Re: APPGA inquiry into transition (14-25 yr olds with autism)

January 8, 2009

I've done this survey Zoe. These people seem to be living on another

planet.

What is the biggest obstacle to your child's transition to adult hood?

Answer: There is no provision for her -- there is nothing to access.

I almost fell off my seat. It's about 8/9 questions. All of them

displaying complete ignorance of life the universe and everything. I

recommend everyone do it. It's very simple but raises the blood pressure.

Sally

Zoe wrote:

>

> Forwarding message from Sasha Daly of TreeHouse re APPGA inquiry

> into transition - TreeHouse will be submitting evidence and here is

> how your family's experience can be part of that evidence:

>

> Dear Parents

>

> The All Party Parliamentary Group on Autism (APPGA) is currently

> holding its first ever inquiry. The inquiry is looking at the

> transition stage of young people with autism from the age of 14 to

> 25. Transition can be a difficult time for young people with autism

> so effective support and early planning is essential. The inquiry

> was launched on 9 December 2008 and will take both written and oral

> evidence. Written evidence will be taken up to 6 February 2009, and

> the officers of the group will call on a few people to give oral

> evidence later in February and in March.

>

> TreeHouse will be submitting written evidence to the inquiry. It

> would be extremely helpful to get your feedback from you to inform

> our submission. We have therefore put together the following survey

> to collect your views. This survey is completely anonymous.

>

> The first page of the survey asks for some background information.

> The second page gives you a chance to answer the specific inquiry

> questions. As these questions are quite long and detailed we also

> have a third and final page which provides a chance for you to write

> down any thoughts you have on the topic. The survey is constructed

> so that you don't have to answer any of the questions specifically

> (except for the initial background questions), so please feel free

> to only answer questions that you want to.

>

> Please complete the survey here:

>

> http://www.surveymonkey.com/s.aspx?sm=nbohYwOZ6l_2bW6EsjhcL6Og_3d_3d

> <http://www.surveymonkey.com/s.aspx?sm=nbohYwOZ6l_2bW6EsjhcL6Og_3d_3d>

>

> Thank you for your time in looking at this and sending me your

> thoughts to inform our response, it really makes a difference to

> hear your views and experiences. Please do forward this on to other

> parents in your networks.

>

> The deadline for this survey is Friday 30 January.

>

> If you would like to submit evidence directly to the inquiry you can

> do that aswell/instead by going to the National Autistic Society

> website: http://www.autism.org.uk/nas/jsp/polopoly.jsp?d=2029

> <http://www.autism.org.uk/nas/jsp/polopoly.jsp?d=2029>

>

> Zoe

>

> ------------------------------------------------------------------------

>

> No virus found in this incoming message.

> Checked by AVG - http://www.avg.com

> Version: 8.0.176 / Virus Database: 270.10.5/1881 - Release Date: 07/01/2009

17:59

>

January 9, 2009

Zoe,

presumably it's not for parents of little ones. Tom's only 6. Correct me

if I'm wrong,

Sara

Eva family wrote:

>

> I've done this survey Zoe. These people seem to be living on another

> planet.

>

> What is the biggest obstacle to your child's transition to adult hood?

> Answer: There is no provision for her -- there is nothing to access.

>

> I almost fell off my seat. It's about 8/9 questions. All of them

> displaying complete ignorance of life the universe and everything. I

> recommend everyone do it. It's very simple but raises the blood pressure.

>

> Sally

>

> Zoe wrote:

> >

> > Forwarding message from Sasha Daly of TreeHouse re APPGA inquiry

> > into transition - TreeHouse will be submitting evidence and here is

> > how your family's experience can be part of that evidence:

> >

> > Dear Parents

> >

> > The All Party Parliamentary Group on Autism (APPGA) is currently

> > holding its first ever inquiry. The inquiry is looking at the

> > transition stage of young people with autism from the age of 14 to

> > 25. Transition can be a difficult time for young people with autism

> > so effective support and early planning is essential. The inquiry

> > was launched on 9 December 2008 and will take both written and oral

> > evidence. Written evidence will be taken up to 6 February 2009, and

> > the officers of the group will call on a few people to give oral

> > evidence later in February and in March.

