Guest guest Posted April 5, 2001 Report Share Posted April 5, 2001 I'm curious about those whose children have received MMR. We were told in no uncertain terms that could NOT receive any live vaccines, especially MMR and polio. She had gotten the killed polio vaccine before we knew she had a PID, so I thank God our ped didn't use the live version. She ended up having to have two or three extra polio vaccines before she responded, and we don't know if they " stuck " . She did fine with Varicella, though, no spots or fever, and she even made good antibodies! Oh, it's all so complicated, isn't it? (mom to , age 2, antibody def, IgA, IgM, IgG & subclass def - not on IGIV yet) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2001 Report Share Posted April 5, 2001 I'm curious about those whose children have received MMR. We were told in no uncertain terms that could NOT receive any live vaccines, especially MMR and polio. She had gotten the killed polio vaccine before we knew she had a PID, so I thank God our ped didn't use the live version. She ended up having to have two or three extra polio vaccines before she responded, and we don't know if they " stuck " . She did fine with Varicella, though, no spots or fever, and she even made good antibodies! Oh, it's all so complicated, isn't it? (mom to , age 2, antibody def, IgA, IgM, IgG & subclass def - not on IGIV yet) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2001 Report Share Posted April 5, 2001 I'm curious about those whose children have received MMR. We were told in no uncertain terms that could NOT receive any live vaccines, especially MMR and polio. She had gotten the killed polio vaccine before we knew she had a PID, so I thank God our ped didn't use the live version. She ended up having to have two or three extra polio vaccines before she responded, and we don't know if they " stuck " . She did fine with Varicella, though, no spots or fever, and she even made good antibodies! Oh, it's all so complicated, isn't it? (mom to , age 2, antibody def, IgA, IgM, IgG & subclass def - not on IGIV yet) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2001 Report Share Posted April 5, 2001 Hi , You might have seen in an earlier post how Chad's MMR was given. Because he was going to be attempting school for the first time (while off IVIG), our former pediatrician and our current immunologist discussed it at length by phone and decided to go ahead and try to give the MMR in very small increments (in the past, this was not considered an option at all). They felt it would be more risky for him not to have it than to attempt this. They had a plan mapped out if he reacted. I can't say that I would recommend this to anyone. You just never really know how a child might react, even a child who doesn't have any health problems. I can't tell you whether or not Chad's antibody responses were good because he had to go back on IVIG just a few months after the MMR was completed and the ped didn't test them before this happened. He has so many issues going on that this has been one of the least of our worries. I feel that each person has to go by what their individual doctors recommend. And unfortunately, with PID, there are so many unknowns that it's hard to know sometimes if what they're telling you is the best route for you to take. After dealing with this for nine years, , we've found that our best approach with Chad is to take the " first things first " route. In the past, we had so many doctors working on all different ends that none of them were getting nowhere fast. My husband and I put some of the nit picky stuff on hold. The doctors we have now also take the " first things first " approach and are trying to get Chad stabilized enough so that we can look into some of the issues he has pending that are causing problems. Some doctors will nit pick a specific problem apart while not concentrating on the whole picture. You get into that a lot when you have to deal with lots of different sub-specialists. Hope this helps a little. I wish you the best in getting your answers and mapping out the best course for 's treatment. , mother of Chad, age 9, " Hypo " , GERD, Asthma/Bronchitis, " Allergy King " , Scoliosis, ??IGA Nephropathy, Anemia Re: MMR > I'm curious about those whose children have received MMR. We were told in no > uncertain terms that could NOT receive any live vaccines, especially > MMR and polio. She had gotten the killed polio vaccine before we knew she had > a PID, so I thank God our ped didn't use the live version. She ended up > having to have two or three extra polio vaccines before she responded, and we > don't know if they " stuck " . > > She did fine with Varicella, though, no spots or fever, and she even made > good antibodies! Oh, it's all so complicated, isn't it? > > (mom to , age 2, antibody def, IgA, IgM, IgG & subclass def - not > on IGIV yet) > > > This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2001 Report Share Posted April 5, 2001 Hi , You might have seen in an earlier post how Chad's MMR was given. Because he was going to be attempting school for the first time (while off IVIG), our former pediatrician and our current immunologist