Guest guest Posted July 2, 2007 Report Share Posted July 2, 2007 I’m interested in this info also. Pamela " Courage is doing what you're afraid to do. There can be no courage unless you're scared. " Eddie Rickenbacker, top US fighter ace, WWI From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of Dunsmore Sent: Monday, July 02, 2007 5:41 PM To: mb12 valtrex Subject: OT - IVIG therapy Hello. Our son is currently undergoing antiviral/antifungal (valtrex/diflucan) therapy right now and it is helping him. It actually is the first major effort we have seen real improvements with! But, our precious, enduring little one has a very broken immune system that is not improving with our current set of treatments. Dr. Usman classifies him as immunodeficient and every time she looks at the numbers of his immunoglobulin classes and their subclasses, she is shocked. I just had an appt. at true health today to review our most recent bloodwork and even after a lot of supplement work, the IgG, IgA, and IgM levels are ALL still cripplingly low...we need to get IV blood plasma therapy done soon to help our sweet guy improve his health. I am looking for information on this type of therapy as well as " insider " tips and advice from anyone who knows about IVIG transfusions. Thanks! Sorry for the OT nature... ~ Got a little couch potato? Check out fun summer activities for kids. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2007 Report Share Posted July 2, 2007 We would be interested in this too. Dr. Usman also told us we need to make IVIG a priority for our son. He is immune to almost nothing and has gamma b strep titers that are so high they are on the high end of high and enough to classify him with PANDA's. I understand there are special diagnostic codes etc. that need to be used to get insurance to help pay for it and that not just every doctor does it, so travel is involved too. We want to help our little boy, but are sort of stuck as to where to start with this. Nickie -----Original Message-----From: mb12 valtrex [mailto:mb12 valtrex ]On Behalf Of DunsmoreSent: Monday, July 02, 2007 4:41 PMTo: mb12 valtrex Subject: OT - IVIG therapy Hello. Our son is currently undergoing antiviral/antifungal (valtrex/diflucan) therapy right now and it is helping him. It actually is the first major effort we have seen real improvements with! But, our precious, enduring little one has a very broken immune system that is not improving with our current set of treatments. Dr. Usman classifies him as immunodeficient and every time she looks at the numbers of his immunoglobulin classes and their subclasses, she is shocked. I just had an appt. at true health today to review our most recent bloodwork and even after a lot of supplement work, the IgG, IgA, and IgM levels are ALL still cripplingly low...we need to get IV blood plasma therapy done soon to help our sweet guy improve his health. I am looking for information on this type of therapy as well as "insider" tips and advice from anyone who knows about IVIG transfusions. Thanks! Sorry for the OT nature... ~ Got a little couch potato? Check out fun summer activities for kids. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2007 Report Share Posted July 2, 2007 Nickie~ I don't know about insurance b/c I haven't looked into that (and frankly would sell my right arm to pay for it if needed...) We live in Naperville and true health referred us to a specific doc a couple of miles down the road...if you want more info you can email me off-list... ~ OT - IVIG therapy Hello. Our son is currently undergoing antiviral/antifunga l (valtrex/diflucan) therapy right now and it is helping him. It actually is the first major effort we have seen real improvements with! But, our precious, enduring little one has a very broken immune system that is not improving with our current set of treatments. Dr. Usman classifies him as immunodeficient and every time she looks at the numbers of his immunoglobulin classes and their subclasses, she is shocked. I just had an appt. at true health today to review our most recent bloodwork and even after a lot of supplement work, the IgG, IgA, and IgM levels are ALL still cripplingly low...we need to get IV blood plasma therapy done soon to help our sweet guy improve his health. I am looking for information on this type of therapy as well as "insider" tips and advice from anyone who knows about IVIG transfusions. Thanks! Sorry for the OT nature... ~ Got a little couch potato? Check out fun summer activities for kids. Building a website is a piece of cake. Yahoo! Small Business gives you all the tools to get online. