Using people's letters....

[Guest guest]

ACK! I had a folder with replies from people who said I could use their

letters, and I have no idea what I did with it!! I must have

accidentally deleted it (doesn't speak highly of my computer skills,

does it?! But I promise the website will be okay!). It's the very last

part of the website, and the one I was most excited about. I will

probably upload it now without the letters, but then add them as I hear

from people. The only people I know of for sure who said yes were Barb

and Irene, but I know there were others, and it would be nice to have

more letters. I'm so sorry to make you go to more trouble! Please let

me know ASAP if I can use the letter you sent to the group!

Thanks soooooo much!

[Guest guest]

from Dale, , feel free to use mine for what it's worth. Did

you get the URL for Sunday's San Mercury News article?

www0.mercurycenter.com/columnists/green

In His service,

Dale

[Guest guest]

from Dale, , feel free to use mine for what it's worth. Did

you get the URL for Sunday's San Mercury News article?

www0.mercurycenter.com/columnists/green

In His service,

Dale

[Guest guest]

:

Feel free to use my letter.

Tina

Mike 15 CVID JRA Asthma, Sinusitis, GI Upset, Depression

[Guest guest]

Yes, by all means, use my letter too!!! If you need me to re-send it to you,

let me know!

Diane, Mom to Kody age 5, IgG sub. class def., epilepsy,asthma,GERD, sinus

disease and , age 15, age 14, Arika age 13, Kaila age 9, and

age 7...all healthy!

[Guest guest]

Yes, by all means, use my letter too!!! If you need me to re-send it to you,

let me know!

Diane, Mom to Kody age 5, IgG sub. class def., epilepsy,asthma,GERD, sinus

disease and , age 15, age 14, Arika age 13, Kaila age 9, and

age 7...all healthy!

[Guest guest]

please feel free to use my letter to..

Mr. Eisner

I am writing to you in the hope that you will

listen to our plea’s not to release your movie Bubble

Boy. I would like to take a moment to tell you about

myself and my wonderful son Tony. On March 17th of

1990 I brought into this world a wonderful little man,

but it didn’t take to long to figure out that

something was most definitely wrong, by the age of 18

mths, my son had so many infection that just wouldn’t

clear up or go away even with the help of the best

antibiotics, he had pneumonia, bronchitis, ear, nose

throat and eye infections, gardia, thrush, painful

skin infections. The doctors asked me repeatedly if I

was giving my son his medicine( yes I was) so finally

I got a new Dr. who saw that there was something

wrong, within two weeks I had a diagnosis of common

variable immune deficiency and my life was forever

changed

My son is now 11 and he has suffered so in his

life, I have watched my baby go through infusions of

immunoglobulin every 4 weeks, and a little over two

years ago my son was also diagnosed with severe

neutropenia, It is a daily battle for my son and many

others and I am appalled to think that Disney would

make light of these disorders.

In Feb. of this year my son got to make his

greatest wish thanks to Make A Wish Foundation, can

you guess what his wish was…DISNEY WORLD…YEP.and they

treated him like a king, how am I going to tell my son

that the very people who treated him so great and made

him so happy are now making a mockery out of the very

illness that made him eligible for that wish.

Please stop for one moment and step into my life,

picture your child so sick and with painful sores in

his mouth begging you to take away the pain, begging

you to make the doctors and nurses who poke and hurt

him to go away. Now picture your child dieing …

Because many SCID’S AND PID’S patient’s have. Now how

would you feel about this movie? PLEASE do the right

thing .DO NOT RELEASE THIS….

KAREN WARD

--- IBSNICK1@... wrote:

> :

> Feel free to use my letter.

> Tina

> Mike 15 CVID JRA Asthma, Sinusitis, GI Upset,

> Depression

>

__________________________________________________

[Guest guest]

please feel free to use my letter to..

Mr. Eisner

I am writing to you in the hope that you will

listen to our plea’s not to release your movie Bubble

Boy. I would like to take a moment to tell you about

myself and my wonderful son Tony. On March 17th of

1990 I brought into this world a wonderful little man,

but it didn’t take to long to figure out that

something was most definitely wrong, by the age of 18

mths, my son had so many infection that just wouldn’t

clear up or go away even with the help of the best

antibiotics, he had pneumonia, bronchitis, ear, nose

throat and eye infections, gardia, thrush, painful

skin infections. The doctors asked me repeatedly if I

was giving my son his medicine( yes I was) so finally

I got a new Dr. who saw that there was something

wrong, within two weeks I had a diagnosis of common

variable immune deficiency and my life was forever

changed

My son is now 11 and he has suffered so in his

life, I have watched my baby go through infusions of

immunoglobulin every 4 weeks, and a little over two

years ago my son was also diagnosed with severe

neutropenia, It is a daily battle for my son and many

others and I am appalled to think that Disney would

make light of these disorders.

In Feb. of this year my son got to make his

greatest wish thanks to Make A Wish Foundation, can

you guess what his wish was…DISNEY WORLD…YEP.and they

treated him like a king, how am I going to tell my son

that the very people who treated him so great and made

him so happy are now making a mockery out of the very

illness that made him eligible for that wish.

Please stop for one moment and step into my life,

picture your child so sick and with painful sores in

his mouth begging you to take away the pain, begging

you to make the doctors and nurses who poke and hurt

him to go away. Now picture your child dieing …

Because many SCID’S AND PID’S patient’s have. Now how

would you feel about this movie? PLEASE do the right

thing .DO NOT RELEASE THIS….

KAREN WARD

--- IBSNICK1@... wrote:

> :

> Feel free to use my letter.

> Tina

> Mike 15 CVID JRA Asthma, Sinusitis, GI Upset,

> Depression

>

__________________________________________________