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Interesting. I was diagnosed with MAI in 96 when I was at my worst, and have had a positive PPD tests ever since. Did they do blood cultures as well as culturing the fluid that came out? It will be interesting to find out if only the fluid had it but not your blood. I would think that if it wasn't in your blood, then you aren't infected with it, and wouldn't require any treatment. Honestly, the only reason I received treatment was because of the side effects of MAI and I stopped treatment once my health improved (t-cells over 100). 90% of people who culture positive for mycobacterium have a t-cell count under 100. The median and mean T-cell counts at onset of MAC/MAI was 13 and 24 respectively. My t-cell count was 0 when I was diagnosed. The medication I took was Rifabutin. It is an antimycobacterial, a type of anitbiotic. Unless your t-cell count is in that range I would suspect that this is definately a medical mystery and something to scratch your head about. It would more likely be TB.

Connie

On 11/14/05, rolyatffej@... <

rolyatffej@...> wrote:

Funny this should pop up. I recently had a large mass in my lung drained of more than half a liter of fluid that's tested positive for mycobacterium. It was completely encapusulated in a calcified mass that had been there for years, but had apparently grown and caused concern when I was getting an Xray screening for a gene therapy study. It's only been a week, so it hasn't cultured long enough to be sure what it is. Of course the health dept heard mycobacterium and has me under " voluntary quarantine " for TB despite a negative PPD test.

Has anybody here ever had or heard of anything similar? My doc suspects it might be MAC or MAI, given my AIDS history. Would antibiotics or antifungals be an appropriate therapy? Would they even reach the calcified reservoir in which they'd been presumably lurking for years? My pulmonologist is stumped, and so am I.

Jeff in San Diego

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Interesting. I was diagnosed with MAI in 96 when I was at my worst, and have had a positive PPD tests ever since. Did they do blood cultures as well as culturing the fluid that came out? It will be interesting to find out if only the fluid had it but not your blood. I would think that if it wasn't in your blood, then you aren't infected with it, and wouldn't require any treatment. Honestly, the only reason I received treatment was because of the side effects of MAI and I stopped treatment once my health improved (t-cells over 100). 90% of people who culture positive for mycobacterium have a t-cell count under 100. The median and mean T-cell counts at onset of MAC/MAI was 13 and 24 respectively. My t-cell count was 0 when I was diagnosed. The medication I took was Rifabutin. It is an antimycobacterial, a type of anitbiotic. Unless your t-cell count is in that range I would suspect that this is definately a medical mystery and something to scratch your head about. It would more likely be TB.

Connie

On 11/14/05, rolyatffej@... <

rolyatffej@...> wrote:

Funny this should pop up. I recently had a large mass in my lung drained of more than half a liter of fluid that's tested positive for mycobacterium. It was completely encapusulated in a calcified mass that had been there for years, but had apparently grown and caused concern when I was getting an Xray screening for a gene therapy study. It's only been a week, so it hasn't cultured long enough to be sure what it is. Of course the health dept heard mycobacterium and has me under " voluntary quarantine " for TB despite a negative PPD test.

Has anybody here ever had or heard of anything similar? My doc suspects it might be MAC or MAI, given my AIDS history. Would antibiotics or antifungals be an appropriate therapy? Would they even reach the calcified reservoir in which they'd been presumably lurking for years? My pulmonologist is stumped, and so am I.

Jeff in San Diego

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  • 6 years later...
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Hi ,

Byron White Formulations makes a specific tincture which is imprinted with frequencies specific for clearing mycoplasma called A-MYC. I find his line very effective for clearing various pathogens.Shaun Riddle, NMD

sdale, AZ

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thanks much ShaunR

Hi ,

Byron White Formulations makes a specific tincture which is imprinted with frequencies specific for clearing mycoplasma called A-MYC. I find his line very effective for clearing various pathogens.Shaun Riddle, NMD

sdale, AZ

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Do you use this after Rx with herbs and/or unda's or antibiotics or during?R

Hi ,

Byron White Formulations makes a specific tincture which is imprinted with frequencies specific for clearing mycoplasma called A-MYC. I find his line very effective for clearing various pathogens.Shaun Riddle, NMD

sdale, AZ

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Do you use this after Rx with herbs and/or unda's or antibiotics or during?R

Hi ,

Byron White Formulations makes a specific tincture which is imprinted with frequencies specific for clearing mycoplasma called A-MYC. I find his line very effective for clearing various pathogens.Shaun Riddle, NMD

sdale, AZ

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