Guest guest Posted May 7, 1999 Report Share Posted May 7, 1999 RayI ahve bookmarked many fibro sites; how many do you want???!! kat _______________________________________________________ Get your free, private email at http://mail.excite.com/ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 1999 Report Share Posted May 8, 1999 In a message dated 5/8/99 7:55:28 AM Eastern Daylight Time, katchamp@... writes: << RayI ahve bookmarked many fibro sites; how many do you want???!! >> Ray, ditto! Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 1999 Report Share Posted May 8, 1999 In a message dated 5/8/99 11:35:01 AM Eastern Daylight Time, hrn@... writes: > Ray, I have bookmarked many Fibro sites; how many do you want???!! > > Kat Kat, I know I must be intruding. But, would you share them with me also? I never saw your first reference to this, at least I don't remember it. Oh well, Mad. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 8, 1999 Report Share Posted May 8, 1999 Lots, and lots. Re: Fibromyalgia > > > RayI ahve bookmarked many fibro sites; how many do you want???!! > kat > > > > > _______________________________________________________ > Get your free, private email at http://mail.excite.com/ > > ---------------------------------------------------------------------- -- > ONElist: the best source for group communications. > http://www.onelist.com > Join today! > ---------------------------------------------------------------------- -- > Know someone who could profit from our list? Send our direct sign-up URL: http://www.onelist.com/subscribe.cgi/chronic_pain, or write us at: chronic_pain @onelist.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 9, 1999 Report Share Posted May 9, 1999 Hi Kat, At 02:52 PM 5/8/99 -0400, you wrote: >would you share them with me also? It wouldn't not hurt to post the FMS sites. Ken Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2000 Report Share Posted September 4, 2000 -----BEGIN PGP SIGNED MESSAGE----- Hash: SHA1 >HI! >What things have been helpful to you with this syndrome? I am trying to get >a referral to a rheumatogolist through my PCP. I have seen a pain management >doc for a year, and nothing she has offered has helped me. I currently take >methadone for pain management. It makes me itchy, tired and have totally >lost my appetite. >I would love to know some of the things that you have done that have helped >you, meds, diet, exercise, anything... >What sort of questions should I ask the " rheumy " doc? > >Thanks for your help! > Your doctor should be giving you some medication to improve the quality of your sleep. that's the only thing that's been proven to consistently help fibromyalgia. I'm currently taking flexeril for sleep, and ultram for pain management. On a 1-10 scale, since switching over to these two medications from the fruit salad of meds I was taking before, my pain has gone down to a 4. If you go to http://www.fibrom-l.org/ you'll find lots of good information, and the instructions for joining the fibrom-l email group. You'll get lots of good information and support specifically for fibromyalgia through that group. Bill - -- Member: The Henry Bowman Brigade Founder: Henry_Bowman_Societyegroups Fan fiction: http://crystal.macmanusnet.net Random thought for the day: If you choose not to decide you still have made a choice. -----BEGIN PGP SIGNATURE----- Version: PGPsdk version 1.7.1 © 1997-1999 Network Associates, Inc. and its affiliated companies. iQA/AwUBObQCbFcSDScCypCGEQLbPACfSBdh1LVKbWcfbnQ5PdV7oUZWxfIAoMxP 52GV+tb7nvKaCorKvA/ONyq8 =aSSy -----END PGP SIGNATURE----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2000 Report Share Posted September 6, 2000 Jen, You need to have your doc or it you get into a rheumatologist to see if you have trigger points. If you do there is your diagnosis. Anyway the things that I do that are not a garantee but work most of the time is take something for sleep which is Klonopin and something for pain Tylenol 3. I used to take Vicodin but it didn't agree with me. And the Tylenol is not doing great. I also take Vioxx which is an arthritic anti inflammatory and something for irritable bowel. Walking used to help but right now if almost impossible. I have a problem with taking pain meds all the time because I don't like to feel out of it all the time. I also take Effexor for depression. I've also learned that balanced meals are the best. If I don't eat regularly and something not real junky, I don't become as tired which brings on the pain worse. Otherwise, I live with it. Sometimes it really gets me down, other times it's there and I know it but just go on. Good luck with a Rheumy. I'm here if you need anything else. Fibromyalgia > > HI! > What things have been helpful to you with this syndrome? I am trying to get > a referral to a rheumatogolist through my PCP. I have seen a pain management > doc for a year, and nothing she has offered has helped me. I currently take > methadone for pain management. It makes me itchy, tired and have totally > lost my appetite. > I would love to know some of the things that you have done that have helped > you, meds, diet, exercise, anything... > What sort of questions should I ask the " rheumy " doc? > > Thanks for your help! > > Hugs and Prayers > Jen > If you think my hands are full... You should see my heart! > Doula and SAHM to: > Greg, Jr. 1990 > Jordan 1991 > 1992 > 1993 > Meghan 1995 > & Corey 1998 > Wife to Greg~1988 > > Know someone who could profit from our list? Send our direct sign-up URL: /subscribe.cgi/chronic_pain or write us at: chronic_pain-listowneregroups > Manage your subscription with several special email addresses: > chronic_pain-owneregroups - Sends email to the list owners > chronic_pain-subscribeegroups - Subscribe to the list through email > chronic_pain-unsubscribeegroups - Unsubscribe from the list > chronic_pain-normalegroups - Switch your subscription to normal > chronic_pain-digestegroups - Switch your subscription to digest > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2000 Report Share Posted September 6, 2000 Jen Don't give up though. Keep finding doctors if you have to, keep working on different meds. Eventually there will be something that eases your pain and your mind. Fibromyalgia > > HI! > What things have been helpful to you with this syndrome? I am trying to get > a referral to a rheumatogolist through my PCP. I have seen a pain management > doc for a year, and nothing she has offered has helped me. I currently take > methadone for pain management. It makes me itchy, tired and have totally > lost my appetite. > I would love to know some of the things that you have done that have helped > you, meds, diet, exercise, anything... > What sort of questions should I ask the " rheumy " doc? > > Thanks for your help! > > Hugs and Prayers > Jen > If you think my hands are full... You should see my heart! > Doula and SAHM to: > Greg, Jr. 1990 > Jordan 1991 > 1992 > 1993 > Meghan 1995 > & Corey 1998 > Wife to Greg~1988 > > Know someone who could profit from our list? Send our direct sign-up URL: /subscribe.cgi/chronic_pain or write us at: chronic_pain-listowneregroups > Manage your subscription with several special email addresses: > chronic_pain-owneregroups - Sends email to the list owners > chronic_pain-subscribeegroups - Subscribe to the list through email > chronic_pain-unsubscribeegroups - Unsubscribe from the list > chronic_pain-normalegroups - Switch your subscription to normal > chronic_pain-digestegroups - Switch your subscription to digest > > > Quote Link to comment Share on other sites More sharing options...
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