Re: passionate about this diet

[Guest guest]

In a message dated 2/6/2003 10:48:58 PM Central Standard Time,

ckcarlson@... writes:

> >People are usually passionate about this diet because it has dramatically

> helped their child, and they would like to help others.

>

> <

>

> Yes, very well put. I know my grandson would regress if he were to be

> taken off the diet. Yes, some people get upset about us harping on the

> diet

I agree that was very well said and I am not upset at the fat that you keep

harping on it ony at the fact that it seems like you guys are overlooking or

not understanding the finacialy strap here. It's not just the diet, I can't

do vitamins either I do keep her on melatonin because while she doesn't stay

asleep it at least calms her enough to get some sleep where as without it she

would get no sleep at all. By the last of the month if I had to depend on

this diet this whole family would starve, because my money just doesn't go

very far though I am so good at stretching it. As, I keep saying maybe it

will work later when MHMRA is bigger in the picture and commisson for the

blind can step back in. Not even being informed after many requests made by

me and commission for the blind to the school about Angel's so called

" behavioral plan " leaves us strapped. Not being able to get any of her

records is leaving us strapped as well. Commision for the blind must have

some school records or they cannot help.

Tammy

[Guest guest]

In a message dated 2/6/2003 10:48:58 PM Central Standard Time,

ckcarlson@... writes:

> >People are usually passionate about this diet because it has dramatically

> helped their child, and they would like to help others.

>

> <

>

> Yes, very well put. I know my grandson would regress if he were to be

> taken off the diet. Yes, some people get upset about us harping on the

> diet

I agree that was very well said and I am not upset at the fat that you keep

harping on it ony at the fact that it seems like you guys are overlooking or

not understanding the finacialy strap here. It's not just the diet, I can't

do vitamins either I do keep her on melatonin because while she doesn't stay

asleep it at least calms her enough to get some sleep where as without it she

would get no sleep at all. By the last of the month if I had to depend on

this diet this whole family would starve, because my money just doesn't go

very far though I am so good at stretching it. As, I keep saying maybe it

will work later when MHMRA is bigger in the picture and commisson for the

blind can step back in. Not even being informed after many requests made by

me and commission for the blind to the school about Angel's so called

" behavioral plan " leaves us strapped. Not being able to get any of her

records is leaving us strapped as well. Commision for the blind must have

some school records or they cannot help.

Tammy

[Guest guest]

In a message dated 2/7/2003 1:00:34 AM Central Standard Time,

Googahly@... writes:

> When I was reading your description of Angel throwing plates of food, I was

> reminded of the first day Curt was at the Option Institute for our Son-Rise

>

> training and he threw a bowl of food at one of their therapists. We were

> shocked and horrified but they handled it beautifully. They taught us that

>

> how we were feeling at those moments and how our reaction to things like

> that

> could add fuel to the fire, creating an environment where he actually was

> getting something out of behaving that way. These kids can often be big

> button pushers or so differently wired that they see a big reaction -- even

> a

> negative one -- as fun. Their advice is to get really comfortable with

> anything your child will do

Now I know nothing of this program but I am very cool anyways with my

children. I know they are different so I know I have to tolerate this stuff

now I don't let her see or here the panic cause yep she is probably the

greatest of all button pushers but for one if she breaks all my dishes then I

will obviously have no dishes lol. She has broken half my set so well thank

goodness someone gave me a few plastic ones. Also, I live in an apartment

some things she throws stains and that is a big deal when it comes to the

carpet. I have a big grease spot that I can find nothing that works to get

all of it out. That will cost big bucks when I move from here and because

she is disabled they are not going to have any sympothy. This grease spot is

a result of 2 years of feeding her in the dining room not all at once we

don't eat things rich in grease or fat but soups and meats have a least a

little grease. And everythime I get alot of it up it's time for another meal

lol so it happens all over again.

Now that you know what I eat are you so certain it's the diet? With her it's

her fixations. If I have beans and rice for a week because of the income

well guess what when I have more veggies the next week she still wants bean

and rice but I'm out lol well so she launches her food. When she launches

her food she goes off there is no calming her I have spent 15 hours or more

trying. Massaging her holding her singing to her playing her favorite tapes

and cds swaddling her you name it it doesn't work and I know she loves these

things. It's 1 am she has had melatonin an bynedryl but she is up right now.

She went to sleep at 8 which is her bed time she goes to sleep at 8

everynight on her own but without at least the melatonin she will only sleep

for about 30 mins maybe. Her diet well not sure what she ate for lunch at

school but she refused breakfast her supper was beans and rice with spinach

and carrots. She also had water nothing but water that is all I had. I had

a problem with the light company over charging and even cutting my lights off

even before the due date it's a common problem in this complex Reliant energy

is doing some illegal practices and we may have to sue. I had to pay and

extra $200 and my lights were off for 1 day and a half so while I am not

total broke being it's the begining of the month I know that things will be

very tight this month.

