Re: Penny continues to drop

[Guest guest]

HI ,

A lightbulb just lit up in my head. I have been reading so much about reflux on

this e-mail list, and how common it is for cvid kids to have it. Hunter

frequently coughs during the night, but not during the day. I always thought it

was sinus draining, but now I am questioning reflux. Why do pid kids get

reflux? How is that exactly tested? I will definitely look into this further.

Thanks for sharing

Temme mom to Hunter -age 6 (agamma....or cvid?)

Penny continues to drop

Its amazing that since being told has worse signs of reflux than we had

supposed that we have become more aware of the night coughing actually being

REFLUX rather than mucous dripping down the back of his throat. It all seems so

obvious now, but only a few days ago I was under the impression it was for a

totally different reason. The past two nights he has had choking episodes in

his sleep and we suddenly relised how common this is for him. I am very eager

to speak with his GI, to hear what investigations and treatment she will

propose. I cant help being angry that , despite all the indications of

reflux, she didnt think to investigate herself and that it took the immuno to

discover it. BTW, am I right in thinking hiatus hernias arent so uncommon?

Ursula, (and everyone with reflux children) , does Macey have a hernia and do

you know how common they are in children? Also what complications (if any) are

involved and if these are increased with the pid?

Thank goodness I have this group to ask questions of!

, mum to and

[Guest guest]

HI ,

A lightbulb just lit up in my head. I have been reading so much about reflux on

this e-mail list, and how common it is for cvid kids to have it. Hunter

frequently coughs during the night, but not during the day. I always thought it

was sinus draining, but now I am questioning reflux. Why do pid kids get

reflux? How is that exactly tested? I will definitely look into this further.

Thanks for sharing

Temme mom to Hunter -age 6 (agamma....or cvid?)

Penny continues to drop

Its amazing that since being told has worse signs of reflux than we had

supposed that we have become more aware of the night coughing actually being

REFLUX rather than mucous dripping down the back of his throat. It all seems so

obvious now, but only a few days ago I was under the impression it was for a

totally different reason. The past two nights he has had choking episodes in

his sleep and we suddenly relised how common this is for him. I am very eager

to speak with his GI, to hear what investigations and treatment she will

propose. I cant help being angry that , despite all the indications of

reflux, she didnt think to investigate herself and that it took the immuno to

discover it. BTW, am I right in thinking hiatus hernias arent so uncommon?

Ursula, (and everyone with reflux children) , does Macey have a hernia and do

you know how common they are in children? Also what complications (if any) are

involved and if these are increased with the pid?

Thank goodness I have this group to ask questions of!

, mum to and

[Guest guest]

HI ,

A lightbulb just lit up in my head. I have been reading so much about reflux on

this e-mail list, and how common it is for cvid kids to have it. Hunter

frequently coughs during the night, but not during the day. I always thought it

was sinus draining, but now I am questioning reflux. Why do pid kids get

reflux? How is that exactly tested? I will definitely look into this further.

Thanks for sharing

Temme mom to Hunter -age 6 (agamma....or cvid?)

Penny continues to drop

Its amazing that since being told has worse signs of reflux than we had

supposed that we have become more aware of the night coughing actually being

REFLUX rather than mucous dripping down the back of his throat. It all seems so

obvious now, but only a few days ago I was under the impression it was for a

totally different reason. The past two nights he has had choking episodes in

his sleep and we suddenly relised how common this is for him. I am very eager

to speak with his GI, to hear what investigations and treatment she will

propose. I cant help being angry that , despite all the indications of

reflux, she didnt think to investigate herself and that it took the immuno to

discover it. BTW, am I right in thinking hiatus hernias arent so uncommon?

Ursula, (and everyone with reflux children) , does Macey have a hernia and do

you know how common they are in children? Also what complications (if any) are

involved and if these are increased with the pid?

Thank goodness I have this group to ask questions of!

, mum to and

[Guest guest]

Macey does not have a hernia and I've not heard or read

that reflux is any more common in PID patients than the

general population.

Good luck with the GI appointment.

--

Ursula Holleman

Macey's mom (6 yr. old with CVID,

asthma, sinus

disease, GERD, kidney reflux,

Sensory Integration

Disorder, Diabetes Insipidus)

http://home.att.net/~maceyh/

http://groups.yahoo.com/group/PedPID

[Guest guest]

Macey does not have a hernia and I've not heard or read

that reflux is any more common in PID patients than the

general population.

