Guest guest Posted November 29, 2001 Report Share Posted November 29, 2001 In a message dated 11/29/01 8:15:00 AM Central Standard Time, -Karrie@... writes: > . Cross your fingers for me. > > Karrie > www.clik.to/abigail > > > > We sure will here @ the house! KKS <A HREF= " http://banjosetupspecialist.homestead.com/index.html " >BanjoSetupSpecialist\ </A> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2001 Report Share Posted November 29, 2001 In a message dated 11/29/01 8:15:00 AM Central Standard Time, -Karrie@... writes: > . Cross your fingers for me. > > Karrie > www.clik.to/abigail > > > > We sure will here @ the house! KKS <A HREF= " http://banjosetupspecialist.homestead.com/index.html " >BanjoSetupSpecialist\ </A> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2001 Report Share Posted November 29, 2001 In a message dated 11/29/01 8:15:00 AM Central Standard Time, -Karrie@... writes: > . Cross your fingers for me. > > Karrie > www.clik.to/abigail > > > > We sure will here @ the house! KKS <A HREF= " http://banjosetupspecialist.homestead.com/index.html " >BanjoSetupSpecialist\ </A> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2001 Report Share Posted November 29, 2001 They will be doing another MRI I let them know about the last one and I had sent for a copy of the films so they are here with the doctors now. I am still waiting on all the medical records I requested. I know they will be doing the MRI and seizures first so they will do more EEG's on her and they said they want to do some blood work on her too. Karrie www.clik.to/abigail Here we go again > Karrie - that's wonderful !!! Thank God Abby is finally getting the care > that she needs. Please keep us updated on her test results. Are they going > to do another MRI on her ???? I'd let them know that the term Pachygyria was > used in her last MRI, and you want to determine the extent of her brain > abnormality....Hopefully, they'll run another MRI on her brain.... > > > > Good luck !!! > > Give that brave little girl of yours great big {{{ HUGS }}} & kisses for > us.... > > > Hang in there, you're doing great ... > > Your friends in NJ.... > > & her little Angel, Crystal Aquielle.... > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2001 Report Share Posted November 29, 2001 They will be doing another MRI I let them know about the last one and I had sent for a copy of the films so they are here with the doctors now. I am still waiting on all the medical records I requested. I know they will be doing the MRI and seizures first so they will do more EEG's on her and they said they want to do some blood work on her too. Karrie www.clik.to/abigail Here we go again > Karrie - that's wonderful !!! Thank God Abby is finally getting the care > that she needs. Please keep us updated on her test results. Are they going > to do another MRI on her ???? I'd let them know that the term Pachygyria was > used in her last MRI, and you want to determine the extent of her brain > abnormality....Hopefully, they'll run another MRI on her brain.... > > > > Good luck !!! > > Give that brave little girl of yours great big {{{ HUGS }}} & kisses for > us.... > > > Hang in there, you're doing great ... > > Your friends in NJ.... > > & her little Angel, Crystal Aquielle.... > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2001 Report Share Posted November 29, 2001 They will be doing another MRI I let them know about the last one and I had sent for a copy of the films so they are here with the doctors now. I am still waiting on all the medical records I requested. I know they will be doing the MRI and seizures first so they will do more EEG's on her and they said they want to do some blood work on her too. Karrie www.clik.to/abigail Here we go again > Karrie - that's wonderful !!! Thank God Abby is finally getting the care > that she needs. Please keep us updated on her test results. Are they going > to do another MRI on her ???? I'd let them know that the term Pachygyria was > used in her last MRI, and you want to determine the extent of her brain > abnormality....Hopefully, they'll run another MRI on her brain.... > > > > Good luck !!! > > Give that brave little girl of yours great big {{{ HUGS }}} & kisses for > us.... > > > Hang in there, you're doing great ... > > Your friends in NJ.... > > & her little Angel, Crystal Aquielle.... > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2001 Report Share Posted November 29, 2001 Karrie - that's really great !!! MY thoughts & prayers are with you all... Give her & her sister great big {{{ HUGS }}} & kisses for us... Luv to you all... & he Angel, Crystal Aquielle.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2001 Report Share Posted November 29, 2001 Karrie - that's really great !!! MY thoughts & prayers are with you all... Give her & her sister great big {{{ HUGS }}} & kisses for us... Luv to you all... & he Angel, Crystal Aquielle.... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2002 Report Share Posted July 24, 2002 Hi Cheryl. I am sorry to hear about your rough time. Do you know anyone handy that could fix that microwave? Is it somewhat of a positive to know that he still has the fine motor skills to even do that? Hang in there. These rollercoaster rides are something else. I find you just get into a pattern that you can handle, and then, wham, your going down hill at fast speed. Then, thankfully, we hit level ground for a while more. This was a hard thing for me to get used to. In fact, I am still trying to adjust to how this is. I will be thinking about you! Take care. > here we go again > > Last week I wrote that it was nice while it lasted - Bob's improvement. > Boy, > was it ever, especially after last night and today. > > Bob often gets up at night for an Ensure. I sleep right through it. This > > morning I found the usual empty Ensure can on the counter and the computer > > guts out of the microwave!!! I can't get it back together and am > reminded > about how he did a similar thing with the security system even before I > realized he was ill. We haven't had an operating security alarm for at > least > 5 years and maybe longer - we had never used it and since he didn't know > how, > intended to fix it. But I do need that microwave and the light and the > exhaust fan! > > After daybreak he coughed and choked, spitting up stale Ensure and > complaining of an upset stomach. Said he'd used an old straw instead of > getting a fresh one and thought it was contaminated. He went back to bed > and > after some bad dreams and scary gurgling, slept until 4:30 this afternoon! > > He felt a little feverish - 100.3 - but also too soon after having been > asleep, so I think it probably isn't really that high. Drank 7-Up and > water > and had a cup of soup, which is staying down without any trouble. I > skipped > his AM and mid-day meds and gave him a 25/100 Sinemet at 5PM. Can really > see > how badly he needs it. Brought him his walker, which he used when I was > there. But he was up a few minutes ago and moving a little better, not > using > it. > > We talk about getting a reprieve from Lewy now and then, and I can tell > you > those 5 weeks after hospitalization were terrific - better than I'd seen > him > in several years. Tonight he is acting and talking like he did prior to > hospitalization. Today I organized all of the insurance reports so I can > match them up with the bills as they come in. This evening I am hoping > we're > not headed for a new batch!! > > Cheryl - riding the rollercoaster > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2002 Report Share Posted July 24, 2002 Hi Cheryl. I am sorry to hear about your rough time. Do you know anyone handy that could fix that microwave? Is it somewhat of a positive to know that he still has the fine motor skills to even do that? Hang in there. These rollercoaster rides are something else. I find you just get into a pattern that you can handle, and then, wham, your going down hill at fast speed. Then, thankfully, we hit level ground for a while more. This was a hard thing for me to get used to. In fact, I am still trying to adjust to how this is. I will be thinking about you! Take care. > here we go again > > Last week I wrote that it was nice while it lasted - Bob's improvement. > Boy, > was it ever, especially after last night and today. > > Bob often gets up at night for an Ensure. I sleep right through it. This > > morning I found the usual empty Ensure can on the counter and the computer > > guts out of the microwave!!! I can't get it back together and am > reminded > about how he did a similar thing with the security system even before I > realized he was ill. We haven't had an operating security alarm for at > least > 5 years and maybe longer - we had never used it and since he didn't know > how, > intended to fix it. But I do need that microwave and the light and the > exhaust fan! > > After daybreak he coughed and choked, spitting up stale Ensure and > complaining of an upset stomach. Said he'd used an old straw instead of > getting a fresh one and thought it was contaminated. He went back to bed > and > after some bad dreams and scary gurgling, slept until 4:30 this afternoon! > > He felt a little feverish - 100.3 - but also too soon after having been > asleep, so I think it probably isn't really that high. Drank 7-Up and > water > and had a cup of soup, which is staying down without any trouble. I > skipped > his AM and mid-day meds and gave him a 25/100 Sinemet at 5PM. Can really > see > how badly he needs it. Brought him his walker, which he used when I was > there. But he was up a few minutes ago and moving a little better, not > using > it. > > We talk about getting a reprieve from Lewy now and then, and I can tell > you > those 5 weeks after hospitalization were terrific - better than I'd seen > him > in several years. Tonight he is acting and talking like he did prior to > hospitalization. Today I organized all of the insurance reports so I can > match them up with the bills as they come in. This evening I am hoping > we're > not headed for a new batch!! > > Cheryl - riding the rollercoaster > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2002 Report Share Posted July 24, 2002 Hang in there Cheryl, your doing a great job as are so many others. Please do not attemp to fix the microwave you can be seriously injured and possibly electricuted.....Shirley >From: LewyLady@... >Reply-To: