Guest guest Posted March 11, 2000 Report Share Posted March 11, 2000 > > Hi....I really hope this post works....I have tried to post this letter > from > > several email accounts and the posting center at onelist and so far I > haven't been able to get it posted....I must be having Y2K problems(lol just > kidding) ..I formally posted under crazyeyes > > > > My name is Robin and I live in upstate NY.....My daughter is 3 1/2 and was > > diagnosed in August with Autism....... > > > > She just started attending an integrated pre-school program about 3 weeks > > ago and I am not sure if I have made the right choice. She goes 5 days a > > week for 3 hours a day. I am not sure she will grow there. > > > > Does anyone live in upstate NY? Does anyone have their child in an > > integrated pre-school program? Do you think your child's needs are being > > met? Does anyone have their child in an ABA program? > > > > ok...enough for now......I want to thank all of you for being such > wonderful > > parents (and people). I think the only way we can get through some of > this > > is by talking to other parents that have been through the process....I > will > > try to be a valuable part of this group as well.... > > > > Thank you > > Robin > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2000 Report Share Posted March 11, 2000 Hello and welcome , Hope someone on the list can help you ,I am in Arkansas and is in self contained class. Good Luck and Sincerely, Donna ( mom to 14 autism and 7 ) ----------------------------------------------------- Click here for Free Video!! http://www.gohip.com/freevideo/ Re: Intro > > > >> > Hi....I really hope this post works....I have tried to post this letter >> from >> > several email accounts and the posting center at onelist and so far I >> haven't been able to get it posted....I must be having Y2K problems(lol >just >> kidding) ..I formally posted under crazyeyes >> > >> > My name is Robin and I live in upstate NY.....My daughter is 3 1/2 and >was >> > diagnosed in August with Autism....... >> > >> > She just started attending an integrated pre-school program about 3 >weeks >> > ago and I am not sure if I have made the right choice. She goes 5 days >a >> > week for 3 hours a day. I am not sure she will grow there. >> > >> > Does anyone live in upstate NY? Does anyone have their child in an >> > integrated pre-school program? Do you think your child's needs are >being >> > met? Does anyone have their child in an ABA program? >> > >> > ok...enough for now......I want to thank all of you for being such >> wonderful >> > parents (and people). I think the only way we can get through some of >> this >> > is by talking to other parents that have been through the process....I >> will >> > try to be a valuable part of this group as well.... >> > >> > Thank you >> > Robin >> > >> > >> >> > > > >------------------------------------------------------------------------ >DON'T HATE YOUR RATE! >Get a NextCard Visa, in 30 seconds! Get rates as low as >0.0% Intro or 9.9% Fixed APR and no hidden fees. >Apply NOW! >http://click./1/2120/3/_/475156/_/952819026/ >------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2000 Report Share Posted March 11, 2000 Hello and welcome , Hope someone on the list can help you ,I am in Arkansas and is in self contained class. Good Luck and Sincerely, Donna ( mom to 14 autism and 7 ) ----------------------------------------------------- Click here for Free Video!! http://www.gohip.com/freevideo/ Re: Intro > > > >> > Hi....I really hope this post works....I have tried to post this letter >> from >> > several email accounts and the posting center at onelist and so far I >> haven't been able to get it posted....I must be having Y2K problems(lol >just >> kidding) ..I formally posted under crazyeyes >> > >> > My name is Robin and I live in upstate NY.....My daughter is 3 1/2 and >was >> > diagnosed in August with Autism....... >> > >> > She just started attending an integrated pre-school program about 3 >weeks >> > ago and I am not sure if I have made the right choice. She goes 5 days >a >> > week for 3 hours a day. I am not sure she will grow there. >> > >> > Does anyone live in upstate NY? Does anyone have their child in an >> > integrated pre-school program? Do you think your child's needs are >being >> > met? Does anyone have their child in an ABA program? >> > >> > ok...enough for now......I want to thank all of you for being such >> wonderful >> > parents (and people). I think the only way we can get through some of >> this >> > is by talking to other parents that have been through the process....I >> will >> > try to be a valuable part of this group as well.... >> > >> > Thank you >> > Robin >> > >> > >> >> > > > >------------------------------------------------------------------------ >DON'T HATE YOUR RATE! >Get a NextCard Visa, in 30 seconds! Get rates as low as >0.0% Intro or 9.9% Fixed APR and no hidden fees. >Apply NOW! >http://click./1/2120/3/_/475156/_/952819026/ >------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2000 Report Share Posted March 11, 2000 Hello and welcome , Hope someone on the list can help you ,I am in Arkansas and is in self contained class. Good Luck and Sincerely, Donna ( mom to 14 autism and 7 ) ----------------------------------------------------- Click here for Free Video!! http://www.gohip.com/freevideo/ Re: Intro > > > >> > Hi....I really hope this post works....I have tried to post this letter >> from >> > several email accounts and the posting center at onelist and so far I >> haven't been able to get it posted....I must be having Y2K problems(lol >just >> kidding) ..I formally posted under crazyeyes >> > >> > My name is Robin and I live in upstate NY.....My daughter is 3 1/2 and >was >> > diagnosed in August with Autism....... >> > >> > She just started attending an integrated pre-school program about 3 >weeks >> > ago and I am not sure if I have made the right choice. She goes 5 days >a >> > week for 3 hours a day. I am not sure she will grow