Re: Brain fog,

[Guest guest]

Ray wrote:

>>This has been a particularly bad day for memory loss, confusion, and just

plain dumb actions. I know that Brain-fog goes with Fibromyalgia and other

disease, but this is getting ridiculous...

I know we've talked about this before, but does anyone else have problems

like this?>>

Hi Ray,

Yes, I know what you mean. I feel like such a ditz! I don't even like talking

on the phone cause I can't think straight. But, now even more scary is actual

memory loss that doesn't come back. The other day I thought I took my

medication, I even checked it off in my task list, and told my husband I took

it. I STILL believe I took it. But their dated so I know I didn't take it.

Just the other night I sat down at the wrong place for dinner and everyone

looked at me weird. I still don't know where I usually sit. I mean they told

me and all but I can't actually REMEMBER sitting there. Now that's scary!

Is this a normal sign of fibromyalgia or CFS, or anything else, or am I actually

losing my mind? By the way I'm 28, so old age isn't an answer :-)

Corina

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[Guest guest]

Hi Ray!

You don't have the exclusive on " brain fog " Have you ever been driving your car

somewhere, somewhere that you drive to often, like your doctors office and get

half way there and have to ask someone in the car " where are we " ? It is verrry

scarrry!. Thank goodness it doesen't happen very often, the Fibro Fog around

home is bad enough, without being of the road, I don't choose to drive very far

anymore because of this.

Talk to you later.

Rosemarie

Brain fog,

This has been a particularly bad day for memory loss, confusion, and just

plain dumb actions. I know that Brain-fog goes with Fibromyalgia and other

disease, but this is getting ridiculous! Things I've never done " wrong "

before are wrong all the time now. Example: I try to delete a message and

send it instead. I'm always surprised by these mistakes, because I don't

realize what I have done usually until later. Then I can't figure out how I

did it, or why I did it that way.

I stumble around the house like a drunken sailor. Let's not even talk about

driving right now! I'm literally a time-bomb when I drive more than a few

minutes. I blank out and then suddenly become aware of a dangerous

situation, which scares me to death.

I know we've talked about this before, but does anyone else have problems

like this?

Ray

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[Guest guest]

To all experienceing the brain fog - you have another one from the list

that can relate. MS can also give you the same problem. I am slowly

getting over a 'spell' which caused me to forget things. I'd forget my

medication as well and my new beau came up with the idea of a a pill

dispenser to keep track of what I take and when. It was a great idea.

Driving is another issue I've had to put alot of consideration into. I

drive 'only' when I feel like I'm having a good day. My parents live

about 7 minutes away and have done that trip many times. Sometimes I

just get confused as to where I am and how I get back home. I find when

I'm being stressed from another driver, ie. driving to close, I get

worse. Was at a point that I thought I should hang up my keys for good

but that was pretty depressing. I then decided to go to the Rehab for

cognitive testing. I actually passed but the test was so intense it put

me in a 'flare-up'. If only half the people that drive today would take

that test, there would be a lot less drivers on the road.

So yes, I can relate and just wanted to let you all know how frustrating

it has been, or is, for me. Not only did I lose my cognitive ability,

my sight also took the high road. I kept asking people if they saw my

brain somewhere, to send it home as I was getting lonesome for it. It

has slowly made it's way back home as well as my eyes. I think they're

just being a little timid, as a child would be when they've done

something wrong. :-0 Got to laugh right?

Sheryl & Chloe

> You don't have the exclusive on " brain fog " Have you ever been driving your

car somewhere, somewhere that you drive to often, like your doctors office and

get half way there and have to ask someone in the car " where are we " ? It is

verrry scarrry!. Thank goodness it doesen't happen very often, the Fibro Fog

around home is bad enough, without being of the road, I don't choose to drive

very far anymore because of this.

> Talk to you later.

>

> Rosemarie

[Guest guest]

At 05:19 PM 10/27/99 -0400, Sheryl & Chloe wisely said:

>I kept asking people if they saw my

>brain somewhere, to send it home as I was getting lonesome for it

The worst part of it all is that I get instant spells of suddenly

not remembering what I am doing with people. Had a community board meeting

I was conducting, & doing OK until I started to read something I had

written earlier.

Tried to look up at the group & then back to continue on my page,

but forgot what I was doing completely. A friend & neighbor who knows me

well quickly put her finger on the place on the page I was reading from.

and this happened again a few lines later. Not only embarrassing, but poor

for one's image. So the heck with image, I guess.

Now I have learned I can no longer read in public like they do on

the nightly news. Maybe this is why they have that little earphone in the ear.

Can relate to your brain line. At one point started singing " if I

only had a brain. " Worst part was nobody laughed

Ken.

[Guest guest]

Hi All,

I can relate to the Brain Fog. One of the reasons I quit driving was

because I forgot to put the clutch in when I came to a stop. The bad part

was that I actually had someone look under the car because of the loud

noise, I thought that I had run over something. I didn't realize what the

problem was until later. The other reason that I stopped driving was that I

had two severe attacks of vertigo while driving that scared the life out of

me.

I also make myself notes then forget to look at the notes. I don't think I

could handle my medication schedule without one of those little

compartmentalized dated containers.

This FMS is a pain in more ways than one.

