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RE: pd, alz, lbd

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> My own take on Alzheimer's dementia is that the person becomes less aware

> of their condition than many people describe for LBD.

Yes, and because of lack of fluctuations. For us, it is his awareness, when

it comes, that makes us both know this is such a nasty disease. When he's

" out of it " he has no idea . . . which is how I think of Alzheimer's. Right

or wrong. Cheryl

Based on my own observations of the ten Alzheimer's patients....and their

care-givers

I observed over a period of a year, you are correct. The disease is more like

accelerated aging, there's no real awareness, and though there is confusion

brought

on by loss of memory, there are none of the more bizarre aspects of LBD.

Mai-Liis

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Donna, I think you have described it well! It is more difficult for me to see

'steps' anymore, though.

The reprieves are short, but as frightening as I find the quick progression of

his disease, I am almost

dealing with it better because there is no opportunity for getting used to those

better times.

Mai-Liis

They sleep!!!!!That for me was the one thing I knew Mom wasn't like the

people in AD day care. Mom never even got tired. And I do believe it

is a long gradual sloop down. Mom always felt like she was more on

steps and some where far wider and deeper than others. We could go

weeks and months at a time with no change and all of a sudden I was

aware that a week ago she had taken another dive. Then she would so a

stretch again and dive. It has just come closer and closer with the

dives lately.

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Donna

I totally agree with your statement of this being hard on the LBD person

in a nh. I know many times my dad is very aware of his surroundings and

he is in the Alzheimers Unit of the nh.

Sandie

Des Moines, IA

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Mai-Liis

Very well put...accelerated aging for Alzheimers, and none of the more

bizarre aspects of LBD. My dad has been in the Alzheimer's Unit for the

2+ yrs at the nh, and I have had a lot of time to observe the other

residents. Wonderful wording!!

Sandie

Des Moines, IA

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Mai Liis,

It is getting harder and harder to have more than a couple of weeks or

maybe a month and it going faster all the time. And with her in the nh,

I know she could just be sick and when she recovers she never even comes

back to the same point she was at before an infection or whatever.

Donna

A balanced diet is a cookie in each hand. Courtsey of The-Mouth.com

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Makes sense to me! My MIL's doc basically said the same thing that LBD is

kind of one of the 4 main dementia diseases.

> Re: pd, alz, lbd

>

> My dads neurologist stated... " Diffuse Lewy Body Disease (or LBD) is a

> dementia of its own, that takes on characteristics of Alzheimer's and

> Parkinson's " which I interpreted as it is its own disease, yet mimics

> certain struggles from the other two diseases. Does any of this make

> sense or am I just babbling???

> Sandie

>

>

>

>

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In a message dated 7/14/02 4:40:26 AM Central Daylight Time,

MaiLiis@... writes:

> The reprieves are short, but as frightening as I find the quick progression

> of his disease, I am almost dealing with it better because there is no

> opportunity for getting used to those better times.

I like the " steps " concept a lot, Donna. Mai-Liis, I think you're right

about dealing with it better when the reprieves are brief. I also find this

true. Cheryl

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In a message dated 7/14/02 4:40:26 AM Central Daylight Time,

MaiLiis@... writes:

> The reprieves are short, but as frightening as I find the quick progression

> of his disease, I am almost dealing with it better because there is no

> opportunity for getting used to those better times.

I like the " steps " concept a lot, Donna. Mai-Liis, I think you're right

about dealing with it better when the reprieves are brief. I also find this

true. Cheryl

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In a message dated 7/14/02 4:40:26 AM Central Daylight Time,

MaiLiis@... writes:

> The reprieves are short, but as frightening as I find the quick progression

> of his disease, I am almost dealing with it better because there is no

> opportunity for getting used to those better times.

I like the " steps " concept a lot, Donna. Mai-Liis, I think you're right

about dealing with it better when the reprieves are brief. I also find this

true. Cheryl

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