New Member Intro - needing support

[Guest guest]

Hi everyone,

My name is and I am a stay at home mom to 2 beautiful kids.

My is 6 months old and my Maxwell is 2 years old. We live in

San .

It's Maxwell I'm worried about. I suspect that many of his

behaviours fall into the austism spectrum.

I'm very new to this whole situation and I know very little, so I'm

here for education and help.

The main problem Max has, or the most noticeable, is that he doesn't

talk. I know another boy that spoke no words at all when he was

Max's age and truth be told, Max speaks more than he did. Max has a

handful of words and a few signs, but no more.

His other behaviours are:

Perfectionism - chairs have to be lined up exactly the same distance

from each other and the dinner table.

He copies my husband's computer work and gets it right -- DAYS later.

If something doesn't get done the way he wants it to, he keeps at it

and at times is frustrated and screams until I do it for him. (This

might be typical toddler behaviour.)

He spins. I did, too, as a child, so I don't know if it's compulsive

or normal. (I showed him how to spin, actually.)

He stares off into space at times. (I know I didn't teach him that!

lol!)

He also has what we jokingly termed 'selective hearing loss' - he

ignores us. I have to physically touch him and speak his name to get

him to turn around and look at me or stop whatever behaviour he's

doing.

Thanks for listening...

~

[Guest guest]

,

I live in SA along with quiet a few others on this list who may not

post as much but are a great support.

Feel free to call and come by my house to meet my child who did some

of those things and a lot of other things that you didn't mention.

He may not be on the spectrum but it may help to see one that is (my

kiddo is 3-almost 4 with an amazing visual memory).

I might suggest a referral to see Dr. at the Village of

Hope to rule out autism. If it is autism, then you can get busy with

what may help Maxwell. I might also recommend Dr. Vernon but

he is booked with the Repligen Secretin study until about July.

ECI-Brighton, Easter Seals or PACES in SA should be able to provide

you with at least free speech therapy because of his speech delay.

Hope this helps,

Theresa Madore

Dr. Vernon - TCART-Texas Center for Autism Research &

Treatment

1611 Nacogdoches Dr.

San , TX 78247

590-3381

http://www.tcart.org

Dr. Nola Marx

8042 Wurzbach

San , TX 78229

692-3439

Dr. Clayton

519 W. Houston - Santa Children's Clinic

San , TX 78207

704-2387

Dr.

Village of Hope

701 South Zarzamora

San , TX 78207

358-7375

Brighton School

271 E Lullwood, SAT 78212

ECI Program 826-4492

Children Learning Center- CLC

333 W Lovera SAT 78213

Day Program for Children with Autism & MR Age 3-21

Functional Living Skills for Young Children & Adult Supportive

Employment

733-1017

Easter Seal Rehabilitation Center

2203 Babcock Rd, SAT 78229

ECI Program

614-3911

Mi Casa of San

8601 Cinnamon Creek

561-7660

New Directions

2219 Babcock Rd, SAT 78229

Info and evals for assistive technology and wheelchairs

614-1910

Paces Program

The Center for Health Care Services - CHCS

227 W Drexel SAT 78210

ECI Program

532-5158

> Hi everyone,

>

> My name is and I am a stay at home mom to 2 beautiful kids.

> My is 6 months old and my Maxwell is 2 years old. We live in

> San .

>

> It's Maxwell I'm worried about. I suspect that many of his

> behaviours fall into the austism spectrum.

>

> I'm very new to this whole situation and I know very little, so I'm

> here for education and help.

>

> The main problem Max has, or the most noticeable, is that he

doesn't

> talk. I know another boy that spoke no words at all when he was

> Max's age and truth be told, Max speaks more than he did. Max has a

> handful of words and a few signs, but no more.

>

> His other behaviours are:

>

> Perfectionism - chairs have to be lined up exactly the same

distance

> from each other and the dinner table.

>

> He copies my husband's computer work and gets it right -- DAYS

later.

>

> If something doesn't get done the way he wants it to, he keeps at

it

> and at times is frustrated and screams until I do it for him. (This

> might be typical toddler behaviour.)

>

> He spins. I did, too, as a child, so I don't know if it's

compulsive

> or normal. (I showed him how to spin, actually.)

>

> He stares off into space at times. (I know I didn't teach him that!

> lol!)

>

> He also has what we jokingly termed 'selective hearing loss' - he

> ignores us. I have to physically touch him and speak his name to

get

> him to turn around and look at me or stop whatever behaviour he's

> doing.

>

>

>

> Thanks for listening...

>

> ~

[Guest guest]

Hi Hope,

Thank you for these websites. I will look at them today. (Kids are

napping. yay!)

