Guest guest Posted October 30, 2000 Report Share Posted October 30, 2000 Hi list mates, I don't normally post, but I think I may have come across some valuable information regarding thyroid testing that I'd like to pass on. I have two daughters, one 13 and one 3 years of age with many autistic symptoms. I've always thought that they had thyroid issues, although they have both been tested for hypothyroidism by endochronologists with normal results. Recently I came across some information about the inaccuracies of the TSH thyroid test that is typically done and was done on my girls. I was sent this information on the better TRH test by another mother with similar issues. I am forwarding this to you with her permission. Our ped endo agreed to do the test on them after giving her this info and last week we had the TRH test done for my 13 year old. The results on the TRH came back ABNORMAL AND NOW SHE IS GOING TO PUT HER ON THYROID MEDICATION! Finally after doing other thyroid tests over many years her hypothyroidism has been properly diagnosed !!! I can't wait to have this done on my 3 year old to see if she too is hypothyroid even though her other tests were normal, but may have been inaccurate as well. My 13 year old has so many issues that I feel may have been helped many years ago. Thyroid issues may be a problem for many of our girls especially. I don't know a tremendous amount yet but am continuing to learn a lot more about the thyroid and how important it can be to our kiddos. I have more thyroid info that I can send that is helpful as well. The TRH info that was sent to me by another mom will follow. Best Wishes, , The TRH test is actually a pituitary test, in doing the TRH it makes the thyroid work, then measures how well it is working. Most Doctor's steer clear of the test because it is a timed test, and they opt to do the quick TSH test. But the TSH only measures the amount of thyroid hormone in the blood stream, which may be within the normal ranges. If the body can not convert the T4 to T3 where it is usable on a cellular level then you are still hypothyroid and go untreated and unrecognized by most doctor's. The following attachment will explain the TRH. I will also send you a copy of a letter I had written several year's ago to Dr. Rhimland as it tell's you all the symptom's my daughter had, and all the symptom's connected to a low thyroid. It took me 7 year's to find a doctor who would run the TRH, then he didn't know how to interpet the result's and tried to tell me it was normal!!! However, I did know how to read the test. The normal TSH range is (0.35 - 5.50) after the injection via a butterfly in the back of the hand, the TSH at 1/2 hour should raise only 10 point's....so should be NO HIGHER then 15.50 (my daughter's was 44.035), at the 1 hour after injection TSH it should be back in the normal range of 0.35-5.50, again my daughter's was 28.35. I alway's get copies of the test because a lot of times doctor's will tell you " it's normal " when it's borderline low, or borderline high. My daughter after we started the thyroid replacement ....she takes 180 mg. of Armour Thyroid which is a T4/T3 combination, the regular endo's just want to prescribe Synthroid and if you can't convert the T4 which Synthroid is....it doesn't benefit you at all. She started with 30 mg. and then kept increasing until we got her body temperature up into a normal range 97.6-98.6. She went from 43 lbs. (which she had been for year's) to 86 lbs., she also grew tremendously in height. She went from being sick ALL the time with ear infection's, sore throat's, upper respiratory infection's, etc. to NEVER being sick in the past 4 year's. She went from totally non-verbal to talking, she sometimes will say a few word's but can when she want's too talk in full sentences. She started absorbing food and her appetite and variety of food increased substantially. She is much more focused, and very social. Hope this is helpful. Shirley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2000 Report Share Posted October 30, 2000 Hi list mates, I don't normally post, but I think I may have come across some valuable information regarding thyroid testing that I'd like to pass on. I have two daughters, one 13 and one 3 years of age with many autistic symptoms. I've always thought that they had thyroid issues, although they have both been tested for hypothyroidism by endochronologists with normal results. Recently I came across some information about the inaccuracies of the TSH thyroid test that is typically done and was done on my girls. I was sent this information on the better TRH test by another mother with similar issues. I am forwarding this to you with her permission. Our ped endo agreed to do the test on them after giving her this info and last week we had the TRH test done for