RE: Re: You're all wonderful..

[Guest guest]

Peg-

An awful memory about meds. and dad's former nh...luckily I was in the

room when this happened, but a pool nurse (nurses that work out of an

agency and called when needed) went to hand my dad his meds. I, knowing

what they were, to a tee, looked into the little cup and must have had

one of those puzzled looks on my face. She looked at dad and all of a

sudden said, " OH, YOU'RE NOT TOM " , and pulled the meds. away from my

dad...Merle. I asked what was going on and she said " By the PICTURE, he

looked like Tom " . SHEESH, I threw a fit. I made sure the

administrator, and everyone I came in contact with was made aware of the

situation and the importance of having staff in the Alzheimer's Unit,

and throughout the nh, that is familiar with the residents. With LBD,

the meds. are so crucial, had he been given something that went against

the LBD...that NH would have been my dads middle name. Luckily, that

was a one time situation, yet was told by state regulations, they have a

2 hr window to administer drugs (1 hr before the due time, and 1 hr

after) and if they were not able to give them in that time, or if dad

refused during those times...the pill were distroyed. ARGGGGHHHHHH.

The wonders of NH living. Just a heads up for you and your family. Of

course not everything was negative, there were some positive things

while at that nh, guess sometimes it is easier to remember the bad times

there...

Please keep taking your notebook. Later you may find it useful to help

another family member with all of your notes and resources. Along the

way you may encounter many different people, drugs, changes...it is all

so hard to remember. Plus looking back through my " NOVEL " it shows me

the stages dad went through...mine are all dated as well.

Saying prayers for your family.

Sandie

Des Moines, IA

[Guest guest]

IN REPLY TO:

And I think I will try to reach our former pastor. He is such a great guy.

His health hasn't been the greatest lately, but if possible, I know he will

do everything possible to visit or call my mom.

>

>God bless you,

>Peg

>

Hey this reminds me of something, my parent's priest comes to visit them at

home sometimes and he has Parkinsons. His head is way down by his knees and

he can not sit down. This guy just doesn't give up. Shirley

_________________________________________________________________

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[Guest guest]

Oh Sandie what an experience! Thank God you were there. That story gave me

chills. It is good that you pass along those stories to heighten our

awareness to those unfortunate possibilities.

Thanks for sharing! How are you holding up?

Thinking of you,

Re: Re: You're all wonderful..

Peg-

An awful memory about meds. and dad's former nh...luckily I was in the

room when this happened, but a pool nurse (nurses that work out of an

agency and called when needed) went to hand my dad his meds. I, knowing

what they were, to a tee, looked into the little cup and must have had

one of those puzzled looks on my face. She looked at dad and all of a

sudden said, " OH, YOU'RE NOT TOM " , and pulled the meds. away from my

dad...Merle. I asked what was going on and she said " By the PICTURE, he

looked like Tom " . SHEESH, I threw a fit. I made sure the

administrator, and everyone I came in contact with was made aware of the

situation and the importance of having staff in the Alzheimer's Unit,

and throughout the nh, that is familiar with the residents. With LBD,

the meds. are so crucial, had he been given something that went against

the LBD...that NH would have been my dads middle name. Luckily, that

was a one time situation, yet was told by state regulations, they have a

2 hr window to administer drugs (1 hr before the due time, and 1 hr

after) and if they were not able to give them in that time, or if dad

refused during those times...the pill were distroyed. ARGGGGHHHHHH.

The wonders of NH living. Just a heads up for you and your family. Of

course not everything was negative, there were some positive things

while at that nh, guess sometimes it is easier to remember the bad times

there...

Please keep taking your notebook. Later you may find it useful to help

another family member with all of your notes and resources. Along the

way you may encounter many different people, drugs, changes...it is all

so hard to remember. Plus looking back through my " NOVEL " it shows me

the stages dad went through...mine are all dated as well.

Saying prayers for your family.

Sandie

Des Moines, IA

[Guest guest]

Oh Sandie what an experience! Thank God you were there. That story gave me

chills. It is good that you pass along those stories to heighten our

awareness to those unfortunate possibilities.

Thanks for sharing! How are you holding up?

Thinking of you,

Re: Re: You're all wonderful..

