Guest guest Posted April 2, 2001 Report Share Posted April 2, 2001 Hi KT, Welcome to our Oasis in cyberspace. Ilene suggested your read SWOE and the book titled Understanding the Borderline Mother. The author or U the BM is Ann Lawson and you can read about and/or order it at Amazon: http://www.Amazon.com Its expensive -- around $40 -- but it and SWOE would both be bargains at twice the price. I'm glad you found us. Hugs, Edith - Standing in the light at the end of the tunnel. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2001 Report Share Posted April 2, 2001 Hi KT, Welcome to our Oasis in cyberspace. Ilene suggested your read SWOE and the book titled Understanding the Borderline Mother. The author or U the BM is Ann Lawson and you can read about and/or order it at Amazon: http://www.Amazon.com Its expensive -- around $40 -- but it and SWOE would both be bargains at twice the price. I'm glad you found us. Hugs, Edith - Standing in the light at the end of the tunnel. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2001 Report Share Posted April 2, 2001 Hi and welcome to our little bit of safety and support. You may not want to diagnose over the internet, but I will.... You sound just like the rest of us so that must make your mom a BP <grin>. Wait to do anything until after you read two books - SWOE and then Understanding the Borderline Mother. The latter helps with talking with dads and explains their behavior. One note of caution - when you do set those boundaries all you- know- what will break lose. BPs don't particularly like or respect boundaries. I imagine, though, your brother is pretty healthy if he can set them. Co-dependency can cause lots of problems in marriages and in parenting. You'll find lots of help and encouragement here as you go thru the de-programming process. It isn't easy to grow up when you're already supposed to be an adult, but it's a great feeling when you get there. Be prepared for tears and fears and learning to get past the guilt traps. Hang in there and ask questions. We're there, and have been there. Some of us have even made it out of the tunnel!! Ilene in TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2001 Report Share Posted April 2, 2001 Hi and welcome to our little bit of safety and support. You may not want to diagnose over the internet, but I will.... You sound just like the rest of us so that must make your mom a BP <grin>. Wait to do anything until after you read two books - SWOE and then Understanding the Borderline Mother. The latter helps with talking with dads and explains their behavior. One note of caution - when you do set those boundaries all you- know- what will break lose. BPs don't particularly like or respect boundaries. I imagine, though, your brother is pretty healthy if he can set them. Co-dependency can cause lots of problems in marriages and in parenting. You'll find lots of help and encouragement here as you go thru the de-programming process. It isn't easy to grow up when you're already supposed to be an adult, but it's a great feeling when you get there. Be prepared for tears and fears and learning to get past the guilt traps. Hang in there and ask questions. We're there, and have been there. Some of us have even made it out of the tunnel!! Ilene in TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 2, 2001 Report Share Posted April 2, 2001 Hi and welcome to our little bit of safety and support. You may not want to diagnose over the internet, but I will.... You sound just like the rest of us so that must make your mom a BP <grin>. Wait to do anything until after you read two books - SWOE and then Understanding the Borderline Mother. The latter helps with talking with dads and explains their behavior. One note of caution - when you do set those boundaries all you- know- what will break lose. BPs don't particularly like or respect boundaries. I imagine, though, your brother is pretty healthy if he can set them. Co-dependency can cause lots of problems in marriages and in parenting. You'll find lots of help and encouragement here as you go thru the de-programming process. It isn't easy to grow up when you're already supposed to be an adult, but it's a great feeling when you get there. Be prepared for tears and fears and learning to get past the guilt traps. Hang in there and ask questions. We're there, and have been there. Some of us have even made it out of the tunnel!! Ilene in TX Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2001 Report Share Posted April 3, 2001 Hi K-- I'm glad you found us. I've only been with this group for a few months, but since finding ModOasis, reading SWOE and U the BM, I have learned more that I could have ever imagined. Give yourself some time to read, talk, and digest this information as you begin your journey. Your nada sounds so much like mine, especially with the pain killers. But I am extremely concerned with what you have told us about your nada and your child. My sister used to bite her tongue when nada " disciplined " her children, but she had to act when she caught nada violently shaking her three-year-old son. Today, to protect her children from further verbal, mental, and physical abuse, she has chosen to have no contact with our nada. On another subject, it sounds like you have been seen by your nada as the all-good child. A commonality of all-good children is the wish to " save " the BP parent. It makes me think of Luke Skywalker wanting to bring Darth Vader back to the good side. Maybe it works in the movies, but usually not in real life. The most helpful