Guest guest Posted May 24, 2004 Report Share Posted May 24, 2004 Sassy wrote: And dont want to give up the joy of my life because of it - I train dogs and do Rottwiler resuces and fostering. My personal dog Samson has not wanted to leave my side and the puppy Jasmine im fostering is pulling the typical kid "ha I don't want to and you cant make me". Sassy What geno-type are you? You don't have to give up your joy if you don't want to. It's all about attitude. You can either let the "dragon" drag you down, or you can choose to kick it's ass! LOL! I wasn't strong enough at the time mentally to finish tx,,had to quit it at 8 1/2 months ( geno 1a ). Was undetectable from the second month on.....during tx It came back the 5th month after.tx. sorry to say. So, now I have to do it all over again. I probably will do it sometime in August I think, maybe beginning of September. As long as you sty positive, and have positive surroundings ( such as your dogs) to make you smile every day..........you should do fine! And don't forget us! We will make you laugh! Take care of you L) Debbie G "Remember The Past, Live The Present, Look To The Future." Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2004 Report Share Posted May 24, 2004 Thanks again for all the encouragement - - and I have geno type 2 - - my dogs are my life right now and was in the process of training one to be a companion animal before I was diagnosed - - guess I'll work on finishing his training and have him certified to help me if and when I need it Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 24, 2004 Report Share Posted May 24, 2004 You do have to grieve, but where, how, when you got it is pretty much a waste of time. 10 years ago, the docs didn't know anything about HCV. You can't blame them for not doing something differently. They didn't know what they were dealing with then. That's the past. You have it and that's not going to change regardless of how you go it, so don't waste energy on those unanswerable questions. Focus on whatever you are going to do to make yourself better. Hugs, De Faith is the ability to not panic. -----Original Message-----From: Sassy Sent: Monday, May 24, 2004 12:18 PMTo: HepatitisCSupportGroupForDummies Subject: thanksThanks for the welcome. Right now I'm more frustrated than any thing. How did I get it (I don't know - I'm not a drug user nor ever had a transfusion). When did I get it (don't know but from my med records I have had it at least 10 years). Why whasn't any thing done about it when it was first diagnosed or any time after that, it was in my record's (don't know my old doctors will have to answer that one and there not talking). I have delt with the anger and the why me's. And when given the option to watch and wait or treat I chose treatment. Decided if there is a chance to get this undercontroll now I will. Right now besides constant fatigue I'm in good health. And dont want to give up the joy of my life because of it - I train dogs and do Rottwiler resuces and fostering. My personal dog Samson has not wanted to leave my side and the puppy Jasmine im fostering is pulling the typical kid "ha I don't want to and you cant make me". Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2004 Report Share Posted May 25, 2004 Hey Sassy, I think I could write a book on how this disease has changed our lives. The ups, the downs, the fear, the unknown, the wanting to kill the docs the next time they say I don't know! It's been a long and wild ride and sometimes I just want to stop the train and get off. When I was pregnant with our 3rd son the doc we were seeing told my husband that the Porphyria (PCT for short, a side effect of the HCV) was going to kill him and that it was his fault he had it. That was in 79 and it was wrong. Just recently the PA we had in NM told us he probably had 5 to 7 years to live, which was BS. We've been through a lot on this HCV trip and we aren't giving up. The one thing we have is hope and the docs don't always know what they are talking about. He's had this disease since the 70’s; he's 1A and a non-responder. He is borderline cirrhosis but every day that he is alive is a blessing. Our children have all volunteered to be live donors when the time comes, they are all in there 20's and they are wonderful young men. I'm not going to tell you that it's easy. Some days it's all I can do to suck it up and make it through the day and I'm not the sick one. Some days I just look at him or think about him and I just want to cry because I can't imagine my life without him. My solution is to stay close to God. Yesterday while reading the bible I read that we will have trials and pass through hard times but God's promise is to always be with us. People may disappoint us and leave us but God never will. I don't think I would have survived these last 20 some years without God and prayer and spiritual friends. Now God has given me a new and wonderful internet