my 13 year old. The results on the TRH came back ABNORMAL AND NOW SHE IS GOING TO PUT HER ON THYROID MEDICATION! Finally after doing other thyroid tests over many years her hypothyroidism has been properly diagnosed !!! I can't wait to have this done on my 3 year old to see if she too is hypothyroid even though her other tests were normal, but may have been inaccurate as well. My 13 year old has so many issues that I feel may have been helped many years ago. Thyroid issues may be a problem for many of our girls especially. I don't know a tremendous amount yet but am continuing to learn a lot more about the thyroid and how important it can be to our kiddos. I have more thyroid info that I can send that is helpful as well. The TRH info that was sent to me by another mom will follow. Best Wishes, , The TRH test is actually a pituitary test, in doing the TRH it makes the thyroid work, then measures how well it is working. Most Doctor's steer clear of the test because it is a timed test, and they opt to do the quick TSH test. But the TSH only measures the amount of thyroid hormone in the blood stream, which may be within the normal ranges. If the body can not convert the T4 to T3 where it is usable on a cellular level then you are still hypothyroid and go untreated and unrecognized by most doctor's. The following attachment will explain the TRH. I will also send you a copy of a letter I had written several year's ago to Dr. Rhimland as it tell's you all the symptom's my daughter had, and all the symptom's connected to a low thyroid. It took me 7 year's to find a doctor who would run the TRH, then he didn't know how to interpet the result's and tried to tell me it was normal!!! However, I did know how to read the test. The normal TSH range is (0.35 - 5.50) after the injection via a butterfly in the back of the hand, the TSH at 1/2 hour should raise only 10 point's....so should be NO HIGHER then 15.50 (my daughter's was 44.035), at the 1 hour after injection TSH it should be back in the normal range of 0.35-5.50, again my daughter's was 28.35. I alway's get copies of the test because a lot of times doctor's will tell you " it's normal " when it's borderline low, or borderline high. My daughter after we started the thyroid replacement ....she takes 180 mg. of Armour Thyroid which is a T4/T3 combination, the regular endo's just want to prescribe Synthroid and if you can't convert the T4 which Synthroid is....it doesn't benefit you at all. She started with 30 mg. and then kept increasing until we got her body temperature up into a normal range 97.6-98.6. She went from 43 lbs. (which she had been for year's) to 86 lbs., she also grew tremendously in height. She went from being sick ALL the time with ear infection's, sore throat's, upper respiratory infection's, etc. to NEVER being sick in the past 4 year's. She went from totally non-verbal to talking, she sometimes will say a few word's but can when she want's too talk in full sentences. She started absorbing food and her appetite and variety of food increased substantially. She is much more focused, and very social. Hope this is helpful. Shirley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 30, 2000 Report Share Posted October 30, 2000 Hi list mates, I don't normally post, but I think I may have come across some valuable information regarding thyroid testing that I'd like to pass on. I have two daughters, one 13 and one 3 years of age with many autistic symptoms. I've always thought that they had thyroid issues, although they have both been tested for hypothyroidism by endochronologists with normal results. Recently I came across some information about the inaccuracies of the TSH thyroid test that is typically done and was done on my girls. I was sent this information on the better TRH test by another mother with similar issues. I am forwarding this to you with her permission. Our ped endo agreed to do the test on them after giving her this info and last week we had the TRH test done for my 13 year old. The results on the TRH came back ABNORMAL AND NOW SHE IS GOING TO PUT HER ON THYROID MEDICATION! Finally after doing other thyroid tests over many years her hypothyroidism has been properly diagnosed !!! I can't wait to have this done on my 3 year old to see if she too is hypothyroid even though her other tests were normal, but may have been inaccurate as well. My 13 year old has so many issues that I feel may have been helped many years ago. Thyroid issues may be a problem for many of our girls especially. I don't know a tremendous amount yet but am continuing to learn a lot more about the thyroid and how important it can be to our kiddos. I have more thyroid info that I can send that is helpful as well. The TRH info that was sent to me by another mom will follow. Best Wishes, , The TRH test is actually a