Severe OCD

[Guest guest]

I don't know where to start, I'm so upset. Our son (15) was dx with OCD in Jan.

and ever since then, we've been trying to find the right combo of meds and

therapy, without much success. We finally sought out one of the finest OCD

specialists in the state and in between hurricanes (we live in Indian River

County, the strike zone for the last two) have been traveling 2 hours each way

for intensive therapy (ERP and CBT). This has resulted in a little progress,

although it has been not running according to the 6 day/week schedule because of

the interruptions. However, apparently, the psychologist feels that our son is

very seriously OCD (he labled it severe and " life derailing " ) and would like us

to search out more intense therapy through programs such as the OCD Institute in

Boston or Menninger in Houston. He's not washing his hands of the whole thing

but just thought he would benefit greatly from one of these programs.

Now that we have this news, I'm contemplating what to do, along with my husband.

Out health insurance does not cover mental disorders so we would have to take

out a loan to pay for this and we have a family business that we would not be

able to leave to attend any of these programs on an ongoing basis with our son.

I guess my question is, does anyone have experience with these long-term

treatment (in-house) programs? If so, was it worth it? Also, has anyone had a

severely disabled child with OCD and, if so, what did you do? Thanks for any

responses.

[Guest guest]

In a message dated 10/8/2004 6:30:45 PM Pacific Standard Time,

rgoguen7269@... writes:

If any of you that has children with severe ocd please send message. I

haven't done so the last three months since I did not want to discourage

anybody.

However, I feel better when someone who is going through the same ordeal post. I

feel that I am not alone.

A very big {{{HUG}}} to you and your family. Please don't feel that you

shouldn't post here because you don't want to discourage people! It's the

parents dealing with severe OCD that need the help the most! Many of us have

kids

who are doing reasonably well now, but have been very, very sick in the past.

We don't want you out there suffering alone! I think that everyone understands,

or will learn, that OCD is different for everyone. Some children become

extremely ill very quickly and stay ill a long time, others have a short, severe

course of illness but then seem to bounce back, and others have a chronic up and

down illness that never reaches the severity that you are talking about, but

never really goes away either.

Families like yours and 's probably need this list the most since

there can't be anything more frightening or daunting than trying to decide

whether to hospitalize your child.

Please feel free to write and seek support here!!

Best wishes,

in NV

[Guest guest]

In a message dated 10/8/2004 6:30:45 PM Pacific Standard Time,

rgoguen7269@... writes:

If any of you that has children with severe ocd please send message. I

haven't done so the last three months since I did not want to discourage

anybody.

However, I feel better when someone who is going through the same ordeal post. I

feel that I am not alone.

A very big {{{HUG}}} to you and your family. Please don't feel that you

shouldn't post here because you don't want to discourage people! It's the

parents dealing with severe OCD that need the help the most! Many of us have

kids

who are doing reasonably well now, but have been very, very sick in the past.

We don't want you out there suffering alone! I think that everyone understands,

or will learn, that OCD is different for everyone. Some children become

extremely ill very quickly and stay ill a long time, others have a short, severe

course of illness but then seem to bounce back, and others have a chronic up and

down illness that never reaches the severity that you are talking about, but

never really goes away either.

Families like yours and 's probably need this list the most since

there can't be anything more frightening or daunting than trying to decide

whether to hospitalize your child.

Please feel free to write and seek support here!!

Best wishes,

in NV

[Guest guest]

In a message dated 10/8/2004 6:30:45 PM Pacific Standard Time,

rgoguen7269@... writes:

If any of you that has children with severe ocd please send message. I

haven't done so the last three months since I did not want to discourage

anybody.

However, I feel better when someone who is going through the same ordeal post. I

feel that I am not alone.

A very big {{{HUG}}} to you and your family. Please don't feel that you

shouldn't post here because you don't want to discourage people! It's the

parents dealing with severe OCD that need the help the most! Many of us have

kids

who are doing reasonably well now, but have been very, very sick in the past.

We don't want you out there suffering alone! I think that everyone understands,

or will learn, that OCD is different for everyone. Some children become

extremely ill very quickly and stay ill a long time, others have a short, severe

course of illness but then seem to bounce back, and others have a chronic up and

down illness that never reaches the severity that you are talking about, but

never really goes away either.

Families like yours and 's probably need this list the most since

there can't be anything more frightening or daunting than trying to decide

whether to hospitalize your child.

Please feel free to write and seek support here!!

Best wishes,

in NV