Guest guest Posted May 12, 2000 Report Share Posted May 12, 2000 In a message dated 5/11/00 10:02:30 PM Pacific Daylight Time, hambug@... writes: << doesn't seem so terrible to me now >> Pam-I know, I agree...we you first hear about needing a helmet or band, it devastates you. But after awhile, it just becomes an every day kind of thing:) Kimry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2000 Report Share Posted May 12, 2000 Thanks for the link. Isn't it weird how they referred to plagio as a "terrible condition"? I probably felt that too the first time I heard that Cameron might have to wear a helmet (can't even remember!), but wearing the helmet has not been terrible at all for Cameron so far, and it will all be over in a few months... doesn't seem so terrible to me now. -Pam ----- Original Message ----- From: DOLY1023@... plagiocephalyegroups Sent: Thursday, May 11, 2000 7:53 PM Subject: news broadcast did anyone get a chance to see the broadcast on last night's news about plagio?if you are in the new england area it was broadcast on whdh channel 7 and rebroadcast today at noon.i found it quite interesting and informative.in fact,we went to a bday party tonight and had lots of questions regarding plagio even from my own family who knows as much if not more about plagio because of this awesome website.anyway if anyone would like to access the broadcast it's on the www.whdh.com website under reporter kim khazei...check it out.lynne and livie. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2000 Report Share Posted May 12, 2000 Lynne: Thanks for forwarding the link for the news article. I have written to our three major news channels in the hope of getting something like this done in our area. I also wanted to say that I admire you for what you are doing for your niece. She sure is lucky to have you! Sue ----- Original Message ----- From: <DOLY1023@...> <plagiocephalyegroups> Sent: Thursday, May 11, 2000 8:53 PM Subject: news broadcast > did anyone get a chance to see the broadcast on last night's news about > plagio?if you are in the new england area it was broadcast on whdh channel 7 > and rebroadcast today at noon.i found it quite interesting and informative.in > fact,we went to a bday party tonight and had lots of questions regarding > plagio even from my own family who knows as much if not more about plagio > because of this awesome website.anyway if anyone would like to access the > broadcast it's on the www.whdh.com website under reporter kim khazei...check > it out. > lynne and livie. > > ------------------------------------------------------------------------ > Remember four years of good friends, bad clothes, explosive chemistry > experiments. > 1/4051/4/_/689409/_/958092809/ > ------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2000 Report Share Posted May 12, 2000 Pam, I know what you mean! I remember walking out of the neurologist's office speechless! In fact, while I was still in there, he asked me if I was okay. Ha, ha. I have to laugh about it now, but then I was mortified. Now, I don't even think about the band when we are in public (and she's only been in it just shy of a week) but am reminded by the " public stares " . I find it humorous how uncomfortable the band makes some people...On another note...Hubby is a medical sales rep and was overheard in an office talking about the band. The woman who overheard him said her 3 year old granddaughter has a flat side on her head and now has jaw problems. She wanted to know what, if anything could be done to help her. My husband said she is very worried. If only they had known more about this three years ago. I'm just so thankful for the opportunity to treat Maddie and for the ongoing support of this list. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2000 Report Share Posted May 12, 2000 Interesting that they stated that helmet therapy is not covered by insurance. Also, I wonder what the waiver says, has anyone had to sign one. Also, the big bad news I heard recently is that babies who have worn devices get lifelong migraines, has any one else heard this? (I must have worn a helmet!) Don't want to scare anyone, does anyone have long term experience after using helmet to verify with their child? -liz -----Original Message----- From: DOLY1023@... <DOLY1023@...