pituitary test, in doing the TRH it makes the thyroid work, then measures how well it is working. Most Doctor's steer clear of the test because it is a timed test, and they opt to do the quick TSH test. But the TSH only measures the amount of thyroid hormone in the blood stream, which may be within the normal ranges. If the body can not convert the T4 to T3 where it is usable on a cellular level then you are still hypothyroid and go untreated and unrecognized by most doctor's. The following attachment will explain the TRH. I will also send you a copy of a letter I had written several year's ago to Dr. Rhimland as it tell's you all the symptom's my daughter had, and all the symptom's connected to a low thyroid. It took me 7 year's to find a doctor who would run the TRH, then he didn't know how to interpet the result's and tried to tell me it was normal!!! However, I did know how to read the test. The normal TSH range is (0.35 - 5.50) after the injection via a butterfly in the back of the hand, the TSH at 1/2 hour should raise only 10 point's....so should be NO HIGHER then 15.50 (my daughter's was 44.035), at the 1 hour after injection TSH it should be back in the normal range of 0.35-5.50, again my daughter's was 28.35. I alway's get copies of the test because a lot of times doctor's will tell you " it's normal " when it's borderline low, or borderline high. My daughter after we started the thyroid replacement ....she takes 180 mg. of Armour Thyroid which is a T4/T3 combination, the regular endo's just want to prescribe Synthroid and if you can't convert the T4 which Synthroid is....it doesn't benefit you at all. She started with 30 mg. and then kept increasing until we got her body temperature up into a normal range 97.6-98.6. She went from 43 lbs. (which she had been for year's) to 86 lbs., she also grew tremendously in height. She went from being sick ALL the time with ear infection's, sore throat's, upper respiratory infection's, etc. to NEVER being sick in the past 4 year's. She went from totally non-verbal to talking, she sometimes will say a few word's but can when she want's too talk in full sentences. She started absorbing food and her appetite and variety of food increased substantially. She is much more focused, and very social. Hope this is helpful. Shirley Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2000 Report Share Posted October 31, 2000 Welcome to the list ,Donna . Your daughter sounds just like my .ABA is a great program. My two cents is test for allergies. has bad reaction to any thing with a red dye in it. Your family is in our prayers .Sincerely , Donna ( mom to 15 autism and 8 ) ----------------------------------------------------- Click here for Free Video!! http://www.gohip.com/freevideo/ Re:New to list > >----- Original Message ----- > > >> >> >> >> >> > >> >> >> >> > >> >> >we >> > >> > >> >> >Hi, >My name is Donna, and I am new to the list. I would like to describe my >daughter lauren who just turned 2, and get some feed back from you. I'm >wondering if she could have a syndrome, or if its just non-specific autism. >She was adopted at 8 months of age. From the begining, she was very >rejecting when held - cried looked away and arched away, always, 100% of the >time unless being fed a bottle, of being carried to the car or somewhere >similar. She had lots of oral problems, poor suck, texture and temperature >sensitivities. She had and has a very loose floppy body, and is unsteady in >her motor skills which came on time. She laughs way too hard and odd things >usually visually stimulating. She was and is still way too content to be >sitting in a swing that is no longer swinging, or in a high chair after she >is done eating, etc. She fixates on water and sand ( this has improved to >more purposeful play). She use to cry everytime she was laid down to change >her diaper. She shakes her head, stares at her hands, taps objects together, >stares at her reflection or shadow,. Easily gets over excited and flops on >her back squeling and waving her arms and legs. She was non resonsive to >her name and avoinded eye contact. She has a very receded hair line and >thin hair. She has a turned up nose and upper lip with a very defined >vertical groove between her nose and mouth ( I know there is a name for it >but I don't know it). Her uvula is just a stump. Her ears smelled, as did >her rear end, and she had a taste on her skin which I noticed after kissing >her. I started the gfcf diet 3 months ago, and noiticed big improvment >after one week.. The smells and tastes went away. She has almost normal eye >contact, and she gives and receives affection. She responds to her name. >Comes when called, she says hi and bye appropriately (which she did before). >She spent (its improving) a lot of time roaming looking for a fix, and >engaging in