LBDcaregivers >To: CAREGIVER-ONLINE@..., LBDcaregivers >CC: angelx@... (Peggy Cone), PRUMMENIE@... (Pat Rummenie), > Nanette7fl@..., mgoldber@... (Miriam Goldberg), >LORRIERIGELMAN@... (LORRIE BROWN), LewyLady@..., >Krisrg25@..., gigir@... (GiGi Rue), dmillar@... >(Donna Millar) >Subject: here we go again >Date: Tue, 23 Jul 2002 20:16:49 EDT > >Last week I wrote that it was nice while it lasted - Bob's improvement. >Boy, >was it ever, especially after last night and today. > >Bob often gets up at night for an Ensure. I sleep right through it. This >morning I found the usual empty Ensure can on the counter and the computer >guts out of the microwave!!! I can't get it back together and am reminded >about how he did a similar thing with the security system even before I >realized he was ill. We haven't had an operating security alarm for at >least >5 years and maybe longer - we had never used it and since he didn't know >how, >intended to fix it. But I do need that microwave and the light and the >exhaust fan! > >After daybreak he coughed and choked, spitting up stale Ensure and >complaining of an upset stomach. Said he'd used an old straw instead of >getting a fresh one and thought it was contaminated. He went back to bed >and >after some bad dreams and scary gurgling, slept until 4:30 this afternoon! >He felt a little feverish - 100.3 - but also too soon after having been >asleep, so I think it probably isn't really that high. Drank 7-Up and >water >and had a cup of soup, which is staying down without any trouble. I >skipped >his AM and mid-day meds and gave him a 25/100 Sinemet at 5PM. Can really >see >how badly he needs it. Brought him his walker, which he used when I was >there. But he was up a few minutes ago and moving a little better, not >using >it. > >We talk about getting a reprieve from Lewy now and then, and I can tell you >those 5 weeks after hospitalization were terrific - better than I'd seen >him >in several years. Tonight he is acting and talking like he did prior to >hospitalization. Today I organized all of the insurance reports so I can >match them up with the bills as they come in. This evening I am hoping >we're >not headed for a new batch!! > >Cheryl - riding the rollercoaster > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 In a message dated 7/24/02 8:37:10 AM Central Daylight Time, cindy.riggs@... writes: > Is it somewhat of a positive to know that he still has the fine motor skills > to even do that? Hi, . He didn't actually disconnect any wires THANK GOODNESS. It was a pry job to get the panel off, which hangs by those wires. Several PC " tapes " have been disconnected, though. Too scary! Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 And to think...I was all excited that my Mom was able to open and close the sliding glass door to the deck! LTJG Emerson Aviation Stores Officer USS NASSAU (LHA 4) Re: here we go again In a message dated 7/24/02 8:37:10 AM Central Daylight Time, cindy.riggs@... writes: > Is it somewhat of a positive to know that he still has the fine motor skills > to even do that? Hi, . He didn't actually disconnect any wires THANK GOODNESS. It was a pry job to get the panel off, which hangs by those wires. Several PC " tapes " have been disconnected, though. Too scary! Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 Did he ever say why he did it? > > > In a message dated 7/24/02 8:37:10 AM Central Daylight Time, > cindy.riggs@... writes: > > > > Is it somewhat of a positive to know that he still has the fine motor > skills > > to even do that? > > Hi, . > He didn't actually disconnect any wires THANK GOODNESS. It was a pry job > to > get the panel off, which hangs by those wires. Several PC " tapes " have > been > disconnected, though. Too scary! > Cheryl > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 In a message dated 7/25/02 2:01:10 PM Central Daylight Time, cindy.riggs@... writes: > Did he ever say why he did it? > He doesn't seem to remember doing it. I'm sure not going to push him. He looks so confused about what went on. Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 26, 2002 Report Share Posted July 26, 2002 Hi Cheryl. Have you found someone to repair it yet? Take care, > Re: here we go again > > In a message dated 7/25/02 2:01:10 PM Central Daylight Time, > cindy.riggs@... writes: > > > > Did he ever say why he did it? > > > > He doesn't seem to remember doing it. I'm sure not going to push him. He > > looks so confused about what went on. Cheryl > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2002 Report Share Posted August 16, 2002 Hello Mariea, I am sorry to hear about your Mom. It is NOT unusual for our LO's to have a bad day. For my MIL, it depends on where she is in her thoughts. Just recently my MIL became very aggressive and scratched and hit at one of the staff and tried to pull her shirt of her. My MIL's Paxil had been reduced and she wasn't sleeping well. Plus, my FIL was out of town and my MIL was missing him terribly. He is her main focus in life now. One morning, my MIL was saying how her husband had died and she was sad, and then the staff lady tried to get my MIL dressed and then wham. It all happened so fast. She just lost it for a