Re: Posting

[Guest guest]

In a message dated 2/18/2000 6:01:49 PM Central Standard Time, hrn@...

writes:

<<

For those who care to know, I'm having good response for pain control on the

current medications. I've even been able to drop some doses of the muscle

relaxer because it makes me sooooooo liiiiimmmmmmppppppp. Every six hours

without fail keeps this guy happy and active.

Ray in Virginia

>>

Dear Ray , I am so glad to hear you are doing well on your new pain med. I

have to take a muscle relaxer at bedtime for pain relief/sleep. I used to

take it more often but i became a 'noodle " too ;o). Would you mind sharing

with us what medications has you up and about and doing so well?

Kay from WI

[Guest guest]

Hi,

Please share this with us.

Thanks,

Deb

[Guest guest]

Hi,

Please share this with us.

Thanks,

Deb

[Guest guest]

HI Ken....i think this might be your dept? I was just switched from DIGEST (

which i want) to the single posting emails without my doing it. I was

wondering if you could shed some light on this/and/return me to digest format?

Much appreciated

kay in WI

[Guest guest]

HI Ken....i think this might be your dept? I was just switched from DIGEST (

which i want) to the single posting emails without my doing it. I was

wondering if you could shed some light on this/and/return me to digest format?

Much appreciated

kay in WI

[Guest guest]

I think all digest turned to individual,,, ????

[Guest guest]

I think all digest turned to individual,,, ????

[Guest guest]

Hi Everyone!

I would like to know if anybody out there with FM has a salty taste in their

mouth and a constant ringing in the ears.

Rosemarie

[Guest guest]

Hello,

I am having awful pain and I am going back to doc next week, my darvocet just

does not cut it like it use too. Mine is back pain, I need something so I do not

feel like a zombie but

I can get some relief.

Any help would be appreciated. I also take elavil at bedtime. I know that is a

old drug, maybe try something different there too.

I just know I need to change something fast.

Thanks

Maureen

ANGELPra4u@... wrote:

> From: ANGELPra4u@...

>

> In a message dated 2/18/2000 6:01:49 PM Central Standard Time, hrn@...

> writes:

>

> <<

> For those who care to know, I'm having good response for pain control on the

> current medications. I've even been able to drop some doses of the muscle

> relaxer because it makes me sooooooo liiiiimmmmmmppppppp. Every six hours

> without fail keeps this guy happy and active.

> Ray in Virginia

>

> >>

> Dear Ray , I am so glad to hear you are doing well on your new pain med. I

> have to take a muscle relaxer at bedtime for pain relief/sleep. I used to

> take it more often but i became a 'noodle " too ;o). Would you mind sharing

> with us what medications has you up and about and doing so well?

>

> Kay from WI

>

> ---------------------------

[Guest guest]

This is possible, although it doesn't look taht way on the server. Please

use the email command to reset your account to digest; and if it doesn't

work, let me know in a day, and will switch it back manually. So Far,

was completely locked ou, I was changed to digest, and a string of little

annoying problems have been happening.

A word for anyone who gets locked out at the server: It seems to be a

cookie problem. Just log in manually, check the box to save settings, and

that should clear it up. Test it an d post if it works or not.

Thanks,

Ken

At 10:05 PM 2/18/00 -0500, you wrote:

>From: Mar13tha@...

>

>I think all digest turned to individual,,, ????

>

>---------------------------

[Guest guest]

Maurine,

Dont know where you are in the country, but when I was active in

Arthritis Foundation, we used to get flooded with calls when weather

systems in the country were wet & /or humid, no matter where they were!

There seems to be an almost global effect to wet weather systems whether it

rains/snows where you are or not. At the end of days like that, a lot of

group leaders would compare notes about what was going on with our groups,

and because we were hurting too. Without exception this global (or maybe

continental) bad weather effect was happening.

Ken

At 10:40 PM 2/18/00 -0700, you wrote:

>

>

>Hello,

>I am having awful pain and I am going back to doc next week, my darvocet

>just does not cut it like it use too. Mine is back pain, I need something

>so I do not feel like a zombie but

>I can get some relief.

>Any help would be appreciated. I also take elavil at bedtime. I know that

>is a old drug, maybe try something different there too.

>I just know I need to change something fast.

>Thanks

>Maureen

>

>ANGELPra4u@... wrote:

>

> > From: ANGELPra4u@...

> >

> > In a message dated 2/18/2000 6:01:49 PM Central Standard Time, hrn@...

> > writes:

> >

> > <<

> > For those who care to know, I'm having good response for pain control

> on the

> > current medications. I've even been able to drop some doses of the muscle

> > relaxer because it makes me sooooooo liiiiimmmmmmppppppp. Every six

> hours

> > without fail keeps this guy happy and active.

> > Ray in Virginia

> >

> > >>

> > Dear Ray , I am so glad to hear you are doing well on your new pain

> med. I

> > have to take a muscle relaxer at bedtime for pain relief/sleep. I used to

> > take it more often but i became a 'noodle " too ;o). Would you mind sharing

> > with us what medications has you up and about and doing so well?

