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In a message dated 5/9/99 6:06:57 PM Eastern Daylight Time, hrn@...

writes:

<< Carol, probably told you this before, but I'm in Abingdon, VA, just two

hours north of Asheville. >>

Hi, Ray.

Don't remember your doing that, but sounds like a big time meeting coming up

soon. How many of us in this group live within 2 hrs of Asheville, NC?

Carol

" In the little decisions of life, use your mind; in the big decisions of

life, use your heart. " [author unknown]

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Ken, as always you are right. I'm living in the same body as before,

with the same symptoms, what matters is not the name of the condition,

but the success in treating the symptoms. At the moment I have found

some ways to treat some of the symptoms. It is the ones that I haven't

found an answer to for treatment that are the problem. Even specialists

discount the amount of pain we relate to them, as if we are overstating

the issue or whining about it. God forgive them, but I wish each and

everyone of them a chronic pain disorder, even if for only a few months

or a year. I'm not being sadistic, I just think it would greatly

improve their " bedside manners. "

Ray

Re: topic_frameset.asp

>

>

> Hi Ray,

>

> At 01:13 AM 5/7/99 -0400, you wrote:

> >Y'all tell me all about CFS, please, especially how you deal with the

pain.

>

> To paraphrase an old description of army food (can anyone

guess

> the 4 word quote?) same symptoms, different Dx.

>

> Am trying to say that you have been dealing with problems

that are

> old & familiar to you. why not sort out what issues you have about

symptom

> control into solved & unsolved categories. Then you ask for solutions

for

> the unsolved problems, and see if any improvements can be made to

older

> solutions.

>

> I don't mean to be simplistic, but it's still the same body

you

> have been wrestling with for years. Reminds me of when I went to a new

> rheumatologist for a second opinion some years ago. Have been Dx'd as

> ankylosing spondylitis. Has been called 12 different things. Never the

same

> from doctor to doctor. The new rheumy got real excited when he found

some

> flaking skin on the breastplate. Seems this is a confirming symptom

for

> psoriatic arthritis, which has a clear cut treatment. The skin problem

and

> the Dx both were finished in about a week. The doc got real excited

about

> my maybe having something more treatable. I did not. I am not so

easily

> accepting of medical findings anymore.

>

> What's the difference? You still have the same lousy body!

>

> Ken

>

>

>

> ----------------------------------------------------------------------

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>

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In a message dated 5/9/99 6:18:03 PM Eastern Daylight Time, hrn@...

writes:

> God forgive them, but I wish each and

> every one of them a chronic pain disorder, even if for only a few months

> or a year. I'm not being sadistic, I just think it would greatly

> improve their " bedside manners. "

I would give them 5 years along with anyone who wants to create the

legislation. I figure the laws would be better if they suffer long

enough..anyone can live for a year with it...but by the five years...they

would vote anything that was an improvement in.

Mad

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In a message dated 5/10/99 8:36:01 AM Eastern Daylight Time,

ladydi@... writes:

<< I have relatives in Asheville, and was raised in Spruce Pine. Have an acre

of land in those beautiful mountains and dream about living there someday. >>

Diane:

Sounds like we may have a big party one of these days.

Where do you live now?

Carol

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Howdee and Welcome!

I have relatives in Asheville, and was raised in Spruce Pine. Have an acre of

land in those beautiful mountains and dream about living there someday. *S*

Good to hear that PT's can do massage therapy, as that is one thing that helps

me a lot w/ my CFS.

Another pain pal,

Diane

reese38@... wrote:

> From: reese38@...

>

> Hi. I'm in Asheville, about 20 miles from ville--welcome to the

> neighborhood. Let me know when you get here.It's a beautiful place to live.

> :o) Kay

> Re: topic_frameset.asp

>

> >From: MsVVarrior@...

> >

> >In a message dated 5/8/99 12:45:15 AM Eastern Daylight Time,

> reese38@...

> >writes:

> >

> ><< Here in NC, insurance will cover them, if done by a physical therapist

> >>

> >Kay:

> >

> >Where are you in NC? My DH and I have just moved to ville; but

> >right now and until I retire about Aug. 5, I am temporarily living with

> >parents in FL. Email me if you don't want it public. Thanks.

