Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 I'm praying and have asked some friends to pray also.Shari " this week has been probably the most difficult so far. his doctors sat me down yesterday and told me his right lung has not improved at all. they feel we're getting close to the point where we're doing things " to him " and not " for him " . the switch to the different ventilator is kind of like a hail mary. this has to work, his right lung has to show some type of improvement by this coming monday. they'll do a ct scan and if there's been no change, they will more than likely take him off bypass and the chances for him off bypass are poor at best. i'm writing this but i can't let myself absorb any of it. i sobbed most of yesterday, breaking down in front of my family last night. i'm trying my best to stay strong, and i believe in my son... the kind of terror i feel right now just can't be explained. evin is every dream, wish on a star, prayer and penny thrown in a fountain come true. if you know of any prayer list he's not already on, please put him on it. i can't lose my son. i can't lose my son and i will never let go or stop fighting. " This is an excerpt from an email I received earlier this evening written by a mom in our local Down syndrome association. The mom who wrote this email is talking about her only child who is 7 months old. He had his AVSD repaired in December and all seemed well. He got sick with I believe pneumonia a few weeks ago and was put into Levine Children's Hospital here in Charlotte, NC. I know he is on ECMO and has had many other procedures done to try to improve his condition but it doesn't sound like anything is making a huge difference. Please pray for both of them! Please ask anyone you know to pray! Ruby= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 16, 2010 Report Share Posted February 16, 2010 We'll pray for them and put out a prayer request, would you be willing to share just their first names, if you don't mind. I think the little boy's name is Evin, correct? Thank you, Caroline " this week has been probably the most difficult so far. his doctors sat me down yesterday and told me his right lung has not improved at all. they feel we're getting close to the point where we're doing things " to him " and not " for him " . the switch to the different ventilator is kind of like a hail mary. this has to work, his right lung has to show some type of improvement by this coming monday. they'll do a ct scan and if there's been no change, they will more than likely take him off bypass and the chances for him off bypass are poor at best. i'm writing this but i can't let myself absorb any of it. i sobbed most of yesterday, breaking down in front of my family last night. i'm trying my best to stay strong, and i believe in my son... the kind of terror i feel right now just can't be explained. evin is every dream, wish on a star, prayer and penny thrown in a fountain come true. if you know of any prayer list he's not already on, please put him on it. i can't lose my son. i can't lose my son and i will never let go or stop fighting. " This is an excerpt from an email I received earlier this evening written by a mom in our local Down syndrome association. The mom who wrote this email is talking about her only child who is 7 months old. He had his AVSD repaired in December and all seemed well. He got sick with I believe pneumonia a few weeks ago and was put into Levine Children's Hospital here in Charlotte, NC. I know he is on ECMO and has had many other procedures done to try to improve his condition but it doesn't sound like anything is making a huge difference. Please pray for both of them! Please ask anyone you know to pray! Ruby = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 My prayers and thoughts are with you and your son. Shirley Subject: [DownSyndromeInfoExchange] Prayers please !!!!!!!!To: "DownSyndromeInfoExchange" <DownSyndromeInfoExchange >Date: Wednesday, February 17, 2010, 5:11 AM "this week has been probably the most difficult so far. his doctors sat me down yesterday and told me his right lung has not improved at all. they feel we're getting close to the point where we're doing things "to him" and not "for him". the switch to the different ventilator is kind of like a hail mary. this has to work, his right lung has to show some type of improvement by this coming monday. they'll do a ct scan and if there's been no change, they will more than likely take him off bypass and the chances for him off bypass are poor at best. i'm writing this but i can't let myself absorb any of it. i sobbed most of yesterday, breaking down in front of my family last night. i'm trying my best to stay strong, and i believe in my son... the kind of terror i feel right now just can't be explained. evin is every dream, wish on a star, prayer and penny thrown in a fountain come true. if you know of any prayer list he's not already on, please put him on it. i can't lose my son. i can't lose my son and i will never let go or stop fighting." This is an excerpt from an email I received earlier this evening written by a mom in our local Down syndrome association. The mom who wrote this email is talking about her only child who is 7 months old. He had his AVSD repaired in December and all seemed well. He got sick with I believe pneumonia a few weeks ago and was put into Levine Children's Hospital here in Charlotte, NC. I know he is on ECMO and has had many other procedures done