Guest guest Posted December 8, 2003 Report Share Posted December 8, 2003 Hi. My son has never been skinny (weighted 8 lbs 12 oz.) When Ammon was drinking formula/milk he had the belly to show it. Ammon was always in the size twice his age until he was two (i.e. 3 months wearing 6 months, two year old wearing 4T.) He's leveled off since quitting milk at 3 years old and is now five and about 49 pounds (think he's about three and a half feet tall) wearing a size 6 boys without a " milk belly " (similar to beer belly.) :0) He is tall for his age. Ammon always had irregular bowels, too. They are normalizing since being with Dr. G (just over a year.) Always healthy looking hair, shiny and thick, though. What makes him " sickly " in appearance is the Tiny Tim circles around his eyes. Those have been coming and going while on the protocol, but have yet to leave for an extended time. Hope this helps. - in AL Reality lies beyond the horizon... Wonderwegian Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2003 Report Share Posted December 8, 2003 All three of my children have looked and been VERY underweight. My second (who is the one I have been talking about lately because she is actually showing signs of ) was actually diagnosed as FTT (failure to thrive). She was so below the growth chart and looked like she had been in a death camp (like she was slowly starving to death). We put her on formula, and I believe that is what caused the to act up (she immediately began showing signs of allergic reaction, but I did not know it at the time). Anyways, my oldest (4 in Feb) is only 40 pounds, yet she is extremely healthy and happy. I have no doubt that she has , but she has not been showing any signs that it has been activated yet. My second (2 in Jan), and who is showing the signs, is now a plump 30 pounds, but I do fear that she is having malapsorption problems. I am not sure about viral, although out of all my children, she gets whatever is going around and it always takes a long time for her to get over it. I hope this has been helpful. a Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2003 Report Share Posted December 8, 2003 My son has always been at the top of the growth charts, despite major malabsorption problems. He was a FAT baby, rolls everywhere. Once I stopped breastfeeding him he stopped gaining but leveled off and now is a normal weight (but by the time I stopped bf'ing, I had also figured out what foods he could tolerate and his gut was healing) I've noticed since starting , tho, his muscle mass is up, his little butt doesn't look so saggy like it always did Becky Weight > Hi everyone, > > This may be a silly question, but I'm new to this. I'm curious, are > all of your children underweight and " malnourished " looking (no > offense meant). My daughter (4 in January) is extremely " healthy " > looking 48 lbs (not overweight), shiny hair, bright eyes, etc. Her > tests are beginning to come back and they are following the > pattern. I would think a child with immune dysfuction would be > sickly. (, if you're reading this, your response to my Bowel > movement question prompted this). Does anyone have a child with > malapsorption and viral problems that doesn't look it? It's > confusing to me. > > Jess > > > > > Responsibility for the content of this message lies strictly with > the original author, and is not necessarily endorsed by or the > opinion of the Research Institute. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2003 Report Share Posted December 8, 2003 Hi Jess, I always thought my child looked healthy. His weight was always fine, his eyes and hair were bright, and his color was always good. His pediatrician always deemed him to be in excellent health at his " well child " check ups -- despite frequent colds and ear infections. After beginning the protocol, though, he actually looks much better! My mom commented recently that he actually " sparkles " now. Some children don't present with any outward physical symptoms (i.e., illness) at all. One dad I recently met at my son's social skills group commented that his son is " a machine " , that is, never gets sick! One thing I've learned since beginning this journey is that there seems to be no " one " way to have . Hope that helps a bit... Donna Weight Hi everyone, This may be a silly question, but I'm new to this. I'm curious, are all of your children underweight and " malnourished " looking (no offense meant). My daughter (4 in January) is extremely " healthy " looking 48 lbs (not overweight), shiny hair, bright eyes, etc. Her tests are beginning to come back and they are following the pattern. I would think a child with immune dysfuction would be sickly. (, if you're reading this, your response to my Bowel movement question prompted this). Does anyone have a child with malapsorption and viral problems that doesn't look it? It's confusing to me. Jess Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 8, 2003 Report Share Posted December 8, 2003 My kiddo is rail thin and small for his age but I do know of many with a similar pattern of illness who are normal size to overweight. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 9, 2003 Report Share Posted December 9, 2003 Jess, both of my kids are kids and my 5 year old daughter weighs 46 lbs and my 3 year old son weighs 41 lbs. They are both healthy looking kids with definite immune problems. Shona > > Wrom: NHGSWZIDREXCAXZOWCONEUQZAAFXI > Date: 2003/12/07 Sun PM 11:24:34 EST > > Subject: Weight > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2003 Report Share Posted December 10, 2003 My son is 4.5 years old, he is anything but thin. He weighs 75 lbs. and he is 4 ft tall. He is a patient of Dr. G's. Re: Weight >> My kiddo is rail thin and small for his age .... << **** Same here. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2003 Report Share Posted December 10, 2003 Yes the weight issue is awful but just for anyones info - my six year old is 15 kilos which is around 32 -33lbs - and my 10 year old is30 kilos - around 64lbs. Terrible food struggles way too sick to want to eat - but since starting antivirals in September they are eating so much better - its very exciting - but because of severe intolerances and allergies to most foods - still very limited diets. Without realising it we have being following the diet but still much more limited in food ranges. Regards Terri NZ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 12, 2003 Report Share Posted December 12, 2003 WOO HOO! My skinny little skeleton put on 3 POUNDS this week!!!!! That's more than he put on all of last year. Now, if I can get him to sit very still and keep eating so he doesn't burn it all off and avoid the flu and chicken pox he's been exposed to so he doesn't lose it during and illness -- <sigh>. Hopefully this is the Seacure and not just a fluke. