID

Subject: Re: Kim

Date: Mon, 17 Sep 2001 16:51:34 EDT

Kim:

I freely admit I have NO IDEA what I'm talking about here, but haven't I

heard of something called " neupogen " that they can give Graham for

neutropenia? I have no clue about it but remembered someone talking about it

awhile back.

I'm just hoping there's something they can do and I feel for you, knowing

he's so vulnerable.

(mom to , age 2-1/2, polysaccharide antibody def, IgA def)

This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the

sole responsibility of the poster and should not be taken as professional

advice.

Link to comment
Share on other sites

Kim,

There is a child at my church who has taken neupogen for neutropenia. She

did great with it. She was given a shot every so often (once a month I

think)for about 6 months and she was able to stop after that. She has been

healthy as a horse ever since. I'd be glad to ask her mom questions, if

you'd like, just let me know.

Kristie

From: bunneegirl@...

Reply-To: PedPID

To: PedPID

Subject: Re: Kim

Date: Mon, 17 Sep 2001 16:51:34 EDT

Kim:

I freely admit I have NO IDEA what I'm talking about here, but haven't I

heard of something called " neupogen " that they can give Graham for

neutropenia? I have no clue about it but remembered someone talking about it

awhile back.

I'm just hoping there's something they can do and I feel for you, knowing

he's so vulnerable.

(mom to , age 2-1/2, polysaccharide antibody def, IgA def)

This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the

sole responsibility of the poster and should not be taken as professional

advice.

Link to comment
Share on other sites

Kim,

There is a child at my church who has taken neupogen for neutropenia. She

did great with it. She was given a shot every so often (once a month I

think)for about 6 months and she was able to stop after that. She has been

healthy as a horse ever since. I'd be glad to ask her mom questions, if

you'd like, just let me know.

Kristie

From: bunneegirl@...

Reply-To: PedPID

To: PedPID

Subject: Re: Kim

Date: Mon, 17 Sep 2001 16:51:34 EDT

Kim:

I freely admit I have NO IDEA what I'm talking about here, but haven't I

heard of something called " neupogen " that they can give Graham for

neutropenia? I have no clue about it but remembered someone talking about it

awhile back.

I'm just hoping there's something they can do and I feel for you, knowing

he's so vulnerable.

(mom to , age 2-1/2, polysaccharide antibody def, IgA def)

This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the

sole responsibility of the poster and should not be taken as professional

advice.

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  • 1 month later...

Kim, I hope that your second injection will be a little easier for you today and

that you won't be so sick. Sending pleasant thoughts your way this morning. I

will be thinking of you friend.

Love, Sue #2

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Kim, I hope that your second injection will be a little easier for you today and

that you won't be so sick. Sending pleasant thoughts your way this morning. I

will be thinking of you friend.

Love, Sue #2

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Thank you Sue #2...so far this one has not been as bad. I'll let you know

as the day goes on. I've managed to get the second round of tapes out and

catch up on a few emails.

Love,

kim

Re: kim

Kim, I hope that your second injection will be a little easier for you today

and that you won't be so sick. Sending pleasant thoughts your way this

morning. I will be thinking of you friend.

Love, Sue #2

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Thank you Sue #2...so far this one has not been as bad. I'll let you know

as the day goes on. I've managed to get the second round of tapes out and

catch up on a few emails.

Love,

kim

Re: kim

Kim, I hope that your second injection will be a little easier for you today

and that you won't be so sick. Sending pleasant thoughts your way this

morning. I will be thinking of you friend.

Love, Sue #2

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Kim, I am glad that you are having a better time of it today, and I got the

confirmation for the video, so I will be looking out for it. THANK YOU!!! Be

good to yourself tonight.

Love, Sue #2

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  • 2 months later...

aaahhhh! I see...that could be a problem because once

a conversation is started then it just keeps going

unless EVERYONE knows it is to be moved to a private

conversation....and even then....not everyone reads

every email and so on....wow....It's just too bad when

that happens because it gets so nasty. You know?