to try to improve his condition but it doesn't sound like anything is making a huge difference. Please pray for both of them! Please ask anyone you know to pray! Ruby ! = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 Praying here. Kathy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 Yes, Evin and Pamela. Thank you all so much for your prayers.RubyWe'll pray for them and put out a prayer request, would you be willing to share just their first names, if you don't mind. I think the little boy's name is Evin, correct? Thank you,CarolineOn Tue, Feb 16, 2010 at 11:11 PM, Ruby Bowdoin <hapytocmeaol> wrote: "this week has been probably the most difficult so far. his doctors sat me down yesterday and told me his right lung has not improved at all. they feel we're getting close to the point where we're doing things "to him" and not "for him". the switch to the different ventilator is kind of like a hail mary. this has to work, his right lung has to show some type of improvement by this coming monday. they'll do a ct scan and if there's been no change, they will more than likely take him off bypass and the chances for him off bypass are poor at best.i'm writing this but i can't let myself absorb any of it. i sobbed most of yesterday, breaking down in front of my family last night. i'm trying my best to stay strong, and i believe in my son... the kind of terror i feel right now just can't be explained. evin is every dream, wish on a star, prayer and penny thrown in a fountain come true. if you know of any prayer list he's not already on, please put him on it. i can't lose my son. i can't lose my son and i will never let go or stop fighting."This is an excerpt from an email I received earlier this evening written by a mom in our local Down syndrome association. The mom who wrote this email is talking about her only child who is 7 months old. He had his AVSD repaired in December and all seemed well. He got sick with I believe pneumonia a few weeks ago and was put into Levine Children's Hospital here in Charlotte, NC. I know he is on ECMO and has had many other procedures done to try to improve his condition but it doesn't sound like anything is making a huge difference. Please pray for both of them! Please ask anyone you know to pray! Ruby= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 Sending prayers to Evin and his family. " this week has been probably the most difficult so far. his doctors sat me down yesterday and told me his right lung has not improved at all. they feel we're getting close to the point where we're doing things " to him " and not " for him " . the switch to the different ventilator is kind of like a hail mary. this has to work, his right lung has to show some type of improvement by this coming monday. they'll do a ct scan and if there's been no change, they will more than likely take him off bypass and the chances for him off bypass are poor at best. i'm writing this but i can't let myself absorb any of it. i sobbed most of yesterday, breaking down in front of my family last night. i'm trying my best to stay strong, and i believe in my son... the kind of terror i feel right now just can't be explained. evin is every dream, wish on a star, prayer and penny thrown in a fountain come true. if you know of any prayer list he's not already on, please put him on it. i can't lose my son. i can't lose my son and i will never let go or stop fighting. " This is an excerpt from an email I received earlier this evening written by a mom in our local Down syndrome association. The mom who wrote this email is talking about her only child who is 7 months old. He had his AVSD repaired in December and all seemed well. He got sick with I believe pneumonia a few weeks ago and was put into Levine Children's Hospital here in Charlotte, NC. I know he is on ECMO and has had many other procedures done to try to improve his condition but it doesn't sound like anything is making a huge difference. Please pray for both of them! Please ask anyone you know to pray! Ruby = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 praying here, tooKathyR " this week has been probably the most difficult so far. his doctors sat me down yesterday and told me his right lung has not improved at all. they feel we're getting close to the point where we're doing things " to him " and not " for him " . the switch to the different ventilator is kind of like a hail mary. this has to work, his right lung has to show some type of improvement by this coming monday. they'll do a ct scan and if there's been no change, they will more than likely take him off bypass and the chances for him off bypass are poor at best. i'm writing this but i can't let myself absorb any of it. i sobbed most of yesterday, breaking down in front of my family last night. i'm trying my best to stay strong, and i believe in my son... the kind of terror i feel right now just can't be explained. evin is every dream, wish on a star, prayer and penny thrown in a fountain come true. if you know of any prayer list he's not already on, please put him on it. i can't lose my son. i can't lose my son and i will never let go or stop fighting. " This is an excerpt from an email I received earlier this evening written by a mom in our local Down syndrome association. The mom who wrote this email is talking about her only child who is 7 months old. He had his AVSD repaired in December and all seemed well. He got sick with I believe pneumonia a few weeks ago and was put into