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Re: Please help if you can

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,

Are you in the Dallas area? Are you considering residential

placement? What places have denied you and why?

- what is the new yahoo group that you started for concerns

on older kids in Texas?

Theresa, SA

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In a message dated 6/9/02 10:16:57 PM Central Daylight Time,

Fischer1959@... writes:

> I have an 18 year old autistic daughter, mentally age 2 from 106 fever as a

> baby, they couldnt get it down in time. I feel I have exhausted all my

> possibilities in getting help, to find her placement. She is getting

> physical

> with myself, my husband, and our to young ones, ages 18 months and 9

> months.

> She is also becoming destructive,and has put several holes in walls. My

> husband and I are at our wits end. Someone I met on Yahoo also has an

> autistic child and suggested calling Dallas Childrens Hospital,where he had

>

> gotten help for his child. But if anyone else has suggestions, or places I

> can contact to get help, please, please let me know, before something bad

> happens, thank you.

>

> Fischer

>

Hello ,

Have you considered SSRIs for this child? If yes, and if you are using them

what are they? Have you tried talking to her neurologists about changing

them? Has her day time care (school) changed recently?

Just thinking aloud to figure out if it is just a physiological change, or if

it is an environmental change or a chemical imbalance...

Love and Prayers,

Sheela.

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  • 2 weeks later...
Guest guest

Question for parents.........

I am only 19 days into this (my child's diagnosis) and just when I

thought things were improving my Son seems to have regressed. His

tantrums are uncontrollable. Today I picked him up from his Montessori

school and I " busted " his teacher (actually teacher helper) quickly

taking away a toy my Son always stims on. I was mad at the school not

so much for giving him the toy we previously discussed them removing but

the fact that they tried to hide it from that they gave it to him. I

can understand that he is so out of control at times and they have other

children to tend to them falling into the temptation giving him the toy

to keep him quiet once in a great while. Wont I don't like is the dis

honesty. He is almost three and they wont keep him unless potty trained

anyway so I need to find a place for him now.

Does anyone have any suggestions about childcare for an ASD boy? My wife

and I must both work to make ends meet and I have little time to find

somewhere good and affordable. I am in the Spring TX area.

Any suggestions would mean a great deal.

PS.....one more little question. I feel so guilty doing things I used

to enjoy when my child is asleep. Like watching a ball game or playing

hoops, working out etc. I feel like I should be on the CPU researching

info, reading books, making plans etc. I guess I am asking at what

point to you guys feel your doing all you can......or do you really ever

feel that way? Do you Fathers of ASD children still watch sports and

things like that? Is there a happy medium?

sheelaravi@... wrote:

>

> In a message dated 6/9/02 10:16:57 PM Central Daylight Time,

> Fischer1959@... writes:

>

> > I have an 18 year old autistic daughter, mentally age 2 from 106

> fever as a

> > baby, they couldnt get it down in time. I feel I have exhausted all

> my

> > possibilities in getting help, to find her placement. She is getting

>

> > physical

> > with myself, my husband, and our to young ones, ages 18 months and 9

>

> > months.

> > She is also becoming destructive,and has put several holes in walls.

> My

> > husband and I are at our wits end. Someone I met on Yahoo also has

> an

> > autistic child and suggested calling Dallas Childrens Hospital,where

> he had

> >

> > gotten help for his child. But if anyone else has suggestions, or

> places I

> > can contact to get help, please, please let me know, before

> something bad

> > happens, thank you.

> >

> > Fischer

> >

>

> Hello ,

> Have you considered SSRIs for this child? If yes, and if you are using

> them

> what are they? Have you tried talking to her neurologists about

> changing

> them? Has her day time care (school) changed recently?

>

> Just thinking aloud to figure out if it is just a physiological

> change, or if

> it is an environmental change or a chemical imbalance...

>

> Love and Prayers,

> Sheela.

>

>

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Guest guest

I feel your frustration as I know it only too well........ One thing to

remember - is that Autism is going to be a long, exhausting marathon - it is

not going to be a quick, smooth, sprint.

