new to list

[Guest guest]

Hi Mickey,

You may want to go to the Autism Research Institute's website

(www.autism.com/ari and read the article entitled Autism: A Novel Form of

Mercury Poisoning. It compares the symptoms of mercury poisoning to the

symptoms of autism. It's quite an eye opener. Also you might want to go

to the FAQs section of this group and read what's been posted there for

background. Andy is a chemist who experienced mercury poisoning himself

and has since written a book on the subject. He is a regular participant

on the list and has very generously offered much time and effort to help

many of us who have questions about chelation and the process. I hope this

helps. Pat

>Subject: New to List

>

>Hi,

>I'm new to the list beginning today. I have an appointment with Dr. Holmes

>next month and really don't know what to expect. We have had no testing done

>as of yet (I am assuming Dr. Holmes will do the testing or order it done). I

>have been reading a lot but am unclear on exactly what is involved with

>chelation and the length of time it takes. My son is 8 years old - I'm not

>even sure what the symptoms are for mercury poisioning other than autistic

>characteristics. If there is any guidance anyone could give me, I would be

>grateful.

>

>By the way, who is Andy?

>

>Yours,

>Mickey Ellis

[Guest guest]

Look in the files of the list--there should be lots of info. there to bring

you up to speed. You want to read the paper which is on the

website of the Autism Research Institute. That will tell you plenty!

Barb

[ ] New to List

>Hi,

>I'm new to the list beginning today. I have an appointment with Dr. Holmes

>next month and really don't know what to expect. We have had no testing

done

>as of yet (I am assuming Dr. Holmes will do the testing or order it done).

I

>have been reading a lot but am unclear on exactly what is involved with

>chelation and the length of time it takes. My son is 8 years old - I'm not

>even sure what the symptoms are for mercury poisioning other than autistic

>characteristics. If there is any guidance anyone could give me, I would be

>grateful.

>

>By the way, who is Andy?

>

>Yours,

>Mickey Ellis

>

>

>=======================================================

>

[Guest guest]

Hi Mickey,

Welcome.

Let's see. um -- You could read the FAQ. It will tell you a bit about

symptoms and what's involved in chelation. If you read the list for

awhile that will also tell you some about both.

I'd suggest you get a hair test while you are waiting.

Chelation takes 6 months to 2 years.

You could also buy Andy's book. (http://hometown.aol.com/noamalgam)

Exactly what is involved? (It is hard for me not to be sarcastic,

which I really don't want to do, since your question is sincere you

deserve a sincere answer!) What is involved will vary from case to

case depending on all kinds of things. The basic idea is really

downright simple: you have your child swallow a chelation agent from

time to time (either in a capsule or mixed into liquid or food).

The 2 common chelation agents are DMSA and ALA.

Generally chelation might go something like this:

1. give the chelation agent (DMSA or DMSA/ALA) every 3 or 4 or 8 hours

(how often is a big topic around here) for several days (varies)

2. don't give them the chelation agent for several days (varies)

3. repeat.

There are lots of other details (supplementation, urine testing, what

agent, what dose, what schedule, how often, etc etc etc etc)-- but the

basic idea is that you are giving your child a dose of a chelation

agent, on a regular time schedule, for a few days, then resting for

a few days, then repeating the whole thing.

A lot of people on this list use a dose scheudle that is ever 3 or 4

hours INCLUDING AT NIGHT. So, one of the big personal issues involved

in chelation is waking up at night to take/give a dose (to self or child).

I hope this is some help.

Moria

(I'm doing chelation on mySELF: I have no kids.)

RESPONDING TO:

From: Altamesa1@...

Mailing-List: list ; contact

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Delivered-mailing list

List-Unsubscribe: <mailto: -unsubscribe >

Date: Thu, 26 Apr 2001 21:45:06 EDT

Reply-

Subject: [ ] New to List

Hi,

I'm new to the list beginning today. I have an appointment with Dr. Holmes

next month and really don't know what to expect. We have had no testing done

as of yet (I am assuming Dr. Holmes will do the testing or order it done). I

have been reading a lot but am unclear on exactly what is involved with

chelation and the length of time it takes. My son is 8 years old - I'm not

even sure what the symptoms are for mercury poisioning other than autistic

characteristics. If there is any guidance anyone could give me, I would be

grateful.

By the way, who is Andy?

Yours,

Mickey Ellis

[Guest guest]

My son is 8 years old - I'm not

even sure what the symptoms are for mercury poisioning other than

autistic

characteristics. If there is any guidance anyone could give me, I would

be

grateful.

By the way, who is Andy?

Yours, Mickey Ellis

*******

I would go ahead and get a hair elements test done to find

out more about what you are dealing with asap. It gives an idea of

toxic exposures plus essential mineral imbalances. Its easy and

inexpensive. If you have a doctor who will order the test get it

from www.doctorsdata.com or www.gsdl.com

If not you can order it direct from www.bodybalance.com or

www.vrp.com

but I think you don't get as many things tested that way.

Once you find out more about what the problems are, they can be dealt

with by nutrition and supplements for the most part, dealing with

electrolyte imbalances, mineral imbalances, essential fatty acid

imbalances, perhaps hormonal imbalances, etc. and

oral supplement antagonists or chelators to deal with high toxic

metals. How long it takes depends on the individuals exposure and age

and other factors. There may also be viral or candida connections.

Bernie

[Guest guest]

Have you looked into chelation? You could have their hair tested to see if

they're toxic. It seems that our kids will always have problems with yeast,

food allergies, and GI problems until we get rid of the heavy metals in their

bodies.