encessant babble which is often in a deep loud voice. She still >has lots of sensory issues and very poor almost non existent receptive >language. She repeats lines from songs and imitates motions to songs(also >did before the diet) THe diet has mostly been an emotional breakthrough, >which is great, but language so far does'nt seem overly impacted. Her >repetitive and sensory behaviors go up and down so its hard to say. Her >eating problems have greatly improved. The diet seems to be part of her >solution, and I am strongly considering a home aba program. If any or all of >this sounds familiar, please give me you two cents. She has her first >neurologist appointment in a week, and I 'd like to know what syndromes >would be good ones to test for. Thanks for any help you can give. As you >know, this is a long, tough process. >Donna > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2000 Report Share Posted October 31, 2000 Welcome to the list ,Donna . Your daughter sounds just like my .ABA is a great program. My two cents is test for allergies. has bad reaction to any thing with a red dye in it. Your family is in our prayers .Sincerely , Donna ( mom to 15 autism and 8 ) ----------------------------------------------------- Click here for Free Video!! http://www.gohip.com/freevideo/ Re:New to list > >----- Original Message ----- > > >> >> >> >> >> > >> >> >> >> > >> >> >we >> > >> > >> >> >Hi, >My name is Donna, and I am new to the list. I would like to describe my >daughter lauren who just turned 2, and get some feed back from you. I'm >wondering if she could have a syndrome, or if its just non-specific autism. >She was adopted at 8 months of age. From the begining, she was very >rejecting when held - cried looked away and arched away, always, 100% of the >time unless being fed a bottle, of being carried to the car or somewhere >similar. She had lots of oral problems, poor suck, texture and temperature >sensitivities. She had and has a very loose floppy body, and is unsteady in >her motor skills which came on time. She laughs way too hard and odd things >usually visually stimulating. She was and is still way too content to be >sitting in a swing that is no longer swinging, or in a high chair after she >is done eating, etc. She fixates on water and sand ( this has improved to >more purposeful play). She use to cry everytime she was laid down to change >her diaper. She shakes her head, stares at her hands, taps objects together, >stares at her reflection or shadow,. Easily gets over excited and flops on >her back squeling and waving her arms and legs. She was non resonsive to >her name and avoinded eye contact. She has a very receded hair line and >thin hair. She has a turned up nose and upper lip with a very defined >vertical groove between her nose and mouth ( I know there is a name for it >but I don't know it). Her uvula is just a stump. Her ears smelled, as did >her rear end, and she had a taste on her skin which I noticed after kissing >her. I started the gfcf diet 3 months ago, and noiticed big improvment >after one week.. The smells and tastes went away. She has almost normal eye >contact, and she gives and receives affection. She responds to her name. >Comes when called, she says hi and bye appropriately (which she did before). >She spent (its improving) a lot of time roaming looking for a fix, and >engaging in encessant babble which is often in a deep loud voice. She still >has lots of sensory issues and very poor almost non existent receptive >language. She repeats lines from songs and imitates motions to songs(also >did before the diet) THe diet has mostly been an emotional breakthrough, >which is great, but language so far does'nt seem overly impacted. Her >repetitive and sensory behaviors go up and down so its hard to say. Her >eating problems have greatly improved. The diet seems to be part of her >solution, and I am strongly considering a home aba program. If any or all of >this sounds familiar, please give me you two cents. She has her first >neurologist appointment in a week, and I 'd like to know what syndromes >would be good ones to test for. Thanks for any help you can give. As you >know, this is a long, tough process. >Donna > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2000 Report Share Posted October 31, 2000 Welcome to the list ,Donna . Your daughter sounds just like my .ABA is a great program. My two cents is test for allergies. has bad reaction to any thing with a red dye in it. Your family is in our prayers .Sincerely , Donna ( mom to 15 autism and 8 ) ----------------------------------------------------- Click here for Free Video!! http://www.gohip.com/freevideo/ Re:New to list > >----- Original Message ----- > > >> >> >> >> >> > >> >> >> >> > >> >> >we >> > >> > >> >> >Hi, >My name is Donna, and I am new to the list. I would