moment. They also think it could have happened because she had not been sleeping, so she was getting agitated easily, so they gave her some extra Risperidal at night (a PRN dose). Well, a side effect of too much Risperidal can cause insomnia, increased agitation, and hallucinations. The very things we look to this drug to control! So now they gave her a sleeping agent to ensure she gets her rest. As for your Mom, maybe she is having a reaction to a med change, or perhaps she may have had some thoughts that could have been upsetting her. There is no rhyme or reason to this asinine disease. What is worse is the healthcare industry just does not know enough about the disease and the behaviors associated with it. I hope everything works out with your Mom. I will say an extra prayer for you tonight. Here We Go Again Went to see Mom at lunch time at the NH. She was awake, I got her glasses for her and she hugged and kissed me. Mom actually fed herself at lunch time today. Then one of the aids tells me she was hitting her aid today. Then I see the head nurse who tells me that about 3p yesterday Mom started getting agitated and hitting the tray with her hands and with her knees from underneath. She said this continued the rest of the evening and into the night. Mom didn't sleep last night. One of the night nurses padded the tray, above and below. Now this is the first incident in a week. Mom had the Trazodone increased one week ago. I'm a little disturbed because of this one incident, even though it was prolong, her doctor was called and he is asking for another psych consult. I made it clear to the nurse that I don't want Mom put on any antipsychotics and that I want the psychiatrist to call with what he is thinking of doing. I know it was extreme, but can't Mom who suffers from a terrible disease have a really bad day. The rest of my visit with Mom was great. We chatted a little and then I put her in bed because she was so tired she was figity and fretful. I no sooner put her in bed and she was out like a light I told the nurse that it was probably the disease and that things flucuate with this disease. Has anyone else dealt with this problem. Any suggestions would be greatly appreciated. Thank, Mariea Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2002 Report Share Posted August 18, 2002 Mariea I deal with the kind of behaviour you explained almost daily with my dad. Friday, when dad went back to the nh I had another talk with the administrator. I pleaded that they adjust their schedule to fit my dad, after all, their job is to care for my dad. One of her replies was " Oh, so you are saying your dad needs more sleep than most people? " Oh did this tick me off. I told her it is too bad she didn't know my dad before LBD. He would go to bed late, 10:00-midnight most nights, and was up by 6:00 or 7:00 in the morning. So what I am truly saying is that " MY DAD " doesn't require more sleep, but " THE DISEASE " seems to. My dad is not an agitated person, the disease is. I lost my dad several years ago, this disease just happened to move into his body. She changed her wording and perspective on our conversation quickly. I apologized for my dad being such a " burden " on the staff, and told her, for the sake of the nh, hopefully dad wouldn't be around much longer for them to have to care for. Then I walked away. I refuse to let any staff at the nh put any guilt on my shoulders for them needing to do their job. I am sure if my dad were to apply for a disease, he wouldn't have picked this one, neither would I, and with that said, all of this is not HIS fault. The administrator seemed to drop her shoulders as I was walking away, hopefully she can be a little more compassionate toward this disease instead of transferring my dad to an adult psychiatric hospital. I know this was a little harsh, yet my dad is worth it. Sandie Des Moines, IA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 18, 2002 Report Share Posted August 18, 2002 Mariea I deal with the kind of behaviour you explained almost daily with my dad. Friday, when dad went back to the nh I had another talk with the administrator. I pleaded that they adjust their schedule to fit my dad, after all, their job is to care for my dad. One of her replies was " Oh, so you are saying your dad needs more sleep than most people? " Oh did this tick me off. I told her it is too bad she didn't know my dad before LBD. He would go to bed late, 10:00-midnight most nights, and was up by 6:00 or 7:00 in the morning. So what I am truly saying is that " MY DAD " doesn't require more sleep, but " THE DISEASE " seems to. My dad is not an agitated person, the disease is. I lost my dad several years ago, this disease just happened to move into his body. She changed her wording and perspective on our conversation quickly. I apologized for my dad being such a " burden " on the staff, and told her, for the sake of the nh, hopefully dad wouldn't be around much longer for them to have to care for. Then I walked away. I refuse to let any staff at the nh put any guilt on my shoulders for them needing to do their job. I am sure if my dad were to apply for a disease, he wouldn't have picked this one, neither would I, and with