Guest guest Posted July 12, 2002 Report Share Posted July 12, 2002 In a message dated 2002-07-12 7:50:25 PM Eastern Daylight Time, MaiLiis@... writes: > That doesn't make good sense, does it? > does anything about this disease make sense? Ev Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 12, 2002 Report Share Posted July 12, 2002 Mik, you know I agree with you.....and, yet, how can doctors still " add " Parkinson's OR Alzheimer's to a standing diagnosis of LBD?! That doesn't make good sense, does it? Mai-Liis I had this written in my LBD file: In Parkinson's: lose neurotransmitter dopamine In Alzheimer's: lose neurotransmitter acetylcholine In Lewy Body Disease: lose both of the above so I guess that's why some PD symptoms and a type of dementia all its own Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2002 Report Share Posted July 13, 2002 >I had this written in my LBD file: In Parkinson's: lose neurotransmitter dopamine In Alzheimer's: lose neurotransmitter acetylcholine In Lewy Body Disease: lose both of the above so I guess that's why some PD symptoms and a type of dementia all its own Thanks Mik for the reminder. It's something I also read last year but my own short term memory is shot. And somehow, can't remember this exactly either, treating one can be bad for the other. So the MD usually decides what to target, usually the acetylcholine. Imelda To learn more about Lewy Body Disase, please visit the Lewy Body Disease Association site at: http://www.lewybodydisease.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2002 Report Share Posted July 13, 2002 >I had this written in my LBD file: In Parkinson's: lose neurotransmitter dopamine In Alzheimer's: lose neurotransmitter acetylcholine In Lewy Body Disease: lose both of the above so I guess that's why some PD symptoms and a type of dementia all its own Thanks Mik for the reminder. It's something I also read last year but my own short term memory is shot. And somehow, can't remember this exactly either, treating one can be bad for the other. So the MD usually decides what to target, usually the acetylcholine. Imelda To learn more about Lewy Body Disase, please visit the Lewy Body Disease Association site at: http://www.lewybodydisease.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2002 Report Share Posted July 13, 2002 >I had this written in my LBD file: In Parkinson's: lose neurotransmitter dopamine In Alzheimer's: lose neurotransmitter acetylcholine In Lewy Body Disease: lose both of the above so I guess that's why some PD symptoms and a type of dementia all its own Thanks Mik for the reminder. It's something I also read last year but my own short term memory is shot. And somehow, can't remember this exactly either, treating one can be bad for the other. So the MD usually decides what to target, usually the acetylcholine. Imelda To learn more about Lewy Body Disase, please visit the Lewy Body Disease Association site at: http://www.lewybodydisease.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2002 Report Share Posted July 13, 2002 >Mik, you know I agree with you.....and, yet, how can doctors still " add " >Parkinson's OR Alzheimer's to a standing diagnosis of LBD?! That doesn't >make good sense, does it? >Mai-Liis Wil's neurologist seemed to be identifying specific Alzheimer's symptoms and distinguishing them from LBD. He said something about Wil not having a problem with word finding. Now, Wil does have a problem with word finding but it's actually better or at least not worse than when he was first diagnosed. My own take on Alzheimer's dementia is that the person becomes less aware of their condition than many people describe for LBD. Does anyone know of any specific Alzheimer's symptoms that don't fit the four LBD diagnostic criteria: dementia, Parkinsonism, halluncinations, and fluctuations in symptoms, plus maybe REM sleep disturbance.? Imelda To learn more about Lewy Body Disase, please visit the Lewy Body Disease Association site at: http://www.lewybodydisease.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2002 Report Share Posted July 13, 2002 >Mik, you know I agree with you.....and, yet, how can doctors still " add " >Parkinson's OR Alzheimer's to a standing diagnosis of LBD?! That doesn't >make good sense, does it? >Mai-Liis Wil's neurologist seemed to be identifying specific Alzheimer's symptoms and distinguishing them from LBD. He said something about Wil not having a problem with word finding. Now, Wil does have a problem with word finding but it's actually better or at least not worse than when he was first diagnosed. My own take on Alzheimer's dementia is that the person becomes less aware of their condition than many people describe for LBD. Does anyone know of any specific Alzheimer's symptoms that don't fit the four LBD diagnostic criteria: dementia, Parkinsonism, halluncinations, and fluctuations in symptoms, plus maybe REM sleep disturbance.? Imelda To learn more about Lewy Body Disase, please visit the Lewy Body Disease Association site at: http://www.lewybodydisease.