Talk to you later.

~~~Faye~~~

[Guest guest]

Well first of all I " think " I introduced my self awhile back, 2-3wks or so.

So for those of you who don't know or remember, My name is Trish, I live in

Colorado.Those who don't live here say the weather is great, but they truely

don't realize that is can be 75*one day and only 35*the next

this can really mess up the joints. Right now I have a major battle going on

inside of me today. Yesturday my son got out of the house w/o his lunch $ so

I went racing after him(didn't even bother to put on pants, fortunatley

nothing showed)ran back in the house, because he was to far gone for me to

catch him, grab my keys and forgot to make the swing in the drive way thats

always been there for the last 19+yrs.

Scratched my car, but I did get the lunch $ there before he got to the bus

stop. The worst part was telling my hubby, since we had just discussed the

factor that I was gonna have to realize that I can't do all the things I used

to do. I really feel like my life has slowly been take away from me over the

last 16-17yrs very slowly. Now I can't even get dressed by myself have the

time, I get lost going around the block, I can't even remember to breath at

night when I sleep. All together so far I deal with FMS/MPS/CFIDS,

INSOMNEA,INTERSTITIAL CYSTITIS OF THE BLADDER, PROLASPEDBLADDER, SEVERE

OBSTRUCTIVE SLEEP APNEA( CAN'T GO ON VACATION W/O DRAGGING ALONG AIR TANKS,

BIG PAIN. BUT I GUESS IT COULD BE WORSE THEY STILL HAVE THE OPTION OF MAKING

ME WEAR THE REGULAR AIR AT ALL TIMES), MY EYES ARE EVEN DETERIATING FASTER

WITH EACH PASSING YEAR.

If I could go back to normal of atleast onething I would want to be able to

love on my kids giveing them hugs and such same with the hubby and NOT HAVE

IT HURT UNBEARABLY. I guess that it just my biggest problem is that no

matter where I get touched I hurt so bad I wish I could just die and go home

to peace, but yet I'm greedy too, I don't want anyone else to have the hone

of raising by children, and that includes the big one that I vowed to keep

forever!!! He truely is wonderful after all I put him through and yet I'm

treated like a queen each and every day.

God Bless You All, {{{{{{{{{{GENTEL HUGS}}}}}}}}}}

Trish / TDBEARANGL@...

[Guest guest]

BRAIN FOG!!! Not the most pleasant sensations, but one which most of us on

narcotic pain medications and/or other meds must deal with every minute of

every day. Ray, I can empathize as I suffer brain fog from several different

sources. Due to major depression (suicidal depression) I had ECT

(electro-convulsive shock) treatments twice in 1998 to " jumpstart " my mind

into the here and now and a major downer about ECT is the short and long-term

memory loss and BRAIN FOG!!! Mix in narcotic pain meds, muscle relaxers,

anti-depressants, etc. and you have a BRAIN FOG SOUP!! I have two children,

, 10, and 9, and they " catch " me in my Brain Fog mode all the

time. I don't leave the house much driving because I do " black out " and

forget where I am, where I'm going, what I'm going there for, and I feel it's

dangerous for me to get behind the wheel unless absolutely necessary.

Hang in there, we all have our good and bad days!! Our brain fog must be

dealt with as a necessary evil (not the best word) as I wouldn't want to be

in the place and mood I was before the ECT treatments, and that's what I tell

myself when the frustration and aggravation get to the unmanageable level.

Hope your meds. are keeping you feeling okay, be in touch soon!!

Pain-free thoughts!!

Tracey in Kentucky

[Guest guest]

I guess it's just another " symptom " or " side effect " of the pain, pain

meds., and general myalgia?*? that we go through every day, all day long. I

didn't " fall apart " until I turned 30 (please don't anticipate the same, I

believe I'm an exception to the rule!!) and since then it's been downhill

(seven surgeries, multiple pain clinic injections, narcotic pain meds. of all

sorts, anti-depressants, anti-inflammatories, muscle relaxers!!) but I'm

hanging on. I haven't been active on this list for several weeks (had a

really bad spell with my back, depression, etc.) but I'm back and hoping to

correspond with others in the same situation.

I never realized how I prized (and relied on) my memory, but now that's it

isn't reliable, I miss it very much. I have explained to my children that I

sometimes can't remember things even though they were just said, etc., so

they try to help " keep me straight " and do a good job at that!! Hang on, try

to enjoy each day even with the strange looks and darned BRAIN FOG!!

Pain-free wishes.

Tracey in KY

[Guest guest]

Just keep on laughing!!! My father-in-law has MS and MD both, and watching

him dealing with life's ups and downs has been a real inspiration for me. He

has his " moods " but he is a wonderful, caring person and we cherish every day

he has with us. Hang in there!!!

Tracey in KY

[Guest guest]

Hi Sheryl & Chloe,

I wonder how many of us on the list also have symptoms of MS. How was yours

diagnosed?

The reason I ask is that over the past twenty years I have had 4 CT scans of

my brain. I went to the neurologist yesterday and he said he would send me

for an MRI. I asked what the difference was & he said that the scan picks

up MS in 20% of the cases and the MRI picks up 80% of the cases. I am

wondering if the other 20% get diagnosed with FMS as some of the symptoms

are similar. It seems that if you don't have the eye involvement it takes

forever to diagnose MS.

~~~Faye~~~

[Guest guest]

Hi all,

This may be a little late but.... To Corina and Ray, YES this is FM. Lovely

huh? I've done so many of these things. There have been times that I can't

remember how to give directions to our home, or the phone number!

The worst is banking and keeping up the checkbook. I use the ATM and don't

remember to post the darn thing! This has lead to many charges from the

bank. There was a post some time ago about this...You Might Have FM if....

It was true and funny. After all I have to laugh at my self or that will be

the end of me. If you don't remember it I'll send it thru again.

Love to you all

Kathleen in Sonoma, Ca.