> plagiocephalyegroups <plagiocephalyegroups> Date: Thursday, May 11, 2000 5:49 PM Subject: news broadcast >did anyone get a chance to see the broadcast on last night's news about >plagio?if you are in the new england area it was broadcast on whdh channel 7 >and rebroadcast today at noon.i found it quite interesting and informative.in >fact,we went to a bday party tonight and had lots of questions regarding >plagio even from my own family who knows as much if not more about plagio >because of this awesome website.anyway if anyone would like to access the >broadcast it's on the www.whdh.com website under reporter kim khazei...check >it out. >lynne and livie. > >------------------------------------------------------------------------ >Remember four years of good friends, bad clothes, explosive chemistry >experiments. >1/4051/4/_/689409/_/958092809/ >------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2000 Report Share Posted May 12, 2000 dear sue, thank you for your support..in fact we are quite lucky to have olivia.she brings joy to our lives everyday.i didn't realize how much i wanted another child until she came to us.she truly is a joy and helps to make this an even more special mothers day. hope all you ladies have a wonderful mother's day. lynne and livie. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2000 Report Share Posted May 12, 2000 In a message dated 5/12/00 5:12:30 AM Pacific Daylight Time, yeeman@... writes: << Interesting that they stated that helmet therapy is not covered by insurance. Also, I wonder what the waiver says, has anyone had to sign one. Also, the big bad news I heard recently is that babies who have worn devices get lifelong migraines, has any one else heard this? (I must have worn a helmet!) Don't want to scare anyone, does anyone have long term experience after using helmet to verify with their child? -liz >> Liz-about the insurance part of the newsbroad cast, I e-mailed the reporter & they will let anyone that calls about the piece Know that it may be covered by insurance. About the life long migraines...I wonder how old the people are now that wore the helmets, which makes me wonder why they orginally wore a helmet? When I use to think of a helmet, I pictured someone with epilepsy, or some other severe neourological condition that caused physicians to fear for the safety of the patient, so then the helmet was for protection. I know, I know, I sound primative in only associating helmets with severe conditions. But maybe they had something else going on that would have caused the migranes - helmet or no helmet. I'm just thinking that these migrane sufferers would have to be grown ups in order to track it & that maybe the helemts were not as wearer friendly as they are now. Am I making sense? Kimry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2000 Report Share Posted May 12, 2000 In a message dated 5/12/00 2:26:44 PM Pacific Daylight Time, DOLY1023@... writes: << hope all you ladies have a wonderful mother's day. >> Lynne-you too! Kimry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 12, 2000 Report Share Posted May 12, 2000 Kimry and Liz, You'd think NOT treating the plagiocephaly and having the brain in a flattened cranium would cause the migranes (pressure or odd-shaped brain). I think Kimry is on the right track. How can they really say helmets cause migranes? The recent " epidemic " of plagiocephaly is not old enough to make such a broad statement. And even the research journal articles don't go back much before the late '70s about helmets. And the few that do were not on a large enough sample..... yada yada yada....you have to wonder about the field of medicine sometimes. Do they publish this stuff just for the sake of publication?? Maybe one of the helmet/band naysayers to perpetuate their viewpoint? Tami > In a message dated 5/12/00 5:12:30 AM Pacific Daylight Time, > yeeman@y... writes: > > << Interesting that they stated that helmet therapy is not covered by insurance. Also, I wonder what the waiver says, has anyone had to sign one.> Also, the big bad news I heard recently is that babies who have worn devices> get lifelong migraines, has any one else heard this? (I must have worn a> helmet!) Don't want to scare anyone, does anyone have long term experience> after using helmet to verify with their child? -liz >> > Liz-about the insurance part of the newsbroad cast, I e-mailed the reporter & > they will let anyone that calls about the piece Know that it may be covered > by insurance. About the life long migraines...I wonder how old the people > are now that wore the helmets, which makes me wonder why they orginally wore > a helmet? When I use to think of a helmet, I pictured someone with epilepsy, > or some other severe neourological condition that caused physicians to fear > for the safety of the patient, so then the helmet was for protection. I > know, I know, I sound primative in only associating helmets with severe > conditions. But maybe they had something else going on that would have caused the migranes - helmet or no helmet. I'm just thinking that these > migrane sufferers would have to be grown ups in order to track it & that > maybe the helemts were not as wearer friendly as they are now. Am I making > sense? Kimry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2000 Report Share Posted May 13, 2000 You are about as primitive as I, Kimry. If I had seen