Guest guest Posted January 11, 2009 Report Share Posted January 11, 2009 We can't cope with blood tests any more but there is a urine Thyroid function test. Here is a copy of what it says about the test : 'The diagnosis of hypothyroidism is usually made almost exclusively from measurements of TSH and T4 levels found in blood tests. However this method is thought to be largely ineffective at diagnosing cases of mild hypothyroidism, more accurately termed 'thyroid dysfunction'. Hormone levels in urine, assesses tissue exposure to thyroid hormones over a 24-hour period. The urine thyroid test therefore serves as a valuable tool for detecting those patients that are suffering from thyroid dysfunction that may otherwise go undetected through standard blood tests.' loopylawz wrote: > > No didn't get a T3, will try temp test- I do know Ella is always > cold, I thought this is cos she is so tiny-no fat! She feels the cold > really easily compared to her younger brother who is a porker! Yeah, > the blood test was hell, my non-verbal daughter screamed " no " (despite > her mouthful of chocolate-which she never normally has!)then managed > to touch the needle & had to have it done again in the other arm!Ive > still got the emotional scarrs lol! > > > > > > > > > > > > > > Hi Caroline > > > > > > > > > > > > > > That is really helpful. > > > > > > > > > > > > > > I am sure Luke has got a large hard stool blocking things > at > > > the > > > > > > > moment as he has been this morning once but it was only > > > diarhoa > > > > > type > > > > > > > stools and he is saying the poo is stuck. He has been to > the > > > > > toilet > > > > > > > since then but nothing is coming out. > > > > > > > > > > > > > > I am sure it is painful although he is saying it isn't as > he > > > > > still > > > > > > > walking round hunched. He was also awake again in the > night > > > with > > > > > the pain. > > > > > > > > > > > > > > We gave hom 5 movicol yesterday and plan to give him 7 > today. > > > I > > > > > am > > > > > > > also going to try a little prune juice and brown sugar > today > > > and > > > > > I > > > > > > > also gave oxypowder last night so hopefully that will > help. > > > > > > > > > > > > > > I am really hoping for an explosion soon so the pain will > go. > > > If > > > > > > > things don't move in the next couple of days I might take > him > > > > > back. > > > > > > > The consultant did say that if things don't improve there > is > > > the > > > > > > > option of an enema which is not very pleasant but does do > the > > > > > trick - > > > > > > > is this what you mean by rectal suppository? > > > > > > > > > > > > > > I am not under the gastro, I used to be, but he was so > useless > > > > > that I > > > > > > > gave up with him. I am going to ask my GP to ask him to > refer > > > him > > > > > to > > > > > > > me though and try again as it may be useful in these > > > situations. > > > > > > > > > > > > > > Thanks > > > > > > > Nic > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > * [Autism-Biomedical- Europe] Re: Stomach Pain > > > > > > > > > > > > > > Hi Nicola > > > > > > > Poor you guys! Hope that Luke is feeling a bit better > today. > > > > > We have > > > > > > > used lots of Movicol and have sometimes found it to help > and > > > > > > > sometimes not to be very effective at shifting things > along. > > > > > > > We once used it at the max dose for around 3 weeks and > then > > > > > > > > > > > > hurt her leg, we think she was climbing on top of a bed > side > > > > > table > > > > > > > during the night. When we went to A & E the next day she > had an > > > > > x-ray > > > > > > > of her hip and she was pretty loaded up. I was amazed! > > > > > > > Also when we first started off down this road and we went > to > > > > > the > > > > > > > Royal Free we were on Picolax every weekend for a few > months, > > > > > she was > > > > > > > 4 years old, and when we saw the Consulatnt some months > later > > > > > there > > > > > > > had been no improvement. Same thing with micolette rectal > > > > > suppository > > > > > > > things. After months of using. > > > > > > > We were quite fortunate at one point after weeks of > clearing > > > > > out that > > > > > > > the gastro did a second x-ray to check how things were > going. > > > > > Its not > > > > > > > good having the 2 x-rays but for many of our children they > > > > > just cant > > > > > > > cope with being examined. At that time things were > improved > > > > > but still > > > > > > > about 40% loaded. I think we were going on holiday or > > > > > something and > > > > > > > like Steph these holidays I had been in and out of A & E > and to > > > > > the Day > > > > > > > Case Unit for days (to avoid staying in Hospital > overnight). > > > > > I was > > > > > > > just so relieved something had shifted. > > > > > > > Its so tough to see our kids like that