Levine Children's Hospital here in Charlotte, NC. I know he is on ECMO and has had many other procedures done to try to improve his condition but it doesn't sound like anything is making a huge difference. Please pray for both of them! Please ask anyone you know to pray! Ruby= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 Lifting him up in prayer! Debbie > > " this week has been probably the most difficult so far. his doctors > sat me down yesterday and told me his right lung has not improved at > all. they feel we're getting close to the point where we're doing > things " to him " and not " for him " . the switch to the different > ventilator is kind of like a hail mary. this has to work, his right > lung has to show some type of improvement by this coming monday. > they'll do a ct scan and if there's been no change, they will more > than likely take him off bypass and the chances for him off bypass are > poor at best. > i'm writing this but i can't let myself absorb any of it. i sobbed > most of yesterday, breaking down in front of my family last night. i'm > trying my best to stay strong, and i believe in my son... the kind of > terror i feel right now just can't be explained. evin is every dream, > wish on a star, prayer and penny thrown in a fountain come true. if > you know of any prayer list he's not already on, please put him on it. > i can't lose my son. i can't lose my son and i will never let go or > stop fighting. " > > This is an excerpt from an email I received earlier this evening > written by a mom in our local Down syndrome association. The mom who > wrote this email is talking about her only child who is 7 months old. > He had his AVSD repaired in December and all seemed well. He got sick > with I believe pneumonia a few weeks ago and was put into Levine > Children's Hospital here in Charlotte, NC. I know he is on ECMO and > has had many other procedures done to try to improve his condition but > it doesn't sound like anything is making a huge difference. Please > pray for both of them! Please ask anyone you know to pray! > > Ruby > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 Thanks to everyone who helped lift up Evin and Pamela in prayer! I received an email this morning with a small bit of hope! Seems they think there is a slight improvement in his lung- hopefully this will continue. Please continue to pray and hopefully soon I will have more good news to share with you all!Rubypraying here, tooKathyROn Wed, Feb 17, 2010 at 12:11 AM, Ruby Bowdoin <hapytocmeaol> wrote: "this week has been probably the most difficult so far. his doctors sat me down yesterday and told me his right lung has not improved at all. they feel we're getting close to the point where we're doing things "to him" and not "for him". the switch to the different ventilator is kind of like a hail mary. this has to work, his right lung has to show some type of improvement by this coming monday. they'll do a ct scan and if there's been no change, they will more than likely take him off bypass and the chances for him off bypass are poor at best.i'm writing this but i can't let myself absorb any of it. i sobbed most of yesterday, breaking down in front of my family last night. i'm trying my best to stay strong, and i believe in my son... the kind of terror i feel right now just can't be explained. evin is every dream, wish on a star, prayer and penny thrown in a fountain come true. if you know of any prayer list he's not already on, please put him on it. i can't lose my son. i can't lose my son and i will never let go or stop fighting."This is an excerpt from an email I received earlier this evening written by a mom in our local Down syndrome association. The mom who wrote this email is talking about her only child who is 7 months old. He had his AVSD repaired in December and all seemed well. He got sick with I believe pneumonia a few weeks ago and was put into Levine Children's Hospital here in Charlotte, NC. I know he is on ECMO and has had many other procedures done to try to improve his condition but it doesn't sound like anything is making a huge difference. Please pray for both of them! Please ask anyone you know to pray! Ruby= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 Praise God!! Any imporvement is wonderful news! Thanks to everyone who helped lift up Evin and Pamela in prayer! I received an email this morning with a small bit of hope! Seems they think there is a slight improvement in his lung- hopefully this will continue. Please continue to pray and hopefully soon I will have more good news to share with you all! Ruby praying here, tooKathyR On Wed, Feb 17, 2010 at 12:11 AM, Ruby Bowdoin wrote: " this week has been probably the most difficult so far. his doctors sat me down yesterday and told me his right lung has not improved at all. they feel we're getting close to the point where we're doing things " to him " and not " for him " . the switch to the different ventilator is kind of like a hail mary. this has to work, his right lung has to show some type of improvement by this coming monday. they'll do a ct scan and if there's been no change, they will more than likely take him off bypass and the chances for him off bypass are poor at best. i'm writing this but i can't let myself absorb any of it. i sobbed most of yesterday, breaking down in front of my family last night. i'm trying my best to stay strong, and i believe in my son... the kind of terror i feel right now just can't be