Re: Weird Rash

[Guest guest]

I try not to rely on my mom for too much. My younger sister takes advantage

of her way too much & so for that reason, I try to be as self-sufficient as

possible. Plus, my mother lives with her mother (who is 80 this year) and

has that responsibility also. My grandmother is fairly self-sufficient--she

can cook basic meals, dress, bathe, etc. so my mom is really there for

support. Plus, my mom has control of her finances because I have several

aunts who like to ask for $ too much!

My husband is also great. Since I was at the hospital until midnight, he

fed the kids, did the medicine ritual & put them in bed on time. Plus, he

did breathing treatments at 11 p.m. & 5 a.m. I'm working late tonight

because I needed to sleep in, so he'll also pick them up & do medicines

right after work (just in time for another treatment!). I don't know what

I'd do without him! Now, if I could only get him to do the laundry too?

Or, is that asking too much?!

Thanks for the concern. It means a lot to me. Sometimes I wish we could

just conquer the asthma because that is 3/4 of our problem. She's still too

young to do peak flows, so most of the time it's a guessing game.

Yesterday, she told the dr it hurt to breathe--a step in the right

direction. If I can get her to tell me when she is in trouble, I won't have

to do so much guesswork. I think that's still wishful thinking at this age,

but you never know. I think our kids are so in tune with their bodies they

can tell us just about anything we need to know.

As for the Singulair causing stomach aches--Autumn has always complained of

stomach aches, so I can't really say that the Singulair causes it. Plus, I

would rather deal with the stomach aches because it has done wonders for the

asthma. Before we were dealing with attacks that would last 2-3 weeks. Now

we're down to ones that last 2-3 days (except for bad ones) and we're back

to normal. Plus, she has far fewer episodes on Singulair than she did

without it. I guess it's a trade-off.

Ray, mother to Tabitha (age 5), Autumn, age 3 (IgG def., asthma,

chronic sinusitis, and allergies), and Duncan Avery due 5/17/01

[Guest guest]

I try not to rely on my mom for too much. My younger sister takes advantage

of her way too much & so for that reason, I try to be as self-sufficient as

possible. Plus, my mother lives with her mother (who is 80 this year) and

has that responsibility also. My grandmother is fairly self-sufficient--she

can cook basic meals, dress, bathe, etc. so my mom is really there for

support. Plus, my mom has control of her finances because I have several

aunts who like to ask for $ too much!

My husband is also great. Since I was at the hospital until midnight, he

fed the kids, did the medicine ritual & put them in bed on time. Plus, he

did breathing treatments at 11 p.m. & 5 a.m. I'm working late tonight

because I needed to sleep in, so he'll also pick them up & do medicines

right after work (just in time for another treatment!). I don't know what

I'd do without him! Now, if I could only get him to do the laundry too?

Or, is that asking too much?!

Thanks for the concern. It means a lot to me. Sometimes I wish we could

just conquer the asthma because that is 3/4 of our problem. She's still too

young to do peak flows, so most of the time it's a guessing game.

Yesterday, she told the dr it hurt to breathe--a step in the right

direction. If I can get her to tell me when she is in trouble, I won't have

to do so much guesswork. I think that's still wishful thinking at this age,

but you never know. I think our kids are so in tune with their bodies they

can tell us just about anything we need to know.

As for the Singulair causing stomach aches--Autumn has always complained of

stomach aches, so I can't really say that the Singulair causes it. Plus, I

would rather deal with the stomach aches because it has done wonders for the

asthma. Before we were dealing with attacks that would last 2-3 weeks. Now

we're down to ones that last 2-3 days (except for bad ones) and we're back

to normal. Plus, she has far fewer episodes on Singulair than she did

without it. I guess it's a trade-off.

Ray, mother to Tabitha (age 5), Autumn, age 3 (IgG def., asthma,

chronic sinusitis, and allergies), and Duncan Avery due 5/17/01

[Guest guest]

I try not to rely on my mom for too much. My younger sister takes advantage

of her way too much & so for that reason, I try to be as self-sufficient as

possible. Plus, my mother lives with her mother (who is 80 this year) and

has that responsibility also. My grandmother is fairly self-sufficient--she

can cook basic meals, dress, bathe, etc. so my mom is really there for

support. Plus, my mom has control of her finances because I have several

aunts who like to ask for $ too much!