While that doesn't sound to encouraging - it should help you to realize that

during a marathon - it is important

to B-R-E-A-T-E.......and P-A-C-E Y-O-U-R-S-E-L-F........

I see myself 5 years ago in your post - up all night on the computer -

reading every autism book - and so on..... and you know - after all that -

my son is still Autistic.....

I have since learned - despite much much much self-inflicted guilt - to

balance. As you can tell - I still am on the computer reading - but went

from 22 autism lists to about 10 - I allow only so much time for the

computer/reading books/ and so on..

I have even been seen out in public taking a walk for myself!!!

My husband and I both have learned that in order to survive the marathon for

the long haul - we need to focus on ourselves, and each other, now and then.

PS - I don't think there is a point when you feel you have done all you can

- I guess it's that fact that gives us faith and hope that if we keep

searching - we will find something that helps our child be the best he or

she can be.

Guppy - who is now going to go read a couple chapters of a book

that has absolutely NOTHING to do with Autism! woo woo!!

Re: Please help if you can

Question for parents.........

I am only 19 days into this (my child's diagnosis) and just when I

thought things were improving my Son seems to have regressed. His

tantrums are uncontrollable. Today I picked him up from his Montessori

school and I " busted " his teacher (actually teacher helper) quickly

taking away a toy my Son always stims on. I was mad at the school not

so much for giving him the toy we previously discussed them removing but

the fact that they tried to hide it from that they gave it to him. I

can understand that he is so out of control at times and they have other

children to tend to them falling into the temptation giving him the toy

to keep him quiet once in a great while. Wont I don't like is the dis

honesty. He is almost three and they wont keep him unless potty trained

anyway so I need to find a place for him now.

Does anyone have any suggestions about childcare for an ASD boy? My wife

and I must both work to make ends meet and I have little time to find

somewhere good and affordable. I am in the Spring TX area.

Any suggestions would mean a great deal.

PS.....one more little question. I feel so guilty doing things I used

to enjoy when my child is asleep. Like watching a ball game or playing

hoops, working out etc. I feel like I should be on the CPU researching

info, reading books, making plans etc. I guess I am asking at what

point to you guys feel your doing all you can......or do you really ever

feel that way? Do you Fathers of ASD children still watch sports and

things like that? Is there a happy medium?

sheelaravi@... wrote:

>

> In a message dated 6/9/02 10:16:57 PM Central Daylight Time,

> Fischer1959@... writes:

>

> > I have an 18 year old autistic daughter, mentally age 2 from 106

> fever as a

> > baby, they couldnt get it down in time. I feel I have exhausted all

> my

> > possibilities in getting help, to find her placement. She is getting

>

> > physical

> > with myself, my husband, and our to young ones, ages 18 months and 9

>

> > months.

> > She is also becoming destructive,and has put several holes in walls.

> My

> > husband and I are at our wits end. Someone I met on Yahoo also has

> an

> > autistic child and suggested calling Dallas Childrens Hospital,where

> he had

> >

> > gotten help for his child. But if anyone else has suggestions, or

> places I

> > can contact to get help, please, please let me know, before

> something bad

> > happens, thank you.

> >

> > Fischer

> >

>

> Hello ,

> Have you considered SSRIs for this child? If yes, and if you are using

> them

> what are they? Have you tried talking to her neurologists about

> changing

> them? Has her day time care (school) changed recently?

>

> Just thinking aloud to figure out if it is just a physiological

> change, or if

> it is an environmental change or a chemical imbalance...

>

> Love and Prayers,

> Sheela.

>

>

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Guest guest

" Do you Fathers of ASD children still watch sports and things like

that? Is there a happy medium? "

In Sept it will be only 2 years for us (feels like 200) and what

said is so true. I am not doing a good job of pacing and

have known 3 separate parents - 2 moms and 1 dad - that have had true

breakdowns trying to deal with this. They were of no help to their

family during their confinement and have never truly recovered from

that pit. This is not where we need to be. To truly help our

family - and somehow stay together - we need to take time for

ourselves.

