Guest guest Posted March 20, 2003 Report Share Posted March 20, 2003 Hi Pat, I tried to reply earlier but I don't think Yahoo put it through so I apologize if I post this answer twice. I'm having my surgery in Camarillo, which is 20 minutes from my mom's house, where I plan to recoop until my drains are pulled. I wanted to go back to Delano but just couldn't afford the transportation and hotel costs this time around. Staying with Mom is free. Tracey > Tracey, > Are you having your surgery in Delano?? Thoughts and prayers > will be with you. > God bless, > Pat in Taft > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2003 Report Share Posted March 20, 2003 Hi Pat, I tried to reply earlier but I don't think Yahoo put it through so I apologize if I post this answer twice. I'm having my surgery in Camarillo, which is 20 minutes from my mom's house, where I plan to recoop until my drains are pulled. I wanted to go back to Delano but just couldn't afford the transportation and hotel costs this time around. Staying with Mom is free. Tracey > Tracey, > Are you having your surgery in Delano?? Thoughts and prayers > will be with you. > God bless, > Pat in Taft > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2003 Report Share Posted March 20, 2003 Hi Pat, I tried to reply earlier but I don't think Yahoo put it through so I apologize if I post this answer twice. I'm having my surgery in Camarillo, which is 20 minutes from my mom's house, where I plan to recoop until my drains are pulled. I wanted to go back to Delano but just couldn't afford the transportation and hotel costs this time around. Staying with Mom is free. Tracey > Tracey, > Are you having your surgery in Delano?? Thoughts and prayers > will be with you. > God bless, > Pat in Taft > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2003 Report Share Posted March 24, 2003 In a message dated 3/24/2003 7:20:43 AM Central Standard Time, mjs93311@... writes: > PS: you CAN still die from pneumonia in this day and age. That ought to > cattle prod him. Also, if he ends up so sick he is *hospitalized* ooohh, > scary thought!!! he will definately get a blood draw EVERY MORNING! Gasp! > Marta > > > snurfles17 wrote: > > MArta's right, My momma died of sepsis where the infection got in the blood. She started with a cough and was on a vent in 48 hrs. She had just turned 50. in Bama http://hometown.aol.com/mdl1031/myhomepage/profile.html Surgery- RNY to DS revision on12/6 -377.5 2/17 - 346.5 ( minus 31lbs) 01/15- 338.1 (minus 39.1lbs) 02/12-330.0 (minus 47.5 lbs) 03/02- 325 (minus 52.5 lbs) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2003 Report Share Posted March 24, 2003 In a message dated 3/24/2003 7:20:43 AM Central Standard Time, mjs93311@... writes: > PS: you CAN still die from pneumonia in this day and age. That ought to > cattle prod him. Also, if he ends up so sick he is *hospitalized* ooohh, > scary thought!!! he will definately get a blood draw EVERY MORNING! Gasp! > Marta > > > snurfles17 wrote: > > MArta's right, My momma died of sepsis where the infection got in the blood. She started with a cough and was on a vent in 48 hrs. She had just turned 50. in Bama http://hometown.aol.com/mdl1031/myhomepage/profile.html Surgery- RNY to DS revision on12/6 -377.5 2/17 - 346.5 ( minus 31lbs) 01/15- 338.1 (minus 39.1lbs) 02/12-330.0 (minus 47.5 lbs) 03/02- 325 (minus 52.5 lbs) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2003 Report Share Posted March 24, 2003 In a message dated 3/24/2003 7:20:43 AM Central Standard Time, mjs93311@... writes: > PS: you CAN still die from pneumonia in this day and age. That ought to > cattle prod him. Also, if he ends up so sick he is *hospitalized* ooohh, > scary thought!!! he will definately get a blood draw EVERY MORNING! Gasp! > Marta > > > snurfles17 wrote: > > MArta's right, My momma died of sepsis where the infection got in the blood. She started with a cough and was on a vent in 48 hrs. She had just turned 50. in Bama http://hometown.aol.com/mdl1031/myhomepage/profile.html Surgery- RNY to DS revision on12/6 -377.5 2/17 - 346.5 ( minus 31lbs) 01/15- 338.1 (minus 39.1lbs) 02/12-330.0 (minus 47.5 lbs) 03/02- 325 (minus 52.5 lbs) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2003 Report Share Posted March 25, 2003 , I'm so sorry to hear about your mom! That must have been devastating! BIG HUG! Tracey > > > > > > MArta's right, My momma died of sepsis where the infection got in the blood. > She started with a cough and was on a vent in 48 hrs. She had just turned 50. > > in Bama > > http://hometown.aol.com/mdl1031/myhomepage/profile.html > Surgery- RNY to DS revision on12/6 -377.5 > 2/17 - 346.5 ( minus 31lbs) > 01/15- 338.1 (minus 39.1lbs) > 02/12-330.0 (minus 47.5 lbs) > 03/02- 325 (minus 52.5 lbs) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2003 Report Share Posted March 25, 2003 , I'm so sorry to hear about your mom! That must have been devastating! BIG HUG! Tracey > > > > > > MArta's right, My momma died of sepsis where the infection got