there. >> > >> > Does anyone live in upstate NY? Does anyone have their child in an >> > integrated pre-school program? Do you think your child's needs are >being >> > met? Does anyone have their child in an ABA program? >> > >> > ok...enough for now......I want to thank all of you for being such >> wonderful >> > parents (and people). I think the only way we can get through some of >> this >> > is by talking to other parents that have been through the process....I >> will >> > try to be a valuable part of this group as well.... >> > >> > Thank you >> > Robin >> > >> > >> >> > > > >------------------------------------------------------------------------ >DON'T HATE YOUR RATE! >Get a NextCard Visa, in 30 seconds! Get rates as low as >0.0% Intro or 9.9% Fixed APR and no hidden fees. >Apply NOW! >http://click./1/2120/3/_/475156/_/952819026/ >------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2000 Report Share Posted March 11, 2000 Hi Robin, Welcome! I know there are some people from upstate N.Y. on this list as well as on Hear Their Silence. Also I started a list any (autism NY) and you are more than welcome to join this one as well. I live in NY, but on Long Island. I am the grandmother to 3 yr old (3 on Dec. 21) who was diagnosed with autism in Aug of 99. She originally started receiving services through our county's early intervention program in March of 99, prior to the official dx. Two therapists five days a week. My daughter and son in law looked into a private school that uses ABA but there were no openings. They placed her on the waiting list and she started going to a school that used various methods, in Sept. At the end of Sept. they got a call from the ABA school that they had an opening. They grabbed it and started at the ABA school on Oct 4. She goes 5 days a week and leaves the house @ 8 am and gets home around 4 pm. We have noticed a big improvement in since starting at this school. At first we saw better eye contact and a general awareness of what was going on around her. Her verbal skills were slow in progressing, however in the last month all of a sudden they are getting better and better. This school gives hands on training to parents so they can work with the child at home to re-inforce and continue the program. Once my daughter and son in law started working with her at home, I think that is when her verbal skills started getting better. I have and still am learning as much as I can about autism and the various methods used to work with autistic children. I can only speak from my personal experience, and do not want to offend anyone who is using a different method with their child, but having said this, I believe ABA has an excellent recovery rate with autistic children and think it is well worth you looking into. If you would like information about other living in upstate N.Y., please contact me and I will give you the information. -- June " Do little things with great love. " Mother mailto:jn516@... http://www.geocities.com/Wellesley/1204 http://www.geocities.com/heartland/meadows/6250 http://www.geocities.com/athens/forum/7306 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 11, 2000 Report Share Posted March 11, 2000 Hi Robin, Welcome! I know there are some people from upstate N.Y. on this list as well as on Hear Their Silence. Also I started a list any (autism NY) and you are more than welcome to join this one as well. I live in NY, but on Long Island. I am the grandmother to 3 yr old (3 on Dec. 21) who was diagnosed with autism in Aug of 99. She originally started receiving services through our county's early intervention program in March of 99, prior to the official dx. Two therapists five days a week. My daughter and son in law looked into a private school that uses ABA but there were no openings. They placed her on the waiting list and she started going to a school that used various methods, in Sept. At the end of Sept. they got a call from the ABA school that they had an opening. They grabbed it and started at the ABA school on Oct 4. She goes 5 days a week and leaves the house @ 8 am and gets home around 4 pm. We have noticed a big improvement in since starting at this school. At first we saw better eye contact and a general awareness of what was going on around her. Her verbal skills were slow in progressing, however in the last month all of a sudden they are getting better and better. This school gives hands on training to parents so they can work with the child at home to re-inforce and continue the program. Once my daughter and son in law started working with her at home, I think that is when her verbal skills started getting better. I have and still am learning as much as I can about autism and the various methods used to work with autistic children. I can only speak from my personal experience, and do not want to offend anyone who is using a different method with their child, but having said this, I believe ABA has an excellent recovery rate with autistic children and think it is well worth you looking into. If you would like information about other living in upstate N.Y., please contact me and I will give you the information. -- June " Do little things with great love. " Mother mailto:jn516@... http://www.geocities.com/Wellesley/1204 http://www.geocities.com/heartland/meadows/6250 http://www.geocities.com/athens/forum/7306 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2004 Report Share Posted December 5, 2004 Hi Angie, welcome! I, too, was so glad to find this group a few years ago when my then 11.5 yr old son (now almost 16) began having OCD problems. It's been my best support since! Had he already had a few " issues " and then they got worse, or did OCD just seem to come on abruptly?? My had some - what I call - OCD tendencies, all were just minor. But suddenly in 6th grade it seemed all these new compulsions were popping up and he had OCD 24/7! It really affected him at school, very rough times, but we managed somehow with help from the school, a Plan with some