My husband still watches sports. I am a football and basketball

widow-although not as bad as before. It is one of his releases and a

hold on the old life we used to have. I say to you, take the time

and watch some sports. Give your spouse some time to do what they

like. Somehow find time for each other and the other children you

may have. Special alone time. You are going to do the best you can

with what you have and in the end that is important. That and loving

and appreciating each other. Hang in there, and know we are here for

you.

Theresa in San , not from Spring-sorry

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Guest guest

Theresa,

Thank you for reminding me. I have not been very positive about my son

lately because he has been having these whining, crying, stomping, running

tantrums for about 3 weeks and it is driving me crazy. At times I feel he &

I shall be in a mental facility. I have to keep reminding myself that I

think this new behavior is a good thing because he is being so much more

assertive and during his complaining, is making so many more sounds. He just

wants to be understood and understood immediately!

Last night my son and husband were at the refrigerator and called me

over, when I got there asked our son what he wanted and he pointed

(pointing is a big thing to me). said that wasn't what he was happy

about because he had just said " I want pear " three times. He has not said a

sentence since he was about 18 months, he is now 6 years old! It has been a

very very long time.

May our children continue to grow and learn. Hope

In a message dated 6/20/02 12:26:34 AM Eastern Daylight Time,

autismzone@... writes:

> Subj: Re: Please help if you can

> Date:6/20/02 12:26:34 AM Eastern Daylight Time

> From:<A HREF= " mailto:autismzone@... " >autismzone@...</A>

> Reply-to:<A

HREF= " mailto:Texas-Autism-Advocacy " >Texas-Autism-Advocacy@yahoog\

roups.com</A>

> To:<A

HREF= " mailto:Texas-Autism-Advocacy " >Texas-Autism-Advocacy@yahoog\

roups.com</A>

> Sent from the Internet

>

>

>

> " Do you Fathers of ASD children still watch sports and things like

> that? Is there a happy medium? "

>

> In Sept it will be only 2 years for us (feels like 200) and what

> said is so true. I am not doing a good job of pacing and

> have known 3 separate parents - 2 moms and 1 dad - that have had true

> breakdowns trying to deal with this. They were of no help to their

> family during their confinement and have never truly recovered from

> that pit. This is not where we need to be. To truly help our

> family - and somehow stay together - we need to take time for

> ourselves.

>

> My husband still watches sports. I am a football and basketball

> widow-although not as bad as before. It is one of his releases and a

> hold on the old life we used to have. I say to you, take the time

> and watch some sports. Give your spouse some time to do what they

> like. Somehow find time for each other and the other children you

> may have. Special alone time. You are going to do the best you can

> with what you have and in the end that is important. That and loving

> and appreciating each other. Hang in there, and know we are here for

> you.

>

> Theresa in San , not from Spring-sorry

>

>

>

>

> TEXAS-AUTISM-ADVOCACY WEBSITE: http://www.angelfire.com/tx5/autismlist

>

> FEAT News Information:

> http://www.feat.org/scripts/wa.exe

> http://www.feat.org

> " Healing Autism: No Finer a Cause on the Planet "

>

>

>

>

>

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Guest guest

I have not seen regression in my son since he first started being autistic.

He quickly went from being normal (at least to me) to mild autism to moderate

and finally severly autistic. Then with the implementation of the GFCF Diet

and supplements, he started regaining some of his lost skills, except for

speech. I have not seen any regression. But, I know I will probably see some

when we start chelation. During chelation most regress but then all the ones

I know, also improve.

My husband just called to tell me to get off the computer so he can sign on.

Bye.