but if you have a > > > > > decent > > > > > > > gastro then hopefully they follow it up. > > > > > > > Thinking of you. > > > > > > > Luv Caroline > > > > > > > xxx > > > > > > > (PS Make sure he drinks heaps as Movicol has an osmotic > > > > > effect and > > > > > > > works by drawing water into the bowel to propel things > along. > > > > > I > > > > > > > imagine its quite painful til you shift that old stuff > along > > > > > a bit. > > > > > > > We have sometimes noticed massive big bits when clearing > out > > > > > once had > > > > > > > a tennis ball sized pooh which you couls see all the thin > > > > > thin coils > > > > > > > within, amazing!) > > > > > > > PPS Sorry if you are eating your breakfast! > > > > > > > > > > > > > > > > > > > > > ------------ --------- --------- --------- --------- ----- > ---- > > > - > > > > > ------ > > > > > > > > > > > > > > > > > > > > > No virus found in this incoming message. > > > > > > > Checked by AVG - http://www.avg. com <http://www.avg. com > <http://www.avg.com> > > > <http://www.avg. com <http://www.avg.com>>> > > > > > > > Version: 8.0.176 / Virus Database: 270.10.5/1886 - Release > > > Date: > > > > > 10/01/2009 18:01 > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- - > > > ------ > > > > > > > > > > No virus found in this incoming message. > > > > > Checked by AVG. > > > > > Version: 7.5.552 / Virus Database: 270.10.5 - Release Date: > > > 07/01/2009 00:00 > > > > > > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- - > ------ > > > > > > No virus found in this incoming message. > > > Checked by AVG. > > > Version: 7.5.552 / Virus Database: 270.10.5 - Release Date: > 07/01/2009 00:00 > > > > > > > > ------------------------------------------------------------------------ > > > No virus found in this incoming message. > Checked by AVG - http://www.avg.com > Version: 8.0.176 / Virus Database: 270.10.5/1886 - Release Date: 1/10/2009 6:01 PM > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 8, 2009 Report Share Posted February 8, 2009 , I don't think I saw this before. That would be great if a urine test sufficed. Could you tell me where thisinformatin originated? :-)) P & L schrieb: > > We can't cope with blood tests any more but there is a urine Thyroid > function test. > > Here is a copy of what it says about the test : > > 'The diagnosis of hypothyroidism is usually made almost exclusively from > measurements of TSH and T4 > levels found in blood tests. However this method is thought to be > largely ineffective at diagnosing cases > of mild hypothyroidism, more accurately termed 'thyroid dysfunction'. > Hormone levels in urine, > assesses tissue exposure to thyroid hormones over a 24-hour period. The > urine thyroid test therefore > serves as a valuable tool for detecting those patients that are > suffering from thyroid dysfunction that > may otherwise go undetected through standard blood tests.' > > > > loopylawz wrote: > > > > No didn't get a T3, will try temp test- I do know Ella is always > > cold, I thought this is cos she is so tiny-no fat! She feels the cold > > really easily compared to her younger brother who is a porker! Yeah, > > the blood test was hell, my non-verbal daughter screamed " no " (despite > > her mouthful of chocolate-which she never normally has!)then managed > > to touch the needle & had to have it done again in the other arm!Ive > > still got the emotional scarrs lol! > > > > > > > > > > > > > > > > Hi Caroline > > > > > > > > > > > > > > > > That is really helpful. > > > > > > > > > > > > > > > > I am sure Luke has got a large hard stool blocking things > > at > > > > the > > > > > > > > moment as he has been this morning once but it was only > > > > diarhoa > > > > > > type > > > > > > > > stools and he is saying the poo is stuck. He has been to > > the > > > > > > toilet > > > > > > > > since then but nothing is coming out. > > > > > > > > > > > > > > > > I am sure it is painful although he is saying it isn't as > > he > > > > > > still > > > > > > > > walking round hunched. He was also awake again in the > > night > > > > with > > > > > > the pain. > > > > > > > > > > > > > > > > We gave hom 5 movicol yesterday and plan to give him 7 > > today. > > > > I > > > > > > am > > > > > > > > also going to try a little prune juice and brown sugar > > today > > > > and > > > > > > I > > > > > > > > also gave oxypowder last night so hopefully that will > > help. > > > > > > > > > > > > > > > > I am really hoping for an explosion soon so the pain will > > go. > > > > If > > > > > > > > things don't move in the next couple of days I might take > > him > > > > > > back. > > > > > > > > The consultant did say that if things don't improve there > > is > > > > the > > > > > > > > option of an enema which is not very pleasant but does do > > the > > > > > > trick - > > > > > > > > is this what you mean by rectal