Re: URGENT!!!! Everyone please email or call N...

[Guest guest]

>>Just rung., apparently its only California and studies are different in the UK, so its not relevant for here, I said the studies won;t be carried out here because we are wasting money on SBC to tell us how useful Lego is and ended with its no more than I expected from the NAs................

Mandi x

Contact the NAS Press Office

The National Autistic Society PR and Media team offers journalists and production companies a full information service about the NAS and autism. We also source case studies and photos for media use and have a number of spokespeople available for interviews. Please contact us on one of the numbers below for further information.

Press Office

Tel: 020 7903 3593Mobile (24 hours): 07787 124792Fax: 020 7923 5708Email: press@....uk

[Guest guest]

which studies from the uk???

>>I said there are none and neither will there ever be whilst we are wasting research £ on SBC

Mandi x

[Guest guest]

We still need in my opinion to come over, about the same time as

Andy's book is released would be good

Living in hope

Lara x

>

> >>Just rung., apparently its only California and studies are

different in

> the UK, so its not relevant for here, I said the studies won;t be

carried out

> here because we are wasting money on SBC to tell us how useful Lego

is and

> ended with its no more than I expected from the NAs................

>

> Mandi x

>

>

>

> Contact the NAS Press Office

> The National Autistic Society PR and Media team offers journalists and

> production companies a full information service about the NAS and

autism. We also

> source case studies and photos for media use and have a number of

> spokespeople available for interviews. Please contact us on one of

the numbers below for

> further information. Press Office Tel: 020 7903 3593

> Mobile (24 hours): 07787 124792

> Fax: 020 7923 5708

> Email: _press@..._ (mailto:press@...)

>

[Guest guest]

which studies from the uk???

this is the usual suspects in nas talking through their as***S.

outrageous. absolutely stunning

>

> >>Just rung., apparently its only California and studies are

different in

> the UK, so its not relevant for here, I said the studies won;t be

carried out

> here because we are wasting money on SBC to tell us how useful Lego

is and

> ended with its no more than I expected from the NAs................

>

> Mandi x

>

>

>

> Contact the NAS Press Office

> The National Autistic Society PR and Media team offers journalists and

> production companies a full information service about the NAS and

autism. We also

> source case studies and photos for media use and have a number of

> spokespeople available for interviews. Please contact us on one of the

numbers below for

> further information. Press Office Tel: 020 7903 3593

> Mobile (24 hours): 07787 124792

> Fax: 020 7923 5708

> Email: _press@..._ (mailto:press@...)

>

[Guest guest]

I'm still waiting for a reply... if they come up with this vomit I'm

going to ask why they don't issue UK press statement urging for the same

type of study to be done in the UK asap

won't get me anywhere but feels nice

nx

>

>

> In a message dated 09/01/2009 11:43:54 GMT Standard Time,

> neno@... writes:

>

> which studies from the uk???

>

>

>

> >>I said there are none and neither will there ever be whilst we are

wasting

> research £ on SBC

>

> Mandi x

>

[Guest guest]

Same here. They said the research " does not fit in with how things are

done in this country " , I said things like this are NOT done in this

country, nothing is, and why isn't NAS pushing for it to be done

now????.... she said it depends on what RA says. I then asked for

timescale she said no timescale, they have already looked at it and will

look again to " see whether it fits " and just watch our website if a

comment happens it happens.

I asked her to put something in writing to me, I'm planning to chase it

up with her or her boss regardless.

I'm not a member but if I was I would be REALLY really pissed of with

them for this. unbelievable.

nx

>

> They finally called me back, apparently Research Autism is looking at

it

> before any press release.

> She also said, they need to think how it would impact on people in

the UK,

> oh and it isn't in the UK press.

> So they didn't say they wouldn't comment but didn't say they would.

> Vicky

>

[Guest guest]

I emailed and got the standard " we're looking at it " response.

> Do they have a discussion forum? Do they have a magazine, readers letters?

> Or maybe just write to the Newspapers and get it out there ourselves? I'm

> not a member myself, used to be in the early days before biomed, but

> realised they have never brought about any change in Education or anything

> else either so buy a lottery ticket instead at least there is some chance of

> winning something no matter how small lol.

> Vicky

>

--

Simon Godden

[Guest guest]

I emailed and got the standard " we're looking at it " response.

> Do they have a discussion forum? Do they have a magazine, readers letters?

> Or maybe just write to the Newspapers and get it out there ourselves? I'm

> not a member myself, used to be in the early days before biomed, but

> realised they have never brought about any change in Education or anything

> else either so buy a lottery ticket instead at least there is some chance of

> winning something no matter how small lol.

> Vicky

>

--

Simon Godden