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2007 Report Share Posted July 2, 2007 Thanks . Is it the doctor is Aurora? mentioned that office and Arch Center in Wisconsin. I'd much rather stay in Illinois if possible. We live in Springfield, so it's only a 2 and a half to three hour drive. Nickie -----Original Message-----From: mb12 valtrex [mailto:mb12 valtrex ]On Behalf Of DunsmoreSent: Monday, July 02, 2007 6:28 PMTo: mb12 valtrex Subject: Re: OT - IVIG therapy Nickie~ I don't know about insurance b/c I haven't looked into that (and frankly would sell my right arm to pay for it if needed...) We live in Naperville and true health referred us to a specific doc a couple of miles down the road...if you want more info you can email me off-list... ~ OT - IVIG therapy Hello. Our son is currently undergoing antiviral/antifunga l (valtrex/diflucan) therapy right now and it is helping him. It actually is the first major effort we have seen real improvements with! But, our precious, enduring little one has a very broken immune system that is not improving with our current set of treatments. Dr. Usman classifies him as immunodeficient and every time she looks at the numbers of his immunoglobulin classes and their subclasses, she is shocked. I just had an appt. at true health today to review our most recent bloodwork and even after a lot of supplement work, the IgG, IgA, and IgM levels are ALL still cripplingly low...we need to get IV blood plasma therapy done soon to help our sweet guy improve his health. I am looking for information on this type of therapy as well as "insider" tips and advice from anyone who knows about IVIG transfusions. Thanks! Sorry for the OT nature... ~ Got a little couch potato? Check out fun summer activities for kids. Building a website is a piece of cake. Yahoo! Small Business gives you all the tools to get online. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2007 Report Share Posted July 2, 2007 Hi everyone, I suggest you talk to Dr Levingson at http://vitalitywellness.com/ for IVIG therapy. He is my sons DAN doctor and had us do blood work to show that my sons immune system was shot. Because my sons immunity was so low our insurance has paid for the last 5 IVIG treatments. Just to let you know we live in Sacramento and Dr Levinson is in Florida. Good luck. MarkHiggins wrote: Thanks . Is it the doctor is Aurora? mentioned that office and Arch Center in Wisconsin. I'd much rather stay in Illinois if possible. We live in Springfield, so it's only a 2 and a half to three hour drive. Nickie -----Original Message-----From: mb12 valtrex [mailto:mb12 valtrex ]On Behalf Of DunsmoreSent: Monday, July 02, 2007 6:28 PMTo: mb12 valtrex Subject: Re: OT - IVIG therapy Nickie~ I don't know about insurance b/c I haven't looked into that (and frankly would sell my right arm to pay for it if needed...) We live in Naperville and true health referred us to a specific doc a couple of miles down the road...if you want more info you can email me off-list... ~ OT - IVIG therapy Hello. Our son is currently undergoing antiviral/antifunga l (valtrex/diflucan) therapy right now and it is helping him. It actually is the first major effort we have seen real improvements with! But, our precious, enduring little one has a very broken immune system that is not improving with our current set of treatments. Dr. Usman classifies him as immunodeficient and every time she looks at the numbers of his immunoglobulin classes and their subclasses, she is shocked. I just had an appt. at true health today to review our most recent bloodwork and even after a lot of supplement work, the IgG, IgA, and IgM levels are ALL still cripplingly low...we need to get IV blood plasma therapy done soon to help our sweet guy improve his health. I am looking for information on this type of therapy as well as "insider" tips and advice from anyone who knows about IVIG transfusions. Thanks! Sorry for the OT nature... ~ Got a little couch potato? Check out fun summer activities for kids. Building a website is a piece of cake. Yahoo! Small Business gives you all the tools to get online. Be a better Globetrotter. Get better travel answers from someone who knows.Yahoo! Answers - Check it out. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 2, 2007 Report Share Posted July 2, 2007 wow, please keep us updated on what happens. Did your son show any outward signs that were specific to the immune problems? Thanks, Jen OT - IVIG therapy Hello. Our son is currently undergoing antiviral/antifungal (valtrex/diflucan) therapy right now and it is helping him. It actually is the first major effort we have seen real improvements with! But, our precious, enduring little one has a very broken immune system that is not improving with our current set of treatments. Dr. Usman classifies him as immunodeficient and every time she looks at the numbers of his immunoglobulin classes and their subclasses, she is shocked. I just had an appt. at true health today to review our most recent bloodwork and even after a lot of supplement work, the IgG, IgA, and IgM levels are ALL still cripplingly low...we need to get IV blood plasma therapy done soon to help our sweet guy improve his health. I am looking for information on this type of therapy as well as "insider" tips and advice from anyone who knows about IVIG transfusions. Thanks! Sorry for the OT nature... ~ Got a little couch potato? Check out fun summer activities for kids. No virus found in this incoming message.Checked by AVG Free Edition. Version: 7.5.476 / Virus Database: 269.9.14/883 - Release Date: 7/1/2007 12:19 PM Quote Link to comment Share on other sites More sharing options...
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