discussed it at length by phone and decided to go ahead and try to give the MMR in very small increments (in the past, this was not considered an option at all). They felt it would be more risky for him not to have it than to attempt this. They had a plan mapped out if he reacted. I can't say that I would recommend this to anyone. You just never really know how a child might react, even a child who doesn't have any health problems. I can't tell you whether or not Chad's antibody responses were good because he had to go back on IVIG just a few months after the MMR was completed and the ped didn't test them before this happened. He has so many issues going on that this has been one of the least of our worries. I feel that each person has to go by what their individual doctors recommend. And unfortunately, with PID, there are so many unknowns that it's hard to know sometimes if what they're telling you is the best route for you to take. After dealing with this for nine years, , we've found that our best approach with Chad is to take the " first things first " route. In the past, we had so many doctors working on all different ends that none of them were getting nowhere fast. My husband and I put some of the nit picky stuff on hold. The doctors we have now also take the " first things first " approach and are trying to get Chad stabilized enough so that we can look into some of the issues he has pending that are causing problems. Some doctors will nit pick a specific problem apart while not concentrating on the whole picture. You get into that a lot when you have to deal with lots of different sub-specialists. Hope this helps a little. I wish you the best in getting your answers and mapping out the best course for 's treatment. , mother of Chad, age 9, " Hypo " , GERD, Asthma/Bronchitis, " Allergy King " , Scoliosis, ??IGA Nephropathy, Anemia Re: MMR > I'm curious about those whose children have received MMR. We were told in no > uncertain terms that could NOT receive any live vaccines, especially > MMR and polio. She had gotten the killed polio vaccine before we knew she had > a PID, so I thank God our ped didn't use the live version. She ended up > having to have two or three extra polio vaccines before she responded, and we > don't know if they " stuck " . > > She did fine with Varicella, though, no spots or fever, and she even made > good antibodies! Oh, it's all so complicated, isn't it? > > (mom to , age 2, antibody def, IgA, IgM, IgG & subclass def - not > on IGIV yet) > > > This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2001 Report Share Posted April 5, 2001 Hi , You might have seen in an earlier post how Chad's MMR was given. Because he was going to be attempting school for the first time (while off IVIG), our former pediatrician and our current immunologist discussed it at length by phone and decided to go ahead and try to give the MMR in very small increments (in the past, this was not considered an option at all). They felt it would be more risky for him not to have it than to attempt this. They had a plan mapped out if he reacted. I can't say that I would recommend this to anyone. You just never really know how a child might react, even a child who doesn't have any health problems. I can't tell you whether or not Chad's antibody responses were good because he had to go back on IVIG just a few months after the MMR was completed and the ped didn't test them before this happened. He has so many issues going on that this has been one of the least of our worries. I feel that each person has to go by what their individual doctors recommend. And unfortunately, with PID, there are so many unknowns that it's hard to know sometimes if what they're telling you is the best route for you to take. After dealing with this for nine years, , we've found that our best approach with Chad is to take the " first things first " route. In the past, we had so many doctors working on all different ends that none of them were getting nowhere fast. My husband and I put some of the nit picky stuff on hold. The doctors we have now also take the " first things first " approach and are trying to get Chad stabilized enough so that we can look into some of the issues he has pending that are causing problems. Some doctors will nit pick a specific problem apart while not concentrating on the whole picture. You get into that a lot when you have to deal with lots of different sub-specialists. Hope this helps a little. I wish you the best in getting your answers and mapping out the best course for 's treatment. , mother of Chad, age 9, " Hypo " , GERD, Asthma/Bronchitis, " Allergy King " , Scoliosis, ??IGA Nephropathy, Anemia Re: MMR > I'm curious about those whose children have received MMR. We were told in no > uncertain terms that could NOT receive any live vaccines, especially > MMR and polio. She had gotten the killed polio vaccine before we knew she had > a PID, so I thank God our ped didn't use the live version. She ended up > having to have two or three extra polio vaccines before she responded, and we > don't know if they " stuck " . > > She did fine with Varicella, though, no spots or fever, and she even made > good