One thing we're working on is a GF/CF diet as well as avoiding eggs,

since they seem problematic for him. He does much better when we

follow it, but it's so tough dealing with diet, a toddler, and a new

baby. Oh, and a husband if you want to count him as a child. We

also avoid dairy since Max doesn't like milk and nor do I. Cheese is

our downfall, though! We're both big cheese eaters. I use some in

cooking, and some eggs in cooking, but not a whole lot.

I'm going to get in touch with the county and see if I can get Max

into the 0-3 program. Thanks for the suggestion.

My only fear about that is that we don't vaccinate anymore. Max was

vaccinated until 9 months of age and I stopped. My daughter isn't

vaxed at all. I'm afraid that once we utilize the system, they'll

get on us for not vaxing or threaten to take my babies from me. I'm

so afraid of that.

I will check the websites and get in touch w/ the school district,

though. We'll start there.

Thank you.

~

San

> ,

>

> If I could go back in time to when my son was 2 years old, I'd

read the

> following websites: www.megson.com,

> www.healing-arts.org/children/holmes.htm

> The GF/CF DIET (I'm not sure of their website but

several

> children regain or

increase their

> speech after going dairy free, for a lot of children dairy and

wheat are

> major allergens. You can probably do a search.

>

> Read Dr. Megsons website first cause I think it is the shortest.

>

> Definitely contact the county or the school district and find out

about the

> 0-3 (zero to three program). Your child may be entitled to speech

therapy,

> ocupational therapy and behavior therapy. When they came to my

home, I

> didn't need an autism diagnosis because they sent their own

specialist who

> made their own diagnosis.

>

> Start reading today, don't let a moment slip by because as in my

case my son

> is now 6.

>

> Hope

[Guest guest]

Theresa:

> He may not be on the spectrum but it may help to see one that is

YES! I think it would help tremendously! I do not know any autistic

children personally, I've only seen one in a move and then the same

child on a TV show once. I think he is what one would term autistic

savant. I'm not sure, though.

Theresa, I just may call you... Thank you!

~

[Guest guest]

we're dairy free and egg free too. good vegan cheese sources:

tofutti singles (the best-melts and tastes like the real thing)-available at

kosher stores. haven't seen at whole foods.

soymage (a soyco brand) vegan cheese (hard cheese in a brick. doesn't melt

well, looks more like tofu. i'm not a fan, but my daughter loves it. very

hard to find; only 1 of 2 sun harvests in austin carries. whole foods

doesn't.

i love the book, special diet celebrations...it has recipies with

egg/wheat/gluten/soy/sugar/dairy alternatives. it has 2-4options to

substitute. great cookie and cake recipes. all my daughter's friends on

" regular " diets like the recipes...so you know they are good.

take care,

jennifer

Re: New Member Intro - needing support

Hi Hope,

Thank you for these websites. I will look at them today. (Kids are

napping. yay!)

One thing we're working on is a GF/CF diet as well as avoiding eggs,

since they seem problematic for him. He does much better when we

follow it, but it's so tough dealing with diet, a toddler, and a new

baby. Oh, and a husband if you want to count him as a child. We

also avoid dairy since Max doesn't like milk and nor do I. Cheese is

our downfall, though! We're both big cheese eaters. I use some in

cooking, and some eggs in cooking, but not a whole lot.

I'm going to get in touch with the county and see if I can get Max

into the 0-3 program. Thanks for the suggestion.

My only fear about that is that we don't vaccinate anymore. Max was

vaccinated until 9 months of age and I stopped. My daughter isn't

vaxed at all. I'm afraid that once we utilize the system, they'll

get on us for not vaxing or threaten to take my babies from me. I'm

so afraid of that.

I will check the websites and get in touch w/ the school district,

though. We'll start there.

Thank you.

~

San

> ,

>

> If I could go back in time to when my son was 2 years old, I'd

read the

> following websites: www.megson.com,

> www.healing-arts.org/children/holmes.htm

> The GF/CF DIET (I'm not sure of their website but

several

> children regain or

increase their

> speech after going dairy free, for a lot of children dairy and

wheat are

> major allergens. You can probably do a search.

>

> Read Dr. Megsons website first cause I think it is the shortest.

>

> Definitely contact the county or the school district and find out

about the

> 0-3 (zero to three program). Your child may be entitled to speech

therapy,

> ocupational therapy and behavior therapy. When they came to my

home, I

> didn't need an autism diagnosis because they sent their own

specialist who

> made their own diagnosis.

>

> Start reading today, don't let a moment slip by because as in my

case my son

> is now 6.