> >

> > TreeHouse will be submitting written evidence to the inquiry. It

> > would be extremely helpful to get your feedback from you to inform

> > our submission. We have therefore put together the following survey

> > to collect your views. This survey is completely anonymous.

> >

> > The first page of the survey asks for some background information.

> > The second page gives you a chance to answer the specific inquiry

> > questions. As these questions are quite long and detailed we also

> > have a third and final page which provides a chance for you to write

> > down any thoughts you have on the topic. The survey is constructed

> > so that you don't have to answer any of the questions specifically

> > (except for the initial background questions), so please feel free

> > to only answer questions that you want to.

> >

> > Please complete the survey here:

> >

> > http://www.surveymonkey.com/s.aspx?sm=nbohYwOZ6l_2bW6EsjhcL6Og_3d_3d

> <http://www.surveymonkey.com/s.aspx?sm=nbohYwOZ6l_2bW6EsjhcL6Og_3d_3d>

> >

> <http://www.surveymonkey.com/s.aspx?sm=nbohYwOZ6l_2bW6EsjhcL6Og_3d_3d

> <http://www.surveymonkey.com/s.aspx?sm=nbohYwOZ6l_2bW6EsjhcL6Og_3d_3d>>

> >

> > Thank you for your time in looking at this and sending me your

> > thoughts to inform our response, it really makes a difference to

> > hear your views and experiences. Please do forward this on to other

> > parents in your networks.

> >

> > The deadline for this survey is Friday 30 January.

> >

> > If you would like to submit evidence directly to the inquiry you can

> > do that aswell/instead by going to the National Autistic Society

> > website: http://www.autism.org.uk/nas/jsp/polopoly.jsp?d=2029

> <http://www.autism.org.uk/nas/jsp/polopoly.jsp?d=2029>

> > <http://www.autism.org.uk/nas/jsp/polopoly.jsp?d=2029

> <http://www.autism.org.uk/nas/jsp/polopoly.jsp?d=2029>>

> >

> > Zoe

> >

> > ----------------------------------------------------------

> >

> > No virus found in this incoming message.

> > Checked by AVG - http://www.avg.com <http://www.avg.com>

> > Version: 8.0.176 / Virus Database: 270.10.5/1881 - Release Date:

> 07/01/2009 17:59

> >

>

January 9, 2009

sorry, I got over enthusiastic. I'm sure you're right Sara

Sally

Sara Moroza- wrote:

>

> Zoe,

> presumably it's not for parents of little ones. Tom's only 6. Correct me

> if I'm wrong,

> Sara

>

> Eva family wrote:

> >

> > I've done this survey Zoe. These people seem to be living on another

> > planet.

> >

> > What is the biggest obstacle to your child's transition to adult hood?

> > Answer: There is no provision for her -- there is nothing to access.

> >

> > I almost fell off my seat. It's about 8/9 questions. All of them

> > displaying complete ignorance of life the universe and everything. I

> > recommend everyone do it. It's very simple but raises the blood

> pressure.

> >

> > Sally

> >

> > Zoe wrote:

> > >

> > > Forwarding message from Sasha Daly of TreeHouse re APPGA inquiry

> > > into transition - TreeHouse will be submitting evidence and here is

> > > how your family's experience can be part of that evidence:

> > >

> > > Dear Parents

> > >

> > > The All Party Parliamentary Group on Autism (APPGA) is currently

> > > holding its first ever inquiry. The inquiry is looking at the

> > > transition stage of young people with autism from the age of 14 to

> > > 25. Transition can be a difficult time for young people with autism

> > > so effective support and early planning is essential. The inquiry

> > > was launched on 9 December 2008 and will take both written and oral

> > > evidence. Written evidence will be taken up to 6 February 2009, and

> > > the officers of the group will call on a few people to give oral

> > > evidence later in February and in March.