Love, Kim

--- SaavyN@... wrote:

> In a message dated 1/5/02 8:36:16 PM Eastern

> Standard Time,

> golightlyfredd@... writes:

>

> << I think someone (maybe

> on the board) needs to step in and say " move it to

> private conversation " when things get heated. >>

> Maybe the board already has and you just don't know

> it---because it was moved

> to a private conversation.???? However, keeping it

> a private conversation is

> yet another task at hand. ;-)

> Love, K

>

__________________________________________________

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aaahhhh! I see...that could be a problem because once

a conversation is started then it just keeps going

unless EVERYONE knows it is to be moved to a private

conversation....and even then....not everyone reads

every email and so on....wow....It's just too bad when

that happens because it gets so nasty. You know?

Love, Kim

--- SaavyN@... wrote:

> In a message dated 1/5/02 8:36:16 PM Eastern

> Standard Time,

> golightlyfredd@... writes:

>

> << I think someone (maybe

> on the board) needs to step in and say " move it to

> private conversation " when things get heated. >>

> Maybe the board already has and you just don't know

> it---because it was moved

> to a private conversation.???? However, keeping it

> a private conversation is

> yet another task at hand. ;-)

> Love, K

>

__________________________________________________

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Don't you love having that kind of relationship with your doctor. That's what I

have with Dr. Murray. He's wonderful, as is his whole family.

Thank you for the encouragement. I look forward to having that kind of

relationship with my Rheumy...whomever that may be in the end. Dr. Cush is very

much that way. He really listens and we are building quite a good repoire.

I think if you tell your Rheumy that you just want a consultation visit with Dr.

Cush...not that you doubt the treatment that he is giving you, but you would

just like to share your case with Dr. Cush...that he will respond in a positive

way. Dr. Cush is very good about talking to other Dr.'s and his patients...he's

so down to earch. Dr. Murray, my PCP was shocked that Dr. Cush even returns

calls. He thought someone of his notiriaty would have a no call policy...or

have residence return calls.

Have a great Sunday and I'm gonna write you to your personal email....in a bit.

Just to catch up on some things...thanks for being such a great friend.

Love, Kim

---------------------------------

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Don't you love having that kind of relationship with your doctor. That's what I

have with Dr. Murray. He's wonderful, as is his whole family.

Thank you for the encouragement. I look forward to having that kind of

relationship with my Rheumy...whomever that may be in the end. Dr. Cush is very

much that way. He really listens and we are building quite a good repoire.

I think if you tell your Rheumy that you just want a consultation visit with Dr.

Cush...not that you doubt the treatment that he is giving you, but you would

just like to share your case with Dr. Cush...that he will respond in a positive

way. Dr. Cush is very good about talking to other Dr.'s and his patients...he's

so down to earch. Dr. Murray, my PCP was shocked that Dr. Cush even returns

calls. He thought someone of his notiriaty would have a no call policy...or

have residence return calls.

Have a great Sunday and I'm gonna write you to your personal email....in a bit.

Just to catch up on some things...thanks for being such a great friend.

Love, Kim

---------------------------------

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Don't you love having that kind of relationship with your doctor. That's what I

have with Dr. Murray. He's wonderful, as is his whole family.

Thank you for the encouragement. I look forward to having that kind of

relationship with my Rheumy...whomever that may be in the end. Dr. Cush is very

much that way. He really listens and we are building quite a good repoire.

I think if you tell your Rheumy that you just want a consultation visit with Dr.

Cush...not that you doubt the treatment that he is giving you, but you would

just like to share your case with Dr. Cush...that he will respond in a positive

way. Dr. Cush is very good about talking to other Dr.'s and his patients...he's

so down to earch. Dr. Murray, my PCP was shocked that Dr. Cush even returns

calls. He thought someone of his notiriaty would have a no call policy...or

have residence return calls.

Have a great Sunday and I'm gonna write you to your personal email....in a bit.

Just to catch up on some things...thanks for being such a great friend.

