Guest guest Posted April 18, 2002 Report Share Posted April 18, 2002 This little note from my mother raises a lot of questions for me all of a sudden. My aunt (mom's sister) has Rheumatoid Arthritis and Fibromyalgia. I always thought that was the link genetically (if there is one at all). Now this about my dad. Hmmm. Anyway, as most of you know I have been struggling with a staph infection for a while now. Finally getting healed up and I saw my rheumatologist tuesday. He said he is discontinuing my IV therapy (Remicade every 6wks). He is afraid the next infection I have could kill me. I have had one infection after another since starting this therapy, but I did feel better as far as pain, rash, fevers, etc.... Anyway, we have stopped the meds and will see how long my body can hold out. Could be a rocky time ahead. I'm scared, of course, but I have a real problem taking medicine that makes me sick. So, I'll try my best to stay well....and try my best to stay in touch Stay healthy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2002 Report Share Posted April 18, 2002 This little note from my mother raises a lot of questions for me all of a sudden. My aunt (mom's sister) has Rheumatoid Arthritis and Fibromyalgia. I always thought that was the link genetically (if there is one at all). Now this about my dad. Hmmm. Anyway, as most of you know I have been struggling with a staph infection for a while now. Finally getting healed up and I saw my rheumatologist tuesday. He said he is discontinuing my IV therapy (Remicade every 6wks). He is afraid the next infection I have could kill me. I have had one infection after another since starting this therapy, but I did feel better as far as pain, rash, fevers, etc.... Anyway, we have stopped the meds and will see how long my body can hold out. Could be a rocky time ahead. I'm scared, of course, but I have a real problem taking medicine that makes me sick. So, I'll try my best to stay well....and try my best to stay in touch Stay healthy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 18, 2002 Report Share Posted April 18, 2002 This little note from my mother raises a lot of questions for me all of a sudden. My aunt (mom's sister) has Rheumatoid Arthritis and Fibromyalgia. I always thought that was the link genetically (if there is one at all). Now this about my dad. Hmmm. Anyway, as most of you know I have been struggling with a staph infection for a while now. Finally getting healed up and I saw my rheumatologist tuesday. He said he is discontinuing my IV therapy (Remicade every 6wks). He is afraid the next infection I have could kill me. I have had one infection after another since starting this therapy, but I did feel better as far as pain, rash, fevers, etc.... Anyway, we have stopped the meds and will see how long my body can hold out. Could be a rocky time ahead. I'm scared, of course, but I have a real problem taking medicine that makes me sick. So, I'll try my best to stay well....and try my best to stay in touch Stay healthy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2002 Report Share Posted April 19, 2002 Dear , I will keep you in my prayers. You've had such a hard time and I pray that things will get better for you. Please let us know if there is anything we can do for you. Love and Lots of Warm Hugs, Kim shlface@... wrote: This little note from my mother raises a lot of questions for me all of a sudden. My aunt (mom's sister) has Rheumatoid Arthritis and Fibromyalgia. I always thought that was the link genetically (if there is one at all). Now this about my dad. Hmmm. Anyway, as most of you know I have been struggling with a staph infection for a while now. Finally getting healed up and I saw my rheumatologist tuesday. He said he is discontinuing my IV therapy (Remicade every 6wks). He is afraid the next infection I have could kill me. I have had one infection after another since starting this therapy, but I did feel better as far as pain, rash, fevers, etc.... Anyway, we have stopped the meds and will see how long my body can hold out. Could be a rocky time ahead. I'm scared, of course, but I have a real problem taking medicine that makes me sick. So, I'll try my best to stay well....and try my best to stay in touch Stay healthy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2002 Report Share Posted April 19, 2002 Dear , I will keep you in my prayers. You've had such a hard time and I pray that things will get better for you. Please let us know if there is anything we can do for you. Love and Lots of Warm Hugs, Kim shlface@... wrote: This little note from my mother raises a lot of questions for me all of a sudden. My aunt (mom's sister) has Rheumatoid Arthritis and Fibromyalgia. I always thought that was the link genetically (if there is one at all). Now this about my dad. Hmmm. Anyway, as most of you know I have