In a message dated 6/20/02 12:29:26 PM Eastern Daylight Time,

autism@... writes:

> Subj:Re: Please help if you can

> Date:6/20/02 12:29:26 PM Eastern Daylight Time

> From:<A HREF= " mailto:autism@... " >autism@...</A>

> Reply-to:<A

HREF= " mailto:Texas-Autism-Advocacy " >Texas-Autism-Advocacy@yahoog\

roups.com</A>

> To:<A

HREF= " mailto:Texas-Autism-Advocacy " >Texas-Autism-Advocacy@yahoog\

roups.com</A>

> Sent from the Internet

>

>

>

> Oh hon, you got to take some time for yourself. Even if it is once a week

> for an hour. On Sundays I try to watch some NASCAR or Football if it is on

> while my son takes a nap or watches a movie. Just time to your self can

> help you to stay sane. I hate to say it but I think it is a wonderful

> thing that you are sticking around. I know of families where it is just

> too

> much to handle and one of the parents just walks out. Hang in there, it is

> going to get tougher and easier along the way but you got to realize that

> your child loves you and needs you. Yes I read a lot and have bought lots

> of different programs and spent many hours at this but you still have to

> find time for yourself even if it is before bedtime. That is another

> thing.

> . do not get discouraged when your son regresses. It is going to happen

> and

> I don't know of anything to do to keep it from happening. As they say...

> You got to roll with the punches. " Your son, just like mine and the rest,

> is an angel! Maybe his bahavior doesn't always show that but you know when

> you have those moments and you know he is an angel. I can't imagine my son

> any different. Yeah he really gets on my nerves sometimes but then the

> little moments that are sooo sweet just can't be replaced. I think I

> charish the little small steps more than parents with " normal " kids.

>

> The schools, I am afraid is going to be an uphill battle. It has been for

> us so far and my son 6 1/2years old. We found out when he was about 3

> years

> old. I commend you for accepting this challenge. I know every parent

> should but there are so many who can't for whatever reason.

>

> Just remember a little time for yourself is just fine. Things are going to

> be tough but well worth it. You are not alone.

>

> Hugs,

> Christi

>

>

>

> -- Re: Please help if you can

>

> Question for parents.........

>

> I am only 19 days into this (my child's diagnosis) and just when I

> thought things were improving my Son seems to have regressed. His

> tantrums are uncontrollable. Today I picked him up from his Montessori

> school and I " busted " his teacher (actually teacher helper) quickly

> taking away a toy my Son always stims on. I was mad at the school not

> so much for giving him the toy we previously discussed them removing but

> the fact that they tried to hide it from that they gave it to him. I

> can understand that he is so out of control at times and they have other

> children to tend to them falling into the temptation giving him the toy

> to keep him quiet once in a great while. Wont I don't like is the dis

> honesty. He is almost three and they wont keep him unless potty trained

> anyway so I need to find a place for him now.

> Does anyone have any suggestions about childcare for an ASD boy? My wife

> and I must both work to make ends meet and I have little time to find

> somewhere good and affordable. I am in the Spring TX area.

> Any suggestions would mean a great deal.

>

> PS.....one more little question. I feel so guilty doing things I used

> to enjoy when my child is asleep. Like watching a ball game or playing

> hoops, working out etc. I feel like I should be on the CPU researching

> info, reading books, making plans etc. I guess I am asking at what

> point to you guys feel your doing all you can......or do you really ever

> feel that way? Do you Fathers of ASD children still watch sports and

> things like that? Is there a happy medium?

> sheelaravi@... wrote:

> >

> > In a message dated 6/9/02 10:16:57 PM Central Daylight Time,

> > Fischer1959@... writes:

> >

> > > I have an 18 year old autistic daughter, mentally age 2 from 106

> > fever as a

> > > baby, they couldnt get it down in time. I feel I have exhausted all

> > my

> > > possibilities in getting help, to find her placement. She is getting

> >

> > > physical

> > > with myself, my husband, and our to young ones, ages 18 months and 9

> >

> > > months.

> > > She is also becoming destructive,and has put several holes in walls.

> > My

> > > husband and I are at our wits end. Someone I met on Yahoo also has

> > an

> > > autistic child and suggested calling Dallas Childrens Hospital,where

> > he had

> > >

> > > gotten help for his child. But if anyone else has suggestions, or

> > places I

> > > can contact to get help, please, please let me know, before

> > something bad

> > > happens, thank you.