Tammy

[Guest guest]

In a message dated 2/7/2003 1:00:34 AM Central Standard Time,

Googahly@... writes:

> When I was reading your description of Angel throwing plates of food, I was

> reminded of the first day Curt was at the Option Institute for our Son-Rise

>

> training and he threw a bowl of food at one of their therapists. We were

> shocked and horrified but they handled it beautifully. They taught us that

>

> how we were feeling at those moments and how our reaction to things like

> that

> could add fuel to the fire, creating an environment where he actually was

> getting something out of behaving that way. These kids can often be big

> button pushers or so differently wired that they see a big reaction -- even

> a

> negative one -- as fun. Their advice is to get really comfortable with

> anything your child will do

Now I know nothing of this program but I am very cool anyways with my

children. I know they are different so I know I have to tolerate this stuff

now I don't let her see or here the panic cause yep she is probably the

greatest of all button pushers but for one if she breaks all my dishes then I

will obviously have no dishes lol. She has broken half my set so well thank

goodness someone gave me a few plastic ones. Also, I live in an apartment

some things she throws stains and that is a big deal when it comes to the

carpet. I have a big grease spot that I can find nothing that works to get

all of it out. That will cost big bucks when I move from here and because

she is disabled they are not going to have any sympothy. This grease spot is

a result of 2 years of feeding her in the dining room not all at once we

don't eat things rich in grease or fat but soups and meats have a least a

little grease. And everythime I get alot of it up it's time for another meal

lol so it happens all over again.

Now that you know what I eat are you so certain it's the diet? With her it's

her fixations. If I have beans and rice for a week because of the income

well guess what when I have more veggies the next week she still wants bean

and rice but I'm out lol well so she launches her food. When she launches

her food she goes off there is no calming her I have spent 15 hours or more

trying. Massaging her holding her singing to her playing her favorite tapes

and cds swaddling her you name it it doesn't work and I know she loves these

things. It's 1 am she has had melatonin an bynedryl but she is up right now.

She went to sleep at 8 which is her bed time she goes to sleep at 8

everynight on her own but without at least the melatonin she will only sleep

for about 30 mins maybe. Her diet well not sure what she ate for lunch at

school but she refused breakfast her supper was beans and rice with spinach

and carrots. She also had water nothing but water that is all I had. I had

a problem with the light company over charging and even cutting my lights off

even before the due date it's a common problem in this complex Reliant energy

is doing some illegal practices and we may have to sue. I had to pay and

extra $200 and my lights were off for 1 day and a half so while I am not

total broke being it's the begining of the month I know that things will be

very tight this month.

Tammy

[Guest guest]

In a message dated 2/7/2003 1:00:34 AM Central Standard Time,

Googahly@... writes:

> never react big to what you

> don't want but rather calmly, state what you do want

I do this this is just me but this child while very bright is extremely

delayed and doesn't understand that.

[Guest guest]

In a message dated 2/7/2003 1:00:34 AM Central Standard Time,

Googahly@... writes:

> never react big to what you

> don't want but rather calmly, state what you do want

I do this this is just me but this child while very bright is extremely

delayed and doesn't understand that.

[Guest guest]

In a message dated 2/7/2003 1:00:34 AM Central Standard Time,

Googahly@... writes:

> Also,

> to never ever give in to a tantrum or behavior we did not want because that

>

> would be encouraging it.

Yep I have learned this by experience. I ignor tantrums unless they are self

mutilating or agressive to others to this without a word I take them to a

soft place like a bed or couch and begin the pillow sandwiches and swaddling.

The sandwiches first because Angel doesn't like them so it's not a reward

but then the massages after soothe her some. Rebekah can only take the

pillow sandwiches in small doses. if they are just screaming I just totally

ignore if it goes on for more than an hour I will say use your words and

nothing else. If they use their words then they are rewarded by my listening

and what ever, if they choose not to use words but keep screaming then I just

ignore. There is no since of getting my blood pressure up or frustration

them more so I let them have their pitty parties. You and I don't scream but

we cry at times everyone does this is the same thing really they are just

louder lol. when they are done I will love on them or play with them or sing

to them or whatever. It is crazy making though to hear screaming for hours

but to be honest it's my world and I am used to that it's nothing new. They

were born screamers. It's frustrating only when there is someone else around

that has heart or blood pressure problems that I know can't take it. Oh

well, if a person like that chooses to be in my home well that is part of my

home, lol. My father in law has had to have tripple by pass surgery and my

mother in law has very serious high blood pressure they love us all but are

really up in years so they are unable to provide much support but they do

enter my home at times and the screaming is painful for them. So that's

stressful for me but I don't react to it. It's in silence and at night when

I try to relax and sleep that is the most painful for me. The only health

problems I have are severe asthma and Mitral Valve Prolapse so I am cool. I

get frustrated because there is nothing I can do at this point. I keep doing

all of these things but they really aren't working. Rebekah calms herself

but Angel sometimes can't calm or be calmed. Rebekah can most of the time

function it's Angel that can't. All the way to her walking she has really

challenges from autism. She doesn't walk she jumps it's a stim from autism.