explained. evin is every dream, wish on a star, prayer and penny thrown in a fountain come true. if you know of any prayer list he's not already on, please put him on it. i can't lose my son. i can't lose my son and i will never let go or stop fighting. " This is an excerpt from an email I received earlier this evening written by a mom in our local Down syndrome association. The mom who wrote this email is talking about her only child who is 7 months old. He had his AVSD repaired in December and all seemed well. He got sick with I believe pneumonia a few weeks ago and was put into Levine Children's Hospital here in Charlotte, NC. I know he is on ECMO and has had many other procedures done to try to improve his condition but it doesn't sound like anything is making a huge difference. Please pray for both of them! Please ask anyone you know to pray! Ruby = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 Ruby, You tell Pamela to keep you updated. The more frequently we hear their names mentioned, the more the prayers will be offered. Keep asking! That's very hopeful news. Marsha > > > > > > " this week has been probably the most difficult so far. his doctors > > sat me down yesterday and told me his right lung has not improved at > > all. they feel we're getting close to the point where we're doing > > things " to him " and not " for him " . the switch to the different > > ventilator is kind of like a hail mary. this has to work, his right > > lung has to show some type of improvement by this coming monday. > > they'll do a ct scan and if there's been no change, they will more > > than likely take him off bypass and the chances for him off bypass > > are poor at best. > > i'm writing this but i can't let myself absorb any of it. i sobbed > > most of yesterday, breaking down in front of my family last night. > > i'm trying my best to stay strong, and i believe in my son... the > > kind of terror i feel right now just can't be explained. evin is > > every dream, wish on a star, prayer and penny thrown in a fountain > > come true. if you know of any prayer list he's not already on, > > please put him on it. i can't lose my son. i can't lose my son and i > > will never let go or stop fighting. " > > > > This is an excerpt from an email I received earlier this evening > > written by a mom in our local Down syndrome association. The mom > > who wrote this email is talking about her only child who is 7 months > > old. He had his AVSD repaired in December and all seemed well. He > > got sick with I believe pneumonia a few weeks ago and was put into > > Levine Children's Hospital here in Charlotte, NC. I know he is on > > ECMO and has had many other procedures done to try to improve his > > condition but it doesn't sound like anything is making a huge > > difference. Please pray for both of them! Please ask anyone you > > know to pray! > > > > Ruby > > > > = > > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 Great news. Will keep praying. Shirley "this week has been probably the most difficult so far. his doctors sat me down yesterday and told me his right lung has not improved at all. they feel we're getting close to the point where we're doing things "to him" and not "for him". the switch to the different ventilator is kind of like a hail mary. this has to work, his right lung has to show some type of improvement by this coming monday. they'll do a ct scan and if there's been! no chan ge, they will more than likely take him off bypass and the chances for him off bypass are poor at best. i'm writing this but i can't let myself absorb any of it. i sobbed most of yesterday, breaking down in front of my family last night. i'm trying my best to stay strong, and i believe in my son... the kind of terror i feel right now just can't be explained. evin is every dream, wish on a star, prayer and penny thrown in a fountain come true. if you know of any prayer list he's not already on, please put him on it. i can't lose my son. i can't lose my son and i will never let go or stop fighting." This is an excerpt from an email I received earlier this evening written by a mom in our local Down syndrome association. The mom who wrote this email is talking about her only child who is 7 months old. He had his AVSD repaired in December and all seemed well. He got sick with I believe pneumonia a few weeks ago and was put into Levine Children's Hospital here in Charlotte, NC. I know he is on ECMO and has had many other procedures done to try to improve his condition but it doesn't sound like anything is making a huge difference. Please pray for both of them! Please ask anyone you know to pray! Ruby = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 that is wonderful news... Thanks to everyone who helped lift up Evin and Pamela in prayer! I received an email this morning with a small bit of hope! Seems they think there is a slight improvement in his lung- hopefully this will continue. Please continue to pray and hopefully soon I will have more good news to share with you all! Ruby praying here, tooKathyROn Wed, Feb 17, 2010 at 12:11 AM, Ruby Bowdoin wrote: " this week has been probably the most difficult so far. his doctors sat me down yesterday and told me his right lung has not improved at all. they feel we're getting close to the point where we're doing things " to him " and not " for him " . the switch to the different ventilator is kind of like a hail mary. this has to work, his right lung has to show some type of improvement