accommodations, etc., for his work and my helping him to even get it completed. How is he doing at home? managed to get through the school day. People who don't " know OCD " didn't know what they were seeing, I guess, but would hold back at school and burst forth at home a lot with the OCD. Well, hope to hear lots more from you, and hope things settle down some for you all soon. It can take a bit of time for medication to really get to a good therapeutic level and begin to kick in and help. Hang in there! (North Carolina) single mom, 3 sons , 15, with OCD, dysgraphia and Aspergers/autism > Hello all, I am new here and so glad I found you! > We had to pull my son out of school aprox 3-4 weeks ago now, He is 7 years old and couldnt cope in school, the teacher had to call me alot to come and get him if disorder broke out in class he would have an anxiety attack, Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2004 Report Share Posted December 5, 2004 Hi, thanks for asking, Shad was always like this, We didnt know any better and thought he was " picky " the only time we gave any thought to his lil quirks was when strangers or neighbors said something, even then we always accomodated his OCD,, we bout special socks with no seems (very expensive I might add LOL) we cut off all tags in his clothes and made sure everything was 100% cotton with no logos etc, we never shut doors around him or he would panic,, even in winter we had the outside door open a crack when he would play (whihc was a rare occasion cause he didnt like the " wet snow " we assmued he would grow out of all the things, untill First grade started and teachers began to speak up to me and say something isnt right, in the back of my mind I always knew something, But what I didnt know, and neither did 2 counsellors and one psychologist, till finally our Ped said his weight is low and asked if he was a picky eater,, I told him picky isnt the word, if other food touched other food ,,forget dinner! he asked a few more q's that I didnt even know to ask like asking Shad how many steps is it from the class to the bathroom and he answered 28 I was astounded really, then on we went to an OCD specialist, the meds have relieved the nightime episodes of paranoid thinking,, infact when he hits the pillow he is out, instead of 3 hours of checking on us and crying,, the days are better already with more sleep in him, he still refuses to go to school but its a ways away till jan 5th.. at home Shad is contect to stay in,, we often take him out and " shake up " his world, also on the meds he is beggining to verbalize his fears and ask q's..things I didnt even know he thought of which is really great to see instead of him keeping silent..has anyone else had that experiance? its like OCD has been forced to the forefront and exposed. Anyway I could talk for hours as I am sure you will notice,,,great to be here! Re: Intro > > > Hi Angie, welcome! > > I, too, was so glad to find this group a few years ago when my then > 11.5 yr old son (now almost 16) began having OCD problems. It's been > my best support since! > > Had he already had a few " issues " and then they got worse, or did OCD > just seem to come on abruptly?? > > My had some - what I call - OCD tendencies, all were just > minor. But suddenly in 6th grade it seemed all these new compulsions > were popping up and he had OCD 24/7! It really affected him at > school, very rough times, but we managed somehow with help from the > school, a Plan with some accommodations, etc., for his work and my > helping him to even get it completed. > > How is he doing at home? managed to get through the school > day. People who don't " know OCD " didn't know what they were seeing, > I guess, but would hold back at school and burst forth at > home a lot with the OCD. > > Well, hope to hear lots more from you, and hope things settle down > some for you all soon. It can take a bit of time for medication to > really get to a good therapeutic level and begin to kick in and > help. Hang in there! > > (North Carolina) > single mom, 3 sons > , 15, with OCD, dysgraphia and Aspergers/autism > > > > Hello all, I am new here and so glad I found you! > > We had to pull my son out of school aprox 3-4 weeks ago now, He is > 7 years old and couldnt cope in school, the teacher had to call me > alot to come and get him if disorder broke out in class he would have > an anxiety attack, > > > > > > > > Our list archives, bookmarks, files, and chat feature may be accessed at: http://health.groups.yahoo.com/group// . > Our list advisors are Gail B. , Ed.D., Tamar Chansky, Ph.D.( http://www.worrywisekids.org ), Dan Geller, M.D.,Aureen Pinto Wagner, Ph.D., ( http://www.lighthouse-press.com ). Our list moderators are Birkhan, Castle, Fowler, Kathy Hammes, Joye, Kathy Mac, Gail Pesses, and Kathy . Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at louisharkins@... , louisharkins@... , louisharkins@... .. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2004 Report Share Posted December 5, 2004 Hi, thanks for asking, Shad was always like this, We didnt know any better and thought he was " picky " the only time we gave any thought to his lil quirks was when strangers or neighbors said something, even then we always accomodated his OCD,, we bout special socks with no seems (very expensive I might add LOL) we cut off all tags in his clothes and made sure everything was 100% cotton with no logos etc, we never shut doors around him or he would panic,, even in winter we had the outside door open a crack when he would play (whihc was a rare occasion cause he didnt like the " wet snow " we assmued he would grow out of all the things, untill First grade started and teachers began to speak up to me and say something isnt right, in the back of my mind I always knew something, But what I didnt know, and neither did 2 counsellors and one psychologist, till finally our Ped said his weight is low and asked if he was a picky eater,, I told him picky isnt the word, if other food touched other food ,,forget dinner! he asked a few more q's that I didnt even know to ask like asking Shad how many steps is it from the class to the bathroom and he answered 28 I was astounded really, then on we went to an OCD specialist, the meds have relieved the nightime episodes of paranoid thinking,, infact when he hits the pillow he is out, instead of 3 hours of checking on us and crying,, the days are better already with more sleep in him, he still refuses to go to school but its a ways away till jan 5th.. at home Shad is contect to stay in,, we often take him out and " shake up " his world, also on the meds he is beggining to verbalize his fears and ask q's..things I didnt even know he thought of which is really great to see instead of him keeping silent..has anyone else had that experiance? its like OCD has been forced to the forefront and exposed. Anyway I could talk for hours as I am sure you will notice,,,great to be here! Re: Intro > > > Hi Angie, welcome! > > I, too, was so glad to find this group a few years ago when my then > 11.5 yr old son (now almost 16) began having OCD problems. It's been > my best support since! > > Had he already had a few " issues " and then they got worse, or did OCD > just seem to come on abruptly?? > > My had some - what I call - OCD tendencies, all were just > minor. But suddenly in 6th grade it seemed all these new compulsions > were popping up and he had OCD 24/7! It really affected him at > school, very rough times, but we managed somehow with help from the > school, a Plan with some accommodations, etc., for his work and my > helping him to even get it completed. > > How is he doing at home? managed to get through the school > day. People who don't " know OCD " didn't know what they were seeing, > I guess, but would hold back at school and burst forth at > home a lot with the OCD. > > Well, hope to hear lots more from you, and hope things settle down > some for you all soon. It can take a bit of time for medication to > really get to a good therapeutic level and begin to kick in and > help. Hang in there! > > (North Carolina) > single mom, 3 sons > , 15, with OCD, dysgraphia and Aspergers/autism > > > > Hello all, I am new here and so glad I found you! > > We had to pull my son out of school aprox 3-4 weeks ago now, He is > 7 years old and couldnt cope in school, the teacher had to call me > alot to come and get him if disorder broke out in class he would have > an anxiety attack, > > > > > > > > Our list archives, bookmarks, files, and chat feature may be accessed at: http://health.groups.yahoo.com/group// . > Our list advisors are Gail B. , Ed.D., Tamar Chansky, Ph.D.( http://www.worrywisekids.org ), Dan Geller, M.D.,Aureen Pinto Wagner, Ph.D., ( http://www.lighthouse-press.com ). Our list moderators are Birkhan, Castle, Fowler, Kathy Hammes, Joye, Kathy Mac, Gail Pesses, and Kathy . Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at louisharkins@... , louisharkins@... , louisharkins@... .. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 5, 2004 Report Share Posted December 5, 2004 Hi, thanks for asking, Shad was always like this, We didnt know any better and thought he was " picky " the only time we gave any thought to his lil quirks was when strangers or neighbors said something, even then we always accomodated his OCD,, we bout special socks with no seems (very expensive I might add LOL) we cut off all tags in his clothes and made sure everything was 100% cotton with no logos etc, we never shut doors around him or he would panic,, even in winter we had the outside door open a crack when he would play (whihc was a rare occasion cause he didnt like the " wet snow " we assmued he would grow out of all the things, untill First grade started and teachers began to speak up to me and say something isnt right, in the back of my mind I always knew something, But what I didnt know, and neither did 2 counsellors and one psychologist, till finally our Ped said his weight is low and asked if he was a picky eater,, I told him picky isnt the word, if other food touched other food ,,forget dinner! he asked a few more q's that I didnt even know to ask like asking Shad how many steps is it from the class to the bathroom and he answered 28 I was astounded really, then on we went to an OCD specialist, the meds have relieved the nightime episodes of paranoid thinking,, infact when he hits the pillow he is out, instead of 3 hours of checking on us and crying,, the days are better already with more sleep in him, he still refuses to go to school but its a ways away till jan 5th.. at home Shad is contect to stay in,, we often take him out and " shake up " his world, also on the meds he is beggining to verbalize his fears and ask q's..things I didnt even know he thought of which is really great to see instead of him keeping silent..has anyone else had that experiance? its like OCD has been forced to the forefront and exposed. Anyway I could talk for hours as I am sure you will notice,,,great to be here! Re: Intro > > > Hi Angie, welcome! > > I, too, was so glad to find this group a few years ago when my then > 11.5 yr old son (now almost 16) began having OCD problems. It's been > my best support since! > > Had he already had a few " issues " and then they got worse, or did OCD > just seem to come on abruptly?? > > My had some - what I call - OCD tendencies, all were just > minor. But suddenly in 6th grade it seemed all these new compulsions > were popping up and he had OCD 24/7! It really affected him at > school, very rough times, but we managed somehow with help from the > school, a Plan with some accommodations, etc., for his work and my > helping him to even get it completed. > > How is he doing at home? managed to get through the school > day. People who don't " know OCD " didn't know what they were seeing, > I guess, but would hold back at school and burst forth at > home a lot with the OCD. > > Well, hope to hear lots more from you, and hope things settle down > some for you all soon. It can take a bit of time for medication to > really get to a good therapeutic level and begin to kick in and > help. Hang in there! > > (North Carolina) > single mom, 3 sons > , 15, with OCD, dysgraphia and Aspergers/autism > > > > Hello all, I am new here and so glad I found you! > > We had to pull my son out of school aprox 3-4 weeks ago now, He is > 7 years old and couldnt cope in school, the teacher had to call me > alot to come and get him if disorder broke out in class he would have > an anxiety attack, > > > > > > > > Our list archives, bookmarks, files, and chat feature may be accessed at: http://health.groups.yahoo.com/group// . > Our list advisors are Gail B. , Ed.D., Tamar Chansky, Ph.D.