> >

> > Kay from WI

> >

> > ---------------------------

[Guest guest]

Kay ( & all)

These crazy switches between different onelist options seem to be

related to their testing the system for compatibility to handle the newly

merged eGroups service. A number of similar incidents are occurring. It

happened to me too.

Before we try a manual fix, I would greatly appreciate it is you

use the email command in our messages footer to switch you account back to

email status.

If this doesn't work (allow several hours at least), please let me

know & I will do it manually.

Ken

At 09:26 PM 2/18/00 -0500, you wrote:

>From: ANGELPra4u@...

>

>

>HI Ken....i think this might be your dept? I was just switched from DIGEST (

>which i want) to the single posting emails without my doing it. I was

>wondering if you could shed some light on this/and/return me to digest format?

>

>Much appreciated

>kay in WI

>

>---------------------------

[Guest guest]

Hi Rosemarie

> I would like to know if anybody out there with FM has a salty taste in

their

> mouth and a constant ringing in the ears.

> Rosemarie

I'm curious...what do you mean by " salty taste in their mouth " ? As if having

eaten salt...or possibly like eating a lemon? And do you take any medication

which could be causing the ringing? I don't have FM but I do have

osteoarthritis in multiple sites and numerous other problems leaving me with

chronic pain.

Candy

[Guest guest]

Hi Rosemarie!

I have a dry mouth (probably due to medication) and tinnitus (i.e., ringing

in the ears). Noticed the ringing in 1997 when I slid from FM to CFIDS.

Lois in PA

Re: Posting

Hi Everyone!

I would like to know if anybody out there with FM has a salty taste in their

mouth and a constant ringing in the ears.

Rosemarie

[Guest guest]

Hi, Maureen!

There are a number of ways to control chronic pain which you may look into.

Have you been seen at a pain clinic? These are usually interdisciplinary

(meaning that they evaluate your pain from a number of different

specialties) but are usually run by the anesthesiology department at most

larger hospitals. I went from darvocet to a TENS unit in the late 1970s

(had to go through withdrawal since I had been on the darvon too long).

When this became ineffective because of skin problems I switched to nerve

blocks of various kinds. I'm also on Neurontin which is for nerve pain.

Some people get relief from acupuncture. I've found aquatic physical

therapy in a heated pool very helpful with muscle spasms. My pain

management program is a combination of the nerve blocks, plus medications,

plus stretching and aquatic physical therapy. No one thing works, but the

combination helps to keep me as functional as possible, with the least

amount of pain.

The Elavil can be used to help with sleep and depression. I'm on Pamelor

for sleep, although in higher doses it's an antidepressant.

Hope you get the relief you need!

Lois in PA

Re: Posting

Hello,

I am having awful pain and I am going back to doc next week, my darvocet

just does not cut it like it use too. Mine is back pain, I need something so

I do not feel like a zombie but

I can get some relief.

Any help would be appreciated. I also take elavil at bedtime. I know that is

a old drug, maybe try something different there too.

I just know I need to change something fast.

Thanks

Maureen

[Guest guest]

Kay,

I have Reiters Syndrome, also known as Seronegative Reactive Arthritis, a

spondyloarthropathy disease. Sister diseases are Ankylosing Spondylitis,

Psoriatic Arthritis, and Chrons with arthritis (also referred to as IBD or

inflammatory bowel disease.

Seronegative means that there is no Rheumatoid factor. Reactive means the

disease is an auto-immune disorder triggered by an infection, most commonly

a dysentery (bowel infection) or an STD. I developed the disease as a child

following several bouts with food poisoning.

I have problems with inflammed tendons, at the point where they insert into

the muscles and/or bones. This is called enthesitis. I also have

tendonitis, synovitis, and even swollen joints. Reiters causes soft tissue

inflammation also, especially of the eyes, urinary tract, bowels, rarely

aortic vein/valve, and more.

I also have Sjogrens Syndrome, another auto-immune disorder which attacks

moisture producing tissues in the body, and causes additional arthritis

pain.

My doctors want to add fibromyalgia to the list of complaints, but I think

that is overkill, when all symptoms are explained by the other two diseases.

Fibromyalgia has become the " popular " diagnosis for joint/muscular pain, and

often can mean that another disease is not being recognized and treated

correctly.

I began taking pain medications in August of 98, but at such low doseages

there was no pain relief. The chronic pain had destroyed my life and forced

me into retirement. I fought for another year before seeing a pain clinic

doctor who would help me. Since August of '99 I've been working with him to

control the varying levels of pain, muscle spasms, fatigue, etc.

To answer your question: I currently take Wygesic (aka Darvocet) 65/650

four times a day with two at bedtime. I can also take 2 at noon if needed.

Ultram, 100 mg., four times a day, with one or two extra 50 mg. pills a day

if needed. The combination of Wygesic with Ultram seems to have the best

pain control for me.

I also take Flexeril (cyclobenzaprine), a muscle relaxer, which is the only

thing that will stop back spasms and spasms of the muscles connected to the

Achilles tendon caused by pain. I can take 20 mg. of cyclobenzaprine four

times a day.