Peg-

An awful memory about meds. and dad's former nh...luckily I was in the

room when this happened, but a pool nurse (nurses that work out of an

agency and called when needed) went to hand my dad his meds. I, knowing

what they were, to a tee, looked into the little cup and must have had

one of those puzzled looks on my face. She looked at dad and all of a

sudden said, " OH, YOU'RE NOT TOM " , and pulled the meds. away from my

dad...Merle. I asked what was going on and she said " By the PICTURE, he

looked like Tom " . SHEESH, I threw a fit. I made sure the

administrator, and everyone I came in contact with was made aware of the

situation and the importance of having staff in the Alzheimer's Unit,

and throughout the nh, that is familiar with the residents. With LBD,

the meds. are so crucial, had he been given something that went against

the LBD...that NH would have been my dads middle name. Luckily, that

was a one time situation, yet was told by state regulations, they have a

2 hr window to administer drugs (1 hr before the due time, and 1 hr

after) and if they were not able to give them in that time, or if dad

refused during those times...the pill were distroyed. ARGGGGHHHHHH.

The wonders of NH living. Just a heads up for you and your family. Of

course not everything was negative, there were some positive things

while at that nh, guess sometimes it is easier to remember the bad times

there...

Please keep taking your notebook. Later you may find it useful to help

another family member with all of your notes and resources. Along the

way you may encounter many different people, drugs, changes...it is all

so hard to remember. Plus looking back through my " NOVEL " it shows me

the stages dad went through...mine are all dated as well.

Saying prayers for your family.

Sandie

Des Moines, IA

[Guest guest]

You are welcome. Holding up...I am doing fine, yet have my moments.

Amazing how they just creep up on me.

Also, I may have some upcoming news about an LBD Seminar in Minneapolis

this month. Last month I had turned in an application at a long term

care facility and while there, had taken my normal " LBD INFO " when the

administrator knew as much as I do about the disease. She looked at the

top of one of the sheets and said there is going to be a seminar in

Minneapolis in Oct. Well, yesterday I called her and she is researching

the dates, times, and all involved with the seminar. I did ask if it is

strictly for medical staff and she said no. It would be even more

strange if it is the weekend I will be in Minnesota. Will pass on

further information as soon as she calls me back.

Thank you for asking about me. I really appreciate you and your caring

heart. :-))

Sandie

[Guest guest]

Glad to hear you are holding up. I can imagine those " moments " will

continue to creep up on you. How is your Uncle doing? Has he had any

additional testing done?

Great news about the seminar! I would love to attend too! I would ask my

FIL to go too. How exciting! Please do let me know where and when. I do

hope it is when you are here. You know when you said the clerk knew as much

about LBD as you, I just about fell over! You don't come across that very

often! Speaking of that, Dan Rather on the news last night did a special on

Alzheimer's Disease. They followed 2 families going through the disease and

watched how the families coped. One person was only 55 and he was still

somewhat " with it " , but yet when his wife asked him to pack a suitcase for a

trip they were going on, he packed 2 shirts, and like 20 pairs of socks.

The other was a lady who was older, (later 70's)and her 3 children were

caring for her. It was very interesting to watch how these families cared

for their LO's, and how they dealt with the frustrations that often come

along with caring for them too. Did you happen to catch this? It was

around 5:30pm yesterday. Anyway, I sure wish they would do something like

that for LBD.

Keep taking care and thanks again for sharing the seminar info!

Thinking of you,

RE: Re: You're all wonderful..

You are welcome. Holding up...I am doing fine, yet have my moments.

Amazing how they just creep up on me.

Also, I may have some upcoming news about an LBD Seminar in Minneapolis

this month. Last month I had turned in an application at a long term

care facility and while there, had taken my normal " LBD INFO " when the

administrator knew as much as I do about the disease. She looked at the

top of one of the sheets and said there is going to be a seminar in

Minneapolis in Oct. Well, yesterday I called her and she is researching

the dates, times, and all involved with the seminar. I did ask if it is

strictly for medical staff and she said no. It would be even more

strange if it is the weekend I will be in Minnesota. Will pass on

further information as soon as she calls me back.

Thank you for asking about me. I really appreciate you and your caring

heart. :-))

Sandie

[Guest guest]

Thank you so much for asking about my Uncle. Last I had asked the dr.

in charge of the testing had not been contacted as yet. This upcoming

Sunday we are having a " Lambert " get together and I will ask if the

testing has happened yet. My Uncle stood up at the funeral, spoke, and

gave his promise that our family will keep a bond that will not be

broken.