image I've come across is that of the lighthouse. The best way any of us can help anyone else is to be a lighthouse for them. The lighthouse cannot uproot itself and put the boats in the harbor by force. The lighthouse must shine brightly, and guide the ships in on their own power. Welcome to the group, Rosemary > Hello, I am new. I have only read the BPDCentral.com > a few days ago, am still awaiting SWOE, which I've > sent to my brother and other worried friends, so I > still lack lots of information. But suddenly my > entire perception of my life with my mother has > changed. It has all become clearer, taken away the > anger but replaced it with so much sorrow for her, and > a many bright light bulbs for me. > > Yes, I know I should not diagnose over the internet, > but it is unbelievable the exact fit for a functional > BP. If it were not for my father, the (co-dependant) > saint absolutely REFUSING to leave, I am afraid to > think of how my mother and my life might otherwise > have turned out. I am a pleaser, like my Dad, so > we've had a relationship without boundaries. But my > brother had always maintained very strong boundaries > but not much relationship, now I see his side better. > Of course when you grow up with it, you think it's > normal. And my mother really was a funny, interesting > and very loving person, when she wasn't being verbally > abusive, throwing raging crying screaming tantrums, or > seeing people as black or white. Now she's become > more and more self destructive to the point where I > and all her friends desperately miss her. They see > her sinking further and further down, without any hope > of surfacing. No one has a clue that she might be BP. > No one knows what it is, and neither did I until a > few days ago. > > My father was the " bad " one, water in the lap in > restaurants was not uncommon. I'd long ago figured > out that due to her severe criticism of him, I did so > as well in my adolescence. But he is such a decent > human being that it was worth it to him to undergo > that criticism knowing, on some level, that his wife > needed the reassurance of having me " on her side " . > And since being an adult and out of the house for 15 > years, I have a wonderful relationship with him, > although I cannot discuss her behavior realistically. > > I now am starting to see that we coped in the only > ways we knew how. My brother had very strong personal > boundaries but no relationship. My father and I had > (have) absolutely no personal boundaries, to the point > of apologizing to her everytime she threw her rages. > It has been a very long and slow process to even > figure out the few things I've come to realize on my > own. Things like, she really was not basing her > criticism in reality. What she said about a > situation, or about others may be imagined and changes > the next time she speaks about it even though she > thinks she's psychic about people and has an impecable > memory. She changes her opinions and her memories of > her history without even realizing she's completely > contradicted herself. > > Then more recently, the last 12 years or so she's > really been staying in bed (she's never worked), > rotates doctors and pharmacies to get lots of > perscripton meds, talks about how " people with chronic > pain need more meds than others do " . And my father > will go down and fight with the pharmacy or doctor > who's trying to cut her off. She refuses to admit, or > doesn't see that she's completely groggy and often > passes out in bed, of course the speech is > rambling,and spacey, she'll speak for 15 minutes on > the same sentence. I can actually walk away from the > phone and come back and she's still going -- like the > energizer bunny! > Then blames her disorientation on my dad, whom she > claims has never let her finish a sentence in over 40 > years! > > Her needs have always come before others, has to be > the center of attention, and is actually very > intelligent and can leave people completely in awe of > her. I was willing to let her have the spotlight at > my wedding, afterall she was paying for it and it was > " Her party " as she told me. > > But it really frightened me when at the birth of my > child 3 years ago she would be on pain pills and would > insist on getting up in the middle of the night to > " take care of the baby " , insisting on carrying her. > Over the course of one year she slipped and fell 6 > times that I know of, 5 times in my presence and the > 6th time she passed out in the bathroom and had to > call an ambulance. > > But even so she accused me of being jealous when I > very gently asked her not to pick up the baby when she > wasn't seated. Of course she continued picking her > up, and I sometimes bit my tongue, or tried to just > take the baby gently from her. My father said he > didn't think it was so bad in the house, and I said, > Dad, she's fallen 5 out of six times INSIDE the house, > sometimes standing still! Well, as you may guess, she > finally fell when she was holding the 1 1/2 yr old > baby, outside, on the pavement. It was in a large > crowd of people and I was across the way. She said > she caught herself on her hands, and the baby didn't > hit the ground but another man told my husband we'd > better go to the hospital immdeiately because the baby > hit the ground pretty hard. > > All was well and the baby was not harmed, but it was > such a strange experience. I was having such a hard > time trying to figure out why my strong intelligent > mother who claims to have only our best interests