This is dangerous it's caused nasty falls and bruises. She has to use a cane

also. That another thing that frustrates me and another way I can't get much

help. She needs more o & m while I know how to work with her with the cane and

sited guide I know nothing about how to stop her jumping. Lol, I know I will

get another million letters about her diet read above I am doing this as a

result of my income anyways without even knowing it. Lol. I'm not faultless

don't think that lol but now you see I am doing everything I can. I have

learned alot by trial and error and even mistakes not to mention all of my

girls' lives have been spend in dr.s offices in therapy in hospitals so I

have learned alot.

Tammy

[Guest guest]

In a message dated 2/7/2003 1:00:34 AM Central Standard Time,

Googahly@... writes:

> Also,

> to never ever give in to a tantrum or behavior we did not want because that

>

> would be encouraging it.

Yep I have learned this by experience. I ignor tantrums unless they are self

mutilating or agressive to others to this without a word I take them to a

soft place like a bed or couch and begin the pillow sandwiches and swaddling.

The sandwiches first because Angel doesn't like them so it's not a reward

but then the massages after soothe her some. Rebekah can only take the

pillow sandwiches in small doses. if they are just screaming I just totally

ignore if it goes on for more than an hour I will say use your words and

nothing else. If they use their words then they are rewarded by my listening

and what ever, if they choose not to use words but keep screaming then I just

ignore. There is no since of getting my blood pressure up or frustration

them more so I let them have their pitty parties. You and I don't scream but

we cry at times everyone does this is the same thing really they are just

louder lol. when they are done I will love on them or play with them or sing

to them or whatever. It is crazy making though to hear screaming for hours

but to be honest it's my world and I am used to that it's nothing new. They

were born screamers. It's frustrating only when there is someone else around

that has heart or blood pressure problems that I know can't take it. Oh

well, if a person like that chooses to be in my home well that is part of my

home, lol. My father in law has had to have tripple by pass surgery and my

mother in law has very serious high blood pressure they love us all but are

really up in years so they are unable to provide much support but they do

enter my home at times and the screaming is painful for them. So that's

stressful for me but I don't react to it. It's in silence and at night when

I try to relax and sleep that is the most painful for me. The only health

problems I have are severe asthma and Mitral Valve Prolapse so I am cool. I

get frustrated because there is nothing I can do at this point. I keep doing

all of these things but they really aren't working. Rebekah calms herself

but Angel sometimes can't calm or be calmed. Rebekah can most of the time

function it's Angel that can't. All the way to her walking she has really

challenges from autism. She doesn't walk she jumps it's a stim from autism.

This is dangerous it's caused nasty falls and bruises. She has to use a cane

also. That another thing that frustrates me and another way I can't get much

help. She needs more o & m while I know how to work with her with the cane and

sited guide I know nothing about how to stop her jumping. Lol, I know I will

get another million letters about her diet read above I am doing this as a

result of my income anyways without even knowing it. Lol. I'm not faultless

don't think that lol but now you see I am doing everything I can. I have

learned alot by trial and error and even mistakes not to mention all of my

girls' lives have been spend in dr.s offices in therapy in hospitals so I

have learned alot.

Tammy

[Guest guest]

In a message dated 2/7/2003 1:00:34 AM Central Standard Time,

Googahly@... writes:

> you can buy

> a big bag of rice and huge bags of beans pretty cheaply and feed the family

>

> for weeks; make soups with just a little meat, some veggies and rice pretty

>

> cheaply, etc

This pretty much is our diet. Except we eat lots of meat.

[Guest guest]

In a message dated 2/7/2003 1:00:34 AM Central Standard Time,

Googahly@... writes:

> you can buy

> a big bag of rice and huge bags of beans pretty cheaply and feed the family

>

> for weeks; make soups with just a little meat, some veggies and rice pretty

>

> cheaply, etc

This pretty much is our diet. Except we eat lots of meat.

[Guest guest]

>People are usually passionate about this diet because it has dramatically

helped their child, and they would like to help others.

<

Yes, very well put. I know my grandson would regress if he were to be taken off

the diet. Yes, some people get upset about us harping on the diet. A friend I

made in the autism community put her son on the diet at 18 months. There were

of course behavioural interventions, OT. ST, etc. She swears by the diet, and

went on it herself and believe it has helped her feel better. She was the

person that started harping on it with us before Tristan turned 3. For 6 months

this went on. We had the same reservations as anyone else does. It seemed

impossible. One time she got bold and really confronted me, and said we were

poisoning him with the foods he was eating. She really believed that. That is

what caused me to try the diet. We haven't even thought of quitting because of

the positive changes he has made and his intestinal problems are minimal now.

Instead of chronic diarreah with noticable discomfort, he tends to be

constipated but it is managable and he seems happier most of the time.