My husband is also great. Since I was at the hospital until midnight, he

fed the kids, did the medicine ritual & put them in bed on time. Plus, he

did breathing treatments at 11 p.m. & 5 a.m. I'm working late tonight

because I needed to sleep in, so he'll also pick them up & do medicines

right after work (just in time for another treatment!). I don't know what

I'd do without him! Now, if I could only get him to do the laundry too?

Or, is that asking too much?!

Thanks for the concern. It means a lot to me. Sometimes I wish we could

just conquer the asthma because that is 3/4 of our problem. She's still too

young to do peak flows, so most of the time it's a guessing game.

Yesterday, she told the dr it hurt to breathe--a step in the right

direction. If I can get her to tell me when she is in trouble, I won't have

to do so much guesswork. I think that's still wishful thinking at this age,

but you never know. I think our kids are so in tune with their bodies they

can tell us just about anything we need to know.

As for the Singulair causing stomach aches--Autumn has always complained of

stomach aches, so I can't really say that the Singulair causes it. Plus, I

would rather deal with the stomach aches because it has done wonders for the

asthma. Before we were dealing with attacks that would last 2-3 weeks. Now

we're down to ones that last 2-3 days (except for bad ones) and we're back

to normal. Plus, she has far fewer episodes on Singulair than she did

without it. I guess it's a trade-off.

Ray, mother to Tabitha (age 5), Autumn, age 3 (IgG def., asthma,

chronic sinusitis, and allergies), and Duncan Avery due 5/17/01

[Guest guest]

I'm pulling for all of you to soon be well. Hope you do okay at work, I

know you must be exhausted!

Re: Weird Rash

> I try not to rely on my mom for too much. My younger sister takes

advantage

> of her way too much & so for that reason, I try to be as self-sufficient

as

> possible. Plus, my mother lives with her mother (who is 80 this year) and

> has that responsibility also. My grandmother is fairly

self-sufficient--she

> can cook basic meals, dress, bathe, etc. so my mom is really there for

> support. Plus, my mom has control of her finances because I have several

> aunts who like to ask for $ too much!

>

> My husband is also great. Since I was at the hospital until midnight, he

> fed the kids, did the medicine ritual & put them in bed on time. Plus, he

> did breathing treatments at 11 p.m. & 5 a.m. I'm working late tonight

> because I needed to sleep in, so he'll also pick them up & do medicines

> right after work (just in time for another treatment!). I don't know what

> I'd do without him! Now, if I could only get him to do the laundry too?

> Or, is that asking too much?!

>

> Thanks for the concern. It means a lot to me. Sometimes I wish we could

> just conquer the asthma because that is 3/4 of our problem. She's still

too

> young to do peak flows, so most of the time it's a guessing game.

> Yesterday, she told the dr it hurt to breathe--a step in the right

> direction. If I can get her to tell me when she is in trouble, I won't

have

> to do so much guesswork. I think that's still wishful thinking at this

age,

> but you never know. I think our kids are so in tune with their bodies

they

> can tell us just about anything we need to know.

>

> As for the Singulair causing stomach aches--Autumn has always complained

of

> stomach aches, so I can't really say that the Singulair causes it. Plus,

I

> would rather deal with the stomach aches because it has done wonders for

the

> asthma. Before we were dealing with attacks that would last 2-3 weeks.

Now

> we're down to ones that last 2-3 days (except for bad ones) and we're back

> to normal. Plus, she has far fewer episodes on Singulair than she did

> without it. I guess it's a trade-off.

>

> Ray, mother to Tabitha (age 5), Autumn, age 3 (IgG def., asthma,

> chronic sinusitis, and allergies), and Duncan Avery due 5/17/01

>

>

>

>

> This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the

sole responsibility of the poster and should not be taken as professional

advice.

>

>

[Guest guest]

Ray,

I am sorry to hear that you are dealing with Fifths Disease in your two girls

right now. I hope they come through ok. As for yourself, I will be keeping

an eye out for you future posts re: blood test result.

I had no idea that hand foot and mouth could lead to compliscations such as

have been described in the recent days. And I had never heard of Fifths

until now!

Take care- I hope the last 8 weeks of your pregnancy are full of less traumas

than your previous 8 have been!

, and s mum

[Guest guest]

Ray,

I am sorry to hear that you are dealing with Fifths Disease in your two girls

right now. I hope they come through ok. As for yourself, I will be keeping

an eye out for you future posts re: blood test result.

I had no idea that hand foot and mouth could lead to compliscations such as

have been described in the recent days. And I had never heard of Fifths

until now!

Take care- I hope the last 8 weeks of your pregnancy are full of less traumas

than your previous 8 have been!

, and s mum