like to describe my >daughter lauren who just turned 2, and get some feed back from you. I'm >wondering if she could have a syndrome, or if its just non-specific autism. >She was adopted at 8 months of age. From the begining, she was very >rejecting when held - cried looked away and arched away, always, 100% of the >time unless being fed a bottle, of being carried to the car or somewhere >similar. She had lots of oral problems, poor suck, texture and temperature >sensitivities. She had and has a very loose floppy body, and is unsteady in >her motor skills which came on time. She laughs way too hard and odd things >usually visually stimulating. She was and is still way too content to be >sitting in a swing that is no longer swinging, or in a high chair after she >is done eating, etc. She fixates on water and sand ( this has improved to >more purposeful play). She use to cry everytime she was laid down to change >her diaper. She shakes her head, stares at her hands, taps objects together, >stares at her reflection or shadow,. Easily gets over excited and flops on >her back squeling and waving her arms and legs. She was non resonsive to >her name and avoinded eye contact. She has a very receded hair line and >thin hair. She has a turned up nose and upper lip with a very defined >vertical groove between her nose and mouth ( I know there is a name for it >but I don't know it). Her uvula is just a stump. Her ears smelled, as did >her rear end, and she had a taste on her skin which I noticed after kissing >her. I started the gfcf diet 3 months ago, and noiticed big improvment >after one week.. The smells and tastes went away. She has almost normal eye >contact, and she gives and receives affection. She responds to her name. >Comes when called, she says hi and bye appropriately (which she did before). >She spent (its improving) a lot of time roaming looking for a fix, and >engaging in encessant babble which is often in a deep loud voice. She still >has lots of sensory issues and very poor almost non existent receptive >language. She repeats lines from songs and imitates motions to songs(also >did before the diet) THe diet has mostly been an emotional breakthrough, >which is great, but language so far does'nt seem overly impacted. Her >repetitive and sensory behaviors go up and down so its hard to say. Her >eating problems have greatly improved. The diet seems to be part of her >solution, and I am strongly considering a home aba program. If any or all of >this sounds familiar, please give me you two cents. She has her first >neurologist appointment in a week, and I 'd like to know what syndromes >would be good ones to test for. Thanks for any help you can give. As you >know, this is a long, tough process. >Donna > > > > > > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2000 Report Share Posted October 31, 2000 Hi Donna, It is great that you started the diet so young. we started doing ABA with my daughter when she was 3. It helped tremendously with receptive and expressive language. If it is an option I would sure look into it. We didn't do the 40 hours, just 14 hrs. and preschool. By the way is your daughter getting help from early intervention now?? GOod luck, this is a great place to get information. Joanna -- In Autism_in_Girlsegroups, " dmahaney " <dmahaney@b...> wrote: > > ----- Original Message ----- > > >> > > >> >> >> > > > >> >> >> > > > >> >we > > > >> > > > >> >Hi, > My name is Donna, and I am new to the list. I would like to describe my > daughter lauren who just turned 2, and get some feed back from you. I'm > wondering if she could have a syndrome, or if its just non-specific autism. > She was adopted at 8 months of age. From the begining, she was very > rejecting when held - cried looked away and arched away, always, 100% of the > time unless being fed a bottle, of being carried to the car or somewhere > similar. She had lots of oral problems, poor suck, texture and temperature > sensitivities. She had and has a very loose floppy body, and is unsteady in > her motor skills which came on time. She laughs way too hard and odd things > usually visually stimulating. She was and is still way too content to be > sitting in a swing that is no longer swinging, or in a high chair after she > is done eating, etc. She fixates on water and sand ( this has improved to > more purposeful play). She use to cry everytime she was laid down to change > her diaper. She shakes her head, stares at her hands, taps objects together, > stares at her reflection or shadow,. Easily gets over excited and flops on > her back squeling and waving her arms and legs. She was non resonsive to > her name and avoinded eye contact. She has a very receded hair line and > thin hair. She has a turned up nose and upper lip with a very defined > vertical groove between her nose and