Guest guest Posted July 22, 2002 Report Share Posted July 22, 2002 I can understand your feelings of thinking you are to blame because of decisions you made on your Father's behalf. I have often wondered if decisions I have made have been the reason for my Mom's rapid decline the last few months. Someone wrote on the site not to long ago, something to the effect, that you are responsibile for the actions not the outcome. We try to make the best decisions on our LO's behalf. My Mom was in the hospital the last few days. I felt she was having an adverse reaction the the Seroquel. She has had adverse reactions to the neuroleptics/pyshcotropic in the past. The doctors feel what I was seeing was because she did have a urinary tract infection. When Mom has reacted to the medications, she has her head tilted to the left and rigid, she gets rigidity in her arms and when you bend them you can feel a ratcheting and she gets hunched over. My sister feels it is probably a combination. Yesterday I posted about this, I forgot to put a subject in so it is listed as unknown. Mariea Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2002 Report Share Posted July 22, 2002 Thought I'd write in with my experience with Seroquel...my dad is 68 and after my mom passed away in February felt it was wise to put him in an adult care facility since he has had Parkinson for approximately 7 years and has difficulty with being on his own...started hallucinating severely after being in adult care facility after a few weeks...got in touch with a new neurologist who saw him and said he was " over medicated " on Sinemet and Comptan...changed his medications and added Seroquel and Exelon...it is almost 2 months later and he is on Seroquel 50 mg twice and day and Exelon 1 1/2 mg twice a day (8 AM and 6 PM) along with Sinemet 25/100 three times a day (8AM, 1PM, 6PM), Mirapex .25mg three times a day (8AM, 1PM, 6PM), Paxil 20 mg (1 PM) and Xanax .25mg (10 PM)...another thing to mention is that the doctor is trying to get him off the Sinemet and only have him on the Mirapex and we will be seeing the doctor again in 2 weeks...anyway, I have noticed that my father is sleepy quite a bit during the day.. he'll just drift off at any time but says he's not tired...he does tend to lean to the left and does have some problems with drooling, seems to be especially for a few hours after taking the medication...he also does have some jerkiness in his arm but only occasionally...how is he doing overall? well, he still has the hallucinations but my husband and I feel he is slightly better...at least he is not calling us in the middle of the night to come and get him and wandering through the adult home as much as he was before....have kept the doctor informed on all of this and he wants to keep him on it until he sees him again...it is very nerve wracking for me seeing him like this and being so helpless to help him and blaming myself for possibly causing this by putting him in the adult care facility...but this site is wonderful in helping me realize that there are so many other people dealing with the same problems and how they cope with it...sorry this was so long...but would be interested in knowing others experience with medications... __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2002 Report Share Posted July 23, 2002 Nadora, You need to be comfortable with the drugs your Dad is getting. They want to put Mom on drugs that keep her from wandering in her wheel chair and I just keep asking to have drugs eleminated. They often cause as many problems as they solve. There is a fine balance beween what works and what doesn't and I keep changing it when it doesn't seem to be working for Mom. The nh's goals may be different or the same as yours. Donna A balanced diet is a cookie in each hand. Courtsey of The-Mouth.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2002 Report Share Posted July 23, 2002 Nadora, You need to be comfortable with the drugs your Dad is getting. They want to put Mom on drugs that keep her from wandering in her wheel chair and I just keep asking to have drugs eleminated. They often cause as many problems as they solve. There is a fine balance beween what works and what doesn't and I keep changing it when it doesn't seem to be working for Mom. The nh's goals may be different or the same as yours. Donna A balanced diet is a cookie in each hand. Courtsey of The-Mouth.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2002 Report Share Posted July 23, 2002 Nadora, You need to be comfortable with the drugs your Dad is getting. They want to put Mom on drugs that keep her from wandering in her wheel chair and I just keep asking to have drugs eleminated. They often cause as many problems as they solve. There is a fine balance beween what works and what doesn't and I keep changing it when it doesn't seem to be working for Mom. The nh's goals may be different or the same as yours. Donna A balanced diet is a cookie in each hand. Courtsey of The-Mouth.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2002 Report Share Posted July 24, 2002 Donna I feel very fortunate for the small struggles I have dealt with in the nh my dad lives in. Even yesterday I had a 30 phone conversation with the administrator and she was very compassionate and understanding. She told me she appreciates how involved I am in my dads life and the knowledge I have to share is greatly appreciated. She is new at the nh and is very involved. The staff works with me and not against me....except for the past nurse wretched. This disease and all that goes with it are enough to handle, just wish you didn't have the fight of the nh along with it. Best wishes to you and you are in my prayers. Sandie Des Moines, IA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 24, 2002 Report Share Posted July 24, 2002 Donna I feel very fortunate for the small struggles I have dealt with in the nh my dad lives in. Even yesterday I had a 30 phone conversation with the administrator and she was very compassionate and understanding. She told me she appreciates how involved I am in my dads life and the knowledge I have to share is greatly appreciated. She is new at the nh and is very involved. The staff works with me and not against me....except for the past nurse wretched. This disease and all that goes with it are enough to handle, just wish you didn't have the fight of the nh along with it. Best wishes to you and you are in my prayers. Sandie Des Moines, IA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 Sandie, They have fought with me since the day I went in with Mom. And when Mom fights with me too, some days I just want to give up and go away. Haven't done that yet. I did quite talking to Admin. staff. I can't believe they are not interested in my being involved. You don't know how lucky you are to be where they appreciate you. It is difficult if everyone works together. This is horrible. Unfortunately the only other two close enough, won't take her. I am really afraid to move her to far away as I could never do the caretaking I am doing if I did. And if there were problems it would be another night mare further away. She isn't an easy patient. Donna If you drink a diet soda with a candy bar, the calories in the candy bar are canceled out by the diet soda. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 25, 2002 Report Share Posted July 25, 2002 Donna My dads nh is about 20-25 minutes away from me. Initially I panicked knowing he technically is in another city, yet with the technology of a new by-pass, and at 65 mps (that is the legal speed limit) I can make it down there in about 20 minutes. The times when there have been emergencies I must admit I have made it there in 9 minutes...not even speed limits will hold me away from my dad. I guess I am very fortunate that the staff appreciates my comments and knowledge and are willing to work with me instead of against me. My dad also can be a difficult resident, and when he is I remind them that it is hereditary...I may be small, but dynomite comes in small packages. Maybe I scared them GRRRRRR. Anyway, when they are working with me I work with them, when they fight, I fight harder!!! Best of luck to you. Sandie Des Moines, IA Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.