Guest guest Posted July 19, 2002 Report Share Posted July 19, 2002 In a message dated 07/19/02 12:41:23 AM Central Daylight Time, mls672@... writes: > When it rains it pours. I am so sorry for your increased stress with both LO in two different hospitals and you wondering if you are coming or going!!!!!!!!!! I wanted to share with you that my dad does what your Mom is doing. Drooling, ridged, leaning to the right or sometimes the left. It seems to last about a day. When he gets like this I have the NH put him in a recliner chair to try to help relax his body. I try to massage his back and neck. When he is drooping to the side I try to erect him to no avail. I get down on the floor to his level to look into his eyes and ask him if he is down there and he replies with a smile sometimes and says yes. He has no control over this but knows what's going on. Thinking about you. Try to take a few minutes for yourself during this time. Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2002 Report Share Posted July 19, 2002 In a message dated 07/19/02 12:41:23 AM Central Daylight Time, mls672@... writes: > When it rains it pours. I am so sorry for your increased stress with both LO in two different hospitals and you wondering if you are coming or going!!!!!!!!!! I wanted to share with you that my dad does what your Mom is doing. Drooling, ridged, leaning to the right or sometimes the left. It seems to last about a day. When he gets like this I have the NH put him in a recliner chair to try to help relax his body. I try to massage his back and neck. When he is drooping to the side I try to erect him to no avail. I get down on the floor to his level to look into his eyes and ask him if he is down there and he replies with a smile sometimes and says yes. He has no control over this but knows what's going on. Thinking about you. Try to take a few minutes for yourself during this time. Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2002 Report Share Posted July 19, 2002 Mariea You are right that when it rains, it pours. I will say extra prayers for you and your family. Thank you for sharing your story. I truly hope your life calms down a bit and you are able to enjoy a little peace again. Please keep us posted! Best of luck with your husbands appointment, he will also be in my prayers. Sandie Des Moines, IA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2002 Report Share Posted July 19, 2002 Mariea You are right that when it rains, it pours. I will say extra prayers for you and your family. Thank you for sharing your story. I truly hope your life calms down a bit and you are able to enjoy a little peace again. Please keep us posted! Best of luck with your husbands appointment, he will also be in my prayers. Sandie Des Moines, IA Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2002 Report Share Posted July 19, 2002 In a message dated 7/19/02 12:41:33 AM Central Daylight Time, mls672@... writes: > I went through the list of the meds with the doc and told him of the ones > that affect Mom like this, the neuroleptics. Tomorrow my husband goes for > a biopsy. > When it rains it pours. Oh, Mariea, but it is pouring at your house! May your husban'd biopsy be quick, pain free, and most importantly, negative. Did the doctor pay attention to your list of meds for your mom? What a frightening experience. Will be waiting to see the outcome. Best to you all, Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2002 Report Share Posted July 19, 2002 Cheryl, I'm still going rounds with the doctors. They suspect a UTI and are waiting on a culture. They have started her on antibiotics. I have told them that Mom has never had this kind of reaction to a UTI. She has had at least a half dozen reactions to meds like this. I had the nurse hold the afternoon dose of the Seroquel. It has basically been tripled in the amount she is to get per day. She should go back to the NH tomorrow. Her doctor doesn't have privileges at the hospital yet. He will in three weeks. But if things haven't changed by the time Mom goes back to the NH, he'll work with me on the meds. This is the kind of doctor he is. I called to talk to him and he personally answered the telephone. I think he was at home. And told me, as he had said in the past to call any time I have a question about Mom. He should be talking to the Psychiatrist tonight about the med. I think the doc that saw Mom in the ER increased the med, because Mom was quite agitated. Big surprise, take a person with dementia out their environment and have a bunch of people poking and prodding at them.... Thanks for asking and listening. Mariea Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2002 Report Share Posted July 19, 2002 In a message dated 2002-07-19 6:19:44 PM Eastern Daylight Time, mls672@... writes: > . Big surprise, take a person with dementia out their > environment and have a bunch of people poking and prodding at them.... > Thanks for asking and listening. > Take ANYBODY and do the above...there will be a VERY unhappy person. Ev Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2002 Report Share Posted July 19, 2002 In a message dated 7/19/02 5:19:44 PM Central Daylight Time, mls672@... writes: > I had the nurse hold the afternoon dose of the Seroquel. It has basically > been tripled in the amount she is to get per day. Good for you. Tripling the Seroquel is flat out scary! So glad her regular doctor is so open. The smart ones are. Good luck getting Mom back to the NH tomorrow - sounds to me like she's better off there! Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 19, 2002 Report Share Posted July 19, 2002 Mariea, I'm very sorry about your mother and husband and hope you get good reports and good results with both. Mariea, I do hope the physicians adjusting your mother's meds make her and you more comfortable. I have been playing this chess game since 1983. We have gotten through some very dramatic, acute reactions to medication or reactions to stress. For example, once, twelve years ago, Harv froze like a standing bronze statue, literally, and couldn't even bat an eyelash for about twenty minutes. I'm satisfied with his medical care. Harv's symptoms normally fluctuate greatly. I know that the underlying disease is unaffected and that what I am concerned with basically is management, trying to understand and deal with whatever develops. When some people see my husband for the first time, they may be horrified because, depending on the fluctuations in his condition, his bib could be soaking wet, his posture bent over, and his ability speak, react to questions, or even move lost. Then, there are the other times when Harv is quite alert and responsive, his posture is more erect, and his drooling stops. Even when he appears " out of it " he may actually be very aware of his surroundings. When he is " at his best " he still requires constant supervision and help with all the ADLs. He has been sick for a very long time, so none of this surprises me. Again, best wishes for better days. Bertha Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 22, 2002 Report Share Posted July 22, 2002 Mariea, I am sorry to hear about your Mom and husband. Good luck with both. I will keep you in my prayers. > Lord Help Us! > > Just got home a few minutes ago from the emergency room and Mom being > admitted. > When I went to see her yesterday she had started drooling. I should > have recognized this a sign. > Went to see Mom today and she is not only drooling, but hunched over > and her head is tilted to the left and rigid. I had the nurse look > at her and asked her to check her arms for rigidity. I thought they > seemed rigid to me. > Mom's doctor asked an interist from another group to see Mom in the > ER. Told him I have seen Mom like this before and it had been > related to medications. Mom is on Seroquel and I know this is the > culprit. So they admit Mom at least for overnight. The doc talked > about adjusting Mom's meds. So when they are finally getting her > ready to go to her room I ask the nurse what the doctor has > prescribed. He actually doubled the dose of the Seroquel!!! I told > the nurse that deep down in my heart I feel that this is what is > causing Mom's problems. So I had her hold the Seroquel. > Mom has been having hallucinations for serveral months now and I > really don't see the Seroquel having an affect on them. > I went through the list of the meds with the doc and told him of the > ones that affect Mom like this, the neuroleptics. > Tomorrow my husband goes for a biopsy. > When it rains it pours. > I just pray that everything will go okay with my husband and okay > with my Mom until I get back to the hospital she is in. My husband's > biopsy is at another hospital in the opposite direction. > Thanks for listening! > Mariea > > > > Quote Link to comment Share on other sites More sharing options...
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