mouth ( I know there is a name for it > but I don't know it). Her uvula is just a stump. Her ears smelled, as did > her rear end, and she had a taste on her skin which I noticed after kissing > her. I started the gfcf diet 3 months ago, and noiticed big improvment > after one week.. The smells and tastes went away. She has almost normal eye > contact, and she gives and receives affection. She responds to her name. > Comes when called, she says hi and bye appropriately (which she did before). > She spent (its improving) a lot of time roaming looking for a fix, and > engaging in encessant babble which is often in a deep loud voice. She still > has lots of sensory issues and very poor almost non existent receptive > language. She repeats lines from songs and imitates motions to songs(also > did before the diet) THe diet has mostly been an emotional breakthrough, > which is great, but language so far does'nt seem overly impacted. Her > repetitive and sensory behaviors go up and down so its hard to say. Her > eating problems have greatly improved. The diet seems to be part of her > solution, and I am strongly considering a home aba program. If any or all of > this sounds familiar, please give me you two cents. She has her first > neurologist appointment in a week, and I 'd like to know what syndromes > would be good ones to test for. Thanks for any help you can give. As you > know, this is a long, tough process. > Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2000 Report Share Posted October 31, 2000 Hi Donna, It is great that you started the diet so young. we started doing ABA with my daughter when she was 3. It helped tremendously with receptive and expressive language. If it is an option I would sure look into it. We didn't do the 40 hours, just 14 hrs. and preschool. By the way is your daughter getting help from early intervention now?? GOod luck, this is a great place to get information. Joanna -- In Autism_in_Girlsegroups, " dmahaney " <dmahaney@b...> wrote: > > ----- Original Message ----- > > >> > > >> >> >> > > > >> >> >> > > > >> >we > > > >> > > > >> >Hi, > My name is Donna, and I am new to the list. I would like to describe my > daughter lauren who just turned 2, and get some feed back from you. I'm > wondering if she could have a syndrome, or if its just non-specific autism. > She was adopted at 8 months of age. From the begining, she was very > rejecting when held - cried looked away and arched away, always, 100% of the > time unless being fed a bottle, of being carried to the car or somewhere > similar. She had lots of oral problems, poor suck, texture and temperature > sensitivities. She had and has a very loose floppy body, and is unsteady in > her motor skills which came on time. She laughs way too hard and odd things > usually visually stimulating. She was and is still way too content to be > sitting in a swing that is no longer swinging, or in a high chair after she > is done eating, etc. She fixates on water and sand ( this has improved to > more purposeful play). She use to cry everytime she was laid down to change > her diaper. She shakes her head, stares at her hands, taps objects together, > stares at her reflection or shadow,. Easily gets over excited and flops on > her back squeling and waving her arms and legs. She was non resonsive to > her name and avoinded eye contact. She has a very receded hair line and > thin hair. She has a turned up nose and upper lip with a very defined > vertical groove between her nose and mouth ( I know there is a name for it > but I don't know it). Her uvula is just a stump. Her ears smelled, as did > her rear end, and she had a taste on her skin which I noticed after kissing > her. I started the gfcf diet 3 months ago, and noiticed big improvment > after one week.. The smells and tastes went away. She has almost normal eye > contact, and she gives and receives affection. She responds to her name. > Comes when called, she says hi and bye appropriately (which she did before). > She spent (its improving) a lot of time roaming looking for a fix, and > engaging in encessant babble which is often in a deep loud voice. She still > has lots of sensory issues and very poor almost non existent receptive > language. She repeats lines from songs and imitates motions to songs(also > did before the diet) THe diet has mostly been an emotional breakthrough, > which is great, but language so far does'nt seem overly impacted. Her > repetitive and sensory behaviors go up and down so its hard to say. Her > eating problems have greatly improved. The diet seems to be part of her > solution, and I am strongly considering a home aba program. If any or all of > this sounds familiar, please give me you two cents. She has her first > neurologist appointment in a week, and I 'd like to know what syndromes > would be good ones to test for. Thanks for any help you can give. As you > know, this is a long, tough process. > Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted October 31, 2000 Report Share Posted October 31, 2000 Hi Donna, It is great that you started the diet so young. we started doing ABA with my daughter when she was 3. It helped tremendously with receptive and expressive language. If it is an option I would sure look into it. We didn't do the 40 hours, just 14 hrs. and preschool. By the way is your daughter getting help from early intervention now?? GOod luck, this is a great place to get information. Joanna -- In Autism_in_Girlsegroups, " dmahaney " <dmahaney@b...