Guest guest Posted December 30, 2004 Report Share Posted December 30, 2004 Hello! I'm new to posting here but I've been reading for a while now while I've been having some 'technical hitches' which Carey kindly helped me out with yesterday! Before I start introducing myself, I just wanted to say how much I've enjoyed reading the posts here over the last few weeks.I've gained lots of useful info and advice already.Hopefully as time goes on maybe I'll be able to offer some too. My name's Kate and I live in the UK. I'm 25 and was diagnosed with Stills about 2 months ago after being ill for the last 18 months. It's been a real nightmare...in and out of hospitals/infectious diseases units getting misdiagnosed with lots of different things before finally being referred to a wonderful Rheumatologist who told me I'd got Stills staright away, particularly when i showed him some photos of my rashes! I'm a Social Worker but am currently not able to work. I've been living with my parents about 200 miles away for the last 8 months when I gave in and admitted that I needed some help. It's been really hard coming back to the sleepy little village where I grew up after living in a bustling city for 7 years but it was the smart move at the end of the day and I couldn't have managed without them.The loss of independence with this disease has hit me really hard though, as I guess it has us all. It's so good to talk to people who really understand. At the moment I'm still getting frequent rashes, fevers and joint pain/swelling but thankfully I'm pretty mobile at the moment thanks mainly to prenisolone I think! I've just started on Plaquenil too and am feeling sick and itchy but I'm hopeful that it will help in the long term-fingers crossed. Anyway,I'm hoping this reaches you all ok and that I'm now in full working order-technologically speaking!I keep trying to join one of the UK chats but haven't had any success for some reason but i will keep trying, especially if this post appears ok! Looking forward to getting to know you all. Best wishes Kate Quote Link to comment Share on other sites More sharing options...
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