> > >

> > > Fischer

> > >

> >

> > Hello ,

> > Have you considered SSRIs for this child? If yes, and if you are using

> > them

> > what are they? Have you tried talking to her neurologists about

> > changing

> > them? Has her day time care (school) changed recently?

> >

> > Just thinking aloud to figure out if it is just a physiological

> > change, or if

> > it is an environmental change or a chemical imbalance...

> >

> > Love and Prayers,

> > Sheela.

> >

> >

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Guest guest

Here is the way that I look at it. I know exactly how you feel... my son

for about 2 months has had just horrible behavior, much worse than usual. I

can't take my eyes off him or he is doing Everything he knows he shouldn't

do. On the up side, his progression in skills and words has increased

tremendously while his behavior had decreased a lot. When his behavior

levels out, well so does the progression but it is still a nice break even

though I know he isn't learning as much as before. I hope this makes sense.

When learning is up behavior is bad, bad. When behavior get better the

learning levels back out and slows back down. I have watched this happen

over and over but only picked up on it a few months ago. I just have to

keep telling myself... " ok, Christi, his learning is up and you can put up

with this for a little longer. " Sometimes that isn't much help but I don't

know what else to tell ya.

Huggz,

Christi

-- Re: Re: Please help if you can

Theresa,

Thank you for reminding me. I have not been very positive about my son

lately because he has been having these whining, crying, stomping, running

tantrums for about 3 weeks and it is driving me crazy. At times I feel he &

I shall be in a mental facility. I have to keep reminding myself that I

think this new behavior is a good thing because he is being so much more

assertive and during his complaining, is making so many more sounds. He

just

wants to be understood and understood immediately!

Last night my son and husband were at the refrigerator and called me

over, when I got there asked our son what he wanted and he pointed

(pointing is a big thing to me). said that wasn't what he was happy

about because he had just said " I want pear " three times. He has not said a

sentence since he was about 18 months, he is now 6 years old! It has been a

very very long time.

May our children continue to grow and learn. Hope

In a message dated 6/20/02 12:26:34 AM Eastern Daylight Time,

autismzone@... writes:

> Subj: Re: Please help if you can

> Date:6/20/02 12:26:34 AM Eastern Daylight Time

> From:<A HREF= " mailto:autismzone@... " >autismzone@...</A>

> Reply-to:<A HREF= " mailto:Texas-Autism-Advocacy

>Texas-Autism-Advocacy </A>

> To:<A HREF= " mailto:Texas-Autism-Advocacy

>Texas-Autism-Advocacy </A>

> Sent from the Internet

>

>

>

> " Do you Fathers of ASD children still watch sports and things like

> that? Is there a happy medium? "

>

> In Sept it will be only 2 years for us (feels like 200) and what

> said is so true. I am not doing a good job of pacing and

> have known 3 separate parents - 2 moms and 1 dad - that have had true

> breakdowns trying to deal with this. They were of no help to their

> family during their confinement and have never truly recovered from

> that pit. This is not where we need to be. To truly help our

> family - and somehow stay together - we need to take time for

> ourselves.

>

> My husband still watches sports. I am a football and basketball

> widow-although not as bad as before. It is one of his releases and a

> hold on the old life we used to have. I say to you, take the time

> and watch some sports. Give your spouse some time to do what they

> like. Somehow find time for each other and the other children you

> may have. Special alone time. You are going to do the best you can

> with what you have and in the end that is important. That and loving

> and appreciating each other. Hang in there, and know we are here for

> you.