At night I take Ambien, 10 mg., to get to sleep. To maintain sleep, I have

to take 150 mg. of Trazodone (anti-depressant). Otherwise I get no sleep.

Pain and discomfort is worse when I lay down.

I have been taking 20 mg. of Prozac for a couple of months and seem to be

getting the best response from an anti-depressant that I have ever

had...according to my wife.

Frequent periods of rest between activity periods help me live a more

balanced life. The ability to have some control over the chronic pain has

made a tremendous difference in my life. I was forced to partially retire

at age 44 due to chronic pain, and completely retire at age 47. I will be

51 in May, and am trying to open a small garden shop this Spring.

The best advice I can give those suffering from chronic pain is to keep

seeking a doctor who will help you control your pain as much as is possible

depending upon your diagnosis. Joining this list over two years ago helped

me realize the need for better pain control and how to go about getting it

activistically! If you don't stand up for yourself and demand appropriate

medical treatment, nobody else will.

Ray

Re: Posting

> From: ANGELPra4u@...

>

> In a message dated 2/18/2000 6:01:49 PM Central Standard Time,

hrn@...

> writes:

>

> <<

> For those who care to know, I'm having good response for pain control on

the

> current medications. I've even been able to drop some doses of the

muscle

> relaxer because it makes me sooooooo liiiiimmmmmmppppppp. Every six

hours

> without fail keeps this guy happy and active.

> Ray in Virginia

>

> >>

> Dear Ray , I am so glad to hear you are doing well on your new pain med.

I

> have to take a muscle relaxer at bedtime for pain relief/sleep. I used to

> take it more often but i became a 'noodle " too ;o). Would you mind sharing

> with us what medications has you up and about and doing so well?

>

> Kay from WI

>

> ---------------------------

[Guest guest]

Thanks Lois,

Will talk to the Doc this week and get going on something different

Maureen

" Lois A. Denier " wrote:

>

>

> Hi, Maureen!

>

> There are a number of ways to control chronic pain which you may look into.

> Have you been seen at a pain clinic? These are usually interdisciplinary

> (meaning that they evaluate your pain from a number of different

> specialties) but are usually run by the anesthesiology department at most

> larger hospitals. I went from darvocet to a TENS unit in the late 1970s

> (had to go through withdrawal since I had been on the darvon too long).

> When this became ineffective because of skin problems I switched to nerve

> blocks of various kinds. I'm also on Neurontin which is for nerve pain.

> Some people get relief from acupuncture. I've found aquatic physical

> therapy in a heated pool very helpful with muscle spasms. My pain

> management program is a combination of the nerve blocks, plus medications,

> plus stretching and aquatic physical therapy. No one thing works, but the

> combination helps to keep me as functional as possible, with the least

> amount of pain.

>

> The Elavil can be used to help with sleep and depression. I'm on Pamelor

> for sleep, although in higher doses it's an antidepressant.

>

> Hope you get the relief you need!

> Lois in PA

>

> Re: Posting

>

>

>

> Hello,

> I am having awful pain and I am going back to doc next week, my darvocet

> just does not cut it like it use too. Mine is back pain, I need something so

> I do not feel like a zombie but

> I can get some relief.

> Any help would be appreciated. I also take elavil at bedtime. I know that is

> a old drug, maybe try something different there too.

> I just know I need to change something fast.

> Thanks

> Maureen

>

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[Guest guest]

Ray,

Is there a blood test for Reiters Syndrome? I seem to have the same symptoms

that you describe. My rheumatoid factor is negative. I have had food

poisoning at least twice and have irritable bowel syndrome. I also had chronic

bronchitis as a child. I get the inflamed tendons at the site of insertion as

well. I also get tendonitis and bursitis frequently. There is usually one area

bothering me all the time. I have been diagnosed with fms, but have always felt

that there was more going on with me, but of course all my tests have been

negative except my ANA.

Gentle hugs,

Fern

[Guest guest]

Hi Ray,

Good to hear your meds are working for you.

Kathleen in Calif

[Guest guest]

Fern,

Discuss your symptoms with your doctor and ask him/her about Reiters

Syndrome/Reactive Arthritis. Many other autoimmune diseases can produce similar

symptoms. About 60-80% of RS patients test positive for HLA-B27, an antigen.

The rest test negative--like me. Patients may have an increased sed rate which

is indicative of an inflammatory process going on. Diagnosis is usually made if

there is a history of arthritic-like symptoms, and urinary tract inflammation,

and eye inflammation. There is no definitive test for RS.

Ray

[Guest guest]

Thanks Ray, I will definitely talk to the doctor. My HLA-B27 test was negative

as was my rheumatoid factor. But I sure do have the urinary irritation, eye

irritation, and the tendon problems you described. It isn't the joint, but

right next to the joint where the muscle and tendon meet or where the tendon

inserts into the joint.

Gentle hugs,

Fern

[Guest guest]

Fern,

have you tried the Spondyloartropathy Survivors list? Go to www.risg.org to

find out more about Reiters Syndrome and other spondyloarthropathy diseases, and

to subscribe to the group list.

Ray