Jo (South Carolina)

[Guest guest]

Thanks for approving my membership. I live & work in Georgia (yoga

instructor & professor). I have been a vegetarian for 32 years.

.... Valarie

[Guest guest]

> Thanks for approving my membership. I live & work in Georgia (yoga

> instructor & professor). I have been a vegetarian for 32 years.

----> Hi Valarie,

Since you mentioned Georgia I though you might like to know we have

an active group here: GA_WPF/

You're welcome to join us. We do have access to raw dairy products

but don't advertise it on this site as it's too public. If you're

interested in that send me a private e-mail and I'll send you my

phone #.

Lynn

[Guest guest]

Lynn pointed out [[since you mentioned Georgia I though you might

like to know we have an active group here:]]

** I joined there today! The archives are very informative. Thank

you for mentioning it!

Om Peace!..

Valarie

[Guest guest]

Hi romasweb, welcome to the group. If the RA is interfering with

your ability to live your life, why not at least investigate

medications to treat it? Do you have a rheumatologist? I

understand not wanting to take medication, but this is a progressive

disease and if yours has progressed it is not likely to stop or get

any better. Leaving it untreated for an extended period of time can

lead to more severe joint destruction. Joint destruction can be

limited or stopped with proper medication. This is important

because once you have loss of joints, there is no going back, no

cure or treatment for that. Severe joint destruction will

permenantly limit your ability to do the things you want to be able

to do.

The medications available today are nothing like what they had it

when you were younger. The side effects are not that bad and it's

very possible to have no side effects from most of the drugs. Mine

have been minor compared to my life without them, and very

managable.

Jennie

> Hi to everybody here I am new but not new to the problems of RA.

> diagnosed at the age of 4 I went cripple for months at a time,

> however in the years since I have been lucky because the attacks

> have been few and not too severe. In the last couple of years

though

> it is getting worst with more swollen joints more often. The worst

I

> find is what I have to give up doing now. I can't seem to be able

to

> sit around and watch tv all day. I like to sew, knit, crochet and

> play the piano but I can't seem to be able to do any of it now and

> that is as bad as the pain. it takes away meaning in your life I

> find anyway, I don't know how anybody else feels, I am not taking

> any meds for it and I will try to stay off them as long as

possible

> though lately it is very tempting. I am 47 now and I have

diabetes,

> I walk alot which seems to help but my arms are the worst, I would

> like to learn as much as I can about RA. I consider myself lucky

> that the attacks aren't all the time and I get times when I can do

> things I want to do. I am sure there is alot worst than I am and I

> have no right to complain.

[Guest guest]

Hi, welcome to the list. I am new here as well. There are some medications out

now, like Vioxx, that actually do seem to help with range-of-motion and

inflammation issues. When I was a kid and got it, there was nothing really

great out there and I just had to keep taking more and more to get any sort of

relief and it tore up my insides so I had to stop. And then I stopped looking

at traditional medicine. However, I have now since tried some things including

Vioxx and Celebrex. Celebrex I didn't like at all, but Vioxx was all right

except it was extremely expensive. So I'm not on it now and can't speak about

it wearing off like everything else has for me. They are lots of other

medicines too that I see other people talking about on the list, some of which

I've tried too, but there seems to be enough discussion on that for you to get

the info you would need from here.

I can definitely relate to the loss of meaning that you talk about. Music was

how I expressed myself and how I dealt with all sorts of things and how I

received, in many ways, from others as well. When it got to the point that I

just couldn't do it anymore, I was devastated. I haven't really recovered from

that and am still looking for a new vocation.

I wouldn't worry about " a right to complain " . Pain is not a competition and all

you know about someone's pain is what they share anyway. So somebody could have

lots of conditions and things and other issues and just talk about one thing or

someone could have one thing but it affects them very strongly - it just doesn't

matter how you " stack up " . I've been in situations where with the variety of

conditions I have or for some specific condition I'm considered " the worst of

the bunch " and in others where there is somebody worse than me in one area and

I'm worse than them in another and I find it very non-constructive. It's

isolating to have to put it on a scale like that because you can either feel

unworthy to be discussing your pain or feel like you have so much that you can't

discuss it with anybody without them understanding. So what I try to do is take

each situation as it comes and talk about what I need to talk about or what

someone else needs to talk about and let all the

other people worry about categorizing if it is important to them. I'd rather

find the common ground points - of health, of pain, of healing, of whatever,

than focusing on the differences or try to one-up anybody or worry that I

shouldn't be talking.

Sorry for the ramble...going to go hide now....

BCNU

heather

romasweb <rl-hl@...> wrote:

Hi to everybody here I am new but not new to the problems of RA.

diagnosed at the age of 4 I went cripple for months at a time,

however in the years since I have been lucky because the attacks

have been few and not too severe. In the last couple of years though

it is getting worst with more swollen joints more often. The worst I

find is what I have to give up doing now. I can't seem to be able to

sit around and watch tv all day. I like to sew, knit, crochet and

play the piano but I can't seem to be able to do any of it now and

that is as bad as the pain. it takes away meaning in your life I

find anyway, I don't know how anybody else feels, I am not taking

any meds for it and I will try to stay off them as long as possible

though lately it is very tempting. I am 47 now and I have diabetes,

I walk alot which seems to help but my arms are the worst, I would

like to learn as much as I can about RA. I consider myself lucky

that the attacks aren't all the time and I get times when I can do

things I want to do. I am sure there is alot worst than I am and I

have no right to complain.