Guest guest Posted March 21, 2001 Report Share Posted March 21, 2001 Wow, way to go ! You must be so proud and so must he!!! That is wonderful news. Grace Caroline 8/14/97 Caelan 8/26/99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2001 Report Share Posted March 21, 2001 Wow, way to go ! You must be so proud and so must he!!! That is wonderful news. Grace Caroline 8/14/97 Caelan 8/26/99 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2001 Report Share Posted April 17, 2001 - I have dealt with many meningitis patients at the hospital over the years and it still makes me skittish. I have become comfortable in the idea that there are two types of bacterial meningitis, pneumococcal and meningecoccal (sp). The pneumococcal is what most people get, the meningecoccal is what is so very contagious. Both are devastating illnesses and I am thankful we have escaped both so far. Ursula Holleman Macey's mom (5 yr. old with CVID, asthma, sinus disease, GERD, kidney reflux, Sensory Integration Disorder, Diabetes Insipidus) http://home.att.net/~maceyh/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2001 Report Share Posted May 14, 2001 OK. The testing Les and had done were intradermals. That's all this doctor does. Macey had the skin prick tests done when she was 2. So it would be the intradermals that she has this time. Somewhere around 60-100. That's why i'm so apprehensive about the sensory issues. Each and every stick would be like an IV start to her (she doesn't understand we won't have to fish around for a vein). Ugghhhh what to do, what to do. Ursula Holleman Macey's mom (6 yr. old with CVID, asthma, sinus disease, GERD, kidney reflux, Sensory Integration Disorder, Diabetes Insipidus) http://home.att.net/~maceyh/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2001 Report Share Posted May 14, 2001 OK. The testing Les and had done were intradermals. That's all this doctor does. Macey had the skin prick tests done when she was 2. So it would be the intradermals that she has this time. Somewhere around 60-100. That's why i'm so apprehensive about the sensory issues. Each and every stick would be like an IV start to her (she doesn't understand we won't have to fish around for a vein). Ugghhhh what to do, what to do. Ursula Holleman Macey's mom (6 yr. old with CVID, asthma, sinus disease, GERD, kidney reflux, Sensory Integration Disorder, Diabetes Insipidus) http://home.att.net/~maceyh/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2001 Report Share Posted May 14, 2001 OK. The testing Les and had done were intradermals. That's all this doctor does. Macey had the skin prick tests done when she was 2. So it would be the intradermals that she has this time. Somewhere around 60-100. That's why i'm so apprehensive about the sensory issues. Each and every stick would be like an IV start to her (she doesn't understand we won't have to fish around for a vein). Ugghhhh what to do, what to do. Ursula Holleman Macey's mom (6 yr. old with CVID, asthma, sinus disease, GERD, kidney reflux, Sensory Integration Disorder, Diabetes Insipidus) http://home.att.net/~maceyh/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2001 Report Share Posted May 14, 2001 Ursula, Our intradermals were done on the back and with Emla in place. The kids didn't feel a thing. > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2001 Report Share Posted May 14, 2001 wouldn't the emla desensitize the area? Could you see an accurate disk if it formed? But otherwise it's no use anyway. She has shown skin irritation (aka allergy) to both the emla cream as well as the tegaderm (we never tried the syran wrap method). The cream breaks down her skin, it weeps then blisters then bleeds. I have many nasty pictures of IV starts and Emla sites over her old port where it went from bad to worse. But thanks for the suggestion. If ever needs them done again it will help with her. Ursula Holleman Macey's mom (6 yr. old with CVID, asthma, sinus disease, GERD, kidney reflux, Sensory Integration Disorder, Diabetes Insipidus) http://home.att.net/~maceyh/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2001 Report Share Posted May 14, 2001 Ursula, I had the intradermals done and I personally prefer them to skin prick testing. My back is ultra sensitive and I HATED that type of testing. Intradermals were easy and you could barely feel them. My boys and I tolerated them quite well. Why 60-100? That seems like an awful lot, but then maybe they are trying to get in done in one take. It does not even seem like her arms would be big enough for that amount of intradermals. Are you sure that they would do all of those in one day? I know that this is not an easy decision for you...I would talk it over thoroughly with her PED, allergist/immunologist, and ENT...have them talk and then perhaps you will have enough feedback to know what to do. Maybe you could work out a " deal " with Macey...promise her something special, whether it be a special toy or special time with Mommy etc., sometimes that helps the little ones. I do not look at it as " bribing " but rather, rewarding bravery. Good luck and let us know what you decide. Autumn (Mom to Mark Cd5-Cd19 PID and ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2001 Report Share Posted May 14, 2001 Somewhere around 60-100. > That's why i'm so apprehensive about the sensory issues. Each and every > stick would be like an IV start to her (she doesn't understand we won't have > to fish around for a vein). Ugghhhh what to do, what to do. EMLA EMLA EMLA Thats what our doctor uses for intradermals and young kids. It has been too " intense " for our son without Emla. Once he hits #30, he is really fed up otherwise. Put it on thick an hour before testing, wrap plastic wrap around it. Cover most of one upper arm. ---------------------- Conatser conatser@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2001 Report Share Posted May 14, 2001 Somewhere around 60-100. > That's why i'm so apprehensive about the sensory issues. Each and every > stick would be like an IV start to her (she doesn't understand we won't have > to fish around for a vein). Ugghhhh what to do, what to do. EMLA EMLA EMLA Thats what our doctor uses for intradermals and young kids. It has been too " intense " for our son without Emla. Once he hits #30, he is really fed up otherwise. Put it on thick an hour before testing, wrap plastic wrap around it. Cover most of one upper arm. ---------------------- Conatser conatser@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 14, 2001 Report Share Posted May 14, 2001 Somewhere around 60-100. > That's why i'm so apprehensive about the sensory issues. Each and every > stick would be like an IV start to her (she doesn't understand we won't have > to fish around for a vein). Ugghhhh what to do, what to do. EMLA EMLA EMLA Thats what our doctor uses for intradermals and young kids. It has been too " intense " for our son without Emla. Once he hits #30, he is really fed up otherwise. Put it on thick an hour before testing, wrap plastic wrap around it. Cover most of one upper arm. ---------------------- Conatser conatser@... Quote Link to comment Share on other sites More sharing options...
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