been struggling with a staph infection for a while now. Finally getting healed up and I saw my rheumatologist tuesday. He said he is discontinuing my IV therapy (Remicade every 6wks). He is afraid the next infection I have could kill me. I have had one infection after another since starting this therapy, but I did feel better as far as pain, rash, fevers, etc.... Anyway, we have stopped the meds and will see how long my body can hold out. Could be a rocky time ahead. I'm scared, of course, but I have a real problem taking medicine that makes me sick. So, I'll try my best to stay well....and try my best to stay in touch Stay healthy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2002 Report Share Posted April 19, 2002 Dear , I will keep you in my prayers. You've had such a hard time and I pray that things will get better for you. Please let us know if there is anything we can do for you. Love and Lots of Warm Hugs, Kim shlface@... wrote: This little note from my mother raises a lot of questions for me all of a sudden. My aunt (mom's sister) has Rheumatoid Arthritis and Fibromyalgia. I always thought that was the link genetically (if there is one at all). Now this about my dad. Hmmm. Anyway, as most of you know I have been struggling with a staph infection for a while now. Finally getting healed up and I saw my rheumatologist tuesday. He said he is discontinuing my IV therapy (Remicade every 6wks). He is afraid the next infection I have could kill me. I have had one infection after another since starting this therapy, but I did feel better as far as pain, rash, fevers, etc.... Anyway, we have stopped the meds and will see how long my body can hold out. Could be a rocky time ahead. I'm scared, of course, but I have a real problem taking medicine that makes me sick. So, I'll try my best to stay well....and try my best to stay in touch Stay healthy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 19, 2002 Report Share Posted April 19, 2002 , I wish you all the best. You are very strong, and will hold out. All of my prayers are with you. I understand you are scared, just try to keep a positive outlook (maybe no more infections) and you will keep going. Sending you love and hugs- Love to all, Casaria __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 14, 2002 Report Share Posted October 14, 2002 Colostrum has really helped my mom who has Lupus. jp Hi Lance. Great post. I was just reading about how colostrum is immune system modulating. If your system is over amped, colostrum will mellow it out. If it is underfunctioning colostrum will bring it up to speed. In addition, it has nerve growth factor in it, which restores nerves. Perhaps this is why some people with MS have done well on colostrum as part of their protocol. Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2002 Report Share Posted October 26, 2002 I did, three types of lupus, skin, central nerous system and organ involvement. www.hbot4u.com lupus > > > Does anyone know of a person that has been successful in getting over or > better with this? And how should a young person with this start? > > Edith > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 26, 2002 Report Share Posted October 26, 2002 In a message dated 10/26/2002 2:00:25 AM Central Daylight Time, hyperbaric1@... writes: > I did, three types of lupus, skin, central nerous system and organ > involvement. > > What did these people do to become better? A young woman that has 3 very young children is not given very long to live. I think she has only done medical treatment. Edith Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 29, 2002 Report Share Posted October 29, 2002 Hi Edith. I have read of people taking large amounts of pure colostrum and seeing great benefit. It has immune factors in it, and nerve growth factors and so many body repairing factors that it can be remarkable. It can also be pricey to take a therapeutic amount. You can contact me off list for discount pricing if after you read up on colostrum you might want to try it. ruthful@... Blessings. Donna Re: lupus In a message dated 10/26/2002 2:00:25 AM Central Daylight Time, hyperbaric1@... writes: > I did, three types of lupus, skin, central nerous system and organ > involvement. > > What did these people do to become better? A young woman that has 3 very young children is not given very long to live. I think she has only done medical treatment. Edith Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 12, 2003 Report Share Posted March 12, 2003 Good friend of ours has just been diagnosed with LUPUS - albeit the outside, skin version of the disease, and she is going all scaly and splotchy. Does anyone have any information that can assist her with this condition? Regards Quote Link to comment Share on other sites More sharing options...
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