Mark

[Guest guest]

Autumn,

I am excited about your idea to send out cards to Mark. Could you remind

me of his age and maybe some of his interests. My son could have used this

idea last year. He became so sad. I wish I had thought of it and felt

comfortable to post it. It is inexpensive and super!!! When Ben was 4 and having

surgery and huge changes in his life several church members sent cards

and small gifts that he could do in bed and he loved getting those. It can be

surprising and encouraging to realize so many care. We do not have this kind of

support in recent years. He has become so embarrassed and keeps secret

his health problems so that is part of it. And many just don't seem to be as

caring now that he is older (old news, I guess). Any special reason why you

chose the 18th? I don't want to forget so please send out a reminder. I would

love it so I can be sure to send it out. Thanks so much.

Jan

Autti wrote:

> My Dear Friends,

>

> I am over-joyed and overwhelmed by the expression of kindness in this group.

> I was initially uncertain about asking this favor but then decided that I

> really needed to not worry about that and that I needed to do something for

> my son. I am hoping that we can make this a part of this group and use it

> when certain pumpkins are in need of a " lift " . I thank ALL of you from the

> bottom of my heart for your support. I was so thrilled to meet all of you

> at the conference and the one thing that I got out of it the most is that we

> are all in this together...we remain a family so to speak in dealing with

> PIDS. My sincerest thanks to all of you.

>

> Autumn (Mark Cd5-Cd19 PID and )

>

> This forum is open to parents and caregivers of children diagnosed with a

Primary Immune Deficiency. Opinions or medical advice stated here are the sole

responsibility of the poster and should not be taken as professional advice.

>

>

[Guest guest]

Autumn,

This is such a small thing that we can do for Mark. If it will help his

overall attitude, I'll be more than glad to send a card.

Can you tell me some things that are his favorite hobbies, interests, etc.?

That will certainly help when I go card-hunting. Plus, maybe I can include

a story or article about something he likes a lot. I've got it on my day

planner, so I'll be sure to remember!

Ray, mother to Tabitha (age 5), Autumn, age 3 (IgG def., asthma,

chronic sinusitis, and allergies), and Duncan Avery, 1 month

_________________________________________________________________

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[Guest guest]

except snails

De

Faith is the ability to not panic.

From the Goddess of Saving All Animals

[Guest guest]

Mark, are you having symptoms, too? Or are you just worn out as a caregiver? And from dealing with the 12 year old? Are you on some anti-depressants?

De

Faith is the ability to not panic.

-----Original Message-----From: Mark N Ansley Sent: Saturday, June 12, 2004 11:25 AMTo: HepatitisCSupportGroupForDummies Subject: Re: Mark

n a small town.Yes there are heppers here.My wife P.A.told us but no support group

Mark Ansley

[Guest guest]

Hi Mark,

I'm Loretta and I've been away since last Thursday. I'm sorry I missed your

welcome to our group. I'm a caregiver and I don't have hep C. If you've read

some of my post from today you've seen that my hubby was diagnosed in 79 with

nonA/non B hep and he was told at the time by a leading liver specialist it was

no big deal not to worry about it. We've come a long way since then.

I know how alone you feel and how depressed you sound. We all have those days

when it doesn't seem like it's worth getting out of bed and it's a fight just to

go through the motions of life. Being a caregiver is often a thankless job and

it's a tough job. My darling hubby is often unreasonable and hard to deal with.

Our children are all grown so we don't have that added factor to deal with.

They do worry about their dad and want to do all they can for him. They don't

for the most part understand the emotional rollercoaster we live on. His ups

and downs are at times tremendous and unpredictable. We have a trip planned

this week end and if he actually goes I'll be very pleasantly surprised. He is

a great guy and the love of my life, even after 31 years. I am taking

anti-depressant for 2 reasons. They help control my migraines and they help me

with the depression I have in taking care of him. My husbands HCV will progress

to ESLD, he gets worse little by little and we can't do anything to stop it

today and it breaks my heart to see him deteriorate before my very eyes. Then

on the other hand when I come home from work after grocery shopping or running

errands and the house is a mess, some days it's all I can do to not explode. I

have to talk to myself and tell myself that he is sick and he doesn't feel good

and house cleaning is the last thing on his mind. My heart goes out to you and

I'm so glad you found us. Please keep posting and asking questions.

In regards to your other post, GOD, Gods, and Goddesses, I believe in a GOD that

gives each of us free will and the freedom to worship how we want. One thing

that really drive me nuts is when Christians want to do things in the name of

God and cram it down everyone else's throat and I'm a Christian. I follow a God

who gave me free will in everything and a God who never forces. If you get the

same peace from your worship that I get from mine then I'm happy for you because

I would be a total mess without my God.

Lots of Love,

Loretta