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2002 Report Share Posted July 13, 2002 >Mik, you know I agree with you.....and, yet, how can doctors still " add " >Parkinson's OR Alzheimer's to a standing diagnosis of LBD?! That doesn't >make good sense, does it? >Mai-Liis Wil's neurologist seemed to be identifying specific Alzheimer's symptoms and distinguishing them from LBD. He said something about Wil not having a problem with word finding. Now, Wil does have a problem with word finding but it's actually better or at least not worse than when he was first diagnosed. My own take on Alzheimer's dementia is that the person becomes less aware of their condition than many people describe for LBD. Does anyone know of any specific Alzheimer's symptoms that don't fit the four LBD diagnostic criteria: dementia, Parkinsonism, halluncinations, and fluctuations in symptoms, plus maybe REM sleep disturbance.? Imelda To learn more about Lewy Body Disase, please visit the Lewy Body Disease Association site at: http://www.lewybodydisease.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2002 Report Share Posted July 13, 2002 In a message dated 2002-07-13 3:32:08 PM Eastern Daylight Time, sanclown@... writes: > . Does any of this make > sense or am I just babbling??? > You are in the same spot as many of us...the whole thing doesn't make sense, we are all hoping for miracles, when to tell the truth, I believe even the professionals are floundering Ev Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2002 Report Share Posted July 13, 2002 In a message dated 2002-07-13 3:32:08 PM Eastern Daylight Time, sanclown@... writes: > . Does any of this make > sense or am I just babbling??? > You are in the same spot as many of us...the whole thing doesn't make sense, we are all hoping for miracles, when to tell the truth, I believe even the professionals are floundering Ev Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2002 Report Share Posted July 13, 2002 In a message dated 7/13/02 2:32:04 PM Central Daylight Time, sanclown@... writes: > dementia of its own, that takes on characteristics of Alzheimer's and > Parkinson's " which I interpreted as it is its own disease, yet mimics > certain struggles from the other two diseases. Does any of this make sense > Makes GOOD sense to me. A lot like my own " cousin to Parksinson's and cousin to Alzheimer's, but different from each. " Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2002 Report Share Posted July 13, 2002 In a message dated 7/13/02 2:32:04 PM Central Daylight Time, sanclown@... writes: > dementia of its own, that takes on characteristics of Alzheimer's and > Parkinson's " which I interpreted as it is its own disease, yet mimics > certain struggles from the other two diseases. Does any of this make sense > Makes GOOD sense to me. A lot like my own " cousin to Parksinson's and cousin to Alzheimer's, but different from each. " Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2002 Report Share Posted July 13, 2002 In a message dated 7/13/02 3:18:05 PM Central Daylight Time, buev@... writes: > when to tell the truth, I believe even the professionals are floundering How true, Ev! The neurologist told me a few months that most of us have no idea what a huge project the research on memory disorders and dementias has become, and how diverse. Pushed by the baby-boomers reaching " that age. " Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2002 Report Share Posted July 13, 2002 In a message dated 7/13/02 3:18:05 PM Central Daylight Time, buev@... writes: > when to tell the truth, I believe even the professionals are floundering How true, Ev! The neurologist told me a few months that most of us have no idea what a huge project the research on memory disorders and dementias has become, and how diverse. Pushed by the baby-boomers reaching " that age. " Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2002 Report Share Posted July 13, 2002 My dads neurologist stated... " Diffuse Lewy Body Disease (or LBD) is a dementia of its own, that takes on characteristics of Alzheimer's and Parkinson's " which I interpreted as it is its own disease, yet mimics certain struggles from the other two diseases. Does any of this make sense or am I just babbling??? Sandie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2002 Report Share Posted July 13, 2002 My dads neurologist stated... " Diffuse Lewy Body Disease (or LBD) is a dementia of its own, that takes on characteristics of Alzheimer's and Parkinson's " which I interpreted as it is its own disease, yet mimics certain struggles from the other two diseases. Does any of this make sense or am I just babbling??? Sandie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2002 Report Share Posted July 13, 2002 Ev Thank you for responding. It is reassuring to know if I am truly not making sense, atleast I am not alone. :-) Sandie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2002 Report Share Posted July 13, 2002 In a message dated 7/13/02 10:07:29 PM Central Daylight Time, MaiLiis@... writes: > My own take on Alzheimer's dementia is that the person becomes less aware > of their condition than many people describe for LBD. Yes, and because of lack of fluctuations. For us, it is his awareness, when it comes, that makes us both know this is such a nasty disease. When he's " out of it " he has no idea . . . which is how I think of Alzheimer's. Right or wrong. Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2002 Report Share Posted July 13, 2002 In a message dated 7/13/02 10:07:29 PM Central Daylight Time, MaiLiis@... writes: > My own take on Alzheimer's dementia is that the person becomes less aware > of their condition than many people describe for LBD. Yes, and because of lack of fluctuations. For us, it is his awareness, when it comes, that makes us both know this is such a nasty disease. When he's " out of it " he has no idea . . . which is how I think of Alzheimer's. Right or wrong. Cheryl Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2002 Report Share Posted July 13, 2002 This is my understanding as well, Sandie. Mai-Liis My dads neurologist stated... " Diffuse Lewy Body Disease (or LBD) is a dementia of its own, that takes on characteristics of Alzheimer's and Parkinson's " which I interpreted as it is its own disease, yet mimics certain struggles from the other two diseases. Does any of this make sense or am I just babbling??? Sandie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2002 Report Share Posted July 13, 2002 This is my understanding as well, Sandie. Mai-Liis My dads neurologist stated... " Diffuse Lewy Body Disease (or LBD) is a dementia of its own, that takes on characteristics of Alzheimer's and Parkinson's " which I interpreted as it is its own disease, yet mimics certain struggles from the other two diseases. Does any of this make sense or am I just babbling??? Sandie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 13, 2002 Report Share Posted July 13, 2002 My own take on Alzheimer's dementia is that the person becomes less aware of their condition than many people describe for LBD. Does anyone know of any specific Alzheimer's symptoms that don't fit the four LBD diagnostic criteria: dementia, Parkinsonism, halluncinations, and fluctuations in symptoms, plus maybe REM sleep disturbance.? Imelda With Alzheimer's there are no Parkinsonian symptoms, no hallucinations until the last stage, no large fluctuations, PLUS there are much bigger problems with memory even in the earlier stages. It is quite different, and to me... strange that anyone could mistake the two diseases....but then I have known 10 Alzheimer patients from a group we used to attend. Mai-Liis Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2002 Report Share Posted July 14, 2002 Cheryl, You are right, AD people are very much unaware. I have a friend with a wife and she doesn't know if he is with her or gone. She is incontinent, and he feeds her ground up food. And she sleeps very well if she is sitting up or in bed, and for a good share of the day and night. She can stay with anyone and never knows. Hers has been a gradual slide down and my Mom who was in the same day care, knew and still knows when I leave her and has some sense of her surroundings. And Mom will still ask to go to the bathroom. My mom is 88 and my friend's wife is in her late 60's or early 70's. My Mom has make one statement sentences to my daughter that lets me know she knows. " I'll be glad when this if finally over. " And when my daughter praised Mom on something she remembered, she said, " yes, but it took all day to remember that one thing. " I think people who have LBD have a much more difficult time for many reasons in the nh than the AD person. Donna A balanced diet is a cookie in each hand. Courtsey of The-Mouth.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2002 Report Share Posted July 14, 2002 Cheryl, You are right, AD people are very much unaware. I have a friend with a wife and she doesn't know if he is with her or gone. She is incontinent, and he feeds her ground up food. And she sleeps very well if she is sitting up or in bed, and for a good share of the day and night. She can stay with anyone and never knows. Hers has been a gradual slide down and my Mom who was in the same day care, knew and still knows when I leave her and has some sense of her surroundings. And Mom will still ask to go to the bathroom. My mom is 88 and my friend's wife is in her late 60's or early 70's. My Mom has make one statement sentences to my daughter that lets me know she knows. " I'll be glad when this if finally over. " And when my daughter praised Mom on something she remembered, she said, " yes, but it took all day to remember that one thing. " I think people who have LBD have a much more difficult time for many reasons in the nh than the AD person. Donna A balanced diet is a cookie in each hand. Courtsey of The-Mouth.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 14, 2002 Report Share Posted July 14, 2002 Mai-Liis, They sleep!!!!!That for me was the one thing I knew Mom wasn't like the people in AD day care. Mom never even got tired. And I do believe it is a long gradual sloop down. Mom always felt like she was more on steps and some where far wider and deeper than others. We could go weeks and months at a time with no change and all of a sudden I was aware that a week ago she had taken another dive. Then she would so a stretch again and dive. It has just come closer and closer with the dives lately. Donna A balanced diet is a cookie in each hand. Courtsey of The-Mouth.com Quote Link to comment Share on other sites More sharing options...
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