( http://www.worrywisekids.org ), Dan Geller, M.D.,Aureen Pinto Wagner, Ph.D., ( http://www.lighthouse-press.com ). Our list moderators are Birkhan, Castle, Fowler, Kathy Hammes, Joye, Kathy Mac, Gail Pesses, and Kathy . Subscription issues or suggestions may be addressed to Louis Harkins, list owner, at louisharkins@... , louisharkins@... , louisharkins@... .. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 7, 2004 Report Share Posted December 7, 2004 Hi Angie, welcome to the list! It sounds like your son was lucky to have a quick diagnosis and treatment quickly begun. I hope the clomipramine works well for him and he's ready and able to return to school after the holidays. If you haven't, I urge you to look into finding an expert Cognitive Behavior Therapist to treat your son with Exposure and Response Prevention therapy for OCD. This type of therapy is the only type that reduces and eliminates OCD symptoms. For my child, this therapy reduced her symptoms much further than meds alone were able to do, and she learned techniques to recognize and fend off new compulsions before they can gain a toehold. Again, welcome, take care, Kathy R. in Indiana ----- Original Message ----- > Hello all, I am new here and so glad I found you! > We had to pull my son out of school aprox 3-4 weeks ago now, He is 7 years old and couldnt cope in school, the teacher had to call me alot to come and get him if disorder broke out in class he would have an anxiety attack, > He would only color with one crayon and the numerous trips to the bathroom were telling us something was " off " > Long story short he has just been diagnosed with OCD and depression,, we are still digesting the whole thing and he is on 25 mg of Clomipramine twice a day, we plan to integrate him back into school on Jan 5th. > Glad we found some support! > I am in Saskatchewan Canada,,nice to meet you! > Angie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 26, 2005 Report Share Posted February 26, 2005 Hi T.G., welcome. What is HFA, should I know? Interesting info about CDL and eyebrows; never heard that before. Your Yahoo profile is fun and interesting. What does it mean that you demand effervescence? Why is there " um " before Texas? Cheers, Ken > > I joined this group a couple of days ago. There is no way I can be able to read the full library of posts on this forum, but I read as much as I could to get a general familiarity of the personalities participating here. > > Some info on me (I get embarrassed talking about myself like this) > I'm HFA, never been officially diagnosed as AS and have avoided doctors as an adult due to experiences of being " cured " repeatedly by different damaging methods again and agian. I've been formally diagnosed as mentally retarded without specifics (age 8). I was verbally diagnosed as autistic by one doctor, schizophrenic by a hack doctor and an array of other similar diagnoses. > > Havind done a lot of lurking on other forums, I've noticed a distinction between myself and AS people. Aspies are more fluent with language and the expressing of emotion in language. > > I was born with odd features that lead the doctors to give varied diagnoses. In research I've found that the closest phenotype resembling me are persons with CDLS (Cornelia DeLange Syndrome). My mother used to force me to pluck my eyebrows and when I was young I was always forced to wear bangs over them that were " laminated " in place with hair spray. I get amused when I see pics of CDLS kids on the internet with their hair combed over their eye brows. > > There's not much else I can say at the moment. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2005 Report Share Posted February 27, 2005 Welcome to the list. Others on this list have an HFA dx too, so don't feel like you're an outsider. :-) and the zoo. T. G. (That Guy) Whomever wrote: >I joined this group a couple of days ago. >I'm HFA, never been officially diagnosed as AS > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 27, 2005 Report Share Posted February 27, 2005 Welcome to the list. Others on this list have an HFA dx too, so don't feel like you're an outsider. :-) and the zoo. T. G. (That Guy) Whomever wrote: >I joined this group a couple of days ago. >I'm HFA, never been officially diagnosed as AS > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2005 Report Share Posted March 1, 2005 Inger >> If it doesnt' feel too distressing to talk about, I'd be very interested >> in hearing more about this. > TG: > I did manage to avoid institution and ABA treatments, but I was a passive > kid. It's not soemthing I spend a lot of time thinking about or > remembering these days, so it's difficult to just " lay it out " , as it > were. OK. (Perhaps those of us who wish we had been diagnosed earlier, should only be greatful that we wren't...) >> Interesting. I'm a rather non-passionate person myself. But I'm learning >> to understand emotions from contact with more emotionally inclined >> Aspies. > > There are distinctions within the character of AS folks. Some I've > encountered online are highly sentimental, and others less so. Even I > went through a phase when I was coming to terms with the fact that I would > never be normal a few years ago. I do think that People on the spectrum > mature later in life than NTs. I think not having role