at > heart would do such a thing. And the clencher is > after all this, I had to STILL have talks with her > about NOT carrying around the baby for the next year > or so. I had to bite my tongue (which I usually do > out of habit) about the entire incedent because > everyone was comforting my mother, who obviously felt > terrible about it. > > Now, finally it all makes sense. The fighting as if > she's fighting for her own survival, like a tigress, > the unreal accusations, people treating my husband and > I funny when we come into town, then my mother saying, > " well, they just don't like the way you treat me " . > Not knwing what she's saying about us when we're not > there, and then trying to explain to others that it's > NOT REALITY!! > > Has anyone else had a hard time trying to explain to > others that the BP is really NOT in REALITY when they > are bad mouthing someone? I find that the only way to > fully explain that to someone else is to repeat > something the BP has said about that person. Then > they finally get the picture of what I mean when I say > NOT IN REALITY, really no foundation for their bad > mouthing, criticising comments. Then comes the > question, " Why did they say that? There must be some > reason. " How do you explain this to others? > > So finally my question is: how do I break the news to > my Dad that this may be an option, and then how to > gently, unattackingly to my mom, or should I? If not, how do I get my > Dad not to tell my Mom of my suspicions, but just help him > > It is also boiling down to me just trying to have personal > boundaries. On many levels it is affecting my > marriage, and I have a good realtionship with a > wonderful husband who would rather see me take my > brother's tactic. I feel she needs me, though, now > I'm starting to realize how desparately. But I need > boundaries. > > Thanks for listening to this long outpouring. > > K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2001 Report Share Posted April 4, 2001 Dear Rosemary: Thanks for your response. That is very interesting what you say about the " good " child, that makes a lot of sense, as well as wanting to save her. My brother does say he remembers a lot more abuse than I do. I've sent him the SWOE as well. I have a lot of reading to do, both the books as well as here on the site. It's all so new but for the first time I feel I'm going in the right direction. It's hard because my husband wants no contact and I want some form of contact and support for her, with boundaries -- which I am trying to discover, what to set and how to implement. Many thanks for your ideas, KT --- rpicado@... wrote: > Hi K-- > > I'm glad you found us. I've only been with this > group for a few > months, but since finding ModOasis, reading SWOE and > U the BM, I have > learned more that I could have ever imagined. Give > yourself some time > to read, talk, and digest this information as you > begin your journey. > > Your nada sounds so much like mine, especially with > the pain killers. > But I am extremely concerned with what you have told > us about your > nada and your child. My sister used to bite her > tongue when > nada " disciplined " her children, but she had to act > when she caught > nada violently shaking her three-year-old son. > Today, to protect her > children from further verbal, mental, and physical > abuse, she has > chosen to have no contact with our nada. > > On another subject, it sounds like you have been > seen by your nada as > the all-good child. A commonality of all-good > children is the wish > to " save " the BP parent. It makes me think of Luke > Skywalker wanting > to bring Darth Vader back to the good side. Maybe it > works in the > movies, but usually not in real life. > > The most helpful image I've come across is that of > the lighthouse. > The best way any of us can help anyone else is to be > a lighthouse for > them. The lighthouse cannot uproot itself and put > the boats in the > harbor by force. The lighthouse must shine brightly, > and guide the > ships in on their own power. > > Welcome to the group, > Rosemary > > > > > > > > > Hello, I am new. I have only read the > BPDCentral.com > > a few days ago, am still awaiting SWOE, which I've > > sent to my brother and other worried friends, so I > > still lack lots of information. But suddenly my > > entire perception of my life with my mother has > > changed. It has all become clearer, taken away > the > > anger but replaced it with so much sorrow for her, > and > > a many bright light bulbs for me. ... > > __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2002 Report Share Posted September 16, 2002 My mother had very vivid hallucinations with men/women going out the windows, laying in beds, and running around the house. We had to lock the house up tight, shutter the windows and leave lights on in summer. I think she was swinging her arms at them, causing massive bruises when she hit walls and furniture. We would tell folks (medical) that she " got them " from hitting her grown children. That always got her going! When she would see a lady in the bed, I would jump on the bed and say " where?, where? " to try and convince her it was a halucination... Always told her to call me if she sees a cute one. Hang in there folks. Pat (california) Marilyn O'Connor wrote: > Hello, I just discovered this support group last night and signed on. We > had a bad weekend at our house but I wish you could have seen the joy on my > face when I logged on this morning and found all of you out there! I am not > alone. My 71 