in the blood. > She started with a cough and was on a vent in 48 hrs. She had just turned 50. > > in Bama > > http://hometown.aol.com/mdl1031/myhomepage/profile.html > Surgery- RNY to DS revision on12/6 -377.5 > 2/17 - 346.5 ( minus 31lbs) > 01/15- 338.1 (minus 39.1lbs) > 02/12-330.0 (minus 47.5 lbs) > 03/02- 325 (minus 52.5 lbs) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2003 Report Share Posted March 25, 2003 , I'm so sorry to hear about your mom! That must have been devastating! BIG HUG! Tracey > > > > > > MArta's right, My momma died of sepsis where the infection got in the blood. > She started with a cough and was on a vent in 48 hrs. She had just turned 50. > > in Bama > > http://hometown.aol.com/mdl1031/myhomepage/profile.html > Surgery- RNY to DS revision on12/6 -377.5 > 2/17 - 346.5 ( minus 31lbs) > 01/15- 338.1 (minus 39.1lbs) > 02/12-330.0 (minus 47.5 lbs) > 03/02- 325 (minus 52.5 lbs) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2004 Report Share Posted March 22, 2004 Aren't you supposed to hear something tomorrow? Are you staying calm? His denial is part of his grieving process. Hugs, He will be going for his second set of blood tests tomorrow and the stomach ultrasound. The results will probably take another week. He's in denial because the doctor told him to not be alarmed. And I am sparing the details of my research until he gets some results. :} Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 22, 2004 Report Share Posted March 22, 2004 I think it's a good plan to save the research until he gets the results. Before that, he may reject anything you tell him. Even if there is something to be alarmed about, the doc probably still did the right thing in telling him that because doesn't need to stress out over the possibilities. Once he has facts, he cam process them logically, until then, emotions that over and we need as little stress as possible. Love & hugs, Faith is the ability to not panic. -----Original Message-----From: trayc08166@... Sent: Monday, March 22, 2004 10:46 AMTo: HepatitisCSupportGroupForDummies Subject: Re: Tracey Aren't you supposed to hear something tomorrow? Are you staying calm? His denial is part of his grieving process. Hugs, He will be going for his second set of blood tests tomorrow and the stomach ultrasound. The results will probably take another week. He's in denial because the doctor told him to not be alarmed. And I am sparing the details of my research until he gets some results. :} Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 24, 2004 Report Share Posted March 24, 2004 Take a few deep breaths, Tracey. Gather the facts & go from there. Do not let this overwhelm you. You have your own problems, too. Don't forget that you hae to take care of YOU first. Love & hugs, De Faith is the ability to not panic. -----Original Message-----From: trayc08166@... Sent: Tuesday, March 23, 2004 10:47 PMTo: HepatitisCSupportGroupForDummies Subject: Re: Tracey He did have an appt. today. It was his third appt. I thought it was only his second. She did refer him to a specialist. I asked him to send me copies of the medical instructions that he got today before I would talk about this any farther. I don't know what to think, say or feel. Thanks, Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2004 Report Share Posted March 25, 2004 At least the doctor didn't just phone thank god.I would wait until he hears from the specialist to decide what to do,but in the meantime is going to need help in obsorbing all this.I hope he lays of drinking and everything.If he is in pain they can give him proper medication for that.Take a deep breath and help him as much as possible to adjust and move forward for medical help.Go to the appointments with him.With news like that a second pair of ears is handy cause the word cancer is scary and sometimes the patient doesn't hear anything else after that word.Good luck hon and stay with us so we can help you as much as possible through these times.Also take care of yourself,so you can be of more help to him. Gail Well I'll be there for him as much as he wishes. We live an hour away from each other now. I'm not sure where he wants me right now, when I acted concerned, he acts likes I'm over reacting and when I make light of it he gets offended. Thanks, Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2004 Report Share Posted March 25, 2004 Dear Tracey, I forgot to mention that I just went through a major ordeal with my kids father, who is also my ex-husband, and best friend. Although, we have been divorced for over 13 years, we have remained the closest of friends, which worked out well for our children and everyone involved. But what I wanted to tell you that 2 years ago he was diagnosed with a cancer of the asophagus and lymph nodes in his neck. I air lifted him to MD. , one of the best known cancer hospitals in the world) They told us they could help, where everyone else, including our family Doctor told us he is terminal. After many months of treatment, very grueling