a child with a helmet (not knowing what I know now), I would think of epilepsy. When we were in for our first adjustment on Tues., a little girl asked me what the band was for. I explained, and her mother asked, "oh, she doesn't have seizures or anything, then??" I went to a walk in clinic today, and the nurses were all curious. The doctor didn't have a clue what I was talking about. I left my hand out. Maybe good 'ol doc will go home and do some research!! Kendra AAKARA@... wrote: In a message dated 5/12/00 5:12:30 AM Pacific Daylight Time, yeeman@... writes: << Interesting that they stated that helmet therapy is not covered by insurance. Also, I wonder what the waiver says, has anyone had to sign one. Also, the big bad news I heard recently is that babies who have worn devices get lifelong migraines, has any one else heard this? (I must have worn a helmet!) Don't want to scare anyone, does anyone have long term experience after using helmet to verify with their child? -liz >> Liz-about the insurance part of the newsbroad cast, I e-mailed the reporter & they will let anyone that calls about the piece Know that it may be covered by insurance. About the life long migraines...I wonder how old the people are now that wore the helmets, which makes me wonder why they orginally wore a helmet? When I use to think of a helmet, I pictured someone with epilepsy, or some other severe neourological condition that caused physicians to fear for the safety of the patient, so then the helmet was for protection. I know, I know, I sound primative in only associating helmets with severe conditions. But maybe they had something else going on that would have caused the migranes - helmet or no helmet. I'm just thinking that these migrane sufferers would have to be grown ups in order to track it & that maybe the helemts were not as wearer friendly as they are now. Am I making sense? Kimry Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 13, 2000 Report Share Posted May 13, 2000 I agree that they shouldn't cause migranes (this is just what I heard) and I'm also under the assumption that the devices should not cause other problems that the initial molding did not cause. -----Original Message----- From: Tami Warner <twarner@...> Plagiocephalyegroups <Plagiocephalyegroups> Date: Friday, May 12, 2000 3:51 PM Subject: Re: news broadcast >Kimry and Liz, > >You'd think NOT treating the plagiocephaly and having the brain in a >flattened cranium would cause the migranes (pressure or odd-shaped >brain). I think Kimry is on the right track. How can they really >say helmets cause migranes? The recent " epidemic " of plagiocephaly >is not old enough to make such a broad statement. And even the >research journal articles don't go back much before the late '70s >about helmets. And the few that do were not on a large enough >sample..... yada yada yada....you have to wonder about the field of >medicine sometimes. Do they publish this stuff just for the sake of >publication?? Maybe one of the helmet/band naysayers to perpetuate >their viewpoint? > >Tami > > >> In a message dated 5/12/00 5:12:30 AM Pacific Daylight Time, >> yeeman@y... writes: >> >> << Interesting that they stated that helmet therapy is not covered >by insurance. Also, I wonder what the waiver says, has anyone had to >sign one.> Also, the big bad news I heard recently is that babies >who have worn devices> get lifelong migraines, has any one else >heard this? (I must have worn a> helmet!) Don't want to scare >anyone, does anyone have long term experience> after using helmet to >verify with their child? -liz >> > >> Liz-about the insurance part of the newsbroad cast, I e-mailed the >reporter & > they will let anyone that calls about the piece Know >that it may be covered > by insurance. About the life long >migraines...I wonder how old the people > are now that wore the >helmets, which makes me wonder why they orginally wore > a helmet? >When I use to think of a helmet, I pictured someone with epilepsy, > >or some other severe neourological condition that caused physicians >to fear > for the safety of the patient, so then the helmet was for >protection. I > know, I know, I sound primative in only associating >helmets with severe > conditions. But maybe they had something else >going on that would have caused the migranes - helmet or no helmet. >I'm just thinking that these > migrane sufferers would have to be >grown ups in order to track it & that > maybe the helemts were not as >wearer friendly as they are now. Am I making >> sense? Kimry > > >------------------------------------------------------------------------ >Remember four years of good friends, bad clothes, explosive chemistry >experiments. >1/4051/4/_/689409/_/958172145/ >------------------------------------------------------------------------ > > Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.