Guest guest Posted August 14, 2001 Report Share Posted August 14, 2001 Hello all! and I have been inpatient at Lutheran General since last Monday August 6th. He wasstill spiking 103 fevers and a second ear culture came back psudamonas and strepso they put him in and started IV atbx- Piperacillen 4 times a day and gentimyacin (sp) 3 times a day- they finally let us come home Saturday- with iv meds- only three times a day- I think I should go back to school and become a nurse- I definately have enough clinical hours administering IV atbx. We were back toLutheran yesterday to have his port needle changed and need to stay on the meds until next Monday- - we see the same docs at LGH- it is so funny what you wrote about Dr. Krieger- she does go off on non related topics and pinning her down is pretty tough! Dr Rosenfeld is great as well. When gets really sick our locan hospital- Delnor stabilizes him and transports by ambulance to LGH. Kim and - what docs do you guys see? Kim- I wrote your # down and will give you a call soon! Maybe we could all start a chapter together- nothing better than team work! Have a good day- I have to go give his infusion , mom to patrick CVID,antibody def,hypogam Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2001 Report Share Posted August 17, 2001 Hi - I saw the same segment on NBC- I called and left a message for the Illinois patient contact- Verachtert and have not heard back from her yet. It is too bad that the mom that they interviewed at Children's was not familiar with the controvery over this movie. Oh well nothing we can do about that now. Hope your daughter is feeling better soon. Did you get the message about us getting together with the other Illinois moms? Kim said she would be the go between about setting something up I can certainly learn some tips from Kim as she has been dealing with this for 12 years and we, myself, yourself and have little ones. Hope you have a nice weekend! Hanrahan, mom to CVID,antibody def, etc Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 17, 2001 Report Share Posted August 17, 2001 : I saw the same news thing on the movie... the only part of the name I remember of the lady they interviewed was that her first name was . Hope that may help someone help you out! , mom to son Dakota 17 months possible hypogammaglobulinemia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 1, 2001 Report Share Posted September 1, 2001 Hi, sorry I haven't called yet -- we're contagious anyway! has been going back and forth with this pneumonia, she'll seem better and not be wheezing one day and then today she's acting sicker. She's brewing a fever, though it's only low-grade right now, but it's been climbing this morning. She's tired and sluggish. I don't know if it's something new or the pneumonia... she might not be on the right med for it. They were assuming bacterial and gave her a cocktail of amoxicillin + augmentin, so she's got enough abx to choke a horse. But there's the possibility it's mycoplasma instead, so at some point they might switch her to zithromax. But she also has a sinus infection, would zithromax cover that? Nobody's mentioned viral, so I assume one abx or the other should kick this. I just can't figure why her temp is going up on day five. Unless her hoarse voice is a new virus and not related to the pneumonia? Just thinking out loud to the only people who would understand. Thanks. (mom to , age 2, polysaccharide antibody def, IgA def) Quote Link to comment Share on other sites More sharing options...
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