>

> Hope

TEXAS-AUTISM-ADVOCACY WEBSITE: http://www.angelfire.com/tx5/autismlist

FEAT News Information:

http://www.feat.org/scripts/wa.exe

http://www.feat.org

" Healing Autism: No Finer a Cause on the Planet "

[Guest guest]

In a message dated 5/2/02 7:16:34 PM Central Daylight Time,

Gryharhntr@... writes:

> They do not like hearing that my children are dairy free

> because their concern is that the myelin (spelling) develop properly. I

> tell

> them the nutritionist said they can get the EFA (esential fatty acid) from

> cod liver oil which also has vitamins A & D and the calcium from a calcium

> powder I order thru www.kirkmanlabs.com.

What does dairy have to do with myelin? Is this just that they think it is

the only source for EFA's, A & D or is there some other reason?

Gaylen

[Guest guest]

In a message dated 5/2/02 7:16:34 PM Central Daylight Time,

Gryharhntr@... writes:

> They do not like hearing that my children are dairy free

> because their concern is that the myelin (spelling) develop properly. I

> tell

> them the nutritionist said they can get the EFA (esential fatty acid) from

> cod liver oil which also has vitamins A & D and the calcium from a calcium

> powder I order thru www.kirkmanlabs.com.

What does dairy have to do with myelin? Is this just that they think it is

the only source for EFA's, A & D or is there some other reason?

Gaylen

[Guest guest]

In a message dated 5/4/02 9:15:28 AM Eastern Daylight Time,

themillers@... writes:

> Subj:RE: Re: New Member Intro - needing support

> Date:5/4/02 9:15:28 AM Eastern Daylight Time

> From:<A HREF= " mailto:themillers@... " >themillers@...</A>

> Reply-to:<A

HREF= " mailto:Texas-Autism-Advocacy " >Texas-Autism-Advocacy@yahoog\

roups.com</A>

> To:<A

HREF= " mailto:Texas-Autism-Advocacy " >Texas-Autism-Advocacy@yahoog\

roups.com</A>

> Sent from the Internet

>

>

>

> that's so ridiculous. the japanese and traditional native american diets

> do

> not have any dairy in their diets as well as several other cultures....and

> they are doing just fine. you need calcium and minerals but you've never

> needed dairy. the dairy board has brainwashed america.

>

> you need to eat more broccoli, legumes and fish though.

>

> jen

>

> Re: Re: New Member Intro - needing

> support

>

>

> In a message dated 5/2/02 7:16:34 PM Central Daylight Time,

> Gryharhntr@... writes:

>

>

> > They do not like hearing that my children are dairy free

> > because their concern is that the myelin (spelling) develop properly. I

> > tell

> > them the nutritionist said they can get the EFA (esential fatty acid)

> from

> > cod liver oil which also has vitamins A & D and the calcium from a calcium

> > powder I order thru www.kirkmanlabs.com.

>

> What does dairy have to do with myelin? Is this just that they think it is

> the only source for EFA's, A & D or is there some other reason?

> Gaylen

>

>

>

[Guest guest]

Gaylen,

That's it, you got it. The American diet is dairy based when it comes to the

children.

Which I agree w/you'll, the EFA can be obtained from other sources.

Just this past Thursday, I had two 3rd year medical students come visit and

one of them just couldn't believe we were dairy free until I told him my

husband and I were lactose intollerant then he understood and said that our

children were most likely lactose intollerant too.

In a message dated 5/4/02 9:15:28 AM Eastern Daylight Time,

themillers@... writes:

> Subj:RE: Re: New Member Intro - needing support

> Date:5/4/02 9:15:28 AM Eastern Daylight Time

> From:<A HREF= " mailto:themillers@... " >themillers@...</A>

> Reply-to:<A

HREF= " mailto:Texas-Autism-Advocacy " >Texas-Autism-Advocacy@yahoog\

roups.com</A>

> To:<A

HREF= " mailto:Texas-Autism-Advocacy " >Texas-Autism-Advocacy@yahoog\

roups.com</A>

> Sent from the Internet

>

>

>

> that's so ridiculous. the japanese and traditional native american diets

> do

> not have any dairy in their diets as well as several other cultures....and

> they are doing just fine. you need calcium and minerals but you've never

> needed dairy. the dairy board has brainwashed america.

>

> you need to eat more broccoli, legumes and fish though.

>

> jen

>

> Re: Re: New Member Intro - needing

> support

>

>

> In a message dated 5/2/02 7:16:34 PM Central Daylight Time,

> Gryharhntr@... writes:

>

>

> > They do not like hearing that my children are dairy free

> > because their concern is that the myelin (spelling) develop properly. I

> > tell

> > them the nutritionist said they can get the EFA (esential fatty acid)

> from

> > cod liver oil which also has vitamins A & D and the calcium from a calcium

> > powder I order thru www.kirkmanlabs.com.

>

> What does dairy have to do with myelin? Is this just that they think it is

> the only source for EFA's, A & D or is there some other reason?

> Gaylen

>

>

>