yr.old husband was diagnosed 6 weeks ago with LBD and has gone > down hill so rapidly it is scary. > > He suffers from vivid hallucinations and these " people " and " animals " bother > him night and day. He talks to them and tries to feed them, also at times > tries to drive them out of our home. We close the house up tight in late > afternoon so the " people " can't come in thru the windows. Do any of your > loved ones have these vivid hallucinations and how do you handle the > problem? I've taken a broom and tried sweeping them out the door, but that > is only a short term stop gap. > > We live outside of Prescott, Az. Are there any Arizonans out there? > > Love and courage to you all, Marilyn > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2002 Report Share Posted September 16, 2002 > Hello, I just discovered this support group last night and signed on. Do any of your > loved ones have these vivid hallucinations and how do you handle the > problem? I've taken a broom and tried sweeping them out the door, but that > is only a short term stop gap. Welcome Marilyn Your husband sounds alot like my dad. He lives with my mom whom you will undoubtedly get to know here...her name is Barb. When mom first started calling me and telling me that dad was " seeing things " it all sounded pretty far out there. He really has some pretty vivid hallucinations from what I hear. We can kind of laugh about them now but when dad is in his hallucinations I am sure that it is hard for mom to try and calm him down. I think mom even jokes about them with dad to a certain extent when he is feeling better. I can't imagine what it must be like to be aware at least part of the time that you are loosing your faculties. You have got a great support group here. Seems that there are all diffrent stages of the disease and some wonderful insight that you will be able to draw from. the common denominator here is CARING. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2002 Report Share Posted September 16, 2002 We had no luck convincing my mom that she was seeing things. She was so determined, that she would call the kids over to have them substantiate her claims, only to dismiss them when they failed to agree with her. You won't win that battle. Best take a tack that permits you to maintain your own sanity for the long term. With proper meds, the halicinations went away (for a while.) Pat snowgirl_1961 wrote: > > >>Hello, I just discovered this support group last night and signed >> > on. Do any of your > >>loved ones have these vivid hallucinations and how do you handle >> > the > >>problem? I've taken a broom and tried sweeping them out the door, >> > but that > >>is only a short term stop gap. >> > > > Welcome Marilyn > > Your husband sounds alot like my dad. He lives with my mom whom you > will undoubtedly get to know here...her name is Barb. When mom > first started calling me and telling me that dad was " seeing things " > it all sounded pretty far out there. He really has some pretty > vivid hallucinations from what I hear. We can kind of laugh about > them now but when dad is in his hallucinations I am sure that it is > hard for mom to try and calm him down. I think mom even jokes about > them with dad to a certain extent when he is feeling better. I > can't imagine what it must be like to be aware at least part of the > time that you are loosing your faculties. > > You have got a great support group here. Seems that there are all > diffrent stages of the disease and some wonderful insight that you > will be able to draw from. the common denominator here is CARING. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2002 Report Share Posted September 16, 2002 My father had/has very vivid hallucinations. I'm not sure about the animals, but he has had men sleeping in the bedrooms for the last year. One of the final straws was a woman in the (only) bathroom, so he was prepared to go downstairs to a corner in the basement. September 1 we moved him from his home in Ohio to our home in Illinois. My sister was " watching over him " from her home; he is now with us in our home. We have seen very little of his hallucinations during the last two weeks. I asked him about them tonight because we were talking about medications and reactions that he notices (I'm trying to get his observations because we will be changing physicians soon). He said that he sees a man on our couch but knows he doesn't belong there so believes he doesn't exist ... but sees him nonetheless. So far none of his people (don't know about animals) have acosted him that we are aware of. This is all new. I'm not sure what our approach will be. I'm hoping for input, too. Kathie/Kate Chicago Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2002 Report Share Posted September 16, 2002 My father had/has very vivid hallucinations. I'm not sure about the animals, but he has had men sleeping in the bedrooms for the last year. One of the final straws was a woman in the (only) bathroom, so he was prepared to go downstairs to a corner in the basement. September 1 we moved him from his home in Ohio to our home in Illinois. My sister was " watching over him " from her home; he is now with us in our home. We have seen very little of his hallucinations during the last two weeks. I asked him about them tonight because we were talking about medications and reactions that he notices (I'm trying to get his observations because we will be changing physicians soon). He said that he sees a man on our couch but knows he doesn't belong there so believes he doesn't exist ... but sees him nonetheless. So far none of his people (don't know about animals) have acosted him that we are aware of. This is all new. I'm not sure what our approach will be. I'm hoping for input, too. Kathie/Kate Chicago Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2002 Report Share Posted September 16, 2002 fyi: None of my mom's hallucinations were threatening, however, she was afraid of some...