Love, Kim

---------------------------------

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Kim,

I don't know about this Rheumy where you live, but I don't like the sounds of

him, and you know from the experiences that I have had up here, it was almost

the same type of attitude until I approached him on his thinking and put him

right on the spot. YES...one would think, that a doctor would want to act as a

" team " with another doctor and converse upon your disease, but it doesn't sound

like that in this case, and it really doesn't sound like this doctor knows much

about Stills at all or could be totally the opposite and he does know a lot

about it, but his " ego " comes first, before his patients. I feel if he was

really up on Stills, he would welcome Dr. Cush with open arms and be very happy

that you are seeing him. I would go in and have an open conversation with him

Kim about your feelings and the need for Dr. Cush in your life as well through

this disease, and why you feel that it is important that you have both doctors

helping you together and that they do work as a team, but if he fails to do so

or gives you some type of attitude, then I would be upfront and honest with him

and say my " good-byes " and be on my way. I think that possibly I would search

elsewhere for a new Rheumy closer to you for the in-between months of Dr. Cush,

but I am sure that you have done the long searching as I have done, and are

probably starting to run out of good, secure choices in your area or surrounding

towns. Remember, you are going through this disease, not him, and it's so

hard to be taking all of these drugs at such a young age...doesn't he see that?

I had really got upset with my Rheumy because I didn't think that he was

approaching things fast enough, but when I went in and sat down and had a heart

to heart talk with him, he made me understand why we aren't jumping in as fast

as I would like, and I understood more. Mostly, because I am young yet, and he

doesn't want to see my organs hurt at such a young age, since I have already had

bad kidney and bladder problems. He feels that the body is still re-cooperating

and needs them to heal some more before I start these drugs, so he is trying

other things in the meantime, hoping that my body will respond. My body went

through intense surgeries and it is just starting to come back fine now, so he

is trying to give my kidneys a rest and is worried about my liver as well, so we

are approaching things a little slower than I would like, but I will say that

after he explained things to me and really sat down and looked into my eyes and

he let my " cry " and express my feelings, I think that he very much understood me

and my feelings and I understood him as well and a new respect came over both of

us, and I feel that your rheumy should be doing the same Kim. It sounds like

his " ego " is just a little bent in the wrong direction. Kim, I know it's so

hard to find a new doctor, it's so frustrating, but it doesn't sound too good

right now friend. Keep me posted Kim....how frustrating! Love you.

Love, sue #2

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Kim,

I don't know about this Rheumy where you live, but I don't like the sounds of

him, and you know from the experiences that I have had up here, it was almost

the same type of attitude until I approached him on his thinking and put him

right on the spot. YES...one would think, that a doctor would want to act as a

" team " with another doctor and converse upon your disease, but it doesn't sound

like that in this case, and it really doesn't sound like this doctor knows much

about Stills at all or could be totally the opposite and he does know a lot

about it, but his " ego " comes first, before his patients. I feel if he was

really up on Stills, he would welcome Dr. Cush with open arms and be very happy

that you are seeing him. I would go in and have an open conversation with him

Kim about your feelings and the need for Dr. Cush in your life as well through

this disease, and why you feel that it is important that you have both doctors

helping you together and that they do work as a team, but if he fails to do so

or gives you some type of attitude, then I would be upfront and honest with him

and say my " good-byes " and be on my way. I think that possibly I would search

elsewhere for a new Rheumy closer to you for the in-between months of Dr. Cush,

but I am sure that you have done the long searching as I have done, and are

probably starting to run out of good, secure choices in your area or surrounding

towns. Remember, you are going through this disease, not him, and it's so

hard to be taking all of these drugs at such a young age...doesn't he see that?