suppository? > > > > > > > > > > > > > > > > I am not under the gastro, I used to be, but he was so > > useless > > > > > > that I > > > > > > > > gave up with him. I am going to ask my GP to ask him to > > refer > > > > him > > > > > > to > > > > > > > > me though and try again as it may be useful in these > > > > situations. > > > > > > > > > > > > > > > > Thanks > > > > > > > > Nic > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > * [Autism-Biomedical- Europe] Re: Stomach Pain > > > > > > > > > > > > > > > > Hi Nicola > > > > > > > > Poor you guys! Hope that Luke is feeling a bit better > > today. > > > > > > We have > > > > > > > > used lots of Movicol and have sometimes found it to help > > and > > > > > > > > sometimes not to be very effective at shifting things > > along. > > > > > > > > We once used it at the max dose for around 3 weeks and > > then > > > > > > > > > > > > > > hurt her leg, we think she was climbing on top of a bed > > side > > > > > > table > > > > > > > > during the night. When we went to A & E the next day she > > had an > > > > > > x-ray > > > > > > > > of her hip and she was pretty loaded up. I was amazed! > > > > > > > > Also when we first started off down this road and we went > > to > > > > > > the > > > > > > > > Royal Free we were on Picolax every weekend for a few > > months, > > > > > > she was > > > > > > > > 4 years old, and when we saw the Consulatnt some months > > later > > > > > > there > > > > > > > > had been no improvement. Same thing with micolette rectal > > > > > > suppository > > > > > > > > things. After months of using. > > > > > > > > We were quite fortunate at one point after weeks of > > clearing > > > > > > out that > > > > > > > > the gastro did a second x-ray to check how things were > > going. > > > > > > Its not > > > > > > > > good having the 2 x-rays but for many of our children they > > > > > > just cant > > > > > > > > cope with being examined. At that time things were > > improved > > > > > > but still > > > > > > > > about 40% loaded. I think we were going on holiday or > > > > > > something and > > > > > > > > like Steph these holidays I had been in and out of A & E > > and to > > > > > > the Day > > > > > > > > Case Unit for days (to avoid staying in Hospital > > overnight). > > > > > > I was > > > > > > > > just so relieved something had shifted. > > > > > > > > Its so tough to see our kids like that but if you have a > > > > > > decent > > > > > > > > gastro then hopefully they follow it up. > > > > > > > > Thinking of you. > > > > > > > > Luv Caroline > > > > > > > > xxx > > > > > > > > (PS Make sure he drinks heaps as Movicol has an osmotic > > > > > > effect and > > > > > > > > works by drawing water into the bowel to propel things > > along. > > > > > > I > > > > > > > > imagine its quite painful til you shift that old stuff > > along > > > > > > a bit. > > > > > > > > We have sometimes noticed massive big bits when clearing > > out > > > > > > once had > > > > > > > > a tennis ball sized pooh which you couls see all the thin > > > > > > thin coils > > > > > > > > within, amazing!) > > > > > > > > PPS Sorry if you are eating your breakfast! > > > > > > > > > > > > > > > > > > > > > > > > ------------ --------- --------- --------- --------- ----- > > ---- > > > > - > > > > > > ------ > > > > > > > > > > > > > > > > > > > > > > > > No virus found in this incoming message. > > > > > > > > Checked by AVG - http://www.avg. com <http://www.avg. com > > <http://www.avg.com <http://www.avg.com>> > > > > <http://www.avg. com <http://www.avg.com <http://www.avg.com>>>> > > > > > > > > Version: 8.0.176 / Virus Database: 270.10.5/1886 - Release > > > > Date: > > > > > > 10/01/2009 18:01 > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- - > > > > ------ > > > > > > > > > > > > No virus found in this incoming message. > > > > > > Checked by AVG. > > > > > > Version: 7.5.552 / Virus Database: 270.10.5 - Release Date: > > > > 07/01/2009 00:00 > > > > > > > > > > > > > > > > > > > > > > > ------------ --------- --------- --------- --------- --------- - > > ------ > > > > > > > > No virus found in this incoming message. > > > > Checked by AVG. > > > > Version: 7.5.552 / Virus Database: 270.10.5 - Release Date: > > 07/01/2009 00:00 > > > > > > > > > > > > > ---------------------------------------------------------- > > > > > > No virus found in this incoming message. > > Checked by AVG - http://www.avg.com <http://www.avg.com> > > Version: 8.0.176 / Virus Database: 270.10.5/1886 - Release Date: > 1/10/2009 6:01 PM > > > > > > > ------------------------------------------------------------------------ > > No virus found in this incoming message. > Checked by AVG. > Version: 7.5.552 / Virus Database: 270.10.5 - Release Date: 07/01/2009 00:00 > Quote Link to comment Share on other sites More sharing options...
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