models has a lot > to do with it. >> I looked up that in the web now. I think the eyebrows look nice. Why >> cover them? > > My mother looked like a model. I think she was just a bit concerned about > looks moreso than normal. I'm not exactly " scary " looking -like, for > instance, Rowan Atkinson as Mr Bean (A character I strongly relate to). > But I was told that I looked somewhat monsterous as a kid. I see. But Mr Bean is not scary looking. I think he's fascinating and cute! I'm fairly sure Atkinson would get a dx too if he wanted one. > I've no proof that I meet all the criteria of the syndrome other than mild > clinical features, personalty traits I've read about in others, etc. But > I do think that I'm a close call to it. I've a nephew with a sister > syndrome who is far more disabled than I am, which feeds the theory. OK. I think it's cool do be a bit different though. Ì always have. :-) Inger Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2005 Report Share Posted March 1, 2005 Inger >> If it doesnt' feel too distressing to talk about, I'd be very interested >> in hearing more about this. > TG: > I did manage to avoid institution and ABA treatments, but I was a passive > kid. It's not soemthing I spend a lot of time thinking about or > remembering these days, so it's difficult to just " lay it out " , as it > were. OK. (Perhaps those of us who wish we had been diagnosed earlier, should only be greatful that we wren't...) >> Interesting. I'm a rather non-passionate person myself. But I'm learning >> to understand emotions from contact with more emotionally inclined >> Aspies. > > There are distinctions within the character of AS folks. Some I've > encountered online are highly sentimental, and others less so. Even I > went through a phase when I was coming to terms with the fact that I would > never be normal a few years ago. I do think that People on the spectrum > mature later in life than NTs. I think not having role models has a lot > to do with it. >> I looked up that in the web now. I think the eyebrows look nice. Why >> cover them? > > My mother looked like a model. I think she was just a bit concerned about > looks moreso than normal. I'm not exactly " scary " looking -like, for > instance, Rowan Atkinson as Mr Bean (A character I strongly relate to). > But I was told that I looked somewhat monsterous as a kid. I see. But Mr Bean is not scary looking. I think he's fascinating and cute! I'm fairly sure Atkinson would get a dx too if he wanted one. > I've no proof that I meet all the criteria of the syndrome other than mild > clinical features, personalty traits I've read about in others, etc. But > I do think that I'm a close call to it. I've a nephew with a sister > syndrome who is far more disabled than I am, which feeds the theory. OK. I think it's cool do be a bit different though. Ì always have. :-) Inger Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 1, 2005 Report Share Posted March 1, 2005 Inger >> If it doesnt' feel too distressing to talk about, I'd be very interested >> in hearing more about this. > TG: > I did manage to avoid institution and ABA treatments, but I was a passive > kid. It's not soemthing I spend a lot of time thinking about or > remembering these days, so it's difficult to just " lay it out " , as it > were. OK. (Perhaps those of us who wish we had been diagnosed earlier, should only be greatful that we wren't...) >> Interesting. I'm a rather non-passionate person myself. But I'm learning >> to understand emotions from contact with more emotionally inclined >> Aspies. > > There are distinctions within the character of AS folks. Some I've > encountered online are highly sentimental, and others less so. Even I > went through a phase when I was coming to terms with the fact that I would > never be normal a few years ago. I do think that People on the spectrum > mature later in life than NTs. I think not having role models has a lot > to do with it. >> I looked up that in the web now. I think the eyebrows look nice. Why >> cover them? > > My mother looked like a model. I think she was just a bit concerned about > looks moreso than normal. I'm not exactly " scary " looking -like, for > instance, Rowan Atkinson as Mr Bean (A character I strongly relate to). > But I was told that I looked somewhat monsterous as a kid. I see. But Mr Bean is not scary looking. I think he's fascinating and cute! I'm fairly sure Atkinson would get a dx too if he wanted one. > I've no proof that I meet all the criteria of the syndrome other than mild > clinical features, personalty traits I've read about in others, etc. But > I do think that I'm a close call to it. I've a nephew with a sister > syndrome who is far more disabled than I am, which feeds the theory. OK. I think it's cool do be a bit different though. Ì always have. :-) Inger Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2007 Report Share Posted January 7, 2007 Hedi, Sorry can't give you any experience stories. Just wanted to encourage you, however much one can over the net. How's your living situation? do you do all your own cooking? shopping? Are there temptations around you?? Do you have anyone close by who can help support this way of life? Be strong. It is defintely worth it!!!!! Each one of us has different experiences, just you should know, whenever I give in to tasting anything with milk, my tongue gets this yucky coating. Coffee I gave up 27 years ago, with my first pregnancy - I still love the smell, but there are so many benefits for giving it up. And much easier for you to get to a balance without these extremes. For the transitional period, do try to find foods that have similar qualities (creamy texture for dairy, coffee substitutes for coffee), it might make it easier. otoh, do be careful what ready products you may buy, if you must buy them, as besides being highly processed, there may be ingredients there that are also not health supportive. The very best of luck to you. Klarahappyandsam wrote: Hi, all! I'm one of the recent