> >

> >{{{and pain-free wishes}}}

> >Carol

> > " In the little decisions of life, use your mind; in the big decisions of

> >life, use your heart. " [author unknown]

> >

> >------------------------------------------------------------------------

> >What's " Grow to Give " ?

> >http://www.onelist.com

> >It's a new incentive program at ONElist. See homepage for details.

> >------------------------------------------------------------------------

> >Know someone who could profit from our list? Send our direct sign-up URL:

> http://www.onelist.com/subscribe.cgi/chronic_pain, or write us at:

> chronic_pain @onelist.com

> >

>

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In a message dated 5/10/99 7:40:28 AM Eastern Daylight Time,

MsVVarrior@... writes:

> From: MsVVarrior@...

>

> In a message dated 5/9/99 9:50:53 AM Eastern Daylight Time, MadMad4JCaol (DOT)

> com

> writes:

>

> << For the flare-ups, nothing helps, at least nothing non narcotic...and

> the DR thinks I am addiction prone.. >>

>

> Mad:

>

> This is an uh-oh. Pushed one of my " hot " buttons. Have you gotten any of

> my

> links or articles about addiction vs. physical dependency? If not, let me

> know I and I will send them. Your doc is obviously not up on the latest.

> Bottom line: an addict will take meds for any and all reasons just to get

a

>

> buzz, a high, whatever. Only 1% of people who truly need pain meds ever

> become addicted. The other 99% may become physically dependent and have

to

> wean off one and go to another, but they do not become addicts. Reason?

> They would NOT take the pain meds if they didn't need them.

>

> My DH and I both had chronic migraines with very similar symptoms. The

same

>

> neurologist gave DH anything he could to help with the pain. Told me I

just

>

> wanted drugs - even though my internist told him I had Fibro. Finally got

> to

> a rheumatologist who has worked with me and I am now able to work about an

> average of 8 hrs a day [lower than my usual 10 or more].

>

> Let me know about the articles and links.

>

> {{{and angel wishes}}}

> Carol

> " In the little decisions of life, use your mind; in the big decisions of

> life, use your heart. " [author unknown]

>

Carole,

my printer is not working, so if you send me the links please send the URLs.

I will have to forward it to my pastor for him to print out for me and he is

not able to open AOL links.

Thanks,

Mad.

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MsVVarrior@... wrote:

>

> This is an uh-oh. Pushed one of my " hot " buttons. Have you gotten any of my

> links or articles about addiction vs. physical dependency? If not, let me

> know I and I will send them.

I dunno about Mad, but I would love any and all links you could send my

way. I am compiling a list of stuff to take in to my doc. I am just not

going to tolerate his ignorance any longer!

--

Kay mailto:kjones@...

Praise N' Prayer Ministry http://www.vvm.com/~kjones

His N' Hers Computer Solutions! http://www.vvm.com/~kjones/twogeeks

Kay's Page http://www.kjsl.com/~kayspage - THE A.P.Site!

ICQ: 2935300 AIM/YAHOO: KayOfBoz

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In a message dated 5/10/99 7:48:15 PM Eastern Daylight Time,

kturbin@... writes:

> Ray,

>

> At 06:11 PM 5/9/99 -0400, you wrote:

> >Ken, as always you are right

>

> Afraid that 2 ex-wives would vote against you on this!

>

> Ken

hahahahahahahahahahahahahahahahahahahahhahahahahhahahahee

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In a message dated 5/10/99 7:48:15 PM Eastern Daylight Time,

kturbin@... writes:

> Ray,

>

> At 06:11 PM 5/9/99 -0400, you wrote:

> >Ken, as always you are right

>

> Afraid that 2 ex-wives would vote against you on this!

>

> Ken

hahahahahahahahahahahahahahahahahahahahhahahahahhahahahee

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Carol:

Stuck at present in flat-ass Ohio! Have nose pointed SOUTH tho. *grin* I am

just N. of Columbus about 30 min.

Di

MsVVarrior@... wrote:

> From: MsVVarrior@...

>

> In a message dated 5/10/99 8:36:01 AM Eastern Daylight Time,

> ladydi@... writes:

>

> << I have relatives in Asheville, and was raised in Spruce Pine. Have an acre

> of land in those beautiful mountains and dream about living there someday. >>

>

> Diane:

>

> Sounds like we may have a big party one of these days.

> Where do you live now?

>

> Carol

>

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