Re: Helmet and/or Cranialsacral Therapy (Tammy & )

[Guest guest]

Thanks for responding. I had such a difficult day yesterday - I was

just drained by the end of the day. I called the cs therapist and

asked her specifically why she wanted me to leave the helmet off.

She

said first the helmet sort of " flys in the face of cs therapy " but

more importantly it didn't fit as well afterwards. The orthotist I

saw directly after our cs therapy appointment (not the one who made

the helmet but another for 2nd opinion) just said he thought it was a

bit loose. Our cs therapist said that was because his head was

rounder after her therapy. She wants me to get the helmet adjusted

as

soon as possible if we want to leave it on. So I think I am going to

try both therapies for awhile and make a point of getting the helmet

adjusted after cs therapy. Probably more trips but hopefully it will

be worth it. I must say, I enjoyed seeing my little boy out of his

helmet yesterday with all his hair - he just looks like a different

boy without that helmet! I just need to remember that he is going to

be fine - no matter what and all I can do is what I believe is the

best choice for us. Thanks again! becky and logan (7/23/99)

> In a message dated 9/7/00 2:53:56 PM Pacific Daylight Time,

bbaylor@o...

> writes:

>

> << Any ideas, thoughts, opinions? Anyone? Big decisions lie ahead

I

> feel. Thanks. becky & logan (7/23/99)

> >>

>

> Becky - we are doing craniosacral therapy. She does 1/2 hour two

times a

> week. Did it surprise you what it was? It did me. It was a whole

body

> experience and she could tell his right/tort side was tight. Also

thinks

> that is why we spit up so much too. Getting better. We have right

> torticollis and plagiocephaly with facial asymmetry and a funky ear

folded

> from birth.

>

> We opted not to get a second DOC Band because of the cs therapy. I

also met

> someone in the CAPS2000 site that lives 60 miles away from me and

she is

> going to teach me craniosacral. The person we see now does show me

stuff to

> do to also.

>

> If have seen some nice changes. When we were done with the band is

head

> looked awful and was all lumpy. It is now smooth and nice. We had

pt today

> and she could not believe how much looser and better is body felt.

He felt

> so stiff before. It is really hard to judge that head. I had a

hard time

> doing it with the band unless I had his head mold there to compare.

I guess

> because I see him day in and day out but people who don't see him

say he

> looks so much better.

>

> Hard decision. I like what I have read on the Internet and the

person who

> does cs claims she can correct is head shape and she also does not

believe in

> band therapy. Funny, when we saw the neurosurgeon last Friday he

asked me if

> I saw any problems in his growth while wearing the band. I DID

NOT!

We

> talked about how some don't believe in banding. These craniosacral

people

> are that way big time. Hard to know who to believe. That is why I

want to

> stay with this group. I would love to share out outcome. My son

in

9 months

> old and I'll give it until he turns a year but may continue for a

life time

> if I am successful with learning cs myself. I'll take pictures

then

and

> post. In the mean time, I am going to learn craniosacral therapy

myself. It

> does look so easy but need to understand and learn more.

>

> There are only a couple of us trying cs therapy. I had my DOC Band

100%

> covered by insurance and lost many a night wondering if I shouldn't

do

> another band. His head warrants it but....

>

> We are also having another MRI done around his first birthday to

compare

> before and after. He had some extra fluid around the brain but it

was still

> considered within normal. They would now like to see after band

and

> craniosacral if " things are running " a little more smoothly. I too

would

> like to see it.

>

> Did they do any on you so you knew what it felt like? Way cool,

you

should

> ask.

>

> My writing doesn't make this an easier decision. I'll attach a web

site. If

> it comes up garble, yell, and I'll get it written out for you. Can

send you

> more sites that I found if interested. Really a neat approach.

>

> Tammy & 12/8/99

>

> <A

HREF= " http://www.tara-approach.org/html/therapy.html " >Therapy</A>

[Guest guest]

In a message dated 9/8/00 11:52:11 AM Pacific Daylight Time, bbaylor@...

writes:

<< I just need to remember that he is going to

be fine - no matter what and all I can do is what I believe is the

best choice for us. Thanks again! becky and logan (7/23/99)

>>

Becky - was it a whole body experience? Was Logan crying? My guy goes

through quiet time and at times get upset. Were you surprised? Did they

teach you things you could do?

Just curious about your experience.

Thanks

Tammy & 12/8/99

[Guest guest]

She didn't do any on me, maybe I'll ask next time. She completely

concentrated on his head. It was definitely not a " relaxing " time

for

us. He was wanting to get down and walk around and play (it's an

hour

drive there, so he had some pent up energy). I tried to sit him on

my

lap and feed him a banana while she worked on his head. He did have

some quiet times where he was content to sit, but not for long.

It was my first time to meet her; we've scheduled again for the 29th

(sooner if I notice he's going through a growth spurt). Maybe I'll

ask next time if she can show me some things.

By the way, I made an appointment to get Logan's helmet adjusted on

Wednesday. I think we will just need to coordinate better with

appointments - maybe cs therapy in the morning and go directly for a

helmet adjustment that day (since it won't fit the same). I'm

anxious

to hear what the orthotist has to say about Logan's head shape. I'll

keep y'all posted. becky & logan 7/23/99

> In a message dated 9/8/00 11:52:11 AM Pacific Daylight Time,

bbaylor@o...

> writes:

>

> << I just need to remember that he is going to

> be fine - no matter what and all I can do is what I believe is the

> best choice for us. Thanks again! becky and logan (7/23/99)

> >>

>

> Becky - was it a whole body experience? Was Logan crying? My guy

goes

> through quiet time and at times get upset. Were you surprised?

Did

they

> teach you things you could do?

>

> Just curious about your experience.

>

> Thanks

>

> Tammy & 12/8/99