I had really got upset with my Rheumy because I didn't think that he was

approaching things fast enough, but when I went in and sat down and had a heart

to heart talk with him, he made me understand why we aren't jumping in as fast

as I would like, and I understood more. Mostly, because I am young yet, and he

doesn't want to see my organs hurt at such a young age, since I have already had

bad kidney and bladder problems. He feels that the body is still re-cooperating

and needs them to heal some more before I start these drugs, so he is trying

other things in the meantime, hoping that my body will respond. My body went

through intense surgeries and it is just starting to come back fine now, so he

is trying to give my kidneys a rest and is worried about my liver as well, so we

are approaching things a little slower than I would like, but I will say that

after he explained things to me and really sat down and looked into my eyes and

he let my " cry " and express my feelings, I think that he very much understood me

and my feelings and I understood him as well and a new respect came over both of

us, and I feel that your rheumy should be doing the same Kim. It sounds like

his " ego " is just a little bent in the wrong direction. Kim, I know it's so

hard to find a new doctor, it's so frustrating, but it doesn't sound too good

right now friend. Keep me posted Kim....how frustrating! Love you.

Love, sue #2

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Kim,

I don't know about this Rheumy where you live, but I don't like the sounds of

him, and you know from the experiences that I have had up here, it was almost

the same type of attitude until I approached him on his thinking and put him

right on the spot. YES...one would think, that a doctor would want to act as a

" team " with another doctor and converse upon your disease, but it doesn't sound

like that in this case, and it really doesn't sound like this doctor knows much

about Stills at all or could be totally the opposite and he does know a lot

about it, but his " ego " comes first, before his patients. I feel if he was

really up on Stills, he would welcome Dr. Cush with open arms and be very happy

that you are seeing him. I would go in and have an open conversation with him

Kim about your feelings and the need for Dr. Cush in your life as well through

this disease, and why you feel that it is important that you have both doctors

helping you together and that they do work as a team, but if he fails to do so

or gives you some type of attitude, then I would be upfront and honest with him

and say my " good-byes " and be on my way. I think that possibly I would search

elsewhere for a new Rheumy closer to you for the in-between months of Dr. Cush,

but I am sure that you have done the long searching as I have done, and are

probably starting to run out of good, secure choices in your area or surrounding

towns. Remember, you are going through this disease, not him, and it's so

hard to be taking all of these drugs at such a young age...doesn't he see that?

I had really got upset with my Rheumy because I didn't think that he was

approaching things fast enough, but when I went in and sat down and had a heart

to heart talk with him, he made me understand why we aren't jumping in as fast

as I would like, and I understood more. Mostly, because I am young yet, and he

doesn't want to see my organs hurt at such a young age, since I have already had

bad kidney and bladder problems. He feels that the body is still re-cooperating

and needs them to heal some more before I start these drugs, so he is trying

other things in the meantime, hoping that my body will respond. My body went

through intense surgeries and it is just starting to come back fine now, so he

is trying to give my kidneys a rest and is worried about my liver as well, so we

are approaching things a little slower than I would like, but I will say that

after he explained things to me and really sat down and looked into my eyes and

he let my " cry " and express my feelings, I think that he very much understood me

and my feelings and I understood him as well and a new respect came over both of

us, and I feel that your rheumy should be doing the same Kim. It sounds like

his " ego " is just a little bent in the wrong direction. Kim, I know it's so

hard to find a new doctor, it's so frustrating, but it doesn't sound too good

right now friend. Keep me posted Kim....how frustrating! Love you.

Love, sue #2

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Kim

I am sorry, I don't know any information about massage and fever, but I am sure

that someone will have an answer for you. I am worried about you and will check

on you late today to see how you are feeling. Remember to get plenty of rest so

you don't go into a huge " flare " . Be well friend and I will talk to you later.

Love, Sue #2

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Kim

I am sorry, I don't know any information about massage and fever, but I am sure

that someone will have an answer for you. I am worried about you and will check

on you late today to see how you are feeling. Remember to get plenty of rest so

you don't go into a huge " flare " . Be well friend and I will talk to you later.

Love, Sue #2

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Kim

I am sorry, I don't know any information about massage and fever, but I am sure

that someone will have an answer for you. I am worried about you and will check

on you late today to see how you are feeling. Remember to get plenty of rest so

you don't go into a huge " flare " . Be well friend and I will talk to you later.

Love, Sue #2

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