Guest guest Posted April 28, 2003 Report Share Posted April 28, 2003 Hi Debbie Reuben my 10 year old was diagnosed in dec 2000... mid jan I found a site telling about the g/f c/f (casin free) diet... well I just couldnt ignore it... I took him off all dairy... so he only has soy...then took him off all wheat!!!! well he was on it for 3 weeks and it was the second week of school.... I thought heck this is working so just put a sandwich in for him for school... well about 45mins after him eating he went off his tree... all the old behaviours... thru chairs choked a kid... kicked over desks and ran off!!!! well that was proof for me... there have been times when he has had gluten either by mistake or on purpose by my ex... (long story of when we split up) and you can tell by his eyes... and becomes a lunatic!!!! I only a allow a small amount of cheese in his diet and no milk... He can have a few nugget if we go to macdonalds... but that is once a fortnight... I have found that he only reacts to huge amounts of it... ie bread/batter etc the gluten in say bolonaise mixes dont effect him... he cant have spaghetti but there are alot of rice pastas out that dont taste too bad... Email me anytime... kimwheat@... hugs Kim Wheaton18/2003 scrapbook pagesNo man or woman is worth your tears, and the one who is, won't make you cry. View my items for sale at http://au.groups.yahoo.com/group/ozsaleswaportrade/database?method=reportRows & tbl=1My favourite shop: www.scrapthat.net.auMy favourite site: www.ourcreativecompanion.com www.twopeasinabucket.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2003 Report Share Posted April 28, 2003 dairy/casein containing items can cause aggression, lack of focus, etc.etc.... GFCF works for some, GF or CF, SCD - low phenol, etc. Depends on your kid, and what caused/is causing the problems. Mine loved milk & cheese- I wanted my son back- good bye to dairy. I run my home, not my kids. It is up to me and their dad to do what is best for overall well being-not what is easy, enjoyable or popular. Once we got through withdrawal, life has been much easier for everyone- especially him- as now he can focus, his stomach does not hurt- and he has not had an ear infection since. Better to try things that do no harm and have no results than to have regrets over not trying later. It is not that rough and gets to be routine over time- I focus on what he can eat- and the benefits far outweigh the negatives. Cj Gluten Free Diet My 5 year old has Aspergers and we have been trailing a gf diet for a few weeks with no noticeable success. I thought that his behaviour should have improved a bit by now if it was going to work. I was wondering if anyone has trailed a gluten free diet? Also, should I remove dairy products from his diet as well? He loves milk and it would be a huge adjustment, with all of the dramas that go with it so I have put that one in the 'too hard' basket for the moment. If I don't get some sort of control over his behaviour I'll have to look into medicating him. He is running our entire household. What do you think? Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2003 Report Share Posted April 28, 2003 Is there any sort of test that you can have done to find out exactly what your child is sensitive to? Debbie -----Original Message-----From: Cj Sent: Monday, 28 April 2003 11:48 PMTo: autism-aspergers Subject: Re: Gluten Free Diet dairy/casein containing items can cause aggression, lack of focus, etc.etc.... GFCF works for some, GF or CF, SCD - low phenol, etc. Depends on your kid, and what caused/is causing the problems. Mine loved milk & cheese- I wanted my son back- good bye to dairy. I run my home, not my kids. It is up to me and their dad to do what is best for overall well being-not what is easy, enjoyable or popular. Once we got through withdrawal, life has been much easier for everyone- especially him- as now he can focus, his stomach does not hurt- and he has not had an ear infection since. Better to try things that do no harm and have no results than to have regrets over not trying later. It is not that rough and gets to be routine over time- I focus on what he can eat- and the benefits far outweigh the negatives. Cj Gluten Free Diet My 5 year old has Aspergers and we have been trailing a gf diet for a few weeks with no noticeable success. I thought that his behaviour should have improved a bit by now if it was going to work. I was wondering if anyone has trailed a gluten free diet? Also, should I remove dairy products from his diet as well? He loves milk and it would be a huge adjustment, with all of the dramas that go with it so I have put that one in the 'too hard' basket for the moment. If I don't get some sort of control over his behaviour I'll have to look into medicating him. He is running our entire household. What do you think? Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2003 Report Share Posted April 28, 2003 Hi, You can have a test done on a urine sample which will show up sensitivity to gluten or caesin. There are several non invasive tests which show whether various interventions will be useful for any particular person. Regards -----Original Message-----From: Debbie Sent: 28 April 2003 21:30To: autism-aspergers Subject: RE: Gluten Free Diet Is there any sort of test that you can have done to find out exactly what your child is sensitive to? Debbie -----Original Message-----From: Cj Sent: Monday, 28 April 2003 11:48 PMTo: autism-aspergers Subject: Re: Gluten Free Diet dairy/casein containing items can cause aggression, lack of focus, etc.etc.... GFCF works for some, GF or CF, SCD - low phenol, etc. Depends on your kid, and what caused/is causing the problems. Mine loved milk & cheese- I wanted my son back- good bye to dairy. I run my home, not my kids. It is up to me and their dad to do what is best for overall well being-not what is easy, enjoyable or popular. Once we got through withdrawal, life has been much easier for everyone- especially him- as now he can focus, his stomach does not hurt- and he has not had an ear infection since. Better to try things that do no harm and have no results than to have regrets over not trying later. It is not that rough and gets to be routine over time- I focus on what he can eat- and the benefits far outweigh the negatives. Cj Gluten Free Diet My 5 year old has Aspergers and we have been trailing a gf diet for a few weeks with no noticeable success. I thought that his behaviour should have improved a bit by now if it was going to work. I was wondering if anyone has trailed a gluten free diet? Also, should I remove dairy products from his diet as well? He loves milk and it would be a huge adjustment, with all of the dramas that go with it so I have put that one in the 'too hard' basket for the moment. If I don't get some sort of control over his behaviour I'll have to look into medicating him. He is running our entire household. What do you think? Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 28, 2003 Report Share Posted April 28, 2003 Thanks for that info . I think I should look into it. Debbie -----Original Message-----From: Hunter Sent: Tuesday, 29 April 2003 6:48 AMTo: autism-aspergers Subject: RE: Gluten Free Diet Hi, You can have a test done on a urine sample which will show up sensitivity to gluten or caesin. There are several non invasive tests which show whether various interventions will be useful for any particular person. Regards -----Original Message-----From: Debbie Sent: 28 April 2003 21:30To: autism-aspergers Subject: RE: Gluten Free Diet Is there any sort of test that you can have done to find out exactly what your child is sensitive to? Debbie -----Original Message-----From: Cj Sent: Monday, 28 April 2003 11:48 PMTo: autism-aspergers Subject: Re: Gluten Free Diet dairy/casein containing items can cause aggression, lack of focus, etc.etc.... GFCF works for some, GF or CF, SCD - low phenol, etc. Depends on your kid, and what caused/is causing the problems. Mine loved milk & cheese- I wanted my son back- good bye to dairy. I run my home, not my kids. It is up to me and their dad to do what is best for overall well being-not what is easy, enjoyable or popular. Once we got through withdrawal, life has been much easier for everyone- especially him- as now he can focus, his stomach does not hurt- and he has not had an ear infection since. Better to try things that do no harm and have no results than to have regrets over not trying later. It is not that rough and gets to be routine over time- I focus on what he can eat- and the benefits far outweigh the negatives. Cj Gluten Free Diet My 5 year old has Aspergers and we have been trailing a gf diet for a few weeks with no noticeable success. I thought that his behaviour should have improved a bit by now if it was going to work. I was wondering if anyone has trailed a gluten free diet? Also, should I remove dairy products from his diet as well? He loves milk and it would be a huge adjustment, with all of the dramas that go with it so I have put that one in the 'too hard' basket for the moment. If I don't get some sort of control over his behaviour I'll have to look into medicating him. He is running our entire household. What do you think? Debbie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 29, 2003 Report Share Posted April 29, 2003 Yes I agree CJ... Reuben knows it for his best interest... and hey I dont need holes in my walls!!! Reuben loved cheese and all dairy!!! I think