> > >

> > > TreeHouse will be submitting written evidence to the inquiry. It

> > > would be extremely helpful to get your feedback from you to inform

> > > our submission. We have therefore put together the following survey

> > > to collect your views. This survey is completely anonymous.

> > >

> > > The first page of the survey asks for some background information.

> > > The second page gives you a chance to answer the specific inquiry

> > > questions. As these questions are quite long and detailed we also

> > > have a third and final page which provides a chance for you to write

> > > down any thoughts you have on the topic. The survey is constructed

> > > so that you don't have to answer any of the questions specifically

> > > (except for the initial background questions), so please feel free

> > > to only answer questions that you want to.

> > >

> > > Please complete the survey here:

> > >

> http://www.surveymonkey.com/s.aspx?sm=nbohYwOZ6l_2bW6EsjhcL6Og_3d_3d

> <http://www.surveymonkey.com/s.aspx?sm=nbohYwOZ6l_2bW6EsjhcL6Og_3d_3d>

> >

> <http://www.surveymonkey.com/s.aspx?sm=nbohYwOZ6l_2bW6EsjhcL6Og_3d_3d

> <http://www.surveymonkey.com/s.aspx?sm=nbohYwOZ6l_2bW6EsjhcL6Og_3d_3d>>

> > >

> >

> <http://www.surveymonkey.com/s.aspx?sm=nbohYwOZ6l_2bW6EsjhcL6Og_3d_3d

> <http://www.surveymonkey.com/s.aspx?sm=nbohYwOZ6l_2bW6EsjhcL6Og_3d_3d>

> >

> <http://www.surveymonkey.com/s.aspx?sm=nbohYwOZ6l_2bW6EsjhcL6Og_3d_3d

> <http://www.surveymonkey.com/s.aspx?sm=nbohYwOZ6l_2bW6EsjhcL6Og_3d_3d>>>

> > >

> > > Thank you for your time in looking at this and sending me your

> > > thoughts to inform our response, it really makes a difference to

> > > hear your views and experiences. Please do forward this on to other

> > > parents in your networks.

> > >

> > > The deadline for this survey is Friday 30 January.

> > >

> > > If you would like to submit evidence directly to the inquiry you can

> > > do that aswell/instead by going to the National Autistic Society

> > > website: http://www.autism.org.uk/nas/jsp/polopoly.jsp?d=2029

> <http://www.autism.org.uk/nas/jsp/polopoly.jsp?d=2029>

> > <http://www.autism.org.uk/nas/jsp/polopoly.jsp?d=2029

> <http://www.autism.org.uk/nas/jsp/polopoly.jsp?d=2029>>

> > > <http://www.autism.org.uk/nas/jsp/polopoly.jsp?d=2029

> <http://www.autism.org.uk/nas/jsp/polopoly.jsp?d=2029>

> > <http://www.autism.org.uk/nas/jsp/polopoly.jsp?d=2029

> <http://www.autism.org.uk/nas/jsp/polopoly.jsp?d=2029>>>

> > >

> > > Zoe

> > >

> > > ----------------------------------------------------------

> > >

> > > No virus found in this incoming message.

> > > Checked by AVG - http://www.avg.com <http://www.avg.com>

> <http://www.avg.com <http://www.avg.com>>

> > > Version: 8.0.176 / Virus Database: 270.10.5/1881 - Release Date:

> > 07/01/2009 17:59

> > >

> >

>

> ------------------------------------------------------------------------

>

> No virus found in this incoming message.

> Checked by AVG - http://www.avg.com

> Version: 8.0.176 / Virus Database: 270.10.5/1883 - Release Date: 08/01/2009

18:05

>

January 9, 2009