family that understands the ins and outs, the ups and downs of this disease. It's hard, but you have to keep laughing and looking for the good in thing and counting your blessings because the alternative sucks, big time. One thing I have to do for my self once in a while, when I feel like I'm on overload and I'm focusing on all the things that are wrong physically with him, I have to stop reading about HCV. Sometimes I just overload my puny little brain and I just have to take a break. I tell myself that just for today I'm not going to read anything about the disease. It's hard and I have to remind myself and close the emails that are educational. Hope this helps a little, LL (love Loretta) Subject: Re: Re: thanks ~ Hi Sassy and Welcome I'm slowly learning all the terms and what they mean, it's like a new language. And it sinks in in bits and spurts. One day it hit like a ton of bricks "I got something that is going to kill me" and I had to pull off the side of the road for a while. And I have learned knowledge is powerful and keeps things under my control not the doc's or any one else. It is my life and I make the decisions. I just got past a bout of depression only to be hit with this - I got my diagnoses back 2 days before the one year anniversary of loosing my second child to a genetic birth defect. Talk about double whammy. Some times I'm just numb to every thing, some times I want to scream and yell at how unfair every thing is. Most of the time it is a happy medium between the two. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2004 Report Share Posted May 25, 2004 My animals are my best friends a lot of the times. There around when no one else is. Don't know what I would do without a few furballs keeping me company. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 25, 2004 Report Share Posted May 25, 2004 Sassy, I got sick last September with a lot of pain. Had 4 surgery/procedures in 3 months and my dog has been glued to me ever since, especially since I started tx. She sits on me all the time and even wants to sit on my shoulder like a baby when I'm trying to type to you folks. She keeps my spirits up. We're all pretty dependent on our animals here. De Faith is the ability to not panic. -----Original Message-----From: sassy280z@... Sent: Tuesday, May 25, 2004 12:41 AMTo: HepatitisCSupportGroupForDummies Subject: Re: SassyThanks again for all the encouragement - - and I have geno type 2 - - my dogs are my life right now and was in the process of training one to be a companion animal before I was diagnosed - - guess I'll work on finishing his training and have him certified to help me if and when I need it Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2004 Report Share Posted July 9, 2004 Think the program is calls "locks of love." Funny thing is all my long haired guy friends are now offering to cut theirs off if that happens and donate it so I wont feel so alone. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2004 Report Share Posted July 9, 2004 IF, that happens, and it may not, maybe you could donate your hair to whoever gets it and makes wigs for people. Maybe that will make you feel better about it. But remember, there is no way to know if yours will fall out or not. De Faith is the ability to not panic. -----Original Message-----From: sassy280z@... Sent: Friday, July 09, 2004 6:50 PMTo: HepatitisCSupportGroupForDummies Subject: Re: Re: Good News! --- Yea !!!!!!!!...I think that is my biggest fear at the most -- its not giving shots to my self I'm ornery enough to do that, its not the rashes and itches (I have psoriasis so that is just every day life for me), its not the aches and pains and the flue symptoms (I have been dealing with that already). I'm waiting to start treatment after my D-day in Aug so I can enjoy part of summer and have some fun. My hair goes down to my waist and has been that long for years and is what people notice first. I fear loosing it. I talked to my sister who is a hair dresser and she will cut it short if it starts falling out and save my pony tail for me. If and when that day happens ill probably cry. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2004 Report Share Posted July 9, 2004 Yup I'm learning who my true friends are really quick and who are the "fly by night good time friend" are. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 9, 2004 Report Share Posted July 9, 2004 That's really nice. I bet it makes you feel special. De Faith is the ability to not panic. -----Original Message-----From: sassy280z@... Sent: Friday, July 09, 2004 10:05 PMTo: HepatitisCSupportGroupForDummies Subject: Re: SassyThink the program is calls "locks of love." Funny thing is all my long haired guy friends are now offering to cut theirs off if that happens and donate it so I wont feel so alone. Quote Link to comment Share on other sites More sharing options...
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