it is the things they crave for are the things that set them off... just my opinion. Kim Wheaton18/2003 scrapbook pagesNo man or woman is worth your tears, and the one who is, won't make you cry. View my items for sale at http://au.groups.yahoo.com/group/ozsaleswaportrade/database?method=reportRows & tbl=1My favourite shop: www.scrapthat.net.auMy favourite site: www.ourcreativecompanion.com www.twopeasinabucket.com Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2004 Report Share Posted September 12, 2004 Have you read Karyn Seroussi's book " Unraveling the Mystery of Autism? " It is very informative as to why the diet works and how to implement it. It even give sample menus of how they did it with her son and lists of brand name foods etc that are safe. I have seen this diet be a huge success for a lot of kids. It takes some work to get it started, but the results are definitely worth it. Amnesty > > We have not started the GFCF diets yet, but I'm very interested in > > them. My question is about the gluten free diet. Can someone give > > me examples of what their child CAN eat on GF diet? From what I've > > read, it seems that there's very little your child can eat. > > > > Lanae Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2004 Report Share Posted September 12, 2004 Have you read Karyn Seroussi's book " Unraveling the Mystery of Autism? " It is very informative as to why the diet works and how to implement it. It even give sample menus of how they did it with her son and lists of brand name foods etc that are safe. I have seen this diet be a huge success for a lot of kids. It takes some work to get it started, but the results are definitely worth it. Amnesty > > We have not started the GFCF diets yet, but I'm very interested in > > them. My question is about the gluten free diet. Can someone give > > me examples of what their child CAN eat on GF diet? From what I've > > read, it seems that there's very little your child can eat. > > > > Lanae Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2004 Report Share Posted September 12, 2004 Lanae: It is very easy, once you get into it. All meats (not fried in batter), all vegetables, potatoes, rice (brown is preferred over white), and all fruits (although grapes and watermelon have a lot of sugar, and you may want to be careful here). To drink, there is water, of course, and fruit juice, and soft drinks. We use Pacific brand rice milk when we need a milk-like product for baking or just to drink. There are a lot of gluten and dairy free products availabe on the internet, and even in the natural food section of your grocery store. A lot of people are allergic to wheat, so find products labeled " wheat free " or " gluten free " , then check to see if they have dairy. We've found gfcf cookies, rice bars, cereal bars, and non-dairy frozen dessert at both Kroger and Publix. Rice pastas are good, so spaghetti is still OK. I haven't found a good cheese substitute, though. There are two good web sites: gfcfdiet.com, and autismndi.com They have lots of foods and recipies. ' book is well worth the money. Start by taking out dairy first, because that is easier. Don't substitute a lot of soy products, as a lot of children are also sensitive to soy. Then, remove wheat a few weeks later. Good luck! C. Gluten Free Diet We have not started the GFCF diets yet, but I'm very interested in them. My question is about the gluten free diet. Can someone give me examples of what their child CAN eat on GF diet? From what I've read, it seems that there's very little your child can eat. Lanae Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2004 Report Share Posted September 12, 2004 Lanae: It is very easy, once you get into it. All meats (not fried in batter), all vegetables, potatoes, rice (brown is preferred over white), and all fruits (although grapes and watermelon have a lot of sugar, and you may want to be careful here). To drink, there is water, of course, and fruit juice, and soft drinks. We use Pacific brand rice milk when we need a milk-like product for baking or just to drink. There are a lot of gluten and dairy free products availabe on the internet, and even in the natural food section of your grocery store. A lot of people are allergic to wheat, so find products labeled " wheat free " or " gluten free " , then check to see if they have dairy. We've found gfcf cookies, rice bars, cereal bars, and non-dairy frozen dessert at both Kroger and Publix. Rice pastas are good, so spaghetti is still OK. I haven't found a good cheese substitute, though. There are two good web sites: gfcfdiet.com, and autismndi.com They have lots of foods and recipies. ' book is well worth the money. Start by taking out dairy first, because that is