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 13, 2003 Report Share Posted December 13, 2003 It made total sense. I was trying to explain to that child's father (because he insisted there was " nothing wrong " with his son's immune system) and just couldn't come up with a clear explanation as to why it's still , even when the child doesn't actually present with overt illnesses. I'm saving your post and committing it to memory! :-) Donna Weight > > > Hi everyone, > > This may be a silly question, but I'm new to this. > I'm curious, are > all of your children underweight and > " malnourished " looking (no > offense meant). My daughter (4 in January) is > extremely " healthy " > looking 48 lbs (not overweight), shiny hair, > bright eyes, etc. Her > tests are beginning to come back and they are > following the > pattern. I would think a child with immune > dysfuction would be > sickly. (, if you're reading this, your > response to my Bowel > movement question prompted this). Does anyone have > a child with > malapsorption and viral problems that doesn't look > it? It's > confusing to me. > > Jess ______________________________________________ Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 17, 2004 Report Share Posted June 17, 2004 >ya know, it's not even so much how i look but I'm VERY uncomfortable. i >HATE summer cuz every thing chafes. it's painful some days to wear a bra >cuz of all the chafing. and don't get me started with my thighs... I think there is a fine line between " I hate being this way " and " I hate being me " ... I used to hate myself for being 10 lbs overweight. But when I got fat during pregnancy, I got to a point where I really didn't hate myself for being HUGELY overweight. But, like you, I just didn't think it was right for me to BE like that. I couldn't do the stuff I used to do, and all my joints started hurting, and I couldn't do stuff with the kids. Christie is right that you shouldn't do stuff out of self-loathing ... but that doesn't mean that you have to stay the way you are either (Christie didn't!). If anything in your or anyone's life isn't what you want, hey, I say work on changing it! Might take some research and some experimenting (which is what it sounds like you are doing!). Personally I'm pretty sure that if I figure what what kinds of foods and food patterns are right for *me* then I'll end up at the weight I should be without working too hard at it. That might be 10-20 lbs over what the " ideal " may be ... but it sure as heck isn't what I WAS. I want to be healthy and muscular and able to lift big bags. It helps me a lot to think like an athlete and work on " getting healthy " rather than thinking in terms of " beauty and fashion " which might be where gals get fouled up. If you are healthy, you WILL be pretty. -- Heidi Jean Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2004 Report Share Posted June 18, 2004 ....Personally I'm pretty sure that if I figure what what kinds of foods and food patterns are right for *me* then I'll end up at the weight I should be without working too hard at it. That might be 10-20 lbs over what the " ideal " may be ... but it sure as heck isn't what I WAS. I want to be healthy and muscular and able to lift big bags. It helps me a lot to think like an athlete and work on " getting healthy " rather than thinking in terms of " beauty and fashion " which might be where gals get fouled up. If you are healthy, you WILL be pretty... Ditto. Tas'. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 18, 2004 Report Share Posted June 18, 2004 >Well said, Heidi. I think that's what I was trying to say, only you said it better. The point I was trying to make about my great-grandmother was that although I have often been told by doctors that at 5'3 " and 175 lbs I am shortening my life, my great-grandmother, at the very same height and weight, lived to be 90, living a vigorous, independent life on Vashon Island, raising her chickens, pumping her well water, and stoking her wood stove. (I think a neighbor chopped the wood for her!) She was still driving, too, and complaining that the laws of Washington State required her to take the driving test every year! > >My grandparents then decided she was too old to live alone, and they put her in a nursing home. Ten days later she died in her sleep. If they had let her alone, I wonder how long she would have lived? Her great-grandfather lived to be 102. -Ann Thanks. I'm not sure I'd go by the scale for " in shape " either ... I'm at the same dress size now that I was in the past when I was 20 lbs lighter. Muscle and bone weight a LOT. My hubby is SKINNY at 190 lbs. If you are an active female, you'll have more muscle and bone. My role model is my great-great-grandpa, who is said to have died at 96. He fell off a bridge and drowned ... coming home drunk from a party! -- Heidi Jean > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 10, 2009 Report Share Posted July 10, 2009 Hi , Weight is an issue for some with CMT, as when one gets little exercise, lives a sedentary lifestyle, and can be subject to added pounds from too much food to burn calories. Dr. Greg , CMT expert, recommends that people with CMT follow a heart healthy diet and stay on the slim side. If a person is slim, there is less stress on the body to move around, also less stress on muscles (including the heart) lungs, etc. Better to remain slim than be overweight with CMT. Gretchen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 11, 2009 Report Share Posted July 11, 2009 Hi - My son is 6' and weighs in at 195 pounds. He's solidly built except in the calves and at the forearms. We've met alot of folks with CMT recently and all body types seem to be affected in our support group. Quote Link to comment Share on other sites More sharing options...
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