>

> Theresa in San , not from Spring-sorry

>

>

>

>

> TEXAS-AUTISM-ADVOCACY WEBSITE: http://www.angelfire.com/tx5/autismlist

>

> FEAT News Information:

> http://www.feat.org/scripts/wa.exe

> http://www.feat.org

> " Healing Autism: No Finer a Cause on the Planet "

>

>

>

>

>

Link to comment
Share on other sites

Guest guest

Oh hon, you got to take some time for yourself. Even if it is once a week

for an hour. On Sundays I try to watch some NASCAR or Football if it is on

while my son takes a nap or watches a movie. Just time to your self can

help you to stay sane. I hate to say it but I think it is a wonderful

thing that you are sticking around. I know of families where it is just too

much to handle and one of the parents just walks out. Hang in there, it is

going to get tougher and easier along the way but you got to realize that

your child loves you and needs you. Yes I read a lot and have bought lots

of different programs and spent many hours at this but you still have to

find time for yourself even if it is before bedtime. That is another thing.

.. do not get discouraged when your son regresses. It is going to happen and

I don't know of anything to do to keep it from happening. As they say...

You got to roll with the punches. " Your son, just like mine and the rest,

is an angel! Maybe his bahavior doesn't always show that but you know when

you have those moments and you know he is an angel. I can't imagine my son

any different. Yeah he really gets on my nerves sometimes but then the

little moments that are sooo sweet just can't be replaced. I think I

charish the little small steps more than parents with " normal " kids.

The schools, I am afraid is going to be an uphill battle. It has been for

us so far and my son 6 1/2years old. We found out when he was about 3 years

old. I commend you for accepting this challenge. I know every parent

should but there are so many who can't for whatever reason.

Just remember a little time for yourself is just fine. Things are going to

be tough but well worth it. You are not alone.

Hugs,

Christi

-- Re: Please help if you can

Question for parents.........

I am only 19 days into this (my child's diagnosis) and just when I

thought things were improving my Son seems to have regressed. His

tantrums are uncontrollable. Today I picked him up from his Montessori

school and I " busted " his teacher (actually teacher helper) quickly

taking away a toy my Son always stims on. I was mad at the school not

so much for giving him the toy we previously discussed them removing but

the fact that they tried to hide it from that they gave it to him. I

can understand that he is so out of control at times and they have other

children to tend to them falling into the temptation giving him the toy

to keep him quiet once in a great while. Wont I don't like is the dis

honesty. He is almost three and they wont keep him unless potty trained

anyway so I need to find a place for him now.

Does anyone have any suggestions about childcare for an ASD boy? My wife

and I must both work to make ends meet and I have little time to find

somewhere good and affordable. I am in the Spring TX area.

Any suggestions would mean a great deal.

PS.....one more little question. I feel so guilty doing things I used

to enjoy when my child is asleep. Like watching a ball game or playing

hoops, working out etc. I feel like I should be on the CPU researching

info, reading books, making plans etc. I guess I am asking at what

point to you guys feel your doing all you can......or do you really ever

feel that way? Do you Fathers of ASD children still watch sports and

things like that? Is there a happy medium?

sheelaravi@... wrote:

>

> In a message dated 6/9/02 10:16:57 PM Central Daylight Time,

> Fischer1959@... writes:

>

> > I have an 18 year old autistic daughter, mentally age 2 from 106

> fever as a

> > baby, they couldnt get it down in time. I feel I have exhausted all

> my

> > possibilities in getting help, to find her placement. She is getting

>

> > physical

> > with myself, my husband, and our to young ones, ages 18 months and 9

>

> > months.

> > She is also becoming destructive,and has put several holes in walls.

> My

> > husband and I are at our wits end. Someone I met on Yahoo also has

> an

> > autistic child and suggested calling Dallas Childrens Hospital,where

> he had

> >

> > gotten help for his child. But if anyone else has suggestions, or

> places I

> > can contact to get help, please, please let me know, before

> something bad

> > happens, thank you.

> >

> > Fischer

> >

>

> Hello ,

> Have you considered SSRIs for this child? If yes, and if you are using

> them

> what are they? Have you tried talking to her neurologists about

> changing

> them? Has her day time care (school) changed recently?

>

> Just thinking aloud to figure out if it is just a physiological

> change, or if

> it is an environmental change or a chemical imbalance...

>

> Love and Prayers,

> Sheela.

>

>

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