New and very overwhelmed!

[Guest guest]

Hi, I am new to the group as of a few weeks ago. I have just been

reading posts and have not really added anything as of yet. I have a

3 1/2 year old son who is newly diagnosed with autism. I have spent

the past month researching everything I can find. I have started

Christian on a GFCF diet and it has been about a week. I haven't

really seen any change, good or bad. I'm rather disappointed because

I expected something, even if it was bad. He is already on food

enzymes and is seeing a naturopath who does muscle testing. She

found mercury and cadmium in 2 different parts of his brain and

started him on clay supplements to bind to the metal and allow his

body to get rid of the metals. I have seen a positive change in him

since he has been on the clay supplement, especially in the areas of

speech and sleep. Unfortunately, it is going to be at least 3-4

months before we can get in to see a DAN! doctor and I don't want to

wait that long to do something for him. The more I read, the more

overwhelmed I become. I'm just wondering what I need to do. Is the

diet helping? Should I try something else? What else do I need to

make sure he's taking? Also, should I continue taking him to the

naturopath or will it make things worse? Could it be possible that

the supplement is working? It just seems too good to be true. Sorry

to sound so naive, I'm just new at all this and I want to help him.

I'm just not sure how to sort out all of the information I have

obtained in the past month. Any advice anyone can give me would

really be appreciated. Thanks in advance.

Mom to Christian, 3 1/2 and Wyatt, 14 months

[Guest guest]

Hi ,

I remember when I started my son on the GFCF diet I felt the same

way. The change was so gradual that I couldn't tell whether it was

making an impact. We started CF first. After 2 weeks I gave him

yogurt and noticed that his echolalia which started to fade came back

in full force. For the next 3 days, he sounded like a broken record.

This was when it was clear that CF was indeed working and we had to

ake the next step to GF. The biggest thing we noticed with GF was

when he had an infraction several months into it. He turned into a

monster the next day and it lasted for several horrible days. For my

son, we also started soy free. I have heard from other groups that

when you remove GF and CF, other allergies start to emerge and

parents find that soy and corn and some of the most common culprits.

We have not noticed a problem with occasional soy, but my daughter

reacts to it so it is easier to take it out since they are both on

the diet when my daughter is at home. The diet takes a lot of

diligence and patience. GFCF is also not universal just as ASD is a

spectrum disease and treatments are not one size fits all. Many kids

do better on the SCD, feingold, low oxalate or a combination of

various diets out there. It is overwheming and frustrating, but it

will take time to figure it out. It might help to keep a journal and

rotate his food. It can take up to 72 hours for an intolerance to

show up (some people have stated that it takes even longer) and you

might start to find a pattern with your son. I was told in the

beginning of GFCF that you should notice something with CF in about 2

weeks and that GF can take 3 to 6 months.

Here is a detailed biomed compilation from Dr. Jepson at Thoughtful

house. It is from a while back, but I still find it helpful and go

back to it from time to time. There are many more.

http://www.cbcutah.net/Documents/Understanding%20Autism%2018JAN04.pdf

I also love danasview.net

Hang in there.

>

> Hi, I am new to the group as of a few weeks ago. I have just been

> reading posts and have not really added anything as of yet. I have

a

> 3 1/2 year old son who is newly diagnosed with autism. I have spent

> the past month researching everything I can find. I have started

> Christian on a GFCF diet and it has been about a week. I haven't

> really seen any change, good or bad. I'm rather disappointed

because

> I expected something, even if it was bad. He is already on food

> enzymes and is seeing a naturopath who does muscle testing. She

> found mercury and cadmium in 2 different parts of his brain and

> started him on clay supplements to bind to the metal and allow his

> body to get rid of the metals. I have seen a positive change in him

> since he has been on the clay supplement, especially in the areas

of

> speech and sleep. Unfortunately, it is going to be at least 3-4

> months before we can get in to see a DAN! doctor and I don't want

to

> wait that long to do something for him. The more I read, the more

> overwhelmed I become. I'm just wondering what I need to do. Is the

> diet helping? Should I try something else? What else do I need to

> make sure he's taking? Also, should I continue taking him to the

> naturopath or will it make things worse? Could it be possible that

> the supplement is working? It just seems too good to be true. Sorry

> to sound so naive, I'm just new at all this and I want to help him.

> I'm just not sure how to sort out all of the information I have

> obtained in the past month. Any advice anyone can give me would

> really be appreciated. Thanks in advance.

>

>

> Mom to Christian, 3 1/2 and Wyatt, 14 months

>

[Guest guest]

,

Thank you for that info. That is a great article! And is also very overwhelming! Maybe I'll print it off and give it to the naturopath to read and then see what she says our next visit. Thanks again.

[Guest guest]

I would definitely stay with the GFCF

diet. A week is not long enough to tell if you are going to see a change. You

may also be interested in the Yahoo group chelatingkids2.

While waiting for your DAN! doctor I can recommend a couple of books that you may be interested

in.

“What Your Doctor May NOT Tell You about

Childhood Vaccinations” by Dr. S Cave

“Children with Starving Brains”

by Dr. J McCandless

“Facing Autism” by Lynn

Hamilton

Pamela

" Courage is doing

what you're afraid to do. There can be no courage unless you're scared. "

Eddie Rickenbacker,

top US

fighter ace, WWI

From: mb12 valtrex [mailto:mb12 valtrex ] On Behalf Of mommy11903

Sent: Sunday, June 03, 2007 10:23

AM

To: mb12 valtrex

Subject: New and

very overwhelmed!

Hi, I am new to the group as of a few weeks ago. I

have just been

reading posts and have not really added anything as of yet. I have a

3 1/2 year old son who is newly diagnosed with autism. I have spent

the past month researching everything I can find. I have started

Christian on a GFCF diet and it has been about a week. I haven't

really seen any change, good or bad. I'm rather disappointed because

I expected something, even if it was

bad. He is already on food

enzymes and is seeing a naturopath

who does muscle testing. She

found mercury and cadmium in 2

different parts of his brain and

started him on clay supplements to

bind to the metal and allow his

body to get rid of the metals. I

have seen a positive change in him

since he has been on the clay supplement,

especially in the areas of

speech and sleep. Unfortunately, it is going to be at least 3-4

months before we can get in to see a DAN! doctor and I don't want to

wait that long to do something for

him. The more I read, the more

overwhelmed I become. I'm just wondering what I need to do. Is the

diet helping? Should I try something

else? What else do I need to

make sure he's taking? Also, should I continue taking him to the

naturopath or will it make things worse? Could it be possible that

the supplement is working? It just

seems too good to be true. Sorry

to sound so naive, I'm just new at all this and I want to help him.

I'm just not sure how to sort out all of the information I have

obtained in the past month. Any advice anyone can give me

would

really be appreciated. Thanks in advance.

Mom to Christian, 3 1/2 and Wyatt,

14 months

[Guest guest]

Thank you.