by this coming monday. they'll do a ct scan and if there's been no change, they will more than likely take him off bypass and the chances for him off bypass are poor at best. i'm writing this but i can't let myself absorb any of it. i sobbed most of yesterday, breaking down in front of my family last night. i'm trying my best to stay strong, and i believe in my son... the kind of terror i feel right now just can't be explained. evin is every dream, wish on a star, prayer and penny thrown in a fountain come true. if you know of any prayer list he's not already on, please put him on it. i can't lose my son. i can't lose my son and i will never let go or stop fighting. " This is an excerpt from an email I received earlier this evening written by a mom in our local Down syndrome association. The mom who wrote this email is talking about her only child who is 7 months old. He had his AVSD repaired in December and all seemed well. He got sick with I believe pneumonia a few weeks ago and was put into Levine Children's Hospital here in Charlotte, NC. I know he is on ECMO and has had many other procedures done to try to improve his condition but it doesn't sound like anything is making a huge difference. Please pray for both of them! Please ask anyone you know to pray! Ruby= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 Hallelujah! I am very happy to hear this.Shari Thanks to everyone who helped lift up Evin and Pamela in prayer! I received an email this morning with a small bit of hope! Seems they think there is a slight improvement in his lung- hopefully this will continue. Please continue to pray and hopefully soon I will have more good news to share with you all! Ruby praying here, tooKathyROn Wed, Feb 17, 2010 at 12:11 AM, Ruby Bowdoin wrote: " this week has been probably the most difficult so far. his doctors sat me down yesterday and told me his right lung has not improved at all. they feel we're getting close to the point where we're doing things " to him " and not " for him " . the switch to the different ventilator is kind of like a hail mary. this has to work, his right lung has to show some type of improvement by this coming monday. they'll do a ct scan and if there's been no change, they will more than likely take him off bypass and the chances for him off bypass are poor at best. i'm writing this but i can't let myself absorb any of it. i sobbed most of yesterday, breaking down in front of my family last night. i'm trying my best to stay strong, and i believe in my son... the kind of terror i feel right now just can't be explained. evin is every dream, wish on a star, prayer and penny thrown in a fountain come true. if you know of any prayer list he's not already on, please put him on it. i can't lose my son. i can't lose my son and i will never let go or stop fighting. " This is an excerpt from an email I received earlier this evening written by a mom in our local Down syndrome association. The mom who wrote this email is talking about her only child who is 7 months old. He had his AVSD repaired in December and all seemed well. He got sick with I believe pneumonia a few weeks ago and was put into Levine Children's Hospital here in Charlotte, NC. I know he is on ECMO and has had many other procedures done to try to improve his condition but it doesn't sound like anything is making a huge difference. Please pray for both of them! Please ask anyone you know to pray! Ruby= Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 Wonderful news!! Will keep them lifted up in prayer. Debbie > > Thanks to everyone who helped lift up Evin and Pamela in prayer! I > received an email this morning with a small bit of hope! Seems they > think there is a slight improvement in his lung- hopefully this will > continue. Please continue to pray and hopefully soon I will have > more good news to share with you all! > Ruby Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 Marsha,I am constantly checking email for updates :-) Kind of like being on pins and needles just waiting for some good news. Unfortunatley, she has limited access to a computer so the updates directly from Pamela don't come very often. So we have to wait for the people who go visit to send out an email update. She is also no longer able to use her cell phone for updates due to the new machine in Evin's room. I will keep the updates rolling in as I hear them and thank you to everyone praying!RubyRuby,You tell Pamela to keep you updated. The more frequently we hear their names mentioned, the more the prayers will be offered. Keep asking! That's very hopeful news. Marsha > >> >> > "this week has been probably the most difficult so far. his doctors > > sat me down yesterday and told me his right lung has not improved at > > all. they feel we're getting close to the point where we're doing > > things "to him" and not "for him". the switch to the different > > ventilator is kind of like a hail mary. this has to work, his right > > lung has to show some type of improvement by this coming monday. > > they'll do a ct scan and if there's been no change, they will more > > than likely take him off bypass and the chances for him off bypass > > are poor at best.> > i'm writing this but i can't let myself absorb any of it. i sobbed > > most of yesterday, breaking down in front of my family last night. > > i'm trying my best to stay strong, and i believe in my son... the > > kind of terror i feel right now just can't be explained. evin is > > every dream, wish on a star, prayer and penny thrown in a fountain > > come true. if you know of any prayer list he's not already on, > > please put him on it. i can't lose my son. i can't lose my son and i > > will never let go or stop fighting."