> wrote: > > ----- Original Message ----- > > >> > > >> >> >> > > > >> >> >> > > > >> >we > > > >> > > > >> >Hi, > My name is Donna, and I am new to the list. I would like to describe my > daughter lauren who just turned 2, and get some feed back from you. I'm > wondering if she could have a syndrome, or if its just non-specific autism. > She was adopted at 8 months of age. From the begining, she was very > rejecting when held - cried looked away and arched away, always, 100% of the > time unless being fed a bottle, of being carried to the car or somewhere > similar. She had lots of oral problems, poor suck, texture and temperature > sensitivities. She had and has a very loose floppy body, and is unsteady in > her motor skills which came on time. She laughs way too hard and odd things > usually visually stimulating. She was and is still way too content to be > sitting in a swing that is no longer swinging, or in a high chair after she > is done eating, etc. She fixates on water and sand ( this has improved to > more purposeful play). She use to cry everytime she was laid down to change > her diaper. She shakes her head, stares at her hands, taps objects together, > stares at her reflection or shadow,. Easily gets over excited and flops on > her back squeling and waving her arms and legs. She was non resonsive to > her name and avoinded eye contact. She has a very receded hair line and > thin hair. She has a turned up nose and upper lip with a very defined > vertical groove between her nose and mouth ( I know there is a name for it > but I don't know it). Her uvula is just a stump. Her ears smelled, as did > her rear end, and she had a taste on her skin which I noticed after kissing > her. I started the gfcf diet 3 months ago, and noiticed big improvment > after one week.. The smells and tastes went away. She has almost normal eye > contact, and she gives and receives affection. She responds to her name. > Comes when called, she says hi and bye appropriately (which she did before). > She spent (its improving) a lot of time roaming looking for a fix, and > engaging in encessant babble which is often in a deep loud voice. She still > has lots of sensory issues and very poor almost non existent receptive > language. She repeats lines from songs and imitates motions to songs(also > did before the diet) THe diet has mostly been an emotional breakthrough, > which is great, but language so far does'nt seem overly impacted. Her > repetitive and sensory behaviors go up and down so its hard to say. Her > eating problems have greatly improved. The diet seems to be part of her > solution, and I am strongly considering a home aba program. If any or all of > this sounds familiar, please give me you two cents. She has her first > neurologist appointment in a week, and I 'd like to know what syndromes > would be good ones to test for. Thanks for any help you can give. As you > know, this is a long, tough process. > Donna Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 22, 2002 Report Share Posted April 22, 2002 Hi everyone! My name is and we are in San but will move to Austin area next month. My 4 yr old daughter has been seeing a neurologist who says she has a " processing disorder " which falls under the pdd spectum. When I asked if she was autistic he said he didn't like the term because it is " overused. " He ordered an eeg to check for seizures and did not find any but saw some abnormal brain activity on the left hemisphere so he prescribed Tegretol which does seem to be helping quite a bit. The downside is that it tends to make her lethargic and she has gained 4 pounds since being on medication. My husband wants to get her off med and go with a behavioral approach. Anyone know of good treatment options in Austin area? Also what about schools? We haven't bought house yet but are looking at the Buda area because we have heard their schools are good and we can't afford private. Any information about Austin or general things I need to know would be great. --------------------------------- Quote Link to comment Share on other sites More sharing options...
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