antibodies! Oh, it's all so complicated, isn't it? > > (mom to , age 2, antibody def, IgA, IgM, IgG & subclass def - not > on IGIV yet) > > > This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2001 Report Share Posted April 5, 2001 Autumn had the MMR with no problems. Of course, I didn't know then about the PID, so we might have changed our mind had we known. She's due this year for the booster (at 4?) and we haven't decided what to do yet. I think we're going to look at her numbers over the summer and decide. Ray, mother to Tabitha (age 5), Autumn, age 3 (IgG def., asthma, chronic sinusitis, and allergies), and Duncan Avery due 5/17/01 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2001 Report Share Posted April 5, 2001 Autumn had the MMR with no problems. Of course, I didn't know then about the PID, so we might have changed our mind had we known. She's due this year for the booster (at 4?) and we haven't decided what to do yet. I think we're going to look at her numbers over the summer and decide. Ray, mother to Tabitha (age 5), Autumn, age 3 (IgG def., asthma, chronic sinusitis, and allergies), and Duncan Avery due 5/17/01 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2001 Report Share Posted April 5, 2001 Autumn had the MMR with no problems. Of course, I didn't know then about the PID, so we might have changed our mind had we known. She's due this year for the booster (at 4?) and we haven't decided what to do yet. I think we're going to look at her numbers over the summer and decide. Ray, mother to Tabitha (age 5), Autumn, age 3 (IgG def., asthma, chronic sinusitis, and allergies), and Duncan Avery due 5/17/01 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2001 Report Share Posted April 5, 2001 Macey had a MMR shot before diagnosis but hasn't had one since. She received the polio injection since she was on steroids and also me and my mom were on them alot then so it was recommended. She still has Varicella antibodies from IVIG but a recent level was drawn and I'm waiting to see if she kept any. Ursula Holleman uahollem@... and Macey's mom (5 yr. old with CVID, asthma, sinus disease, GERD, kidney reflux, Sensory Integration Disorder, Diabetes Insipidus) http://www.pedpid.com /group/PedPID Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2001 Report Share Posted April 5, 2001 Macey had a MMR shot before diagnosis but hasn't had one since. She received the polio injection since she was on steroids and also me and my mom were on them alot then so it was recommended. She still has Varicella antibodies from IVIG but a recent level was drawn and I'm waiting to see if she kept any. Ursula Holleman uahollem@... and Macey's mom (5 yr. old with CVID, asthma, sinus disease, GERD, kidney reflux, Sensory Integration Disorder, Diabetes Insipidus) http://www.pedpid.com /group/PedPID Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2001 Report Share Posted June 26, 2001 Macey just recently had the MMR and did just fine. Her tooth looks less red but still swollen. The back part still hasn't broken through but time will tell. We leave for Destin Saturday. She will do another 1/2 bottle of Mag Citrate tomorrow since she hasn't gone since Saturday morning. At this rate we will be cleaning her out twice a week But as long as the oral med works we won't have to consider anything more drastic. This is the last oral med option we have so we're praying heavily that she won't build a tolerance. Ursula Holleman Macey's mom (6 yr. old with CVID, asthma, sinus disease, GERD, kidney reflux, Sensory Integration Disorder, Diabetes Insipidus) http://home.att.net/~maceyh/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted June 26, 2001 Report Share Posted June 26, 2001 Macey just recently had the MMR and did just fine. Her tooth looks less red but still swollen. The back part still hasn't broken through but time will tell. We leave for Destin Saturday. She will do another 1/2 bottle of Mag Citrate tomorrow since she hasn't gone since Saturday morning. At this rate we will be cleaning her out twice a week But as long as the oral med works we won't have to consider anything more drastic. This is the last oral med option we have so we're praying heavily that she won't build a tolerance. Ursula Holleman Macey's mom (6 yr. old with CVID, asthma, sinus disease, GERD, kidney reflux, Sensory Integration Disorder, Diabetes Insipidus) http://home.att.net/~maceyh/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 9, 2009 Report Share Posted January 9, 2009 Hi everyone I joined today, have a daughter just turned 4 on full time home programme and been gf/cf for just over a year and on biomed for last 6 months with Autism Treatment Trust. Can anyone tell me about finding out if measels is still in your childs system? Ella's urine tests indicated an activated immune system, but this could be ongoing bowl problems(probably related to the mmr shot!).Has anyone tried homeopathy approach of giving their chid the virus to bring it out(or something like that LOL!)??. Waiting for stool test results from USA. Quote Link to comment Share on other sites More sharing options...
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