> >> > This is an excerpt from an email I received earlier this evening > > written by a mom in our local Down syndrome association. The mom > > who wrote this email is talking about her only child who is 7 months > > old. He had his AVSD repaired in December and all seemed well. He > > got sick with I believe pneumonia a few weeks ago and was put into > > Levine Children's Hospital here in Charlotte, NC. I know he is on > > ECMO and has had many other procedures done to try to improve his > > condition but it doesn't sound like anything is making a huge > > difference. Please pray for both of them! Please ask anyone you > > know to pray!> >> > Ruby> >> > => >> >> >> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 Thanks God!!!! deb Re: [DownSyndromeInfoExchange] Prayers please !!!!!!!! Hallelujah! I am very happy to hear this.Shari On Thu, Feb 18, 2010 at 12:26 PM, Ruby Bowdoin <hapytocmeaol> wrote: Thanks to everyone who helped lift up Evin and Pamela in prayer! I received an email this morning with a small bit of hope! Seems they think there is a slight improvement in his lung- hopefully this will continue. Please continue to pray and hopefully soon I will have more good news to share with you all! Ruby praying here, tooKathyR On Wed, Feb 17, 2010 at 12:11 AM, Ruby Bowdoin <hapytocmeaol> wrote: "this week has been probably the most difficult so far. his doctors sat me down yesterday and told me his right lung has not improved at all. they feel we're getting close to the point where we're doing things "to him" and not "for him". the switch to the different ventilator is kind of like a hail mary. this has to work, his right lung has to show some type of improvement by this coming monday. they'll do a ct scan and if there's been no change, they will more than likely take him off bypass and the chances for him off bypass are poor at best. i'm writing this but i can't let myself absorb any of it. i sobbed most of yesterday, breaking down in front of my family last night. i'm trying my best to stay strong, and i believe in my son... the kind of terror i feel right now just can't be explained. evin is every dream, wish on a star, prayer and penny thrown in a fountain come true. if you know of any prayer list he's not already on, please put him on it. i can't lose my son. i can't lose my son and i will never let go or stop fighting." This is an excerpt from an email I received earlier this evening written by a mom in our local Down syndrome association. The mom who wrote this email is talking about her only child who is 7 months old. He had his AVSD repaired in December and all seemed well. He got sick with I believe pneumonia a few weeks ago and was put into Levine Children's Hospital here in Charlotte, NC. I know he is on ECMO and has had many other procedures done to try to improve his condition but it doesn't sound like anything is making a huge difference. Please pray for both of them! Please ask anyone you know to pray! Ruby = Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 So grateful to hear encouraging words...Evin was the last person on my mind and in my thoughts last night....Margie > > > > > > > > > > > > " this week has been probably the most difficult so far. his > > doctors > > > > sat me down yesterday and told me his right lung has not > > improved at > > > > all. they feel we're getting close to the point where we're doing > > > > things " to him " and not " for him " . the switch to the different > > > > ventilator is kind of like a hail mary. this has to work, his > > right > > > > lung has to show some type of improvement by this coming monday. > > > > they'll do a ct scan and if there's been no change, they will more > > > > than likely take him off bypass and the chances for him off bypass > > > > are poor at best. > > > > i'm writing this but i can't let myself absorb any of it. i sobbed > > > > most of yesterday, breaking down in front of my family last night. > > > > i'm trying my best to stay strong, and i believe in my son... the > > > > kind of terror i feel right now just can't be explained. evin is > > > > every dream, wish on a star, prayer and penny thrown in a fountain > > > > come true. if you know of any prayer list he's not already on, > > > > please put him on it. i can't lose my son. i can't lose my son > > and i > > > > will never let go or stop fighting. " > > > > > > > > This is an excerpt from an email I received earlier this evening > > > > written by a mom in our local Down syndrome association. The mom > > > > who wrote this email is talking about her only child who is 7 > > months > > > > old. He had his AVSD repaired in December and all seemed well. He > > > > got sick with I believe pneumonia a few weeks ago and was put into > > > > Levine Children's Hospital here in Charlotte, NC. I know he is on > > > > ECMO and has had many other procedures done to try to improve his > > > > condition but it doesn't sound like anything is making a huge > > > > difference. Please pray for both of them! Please ask anyone you > > > > know to pray! > > > > > > > > Ruby > > > > > > > > = > > > > > > > > > > > > > > > > > > > > > > Quote Link to comment Share on other sites More sharing options...
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