Oh, and the lady I mentioned that knew more about LBD than I is the

Administrator of a Long Term Care Facility. She truly was amazing.

Haven't heard back from her yet, so I will call again today and

hopefully have some information.

So far 2 of us are coming your way. I told my very best friend about

going, and yesterday she and I said if it is just the 2 of us...then

away we go.

No, I wasn't able to watch the piece on Alzheimer's with Dan Rather. I

work evenings, from 5-9 ish Monday-Friday so unfortunately I miss most

evening shows. I bet it was interesting to watch. Thank you for

sharing the story with us.

Time to move on to the other emails. Thinking of you and still keeping

your MIL, you, and in my prayers.

Sandie

....just South of you, but heading North in about a month....wheeeee

[Guest guest]

Thank you so much for asking about my Uncle. Last I had asked the dr.

in charge of the testing had not been contacted as yet. This upcoming

Sunday we are having a " Lambert " get together and I will ask if the

testing has happened yet. My Uncle stood up at the funeral, spoke, and

gave his promise that our family will keep a bond that will not be

broken.

Oh, and the lady I mentioned that knew more about LBD than I is the

Administrator of a Long Term Care Facility. She truly was amazing.

Haven't heard back from her yet, so I will call again today and

hopefully have some information.

So far 2 of us are coming your way. I told my very best friend about

going, and yesterday she and I said if it is just the 2 of us...then

away we go.

No, I wasn't able to watch the piece on Alzheimer's with Dan Rather. I

work evenings, from 5-9 ish Monday-Friday so unfortunately I miss most

evening shows. I bet it was interesting to watch. Thank you for

sharing the story with us.

Time to move on to the other emails. Thinking of you and still keeping

your MIL, you, and in my prayers.

Sandie

....just South of you, but heading North in about a month....wheeeee

[Guest guest]

Sandie,

How nice that your Uncle stood up and spoke at the funeral. That must have

been just wonderful! I hope your Aunt is keeping a journal of his progress.

I really have found that to be a great idea!

Looking forward to next month! Take care Sandie!

RE: Re: You're all wonderful..

Thank you so much for asking about my Uncle. Last I had asked the dr.

in charge of the testing had not been contacted as yet. This upcoming

Sunday we are having a " Lambert " get together and I will ask if the

testing has happened yet. My Uncle stood up at the funeral, spoke, and

gave his promise that our family will keep a bond that will not be

broken.

Oh, and the lady I mentioned that knew more about LBD than I is the

Administrator of a Long Term Care Facility. She truly was amazing.

Haven't heard back from her yet, so I will call again today and

hopefully have some information.

So far 2 of us are coming your way. I told my very best friend about

going, and yesterday she and I said if it is just the 2 of us...then

away we go.

No, I wasn't able to watch the piece on Alzheimer's with Dan Rather. I

work evenings, from 5-9 ish Monday-Friday so unfortunately I miss most

evening shows. I bet it was interesting to watch. Thank you for

sharing the story with us.

Time to move on to the other emails. Thinking of you and still keeping

your MIL, you, and in my prayers.

Sandie

....just South of you, but heading North in about a month....wheeeee

[Guest guest]

Sandie,

How nice that your Uncle stood up and spoke at the funeral. That must have

been just wonderful! I hope your Aunt is keeping a journal of his progress.

I really have found that to be a great idea!

Looking forward to next month! Take care Sandie!

RE: Re: You're all wonderful..

Thank you so much for asking about my Uncle. Last I had asked the dr.

in charge of the testing had not been contacted as yet. This upcoming

Sunday we are having a " Lambert " get together and I will ask if the

testing has happened yet. My Uncle stood up at the funeral, spoke, and

gave his promise that our family will keep a bond that will not be

broken.

Oh, and the lady I mentioned that knew more about LBD than I is the

Administrator of a Long Term Care Facility. She truly was amazing.

Haven't heard back from her yet, so I will call again today and

hopefully have some information.

So far 2 of us are coming your way. I told my very best friend about

going, and yesterday she and I said if it is just the 2 of us...then

away we go.

No, I wasn't able to watch the piece on Alzheimer's with Dan Rather. I

work evenings, from 5-9 ish Monday-Friday so unfortunately I miss most

evening shows. I bet it was interesting to watch. Thank you for

sharing the story with us.

Time to move on to the other emails. Thinking of you and still keeping

your MIL, you, and in my prayers.

Sandie

....just South of you, but heading North in about a month....wheeeee