(devils, faces, etc.) You cannot dismiss them all. For the longest time, my mom talked about a antennas in the neighbors yard. Guess what, there were some strange looking antennas over there...(in a residential neighborhood)... Kathleen wrote: > My father had/has very vivid hallucinations. I'm not sure about the > animals, but he has had men sleeping in the bedrooms for the last > year. One of the final straws was a woman in the (only) bathroom, so > he was prepared to go downstairs to a corner in the basement. > September 1 we moved him from his home in Ohio to our home in > Illinois. My sister was " watching over him " from her home; he is now > with us in our home. We have seen very little of his hallucinations > during the last two weeks. I asked him about them tonight because we > were talking about medications and reactions that he notices (I'm > trying to get his observations because we will be changing physicians > soon). He said that he sees a man on our couch but knows he doesn't > belong there so believes he doesn't exist ... but sees him > nonetheless. So far none of his people (don't know about animals) > have acosted him that we are aware of. This is all new. I'm not sure > what our approach will be. I'm hoping for input, too. > > Kathie/Kate Chicago > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2002 Report Share Posted September 16, 2002 >Do any of your loved ones have these vivid hallucinations and how do >you handle the problem? I've taken a broom and tried sweeping them >out the door, but that is only a short term stop gap. Marilyn my husband was recently diagnosed with LBD too and we have gone the gambit...bugs and snakes to people, electrical wires in his clothes and today it was the dogs toys they were all ganging up to attack me and the dog. I tried to tell him that he was " seeing things again " , sometimes that works, but not today. I finally picked up most of them just left her a few that he said were okay. That worked for him but the dog is sure bewildered! When his bedroom gets to scary I have him lay down on the couch with the tv on, that works for awhile. We leave lights on all night and he walks around with a flashlight at night. With Bill, and it sounds like with your husband and I think just about everybody else out there, nothing works everytime. Somethimes it is just sitting with him in the middle of the night until he calms down. We had an incident last week with a knife and I put knifes away, now today for some reason he is looking for an ax that we keep out in the trunk of the car (it is an Alaskan thing) he said that it was behind the toilet but now it isn't there. My husband has also gone downhill quickly, but am convinced now that we can possibly stop the decline if we can get them on the right meds, or cocktail. As you will learn not every thing works the same way for everyone so it is kind of trial and error. Do you have a good team of Doctors? What meds is he on? And very important how are you holding up? God Bless, Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2002 Report Share Posted September 16, 2002 >to try and convince her it was a halucination... >Always told her to call me if she sees a cute one. Hang in there >folks. Hi Pat, I like that, I want one that cleans house:-) Must have been so frightening for your family that she was actually hurting herself. Has anybody else seen that? Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 16, 2002 Report Share Posted September 16, 2002 >This is all new. I'm not sure what our approach will be. I'm >hoping for input, too. K/K, from what I have read in several places is that some people who are dealing with this know that they are hallucinaions and it just doesn't seem to bother them. It is funny how simular some of the stories are, Bill also saw a woman in the bathroom, several have actually called 911, and there are several that have taken the dog for a walk without the dog. But there is nothing that seems to work the same way for them with either meds or how to calm them down when we aren't able to see the things they are seeing. What is best? Do you buy into it or insist that they are seeing things...with Bill I do both if he won't agree that it " is in my head " then I try to either take it away or move him to another part of the house. One thing that has cropped up in the last week has been the Arabs are comming to get him. I try to monitor what he is watching on TV but there is no way I am going to stop him watching the news. What is really kind of scary at this point is that he has become so dependent on me for everything from cutting up his meat to protecting him from the scary things, not all of his hallucinations are scary. Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2002 Report Share Posted September 17, 2002 I did get rid of some hallucinations with covers on ALL the mirrors and window reflections. Donna To learn more about LBD Disease, please visit the Lewy Body Disease Association site at: http://www.lewybodydisease.org Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2002 Report Share Posted September 17, 2002 Hi Marilyn, Yes, my mom will suddenly speak aloud to someone in the room who is not there. We also went through times of her awakening at night and seeing a family on her front lawn. Police were called because they seemed so real. I am not sure which meds may have helped her with this but seeing things seems to have diminished for the time being. Know that so many of us are dealing with this same thing. Anne At 04:57 PM 9/16/2002 -0700, you wrote: >Hello, I just discovered this support group last night and signed on. We >had a bad weekend at our house but I wish you could have seen the joy on my >face when I logged on this morning and found all of you out there! I am not >alone. My 71 yr.old husband was diagnosed 6 weeks ago with LBD and has gone >down hill so rapidly it is scary. > >He suffers from vivid hallucinations and these " people " and " animals " bother >him night and day. He talks to them and tries to feed them, also at times >tries to drive them out of our home. We close the house up tight in late >afternoon so the " people " can't come in thru the windows. Do any of your >loved ones have these vivid hallucinations and how do you handle the >problem? I've taken a broom and tried sweeping them out the door, but that >is only a short term stop gap. > >We live outside of Prescott, Az. Are there any Arizonans out there? > >Love and courage to you all, Marilyn > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2002 Report Share Posted September 17, 2002 Hi there Marilyn Good to have you along for this roller coaster of a ride! I'm in the UK I'm afraid so not much help to you geographically, however I can report that my dad (68yrs) had terrible hallucinations too, just the same animals and humans. My dad rang me one day to say he'd just flushed someones head down the toilet because they refused to leave! Good news is he has responded really well to the medication they gave - he takes Quetiapin, trade name Seroquel. Hardly has them at all now. BUT can't guarantee you'd have the same result as this damn disease is different in every case!! Keep in touch Love to you across the pond Sally xx I'm new Hello, I just discovered this support group last night and signed on. We had a bad weekend at our house but I wish you could have seen the joy on my face when I logged on this morning and found all of you out there! I am not alone. My 71 yr.old husband was diagnosed 6 weeks ago with LBD and has gone down hill so rapidly it is scary. He suffers from vivid hallucinations and these " people " and " animals " bother him night and day. He talks to them and tries to feed them, also at times tries to drive them out of our home. We close the house up tight in late afternoon so the " people " can't come in thru the windows. Do any of your loved ones have these vivid hallucinations and how do you handle the problem? I've taken a broom and tried sweeping them out the door, but that is only a short term stop gap. We live outside of Prescott, Az. Are there any Arizonans out there? Love and courage to you all, Marilyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2002 Report Share Posted September 17, 2002 I wanted to comment on the hallucinations. This seems to be the most problem for my Mom. I was just interested to the comment of electrical shocks. Mom just went thorugh a siege of thinking the kids were shocking her all the time, complaining of th the little wires they were always snapping, etc. I find it amazing that so many persons on this group all seem to follow very close the same symptoms don't they. Mom has had this disease diagnosis for about two years and she is on a real down hill slide right now. The med she takes is Remeron and then vitamins E- C and that is it. She is not doing well and the only other thing was Aricept and she was sleeping about 18 hrs a day on it. She begged to wake up and that (Aricept) removal did wake her up. She does not function very well though as hallucinations and disorientation are getting the better of her. Joanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2002 Report Share Posted September 17, 2002 Hello Marilyn and welcome. I think we have all been where you are. I know I have for sure! My MIL who is only 60 often saw people in her home. She always saw these two ladies who she said were trying to steal her socks. She even called 911 on occasion to report them. She would see a lot of scary things. It was horrible. She wasn't sleeping either. She declined rapidly as well. Once we got her on a good medication cocktail, she has been much better. She is by no means the same person she once was, but she really is far better. I urge you to seek out a good neurologist and geriatric psychiatrist to help your husband get on the right medications so he and you can start enjoying a better quality of life. This disease is so hard, but there is so much support here and it does really help. Not all meds work for everyone, but the right mix for us is: Risperidal (.5mg), Paxil (30mg), Aricept (10mg), and Seroquel (200mg). Since we have added the Seroquel at night, things have been great. I wish you and your husband the best of luck. You will be in my thoughts and prayers. I'm new Hello, I just discovered this support group last night and signed on. We had a bad weekend at our house but I wish you could have seen the joy on my face when I logged on this morning and found all of you out there! I am not alone. My 71 yr.old husband was diagnosed 6 weeks ago with LBD and has gone down hill so rapidly it is scary. He suffers from vivid hallucinations and these " people " and " animals " bother