Good luck with the GI appointment.

--

Ursula Holleman

Macey's mom (6 yr. old with CVID,

asthma, sinus

disease, GERD, kidney reflux,

Sensory Integration

Disorder, Diabetes Insipidus)

http://home.att.net/~maceyh/

http://groups.yahoo.com/group/PedPID

[Guest guest]

Macey does not have a hernia and I've not heard or read

that reflux is any more common in PID patients than the

general population.

Good luck with the GI appointment.

--

Ursula Holleman

Macey's mom (6 yr. old with CVID,

asthma, sinus

disease, GERD, kidney reflux,

Sensory Integration

Disorder, Diabetes Insipidus)

http://home.att.net/~maceyh/

http://groups.yahoo.com/group/PedPID

[Guest guest]

,

Duncan's got reflux pretty bad, but no hernia. We already knew he had

reflux when we did the barium test last month, but wanted to look for a

hernia & obstructions (if any). There were none.

Do you elevate the head of 's bed? It may help keep some of the

reflux under control at night. We've done this for Duncan & he sleeps so

much better now! I don't know if reflux is different in infants than it is

in older children, but I wouldn't think so.

Ray, mother to Tabitha (age 6), Autumn, age 3 (IgG def., asthma,

chronic sinusitis, and allergies), and Duncan Avery, 4 months

[Guest guest]

,

Duncan's got reflux pretty bad, but no hernia. We already knew he had

reflux when we did the barium test last month, but wanted to look for a

hernia & obstructions (if any). There were none.

Do you elevate the head of 's bed? It may help keep some of the

reflux under control at night. We've done this for Duncan & he sleeps so

much better now! I don't know if reflux is different in infants than it is

in older children, but I wouldn't think so.

Ray, mother to Tabitha (age 6), Autumn, age 3 (IgG def., asthma,

chronic sinusitis, and allergies), and Duncan Avery, 4 months

[Guest guest]

Ray,

and are in bunk beds, so raising the front legs is not possible,

but we are going to have a foam wedge cut to place under the mattress. Is it

right that it should be at a 60 degree angle?

How is Duncan? Is he gaining weight ok now? Is the reflux under control?

Re: Penny continues to drop

,

Duncan's got reflux pretty bad, but no hernia. We already knew he had

reflux when we did the barium test last month, but wanted to look for a

hernia & obstructions (if any). There were none.

Do you elevate the head of 's bed? It may help keep some of the

reflux under control at night. We've done this for Duncan & he sleeps so

much better now! I don't know if reflux is different in infants than it is

in older children, but I wouldn't think so.

Ray, mother to Tabitha (age 6), Autumn, age 3 (IgG def., asthma,

chronic sinusitis, and allergies), and Duncan Avery, 4 months

[Guest guest]

Ray,

and are in bunk beds, so raising the front legs is not possible,

but we are going to have a foam wedge cut to place under the mattress. Is it

right that it should be at a 60 degree angle?

How is Duncan? Is he gaining weight ok now? Is the reflux under control?

Re: Penny continues to drop

,

Duncan's got reflux pretty bad, but no hernia. We already knew he had

reflux when we did the barium test last month, but wanted to look for a

hernia & obstructions (if any). There were none.

Do you elevate the head of 's bed? It may help keep some of the

reflux under control at night. We've done this for Duncan & he sleeps so

much better now! I don't know if reflux is different in infants than it is

in older children, but I wouldn't think so.

Ray, mother to Tabitha (age 6), Autumn, age 3 (IgG def., asthma,

chronic sinusitis, and allergies), and Duncan Avery, 4 months

[Guest guest]

Graham was just increased to 1 ml 3 times a day. Keep on top of it.

Actually 16 lbs is great! I have a friend who has a healthy 12 mo old

(Sept B-day) and he weighs 37 lbs. What a whopper! Of course

considering that Duncan was around 9 lbs? at birth. I'd say he's back

on target. Best of luck with the med adjustments.

Kim, mom to Linz and Graham (Bruton's)

[Guest guest]

Kim,

37 lbs!!!! Holy cow!!! My 4 yr old only weighs 36 lbs and my 2 yr old is 28

, that is one hefty 12 month old, and I'm sure her back is hurting!!