Re: Any awareness of whats going on in science?

January 18, 2003

You know, while it's great to hear about new information, it is kind of

annoying to have it presented in such an antagonistic way. These parents do

in fact do much research, all while taking care of a child or children with

autism. That alone would be a full time job but they also deal with school

systems that are antagonistic to their children, a government that wants to

pretend that their children do not exist and doctors who spout the holy word

of the pharmaceutical companies.

These parent's are going to conferences on autism, spending thousands of

dollars and as many hours on ABA and any other possibly promising treatment.

Some of them are using the DAN or other protocols to chelate the mercury out

of their children, many of these same parents use supplements from companies

such as Kirkman's lab and even Epsom salt treatments. Some of these parent's

are using the NIDS protocol, some using Secretin and probably a dozen other

things I'm not aware of.

I feel it is rude to imply that parents are not doing research. Heck, most

of the time, they are the only ones doing research! The NIH, CDC, FDA and

IOM sure aren't or when they do, it's tailored to avoid that sticky

thimerosal issue.

So you see, what you have here is yet another treatment for autism, one

among many. Is it as good or better than what we already have? I don't know.

I haven't researched it yet. I will though, and then I will decide for

myself. It's the same thing that every other parent here will do.

Please feel free to give us URLs and other citing references. But don't feel

free to add in condemnation, no matter how much you think these parents are

slackers. Walk a mile in their shoes.........

Avalon, RN

Any awareness of whats going on in science?

Sorry this is long:

I came across this site sort of by accident; you know, hit and miss

with internet topic search. I'm from MN and I was looking up some

information for my sister who is a teacher for High level Autism

children in andria, VA. Your group must not be aware that a huge

number of children and adults, especially those with Autism, ADD and

ADHD are regaining their health with glyconutrients. How come when I

put this in the search on your site, there is nothing written? Here

you are in the state of TEXAS and you don't know about this? That's

where they are being produced!

Parents!!! You have to do your research!!!!!! Natural products are

available and have been since 96',(I think?)

It's in the recent news, medical journals, and even being taught in

the medical universities.

I cut and pasted a few articles below.

A medical/layperson site is: www.usaglycoscience.com

I personally consume it, not that I'm autistic, but just to stay

healthy.

This is their toll free information line:

The order number is:

Your first time order ID is 710818 then you get your own.

For God's sakes get this stuff into your kids!!!! You know we can't

improve if we aren't eating well, and none of us eat well. These

glyconutrients build your immune system so your cells recognize what

it is bumping into. The immune system, if healthy, determines if it's

good or if it's bad and what to do about it.

January 18, 2003

In a message dated 1/18/03 4:27:06 PM Central Standard Time,

maryann_tfw@... writes:

> Your group must not be aware that a huge number of children and adults,

> especially those with Autism, ADD and ADHD are regaining their health with

>

Just because sometimg doesn't come up in a search of a certain list, don't

assume " we parents " don't know anything about it. There have been many many

things that have been touted as " cures " or radical breakthroughs and many of

us know quite a bit about most of them. We tend to discuss the things we

personally have seen benefit from more than others.

I recall glyconutrients were being pushed really big around the time my son

was first diagnosed in 1995 and then again at several conventions or seminars

throughout the following seven years. The " science " behind them sounds

really great but of those I know who have used them, they just haven't seen

the big results touted. I've known many many families who have tried them

and only a few who thought they saw any benefits at all. The only people who

I know who have used them long-term were the ones selling them. Now, perhaps

that's because they were really impressed with the product but compared to

other interventions I've watched through the years, the glyconutrients just

really didn't seem to provide as much benefit to large numbers of kids or

even a substantial subgroup of autistic kids.

Now, it's great of you to share this information with the list but I'd

recommend you change your message a bit to be less insulting of the readers'

experience and intelligence. State your information respectfully and people

will be much more likely to consider it.

Gaylen

January 18, 2003

If you have something to say (or sell) then you can just post it to us

" ignorant parents " . We don't need the lectures please.

Let me see, so far, the following have cured autistic children except mine

ofcourse:

Secretin

GFCF diet

ABA

TEACCH

sonrise

carnosine

chelation

Mt prompter

supernuthera

B6/magnesium

spark (by the way has anyone used this yet? I just heard about this)

TFFD

Allithiamine

epsolm salt bath

IVIG

Zinc

NACT

OT

ST

sensory integration

verbal behavior

.....etc and million other things.

Just google on Autism and treatment and see how many of them you find out

there... sorry I missed yours.