new members. I've come to this group as a result of asthma research. The disease has been a lifelong issue but has become especially nasty the last two years. I *do not* want to endure another cycle of Prednisone, which leads me to the following questions:1) Has anyone here delved into MB after a recent course of Prednisone, and if so, how long did it take for the wreteched side effects of the drug to disappear?2) Has anyone with asthma seen a significant improvement quickly with this lifestyle change? Regarding my second question, I would guess that cutting out dairy (so difficult, but worth it!) would make a difference within a matter of weeks. Tonight I said goodbye to all milk products as well as coffee . . . yikes! (When I was an undergraduate I drank 12-15 cups of coffee per day . . . no kidding!) This is a huge change for me, but I'm sick and tired of being sick and tired! I am so glad to have found this group, and look forward to your responses!Thank you,Hedi __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2007 Report Share Posted January 7, 2007 Hedi, Sorry can't give you any experience stories. Just wanted to encourage you, however much one can over the net. How's your living situation? do you do all your own cooking? shopping? Are there temptations around you?? Do you have anyone close by who can help support this way of life? Be strong. It is defintely worth it!!!!! Each one of us has different experiences, just you should know, whenever I give in to tasting anything with milk, my tongue gets this yucky coating. Coffee I gave up 27 years ago, with my first pregnancy - I still love the smell, but there are so many benefits for giving it up. And much easier for you to get to a balance without these extremes. For the transitional period, do try to find foods that have similar qualities (creamy texture for dairy, coffee substitutes for coffee), it might make it easier. otoh, do be careful what ready products you may buy, if you must buy them, as besides being highly processed, there may be ingredients there that are also not health supportive. The very best of luck to you. Klarahappyandsam wrote: Hi, all! I'm one of the recent new members. I've come to this group as a result of asthma research. The disease has been a lifelong issue but has become especially nasty the last two years. I *do not* want to endure another cycle of Prednisone, which leads me to the following questions:1) Has anyone here delved into MB after a recent course of Prednisone, and if so, how long did it take for the wreteched side effects of the drug to disappear?2) Has anyone with asthma seen a significant improvement quickly with this lifestyle change? Regarding my second question, I would guess that cutting out dairy (so difficult, but worth it!) would make a difference within a matter of weeks. Tonight I said goodbye to all milk products as well as coffee . . . yikes! (When I was an undergraduate I drank 12-15 cups of coffee per day . . . no kidding!) This is a huge change for me, but I'm sick and tired of being sick and tired! I am so glad to have found this group, and look forward to your responses!Thank you,Hedi __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2007 Report Share Posted January 7, 2007 Hedi, Sorry can't give you any experience stories. Just wanted to encourage you, however much one can over the net. How's your living situation? do you do all your own cooking? shopping? Are there temptations around you?? Do you have anyone close by who can help support this way of life? Be strong. It is defintely worth it!!!!! Each one of us has different experiences, just you should know, whenever I give in to tasting anything with milk, my tongue gets this yucky coating. Coffee I gave up 27 years ago, with my first pregnancy - I still love the smell, but there are so many benefits for giving it up. And much easier for you to get to a balance without these extremes. For the transitional period, do try to find foods that have similar qualities (creamy texture for dairy, coffee substitutes for coffee), it might make it easier. otoh, do be careful what ready products you may buy, if you must buy them, as besides being highly processed, there may be ingredients there that are also not health supportive. The very best of luck to you. Klarahappyandsam wrote: Hi, all! I'm one of the recent new members. I've come to this group as a result of asthma research. The disease has been a lifelong issue but has become especially nasty the last two years. I *do not* want to endure another cycle of Prednisone, which leads me to the following questions:1) Has anyone here delved into MB after a recent course of Prednisone, and if so, how long did it take for the wreteched side effects of the drug to disappear?2) Has anyone with asthma seen a significant improvement quickly with this lifestyle change? Regarding my second question, I would guess that cutting out dairy (so difficult, but worth it!) would make a difference within a matter of weeks. Tonight I said goodbye to all milk products as well as coffee . . . yikes! (When I was an undergraduate I drank 12-15 cups of coffee per day . . . no kidding!) This is a huge change for me, but I'm sick and tired of being sick and tired! I am so glad to have found this group, and look forward to your responses!Thank you,Hedi __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2007 Report Share Posted January 7, 2007 Hedi, I do not have asthma, but I have healed very bad latex allergy syptoms with a change to a macrobiotic diet, and used to also have hay fever, now gone. You can definitely heal this without going to more drugs! > > Hi, all! I'm one of the recent new members. I've come to this > group as a result of asthma research. The disease has been a > lifelong issue but has become especially nasty the last two years. > I *do not* want to endure another cycle of Prednisone, which leads > me to the following questions: > > 1) Has anyone here delved into MB after a recent course of > Prednisone, and if