that said, all of this is not HIS fault. The administrator seemed to drop her shoulders as I was walking away, hopefully she can be a little more compassionate toward this disease instead of transferring my dad to an adult psychiatric hospital. I know this was a little harsh, yet my dad is worth it. Sandie Des Moines, IA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 23, 2002 Report Share Posted September 23, 2002 Hi all: Tonight I got a call from the owner of the caregiving agency: she thinks the caregiver I hired is giving up on caring for my mom. She can't handle how listless Mom is. She can't engage her in anything. All Mom does is sit and doze. The owner of the agency asked me if perhaps the Pacerone they have Mom on could be making her listless. The only other med she gets is .25 mg of Risperdal at bedtime. Any thoughts or helpful experiences on this? Thanks. Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2002 Report Share Posted September 24, 2002 Just a baby aspirin a day. At 05:09 AM 9/24/2002 +0000, you wrote: > > >The only other med she gets is .25 mg of Risperdal at bedtime. > >Anne is she taking any over the counter drugs? Barb > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2002 Report Share Posted September 24, 2002 Anne I just went to my Physician's Desk Reference (PDR) to look up Pacerone...never heard of it before. I would type in the information but this med. takes up almost 4 pages. It does state it is used as an antiarrythmic agent. My interpretation is it can be very harmful...actually states: Side Effects: Adverse reactions, some potentially fatal, are common with doses greater than 400 mg/day. Special Concerns: The drug may be more sensitive in geriatric clients, especially in thyroid dysfunction. Client/Family Teaching: 1. Drug is used to control heart beat irregularities. 2. Report is crystals develop on the skin, producing a bluish color, so dosage can be adjusted. 3. Avoid direct exposure to sunlight. Wear protective clothing and a sunscreen when exposed. 4. Report all side effects, especially any abnormal swelling, bleeding or bruising. 5. Complaints of painful breathing, wheezing, fever, coughing, or shortness of breath are signs & symptoms of pulmonary problems and require prompt attention. 6. Central nervous system symptoms such as tremor, lack of coordination, numbness, and dizziness require evaluation. 7. Cmplaints of headaches, depression, or insomnia as well as any change in behavior such as decreased interest in personal appearance or apparent hallucinations may require a change in therapy 8. Schedule periodic eye exams because small yellow-brown granular corneal deposits may develop during prolonged therapy. Visual changes require prompt ophthalmic evaluation. 9. Therapy with this drug requires periodic lab studies and close medical evaluation. Also, in one section it states " effects may persist for several weeks or months after therapy is terminated " . This all sounded like a concern to me. Hope this helps, and by the sounds of all above, it may be one reason your mom is in the state she is. Please let us know how she is...and if I can help. I don't understand why the caregiver is possibly " giving up " . This happened to my dad as well and as I told the former NH it reminds me of the old cliche... " When the going gets tough, the touch get going " , they abandoned my dad when he needed them most. This is all just beside me. Keeping you in my prayers Anne. Sandie Des Moines, IA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2002 Report Share Posted September 25, 2002 Hi Anne. What other meds does your Mom take? Is she sleeping at night? Some of the " spells " of this disease are sleeping/and or dozing a lot. This usually passes but I would make certain the doctor knows about it. Take care Anne. Here we go again Hi all: Tonight I got a call from the owner of the caregiving agency: she thinks the caregiver I hired is giving up on caring for my mom. She can't handle how listless Mom is. She can't engage her in anything. All Mom does is sit and doze. The owner of the agency asked me if perhaps the Pacerone they have Mom on could be making her listless. The only other med she gets is .25 mg of Risperdal at bedtime. Any thoughts or helpful experiences on this? Thanks. Anne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2002 Report Share Posted September 25, 2002 Hi Anne. What other meds does your Mom take? Is she sleeping at night? Some of the " spells " of this disease are sleeping/and or dozing a lot. This usually passes but I would make certain the doctor knows about it. Take care Anne. Here we go again Hi all: Tonight I got a call from the owner of the caregiving agency: she thinks the caregiver I hired is giving up on caring for my mom. She can't handle how listless Mom is. She can't engage her in anything. All Mom does is sit and doze. The owner of the agency asked me if perhaps the Pacerone they have Mom on could be making her listless. The only other med she gets is .25 mg of Risperdal at bedtime. Any thoughts or helpful experiences on this? Thanks. Anne Quote Link to comment Share on other sites More sharing options...
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