easier. Don't substitute a lot of soy products, as a lot of children are also sensitive to soy. Then, remove wheat a few weeks later. Good luck! C. Gluten Free Diet We have not started the GFCF diets yet, but I'm very interested in them. My question is about the gluten free diet. Can someone give me examples of what their child CAN eat on GF diet? From what I've read, it seems that there's very little your child can eat. Lanae Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2004 Report Share Posted September 12, 2004 Fruit, vegetables , and meat- things folks used to eat before artificial, fast food and processing. Gluten Free Diet We have not started the GFCF diets yet, but I'm very interested in them. My question is about the gluten free diet. Can someone give me examples of what their child CAN eat on GF diet? From what I've read, it seems that there's very little your child can eat. Lanae Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2004 Report Share Posted September 12, 2004 Fruit, vegetables , and meat- things folks used to eat before artificial, fast food and processing. Gluten Free Diet We have not started the GFCF diets yet, but I'm very interested in them. My question is about the gluten free diet. Can someone give me examples of what their child CAN eat on GF diet? From what I've read, it seems that there's very little your child can eat. Lanae Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2004 Report Share Posted September 12, 2004 You have to read labels, Cool Whip- which proclaims to be non-dairy (as it has no lactose)- is loaded in milk protein. Modified food starch, when not specified as modified corn starch- usually is wheat based- my husband has celiac disease- and this one we really have to be vigilant about- especially when eating out- as most people do not think of this as gluten based. Re: Gluten Free Diet The only things that are excluded on a gluten free/casein free diet are:wheat, rye, barley, oats andmilk products (which all have casein in them -- milk protein)There is lots of information shared on the web. One place you might like to start reading ishttp://www.gfcfdiet.com/directory.htmPatty also gfcfl1collier wrote:> We have not started the GFCF diets yet, but I'm very interested in> them. My question is about the gluten free diet. Can someone give> me examples of what their child CAN eat on GF diet? From what I've> read, it seems that there's very little your child can eat.>> Lanae Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2004 Report Share Posted September 12, 2004 You have to read labels, Cool Whip- which proclaims to be non-dairy (as it has no lactose)- is loaded in milk protein. Modified food starch, when not specified as modified corn starch- usually is wheat based- my husband has celiac disease- and this one we really have to be vigilant about- especially when eating out- as most people do not think of this as gluten based. Re: Gluten Free Diet The only things that are excluded on a gluten free/casein free diet are:wheat, rye, barley, oats andmilk products (which all have casein in them -- milk protein)There is lots of information shared on the web. One place you might like to start reading ishttp://www.gfcfdiet.com/directory.htmPatty also gfcfl1collier wrote:> We have not started the GFCF diets yet, but I'm very interested in> them. My question is about the gluten free diet. Can someone give> me examples of what their child CAN eat on GF diet? From what I've> read, it seems that there's very little your child can eat.>> Lanae Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 12, 2004 Report Share Posted September 12, 2004 You have to read labels, Cool Whip- which proclaims to be non-dairy (as it has no lactose)- is loaded in milk protein. Modified food starch, when not specified as modified corn starch- usually is wheat based- my husband has celiac disease- and this one we really have to be vigilant about- especially when eating out- as most people do not think of this as gluten based. Re: Gluten Free Diet The only things that are excluded on a gluten free/casein free diet are:wheat, rye, barley, oats andmilk products (which all have casein in them -- milk protein)There is lots of information shared on the web. One place you might like to start reading ishttp://www.gfcfdiet.com/directory.htmPatty also gfcfl1collier wrote:> We have not started the GFCF diets yet, but I'm very interested in> them. My question is about the gluten free diet. Can someone give> me examples of what their child CAN eat on GF diet? From what I've> read, it seems that there's very little your child can eat.>> Lanae Quote Link to comment Share on other sites More sharing options...
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