so, how long did it take for the wreteched side > effects of the drug to disappear? > 2) Has anyone with asthma seen a significant improvement quickly > with this lifestyle change? > > Regarding my second question, I would guess that cutting out dairy > (so difficult, but worth it!) would make a difference within a > matter of weeks. Tonight I said goodbye to all milk products as > well as coffee . . . yikes! (When I was an undergraduate I drank 12- > 15 cups of coffee per day . . . no kidding!) This is a huge change > for me, but I'm sick and tired of being sick and tired! > > I am so glad to have found this group, and look forward to your > responses! > > Thank you, > Hedi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2007 Report Share Posted January 7, 2007 Hedi, I do not have asthma, but I have healed very bad latex allergy syptoms with a change to a macrobiotic diet, and used to also have hay fever, now gone. You can definitely heal this without going to more drugs! > > Hi, all! I'm one of the recent new members. I've come to this > group as a result of asthma research. The disease has been a > lifelong issue but has become especially nasty the last two years. > I *do not* want to endure another cycle of Prednisone, which leads > me to the following questions: > > 1) Has anyone here delved into MB after a recent course of > Prednisone, and if so, how long did it take for the wreteched side > effects of the drug to disappear? > 2) Has anyone with asthma seen a significant improvement quickly > with this lifestyle change? > > Regarding my second question, I would guess that cutting out dairy > (so difficult, but worth it!) would make a difference within a > matter of weeks. Tonight I said goodbye to all milk products as > well as coffee . . . yikes! (When I was an undergraduate I drank 12- > 15 cups of coffee per day . . . no kidding!) This is a huge change > for me, but I'm sick and tired of being sick and tired! > > I am so glad to have found this group, and look forward to your > responses! > > Thank you, > Hedi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2007 Report Share Posted January 7, 2007 Hedi, I do not have asthma, but I have healed very bad latex allergy syptoms with a change to a macrobiotic diet, and used to also have hay fever, now gone. You can definitely heal this without going to more drugs! > > Hi, all! I'm one of the recent new members. I've come to this > group as a result of asthma research. The disease has been a > lifelong issue but has become especially nasty the last two years. > I *do not* want to endure another cycle of Prednisone, which leads > me to the following questions: > > 1) Has anyone here delved into MB after a recent course of > Prednisone, and if so, how long did it take for the wreteched side > effects of the drug to disappear? > 2) Has anyone with asthma seen a significant improvement quickly > with this lifestyle change? > > Regarding my second question, I would guess that cutting out dairy > (so difficult, but worth it!) would make a difference within a > matter of weeks. Tonight I said goodbye to all milk products as > well as coffee . . . yikes! (When I was an undergraduate I drank 12- > 15 cups of coffee per day . . . no kidding!) This is a huge change > for me, but I'm sick and tired of being sick and tired! > > I am so glad to have found this group, and look forward to your > responses! > > Thank you, > Hedi > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2007 Report Share Posted January 8, 2007 Dear Heidi.. I encourage you. I attribute my health and well being to giving up dairy - led to find an article by Michio Kushi on the benefits of a macrobiotic diet - explaining how cow's milk was meant for baby cows - and how quite a number of people have difficulty assimilating dairy in their bodies. As I remember it took about a month to really feel the effects of giving up dairy. There is a period of time when your body will be cleansing/removing substances that will feel very uncomfortable - but I encourage you to stay with it. All my symptoms disappeared after giving up dairy. All of them. Em Let the beauty we love be what we do. Rumi Let everything you do be done in love. 1 Corinthians 16:14 'Love is the measure.' Dorothy Day 'Gather yourselves...All that we do now must be done in a sacred manner.' Hopi Elders 2001 __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2007 Report Share Posted January 8, 2007 Thanks, Em! That's a very powerful testimony. Cow's milk being meant for baby cows makes so much sense, and yet I just didn't want to hear it until recently. A friend of mine told me in late December that she'd read a book by a homeopathic doctor who insists that a tremendous number of illnesses can be traced back to lactose intolerance. She bears witness to this: since she gave up dairy, she hasn't had any bouts with Crohn's disease. This is going to be a new way of life, but one that I know will be well worth the effort! Thank you for your encouragement! Best, Hediemilie hamilton wrote: Dear Heidi..I encourage you. I attribute my health and well being to givingup dairy - led to find an article by Michio Kushi on thebenefits of a macrobiotic diet - explaining how cow's milk wasmeant for baby cows - and how quite a number of people havedifficulty assimilating dairy in their bodies. As I remember ittook about a month to really feel the effects of giving updairy. There is a period of time when your body will becleansing/removing substances that will feel very uncomfortable- but I encourage you to stay with it. All my symptomsdisappeared after giving up dairy. All of them. EmLet the beauty we love be what we do. RumiLet everything you do be done in love.1 Corinthians 16:14'Love is the measure.' Dorothy Day'Gather yourselves...All that we do now must be done in a sacred manner.' Hopi Elders 2001__________________________________________________ Quote Link to comment Share on other sites More sharing options...
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