treatment, chemotherapy and radiation , and several surgerys -- HE IS NOW CANCER FREE... Yes his cancer is terminal, BUT MIRACLES DO HAPPEN AND HE IS ALIVE AND DOING GREAT.... So tell your husband -- don't ever give up, and i do bleieve in prayer, I had everyone I knew and then some praying for him. And we made it, and he is alive and well and going to see our youngest to graduate from High School and got to see his first grandbaby and we have another on the way... So I just wanted to let you know -- all odds can be beat... Keep your faith and pray to your higher power... And know that I will be keeping you both in my daily prayers... May God continue to bless us all Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2004 Report Share Posted March 27, 2004 You and your husband are on our prayer list.None of us know why things happen this way,but it does and its up to us to help each other through the good and bad times.That is what god expects and that is what we are here for.Pour your heart and soul out,we will listen and pray for all of you every night.Take care girl and take care of yourself so that you stay strong emotinally and physically. Gail Sorry, I guess my stated love, caring and concern for made it sound like he was my husband. He isn't, however he is my best friend and I care so very much for him and love him more than any man. But we just never get that far, due to MY problem. It's crazy. But so is life, huh? Thanks for your prayers! This group is the greatest! Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2004 Report Share Posted March 27, 2004 Phone to see if he is home and let him know your coming over for a visit.Ask him if he would like to go for a walk with you or shoping or anywhere.He wants to avoid the subject for now.So act normal and get him doing something even if its only playing cards.Keep him mentally occupied so he will relax mentally about the hep c.He will find out what he needs to know when he sees the doctor.If the news is bad.Enjoy your time together,whether it be a picnic a day at the beach.Enjoy each day. Gail PS- I loved your list I do phone him everyday. Though he didn't call back yesterday, I don't want to be too overbearing, he may need his space and time right now. He is very independent and self sufficient. I have made a copy of my favorite relaxation tape to send to him with, (if I can get to the store to get him some) headphones. I bought him some DVD's of his favorite band, The Rolling Stones, and a few books. As he will be having more free time during his non-working, non-sleeping hours now that he has stopped drinking. Oh I would love to have the chance to sit and play cards with him! I'll sign off for now, I don't want to hog the board for the day! Thanks guys! Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2004 Report Share Posted March 27, 2004 http://deveauxkennels.tk mailto:gaila@... -----Original Message-----From: Gail Deveaux Sent: March 27, 2004 9:21 AMTo: HepatitsCSupportGroupForDummies Subject: Tracey You and your husband are on our prayer list.None of us know why things happen this way,but it does and its up to us to help each other through the good and bad times.That is what god expects and that is what we are here for.Pour your heart and soul out,we will listen and pray for all of you every night.Take care girl and take care of yourself so that you stay strong emotinally and physically. Gail http://deveauxkennels.tk mailto:gaila@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2004 Report Share Posted March 27, 2004 http://deveauxkennels.tk mailto:gaila@... -----Original Message-----From: Gail Deveaux Sent: March 27, 2004 9:21 AMTo: HepatitsCSupportGroupForDummies Subject: Tracey You and your husband are on our prayer list.None of us know why things happen this way,but it does and its up to us to help each other through the good and bad times.That is what god expects and that is what we are here for.Pour your heart and soul out,we will listen and pray for all of you every night.Take care girl and take care of yourself so that you stay strong emotinally and physically. Gail http://deveauxkennels.tk mailto:gaila@... Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 27, 2004 Report Share Posted March 27, 2004 I know I'm a day behind here, but Tracey, you're not off topic discussing any of the ailments that we have because of or in addition to the HCV. And I haven't really noticed any of us sticking to the HCV topic anyway. We talk about anything and everything here, especially in CHAT! LOL I'm on Lexapro for depression, but it sure helps with anxiety/panic, too, although I'm not diagnosed (dx) with panic disorder, I do have anxiety attacks at times. De Faith is the ability to not panic. I want to get too much off topic for the group, but are you on something? Work out? Relaxation tapes? Support groups? Counseling? Take Care, Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 I was on interferon and riboveron.Finished my treatment in 99.At that time it was three shots a wk and 5 riboveron pills a day.I gave myself the shots.The sides were very bad for me but at that time there was no information from groups and I had no computer then so I played it by ear.I don't know if they still do three shots a wk but the pills,riboveron will be the same.There is a 40% success rate with that treatment.I was one of the success stories. Gail Wow, only a 40%? And you did it! Good for you! ^5! Were you healthy otherwise? Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 I was just reading up on the Roche Pegasys co-Pegasys page www.pegassist.com the success rate seems to be 80% for non genotype 1 and only 50% for genotype 1 1 shot weekly 6 pills a day. sometimes I think reading too much is bad. I get all psyched up to do the treatment and then I read straight from the manufacturer that I have a 50-50 chance. oh well that better than no chance! Peace and LoveJoalle Thanks for this info, I shall save it for future reference. Have a good day, Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 Tracey, There's still only a 40-45 % success rate for genotype 1, but with the pegylated interferon, we only have to do 1 shot a week. We do it anyway, because we know 40% is better than 0% without the tx. Tx is more successful with genotypes other than 1. De Faith is the ability to not panic. -----Original Message-----From: trayc08166@... Sent: Monday, April 05, 2004 9:57 AMTo: HepatitisCSupportGroupForDummies Subject: Re: tracey Wow, only a 40%? And you did it! Good for you! ^5! Were you healthy otherwise? Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2004 Report Share Posted April 5, 2004 I can understand (in a way) if he thinks he's dying soon anyway, that he may be on self-destruct mode with his drinking. However, this will NOT be healthy for you and regardless of how you feel about him, YOU is who you need to be most concerned with. I'm wondering if took all the "possibilities" the dr. mentioned to him and turned them all into reality in his own mind. You need more info straight from the doctors in order to be of help to him. Please don't feel like you're wasting our time. We're here to help you understand it and sort it all out. BIG hugs, De Faith is the ability to not panic. I'm confused about him and what is going on and starting to question a lot if things about what he is saying. When I saw him this weekend (he just got back from the doctors and desperately needed to see me) he looked like hell, half DRUNK, with the spider angiomas about his face and neck, he coughs, I saw some blood on his finger, (which made me want to run and stay away from him) his face looks thin, his hair is thinning. I need (for my own mental health) him to tell me to give me the facts straight up cause I'm just wasting this groups time and getting an ulcer for someone that is just playing push me pull me games. I understand he needs time to come to grips with all of this, so that is what I shall give him. Ok, he just called (as I am writing this email) and I asked him to please be straight up with me. He has many things the matter with him but the doctors are not sure of the severity as he has not seen them all yet. He does know that he has HepC, a very messed up liver, he has low blood platelets, he is sheduled to see a cancer doctor next week for his stomach and colon. Dr. will tell a pt. I think it is time for you to put your affairs in order. I think he has decided to think about these things, out of fear, encase he has an unexpected demise. So, I've decided that I have to let go a little (for my own emotional well being) if he wishes to continue to go on with his drinking (maybe he will get serious in the near future after he processes it all) I will try to focus on other things in my life and sit back quietly and see what comes next. Thank you for all of your support and information. Tracey Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 9, 2004 Report Share Posted April 9, 2004 Loretta, That was so beautifully written, I just had to comment. I too lived with alcoholic abuse on and off my entire life. First my parents and then I married one... You think we would of learned. LOL Nothing helped me more than Alanon. It was the best program for me, and I could see that I was the caretaker and how I wanted to fix everything and everyone -- and deep down there was a big part of me that wanted to fix others so that I wouldn't have to take a long hard look at myself. Because, as you said, the only person we can fix -- is ourselves -- we don't have the capability to fix another -- which took me 32 years to figure. Yes, I am still probably a little co-dependant -- but a much smaller and wiser one. And I take care of myself first -- although that is so hard for us caretakers to do... May God continue to bless us all... Love, hugs and Prayers. Marie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 25, 2004 Report Share Posted April 25, 2004 Yes ma'am. Quote Link to comment Share on other sites More sharing options...
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