him night and day. He talks to them and tries to feed them, also at times tries to drive them out of our home. We close the house up tight in late afternoon so the " people " can't come in thru the windows. Do any of your loved ones have these vivid hallucinations and how do you handle the problem? I've taken a broom and tried sweeping them out the door, but that is only a short term stop gap. We live outside of Prescott, Az. Are there any Arizonans out there? Love and courage to you all, Marilyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2002 Report Share Posted September 17, 2002 Hello Marilyn and welcome. I think we have all been where you are. I know I have for sure! My MIL who is only 60 often saw people in her home. She always saw these two ladies who she said were trying to steal her socks. She even called 911 on occasion to report them. She would see a lot of scary things. It was horrible. She wasn't sleeping either. She declined rapidly as well. Once we got her on a good medication cocktail, she has been much better. She is by no means the same person she once was, but she really is far better. I urge you to seek out a good neurologist and geriatric psychiatrist to help your husband get on the right medications so he and you can start enjoying a better quality of life. This disease is so hard, but there is so much support here and it does really help. Not all meds work for everyone, but the right mix for us is: Risperidal (.5mg), Paxil (30mg), Aricept (10mg), and Seroquel (200mg). Since we have added the Seroquel at night, things have been great. I wish you and your husband the best of luck. You will be in my thoughts and prayers. I'm new Hello, I just discovered this support group last night and signed on. We had a bad weekend at our house but I wish you could have seen the joy on my face when I logged on this morning and found all of you out there! I am not alone. My 71 yr.old husband was diagnosed 6 weeks ago with LBD and has gone down hill so rapidly it is scary. He suffers from vivid hallucinations and these " people " and " animals " bother him night and day. He talks to them and tries to feed them, also at times tries to drive them out of our home. We close the house up tight in late afternoon so the " people " can't come in thru the windows. Do any of your loved ones have these vivid hallucinations and how do you handle the problem? I've taken a broom and tried sweeping them out the door, but that is only a short term stop gap. We live outside of Prescott, Az. Are there any Arizonans out there? Love and courage to you all, Marilyn Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2002 Report Share Posted September 17, 2002 >I find it amazing that so many persons on this group all seem to >follow very close the same symptoms don't they. Joanne yes it is amazing to me too that there is so much similarity as to the hallucinations. Bill's electrical wires were in his clothes and we needed to send them back to the manufacturer because they were faulty. Every time I have mentioned something that he is going through and think it is unique to him I get responses that other LO's have gone through or done the same thing. My latest discovery this morning is that at some point he was squirreling away cookies on the closet shelf (saving them or feeding something?). The other thing is the drugs and how they react differently to them, Bill started Aricept a few weeks ago and he is not sleeping at all well. I hope you can find something soon that can help your mother. Take care, Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2002 Report Share Posted September 17, 2002 >I find it amazing that so many persons on this group all seem to >follow very close the same symptoms don't they. Joanne yes it is amazing to me too that there is so much similarity as to the hallucinations. Bill's electrical wires were in his clothes and we needed to send them back to the manufacturer because they were faulty. Every time I have mentioned something that he is going through and think it is unique to him I get responses that other LO's have gone through or done the same thing. My latest discovery this morning is that at some point he was squirreling away cookies on the closet shelf (saving them or feeding something?). The other thing is the drugs and how they react differently to them, Bill started Aricept a few weeks ago and he is not sleeping at all well. I hope you can find something soon that can help your mother. Take care, Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2002 Report Share Posted September 17, 2002 >I find it amazing that so many persons on this group all seem to >follow very close the same symptoms don't they. Joanne yes it is amazing to me too that there is so much similarity as to the hallucinations. Bill's electrical wires were in his clothes and we needed to send them back to the manufacturer because they were faulty. Every time I have mentioned something that he is going through and think it is unique to him I get responses that other LO's have gone through or done the same thing. My latest discovery this morning is that at some point he was squirreling away cookies on the closet shelf (saving them or feeding something?). The other thing is the drugs and how they react differently to them, Bill started Aricept a few weeks ago and he is not sleeping at all well. I hope you can find something soon that can help your mother. Take care, Barb Quote Link to comment Share on other sites More sharing options...
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