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Re: Digest Number 391

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Message: 12

Date: Wed, 3 May 2000 19:48:21 +0100

From: " Fred Short " <Fred.Short@...>

Subject: RE: ONElist is now eGroups

> From: Dan Kennedy [mailto:DKENNEDY@...]

> DON'T PANIC

> However, eGroups *suggests* that you change your address book so that

> your posts now go to:

> dwarfismegroups

A bit ironic really. Dwarfism at Egroup. I mean, how many of us would

love a dollar for the number of times we have heard " Eeeeee look at that

little man/woman " :-)))))

I reckon we must be THE most eligible e-groups:-)

Cheers, Eeeeee Fred

Thanks Fred, I really like your powers of observation on any given situation

and your subsequent wit. eeeeeeeeee a rat, an aussie rat

Keane

pmkeane@...

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

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  • 3 months later...

In a message dated 8/26/00 1:44:18 AM Eastern Daylight Time,

egroups writes:

>

> DMPS is very dangerous if given by injection. It is safe if given orally

> every 8 hours.

>

> Andy

My doctor has had difficulty finding this orally. Any suggestion on where we

can get it? Thanks. Carole

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<< My doctor has had difficulty finding this orally. Any suggestion on where

we

can get it? >>

Most compounding pharmacies will put it in capsules if the doc wants it that

way. I'm suprised he is having trouble finding it - just call some

compounding pharmacies and ask. Especially ones like College Pharmacy,

Apothecure, Falls Pharmacy (1-877-392-7948). Falls pharmacy will even put

the ALA in the capsule with your DMPS or DMSA if you want it that way.

Andy

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To all who decide to post the past 25 or so messages from the past posts on

their replys to the list..because they dont know a fast way to delete

everything before writing their reply...

this is how to do it:

1> Click on your reply button (to make a new email)

2> Click on your 'EDIT' key on your new email

3> Click on SELECT ALL

4> Click on Delete on your key board.

This will clear all old messages so we dont have to scroll down past 25 old

messages in order to get to the new ones.

Now..to all who may get in a huff cause i wrote this....dont...i just

learned how to do this 2 weeks ago (i used to do the copy it all, then

delete it all thing for 6 yrs!!)..Its fast, efficient and keeps the digest

smaller and less of a hastle to scroll down old messages.

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  • 2 weeks later...

In our state it is very hard to move anything through insurances, not

to talk to about helmets. the first parents that had to do this were

in a very hard situation. but our primary prescribing physician, on

our advise, started attaching a letter of medical necessity to every

prescription. a few latin terms in it usually worked out fine. so,

this letter is the best way to go. i do not believe that any of the

teenage biurocrats working for insurances for $5.75 an hour will be

impressed with photos, but they will have a reason to say " you see, i

thought it's all about looks " . if your prescribing MD does not have

a

clue what to write, ask your orthotist to write one for him, we

usually know how to do this. remember - cosmetics are NOT covered by

insurances, but MEDICAL NECESSITIES are. good move is to write in

the

letter " low cost helmet treatment now will allow to avoid possible

costly surgeries in the future " . it's a good catch. the first few

months of our helmet making were " rusty " insurance wise, but then we

noticed that they got used to the idea and now it goes easily, unless

we occasionally hit some unknown insurance. good luck, pioneers path

is always tough.. :-)

--- In Plagiocephalyegroups, " dukceylima " <dulceylima@m...>

wrote:

> Have you sent any photographs? You may be able to find some of

older

> children who have not been treated and send those on to your

insurance

> company. Be persistent, they are counting on you going away after

the

> rejection letter. A letter from your physician may be helpful if

you can

> get him to write that it is necessary for proper skeletal

alignment,

or

> something like that.

> Good luck and dont take no for an answer.

> Dulcey Lima C.O. OTR/L

>

> -----Original Message-----

> From: Plagiocephalyegroups [mailto:Plagiocephalyegroups]

> Sent: Sunday, September 10, 2000 6:06 AM

> Plagiocephalyegroups

> Subject: Digest Number 391

>

>

>

>

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Hi I run a e-commerce site, I do everything very " frogal " Free Host - my

merchant account only cost me a percentage when clients use credit cards,

most pay cash or check. I had to pay for Domain $75.00 for 5 yrs. free

voice mail phone number and some other tricks I have picked up.

I would be happy to share my info with you.

Rae

Dear Rae, I tried twice to mail you but both were sent back I would really

like to have you share your information with me. This way you will have my

E-Mail Jacque at woodrjr@...

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Hi Krissy, I am sorry I didn't get back to you sooner. I see sent

you a lot of info, wow, great post ! I have a page I drop some

medical sites on, I put one on Fibromyalgia, and Scleroderma A to Z,

just tonight. If you are interested here is the URL:

<A HREF= " http://community-2.webtv.net/doriedew/Medicallinks " >click

here</a>

for now AOL:

http://community-2.webtv.net/doriedew/Medicallinks

LOL no I wasn't insinuating that the group talks to much...that is me in

real time.

I live in the Shenandoah valley...Virginia.

Forgive this brief to the point letter please.

I hope everyone is having a pain free day.

{{{{{{{HUGS}}}}}}

Dorie

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I appreciate the thankyou for the information sent, however, if I seem to sent

too mcuh material at one time, please let me know and I can break it down for

you. I don't want to take up more room than is polite on a list, and each list

is different, so please let me

know if I overstep my boundaries, wouldn like to hav everyone happy with posts

being made, for some, long ones are dreary to read, so just let me know.

Got about an hrs worth of sleep last night between maybe two naps, but that ok,

I'll make it up from.I thought how much fun it would be for all of you to come

to Sonora, and we could just take it really slow, if not thsi yr maye next. We

go hiking, the camping is

beautiful and talls rllong off the hills. In all seriousness, we a great a

reasonable acccidt

Need to go get a bit of oatmeal so my meds dont' upset my stomach.

Love to my family'Jg

doriedew@... wrote:

> Hi Krissy, I am sorry I didn't get back to you sooner. I see sent

> you a lot of info, wow, great post ! I have a page I drop some

> medical sites on, I put one on Fibromyalgia, and Scleroderma A to Z,

> just tonight. If you are interested here is the URL: please ask and I'll do

whaatever O cam.

Off to eat meet my oatmeal. Maybe I can catch a few extra winks fefore I fall

asleep a the comptuerl

Look forwar do hearing from you. I'lm so greateful fro findubg

Will write more later, am starting to see doubles! I'm one crazy lacy@ :-)

Hugs

Sisam

>

>

> <A HREF= " http://community-2.webtv.net/doriedew/Medicallinks " >click

> here</a>

> for now AOL:

> http://community-2.webtv.net/doriedew/Medicallinks

>

> LOL no I wasn't insinuating that the group talks to much...that is me in

> real time.

>

> I live in the Shenandoah valley...Virginia.

>

> Forgive this brief to the point letter please.

> I hope everyone is having a pain free day.

> {{{{{{{HUGS}}}}}}

>

> Dorie

>

> The Being Sick Community

>

> Sharing our resources:-

> Add a website URL you think may help another, or even add a link to your own

webpage.

>

>

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>

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>

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> Subscription Details:-

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> 2) Daily Digest - sends you 25 messages in one single email for you to browse.

This is an excellent option if you receive alot of email.

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> ~~~~~~~~~~~~~~~

>

> “Hold on to what is good, even if it's a handful of earth. Hold on to what you

believe, even if it's a tree that stands by itself. Hold on to what you must do

even, if it's a long way from here. Hold on to your life, even if it's easier to

let go. " - Pueblo Prayer

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